#CPChatNow Recap- 04-18-2018

#CPChatNow’s communal atmosphere remained on full display Wednesday, April 18th, 2018 during the weekly Twitter chat. Familiar faces returning after lengthy absences helped to establish the night’s tone. Here to tell you all about the evening, I am co-host Zachary Fenell.

Those aforementioned familiar faces referenced included long-time participant Hannah Pike and always busy co-host Jorge Oteiza. Other participants warmly greeted the two.

#CPChatNow participants warmly welcome back Hannah and Jorge.Co-host Devin utilized a wrestling GIF to welcome Hannah and Jorge. Such a GIF demonstrates another aspect to our friendly community. Perhaps an element to discuss in a future recap! For now, let us catch up with Hannah and Jorge.

Some serious health issues kept Hannah away from #CPChatNow. Issues she recently detailed while blogging.

Hannah gives #CPChatNow an update on her health.Despite personally already knowing Hannah’s situation, reading her blog post still made me shudder. The seriousness that comes along brain surgery proving undeniable. Take a look and read yourself, “The Setbacks Leading to the Comeback.”

Thankfully the reasoning behind Jorge’s absence involves a lot less dire circumstances. College and work continues to keep him pre-occupied. As Jorge explained, an earlier shift allowed him to make the week’s chat.

Elusive #CPChatNow co-host Jorge Oteiza makes his #CPChatNow return.Just like Hannah, participants excitedly met Jorge. Specifically, Shira Sadiky recounted how Jorge helped her feel comfortable when she first joined #CPChatNow a couple years ago. Comfort definitely stands important towards building a strong community.

What other characteristics do you also find valuable in a community? Answer for the week’s extend-the-conversation question, “What characteristics make for a strong community?” Respond in the “Comments” section.

Maintaining the communal theme, remember #CPChatNow’s forthcoming April 2018 Google Hangout.

#CPChatNow will hold their April 2018 Google Hangout Thursday, April 26th. The monthly Hangout allows our community to chat using a more open platform. No character limits! Plus video chatting adds communication factors like tone of voice and facial expressions, enhancing the dialogue! Due to privacy reasons, the link to the Hangout does not go out publicly. Perchance you want to join us, message the #CPChatNow Facebook fan page to let us know.

This week's extend-the-conversation question asks, "What characteristics make for a strong community?"Before visiting our Facebook page though, answer the week’s extend-the-conversation question! “What characteristics make for a strong community?” Answer by commenting below! I eagerly await seeing your replies.

Until next time,

-Zachary

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#CPChatNow Recap- 4-11-2018

This