#CPChatNow Recap- 11-29-2017

Assorted conversations occurred Wednesday, November 29th, 2017 during the cerebral palsy Twitter chat #CPChatNow. I am co-host Zachary Fenell, here to summarize the dialogue into your weekly recap. Tone throughout the night varied from empathetic and humorous to more serious.

Rachel shares she almost fell earlier in the day without a sense of what happened.Both co-host Devin and I empathized with Rachel when she shared she almost fell earlier in the day. Rachel described the situation tweeting in-part, “don’t even have a sense of what happened… my muscles just decided to go on strike.”

Her description made me recall the second fall I endured amidst my marathon Sunday, October 8th, 2017. Meanwhile Devin noted experiencing similar scenarios. For him he ends up going backwards. Devin and I additionally each answered a question raised by participant Seth.

Seth asks if anyone knows a republican with cerebral palsy.Curiosity sparked Seth to ask if anyone knows a republican with CP. I mentioned seeing social media posts containing republican ideals published by others with CP. However, I added not asking about party affiliation. Close-minded attitudes make political discourse difficult to enjoy in my opinion. Devin agreed, expressing indifference towards the two main parties. Furthermore Devin voiced frustration regarding another subject.

Devin is tired of a society where individuals with disabilities are never seen and even worse, killed in an act of "mercy."Retweeting a news story emerging too often, Devin vocalized disgust. The piece centers around an adult woman with a disability who some “never seen” and her parents. The father killed the mom and daughter prior to taking his own life. Actions certain people in society reacted to with sympathy. A reaction tiring to Devin.

Similarly, I found the news piece sickening. I theorized such instances happen due to the misconception people with disabilities cannot live valuable lives. #CPChatNow regular Shira Sadiky chimed in, saying these unfortunate attitudes motivate her. She wants to prove those people wrong!

Fellow #CPChatNow regular Susanne Kate Brasset also provided her insight.

Susanne considers news stories like the one Devin shared as a communications tool to get word out about what people with disabilities can do.Susanne viewed the scenario partially a communication issue. She sees multiple people with disabilities posting online unfamiliar with available resources. Within her comments Susanne hit upon key advice. “You never know unless you ask.”

Later in the evening chatter returned to advice when I tweeted an article I read previously in the day.

Zachary asks #CPChatNow what advice they would give their younger selves.Building off the article I tweeted, I asked “What advice would you give your younger self?” Long-time chat regular Blemi would advise her younger self to “Keep on keeping on. Life does get better.”

Seth additionally encouraged with his wisdom. “Living on your own isn’t as scary as you think.” Your turn! Ponder your life lessons and answer for the week’s extend-the-conversation question, “What advice would you give your younger self?”

This week's extend-the-conversation question asks "What advice would you give your younger self?"

Answer the week’s extend-the-conversation question with a comment in the “Comments” section.

Leave a comment in the “Comments” section below to respond. No reason the conversation must stop after Wednesday. Keep the dialogue going!

Plus consider following our Facebook fan page. The page shares recent cerebral palsy related stories and will keep you updated on our latest announcements.

Until next time!

-Zachary

 

 

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#CPChatNow Recap- 11-15-2017

Participants in the live cerebral palsy Twitter chat #CPChatNow enjoyed thought provoking conversation Wednesday, November 15th, 2017. I am co-host Zachary Fenell, here to capture the riveting dialogue and allow you to further contemplate the various topics discussed. My co-host Devin Axtman provoked thought early as Blemi and I discussed wait times at the doctor.

While Blemi and Zachary complain about untimely doctors, Devin offers helpful perspective.While Blemi and I joked about untimely doctors, Devin supplied helpful advice and perspective. He plans at least a 30-minute wait into his schedule when he sees the doctor. When waits grow irritatingly long, Devin reminds himself not everyone possesses access to such specialists. What a great mindset!

Dreams emerged another popular topic during the chat November 15th. Seth wondered why so many guys with CP watch wrestling. In my response I suggested a possible “sub-conscious urge to be as muscular and strong.” That idea led Linds to transition the topic to dreams.

Linds asked if anyone in #CPChatNow is ever able-bodied in their dreams. Linds asked if anyone else ends up in their dreams either able-bodied or possessing super strength. Both Seth and I never experienced those abilities in our dreams, but what about you? Answer for the week’s extend-the-conversation question, “Have you ever been completely able-bodied in your dreams?”  Leave your response in the “Comments” section!

Moving on Shira Sadiky joined in the chat expressing her dislike for the term “special needs.” People within our community held passionate opinions regarding the term.

Those in the #CPChatNow community give their opinions on the term "special needs."Devin theorized the term “special needs” remains people’s efforts to make disability “cute.” Shira agreed, suggesting the cuter phrasing enable those without a disability to feel better when thinking about us with disabilities. Talking out the subject left Shira frustrated, asking “They don’t even experience it so why do they get to decide?”

Empathizing Devin referenced the disability rights movement rally cry “Nothing about us without us.” The fact people make decisions regarding disabilities without talking to those with disabilities sickens Shira. I helped place context to the situation explaining how only decades ago many thought death offers a better fate than living with a disability. Said point hit home with Blemi.

Blemi remembers as a little girl telling her father she wished she was never born.Blemi recalled as a little girl telling her father she wished she was never born. Remembering the comment saddened Blemi. Shira and I however understood the difficulty and why little girl Blemi would say what she said.

Meanwhile Devin analyzed the potential reasoning behind the “Better dead than living with a disability” mentality.

Devin speculates an assumption of incompetence as the reason for the attitude "better dead than living with a disability."Assumptions people with disabilities cannot do many tasks Devin believes powers the “better dead than living with a disability” attitude. Any incompetent assumptions get destroyed by looking at our #CPChatNow recap archives. Our community showcases thriving possibilities and will continue doing so. That leads to a couple community specific discussions. First, Devin announced our November 2017 Google Hangout date.

#CPChatNow will hold their November 2017 Google Hangout Thursday, November 30th at 8pm ET.Hopefully you join us for our video chat via Google Hangouts Thursday, November 30th, 2017. We do not share the link publicly for privacy reasons. So if you wish to join us, message the #CPChatNow Facebook fan page.

Secondly, #CPChatNow also stands ready to start planning a new shirt sale. Initial steps involves collecting design ideas. Time to speak up on what you want to see in the next #CPChatNow gear.

#CPChatNow co-hosts want your design ideas for the next #CPChatNow shirt.Think like Shira and let us co-hosts Devin, Jorge Otezia, and I know your design ideas for the next #CPChatNow shirt. Before sharing your shirt ideas with us though, remember the extend-the-conversation question awaiting your response.

Answer in the "Comments" section "Have you ever been completely able-bodied in your dreams?"“Have you ever been completely able-bodied in your dreams?”

Respond below in the “Comments.” If yes, please give some details.

Until next time,

-Zachary

 

#CPChatNow Recap- 11-01-2017

Another Wednesday passed Wednesday, November 1st, 2017 and with Wednesday comes another cerebral palsy Twitter chat. Obviously I, co-host Zachary Fenell, am referencing our beloved #CPChatNow. For nearly four years our chat has given us in the cerebral palsy community reason to anticipate Hump Day.

The very first #CPChatNow happened Tuesday, December 3rd, 2013. I along with fellow authors John W. Quinn (Someone Like Me: An Unlikely Story of Challenge and Triumph Over Cerebral Palsy) and Handicap This‘ Tim Wambach (How We Roll) joined forces to co-host the special chat. At the time we did not plan to make the chat a weekly deal. However, YOUR feedback quickly turned #CPChatNow into a weekly occurrence.

Truthfully, I felt honored putting my name alongside Tim and John’s as #CPChatNow co-founders. Both individuals I came to know about and respect through my set “cerebral palsy” Google Alerts. Connecting personally with them each started on Twitter. An opportunity no longer available with one.

Zachary shares news that #CPChatNow original co-host John W. Quinn has left Twitter.John decided to leave Twitter due to increased negativity on the platform. As I explained to regular Shira Sadiky the news saddened me because others will not enjoy the same opportunity I enjoyed to connect with John. Nevertheless those around in the early days will surely recall John preaching not to dwell on problems but find solutions. That led me to ask a question.

Zachary and Jen discuss staying positive and tuning out negative forces.Long-time regular Jen looked forward to learning how others stay positive and tune out negative forces. I offered up my tips. Ignore people trolling. Avoid Twitter during highly politicized events. Also hide aggressive and insulting users from your feed so you do not see their tweets.

Your turn now! Answer for the week’s extend-the-conversation question “How do you stay positive and tune out negative forces?”

The week's extend-the-conversation question asks, "How do you stay positive and tune out negative forces?" Reply in the "Comments" section.Respond in the “Comments” section below! Then remember to join us tonight on Twitter at 8pm ET! Twitter recently expanded character limits to 280 characters. That should allow our conversations to thrive more!

Tweet you then,

Zachary

#CPChatNow Recap- Dr. Karen Pape Focus Chat

#CPChatNow remained abuzz Wednesday, October 18th, 2017 when retired clinical neuroscientist and author Dr. Karen Pape joined the Twitter chat. I am co-host Zachary Fenell, who regrettably forgot to ask the doctor about a cure for tardiness. Thankfully her insights prove timeless. So let us move forward with a recap.

Dr. Karen Pape joined #CPChatNow Wednesday, October 18th, 2017 to lead a focus chat about "never too late to change in life."The night’s theme involved Dr. Pape’s findings that a brain can recover, but habit often hides said fact. Thus no matter your age, you stand “never too late to change in life.” A concept Dr. Pape details in her Winnipeg Tedx Talk.

Ironically, you could argue Dr. Pape embodied the focus chat’s title through participating in #CPChatNow. She shared she previously never partook in a Twitter chat.

Dr. Karen Pape shares that #CPChatNow is her first Twitter chat.Hannah Pike and many others expressed their gratitude towards Dr. Pape joining us. Soon the conversation spurred off into multiple directions. Participants, both new to #CPChatNow and our regulars, asked the doctor their questions. Linds asked Dr. Pape to give an overview regarding what the doctor does.

Linds asks Dr. Pape for an overview of the work the doctor does.Happy to oblige, Dr. Pape summarized her bio and credentials as follows.

Dr. Pape sums up her impressive resume in 140 characters or less.Compressing her impressive resume down to fit in one tweet Dr. Pape mentioned she retired from her clinical neuroscientist work and wrote a book, The Boy Who Could Run but Not Walk. Additionally Dr. Pape expressed her motivation, to make people more optimistic.

Hopefully throughout the night participants found optimism within Dr. Pape’s responses. She certainly provided practical feedback. For instance, take an issue raised while Hannah and I discussed Dr. Pape’s Tedx Talk.

Zachary and Hannah discuss Dr. Pape's Tedx Talk, noting activities they want to do. Those who keep up with me personally know I am actively walking 5ks and even recently a full marathon! Yet Dr. Pape’s Tedx Talk left me wondering if I could do more. Perhaps I could actually run! Dr. Pape advised a couple options to get started.

Dr. Pape advises Zachary on how to overcome habit and learn to run.Dr. Pape suggested I walk backwards along a wall or try running on a treadmill. She also encouraged Hannah to get dancing. Your turn to add to the conversation! Answer for the extend-the-conversation question, “What is something you always wanted to do?”

Leave your response in the “Comments” section. Maybe your response will stimulate further dialogue. Just like how Dr. Pape’s answers led to follow-up questions and further chatter!

Dr. Karen Pape's response to a question about vision leads Susanne Kate Brass to ask a follow-up question.Dr. Pape’s reply to another question regarding vision left regular Susanne Kate Brass wondering if a connection existed between neurological injury and eye issues.

Dr. Pape responds to Susanne's question whether there stands a connection between brain injury and vision impairment.In responding to Susanne’s question Dr. Pape made an often overlooked point. Health care in general involves seeing an eye doctor. Susanne explained her question, noting many people with CP she knows deal with visual impairment.  I chimed in, mentioning a statistic I read saying at least three-fourths in the cerebral palsy population face vision issues. A statistic I came across researching a blog post, “Kindle Fire Accessibility for Reading Books.” Dr. Pape challenged my statistic, emphasizing the general health aspect to vision.

Dr. Pape challenges the vision/cerebral palsy statistic Zachary brought up.Around 9:30pm Dr. Pape needed to bid adieu. After thanking Dr. Pape for her time and insights, participants enjoyed some free chat time. Susanne raised an important topic worth highlighting here.

Susanne asks if anyone in #CPChatNow made a #MeToo post.While missing in the above screen shot, Susanne explained a #MeToo post encourages sexual assault victims to speak out and tell their stories. A topic unfortunately linked to our community since people with disabilities can end up more vulnerable to such assaults.

Although the subject seemed important to incorporate into the week’s recap, let us not end on such a heavy note. Instead remember to answer the extend-the-conversation question.

This week's extend-the-conversation question asks "What is something you always wanted to do?"“What is something you always wanted to do?”

Your response should entail a task currently difficult to you due to your cerebral palsy. Leave those below.

Until next time,

Zachary

#CPChatNow Recap- 10-11-2017

Celebratory vibes pulsed through the live cerebral palsy Twitter chat #CPChatNow Wednesday, October 11th, 2017. I am co-host Zachary Fenell and I am here to recap the congratulatory messages and laughter. Admittedly the night failed to start on an uplifting note. Participants remained emotionally drained from difficult weeks. They hoped others possessed better moods. A hope I could fulfill.

Zachary Fenell takes #CPChatNow into an uplifting mood with news he successfully completed the Towpath Marathon the previous Sunday (October 8th 2017)

Finishing the Towpath Marathon’s entire 26.2-mile course the previous Sunday (October 8th, 2017) left me entering the chat still maintaining positive momentum. The congratulations given by the #CPChatNow community continued the cheerful feedback I received since October 8th. Many people knew my story heading into the marathon due to a news article published in Cleveland’s The Plain Dealer.

Zachary asks #CPChatNow participants for their thoughts on The Plain Dealer article covering his unreasonable marathon journey.After jokingly hassling me for my self-centered focus, Susanne Kate Brasset gave her approval on the piece. Susanne specifically liked my point calling normal a myth. Take a read yourself and form your own opinion, “A Man, His Cane, and 26.2 ‘Unreasonable’ Miles to Prove His Own Doubts Wrong.”

Meanwhile my co-host Devin Axtman expressed interest in the details relating to my near 12-hour walk.

Devin asks Zachary if he took any breaks during the marathon and what he ate throughout the day.Particularly Devin wondered what I ate and if I took any breaks. Enough marathon talk nonetheless! We discussed other subjects too! In fact I announced our October focus chat guest. One #CPChatNow co-founder and original co-host Handicap This! piped up to call a “great get.”

Dr. Karen Pape receives praise from original #CPChatNow co-founder Handicap This!Current co-host Jorge Oteiza played a vital role in scheduling the Dr. Karen Pape focus chat. Dr. Pape possesses an incredible reputation as a groundbreaking and innovating clinical neuroscientist. We excitedly welcome her to #CPChatNow.

While groundbreaking and innovating work in the medical field stands important, do not forget the basics. The cliche “laughter is the best medicine” comes to mind. Laughter’s value emerged a hot topic Wednesday, October 11th.

The #CPChatNow community discusses the merits of laughter.Like Susanne states, laughter emits much positive energy. Perhaps you rely on a certain joke to get you laughing amidst rough times. Tell us that joke by answering the week’s extend-the-conversation question.

Answer this week's extend-the-conversation question, "What is your go-to joke you tell yourself when you need to laugh?"“What is your go-to joke you tell yourself when you need to laugh?” 

Share by commenting below. I’m ready to begin laughing hysterically.

Until next time #CPChatNow!

-Zachary

 

#CPChatNow Recap- 09-27-2017

Another month in the live cerebral palsy Twitter chat #CPChatNow’s history came to a close Wednesday, September 27th, 2017. I am original #CPChatNow co-founder and current co-host Zachary Fenell, here with highlights for all. You know what I am talking about, recap time!

Familiar faces returning gave the night a reunion-like feel. First, past participant Timmy Le popped in.

A familiar face to long-time CPChatNow regulars found time for the September 27th Twitter chat, Timmy Le! Unfortunately, at the start “everyone” only included Jen and myself. However with time, more individuals started showing up.

Co-host Devin Axtman apologizes for his tardiness, mentioning a rough March. Yes, March!My co-host Devin Axtman apologized for his tardiness, citing a tough March! Devin quickly realized his misspeak.

Devin quickly catches his misspeak.Regular Hannah Pike noted forgetting the month signifies a long month. I jokingly theorized the mix-up related to cerebral palsy awareness initiatives. The United States acknowledges March as CP Awareness Month. Meanwhile an international awareness initiative, World CP Day, remains days away!

A short while later another name from CPChatNow’s past re-surfaced.

Kate takes a study break from nursing school to re-surface in CPChatNow.Kate found time in her busy nursing school schedule to check in with us at #CPChatNow. Devin expressed admiration towards Kate’s desire to go into nursing. The course load proves challenging in general, let alone with the additional obstacles cerebral palsy may cause.

Potential cerebral palsy caused obstacles also came up regarding interacting with children. Recently becoming an uncle, I possessed curiosity about others with nieces or nephews and how CP impacts their abilities as an aunt or uncle.

Zachary asks if having CP hinders anyone's abilities to be an aunt or uncle.Susanne Kate Brasset responded, mentioning kids’ ability to adapt. Sentiments Jocelyn supported, talking about her niece and nephew.

Jocelyn recalls a recent conversation she had with her seven-year old niece about disability.Jocelyn talks more about her niece and nephew, noting her four-year old nephew warned her about a railing issue.The stories Jocelyn shared about her niece and nephew displayed children’s willingness to learn and their thoughtfulness. Maybe you hold insights helpful to the subject. Keep the conversation going then!

Answer for the week's extend-the-conversation question, "Have you found cerebral palsy hinders your ability to be an aunt or uncle at all?" Leave your reply in the "Comments" section.Answer for the week’s extend-the-conversation question, “Have you found cerebral palsy hinders your ability to be an aunt or uncle at all?”

Leave your reply by commenting below. Until next time!

-Zachary

 

#CPChatNow Recap- 09-13-2017

Disability’s presence on the big and small screen proved a popular topic during the cerebral palsy Twitter chat #CPChatNow Wednesday, September 13th, 2017. Here to provide you some highlights circa the weekly recap, I am co-host Zachary Fenell. So just like you might at the movie theater sit back, relax, and enjoy.

As per our usual, #CPChatNow opened with participants sending each other greetings and pleasantries. Long-time regular Hannah Pike metaphorically called “action,” directing the conversation to the previously mentioned topic.

Long-time #CPChatNow regular Hannah Pike turns the conversation to acting and disabilities sharing an article she recently read.Personally I found the read thought provoking. You can form your own judgements reading the Deadline piece “Actors with Disabilities Find Little Work in TV, But CBS & FOX Lead the Way in Hiring.”  Hannah and I agreed discussing the issue remains important. I pointed out how seeing someone you can identify with on the small screen may boost self-esteem. That leads to today’s extend-the-conversation question.

“Has there been a certain movie or TV character who helped you see disability differently?” Answer in the “Comments” section. Meanwhile you might notice the piece Hannah tweeted exclusively addressed disability on TV. Talk additionally transitioned to movies courtesy another long-time regular, Blemi.

Another long-time #CPChatNow regular Blemi recalls seeing a movie trailer recently which angered her.She recalled seeing a movie trailer for the film Stronger and cringing. My co-host Devin Axtman believed he reacted similarly when he saw the trailer. However, upon me finding the trailer and posting he recanted.

The #CPChatNow community goes in-depth discussing the Stronger movie trailer.Devin explained the trailer differed from what he originally thought. Further dialogue pursued while we tried understanding our differing opinions. Amidst the chatter Devin noted he enjoyed the way the trailer portrays adjusting to disabled life as non-static. All the movie discussion left veteran participant Jen asking about a separate disability related trailer.

Jen asks #CPChatNow about who has seen the trailer for Jeremy the Dud. We all seemed to find the Jeremy the Dud trailer hilarious. Beyond the movie and TV talk, Devin also announced our September 2017 Google Hangout date.

#CPChatNow will hold their September 2017 Google Hanout Thursday, September 21st. Every month we hold a video chat via Google Hangouts. For privacy reasons we do not post the Hangout link publicly. If you want to join us, please send us a message through our Facebook fan page. Devin, our co-host Jorge Oteiza, or myself will respond to you.

Answer this week's extend-the-conversation question in the "Comments" section, "Has there been a certain movie or TV character who helped you see disability differently?"Mentioning responses, remember to respond to the week’s extend-the-conversation question.

“Has there been a certain movie or TV character who helped you see disability differently?”

Reply below! I hope to speak with you again soon.

-Zachary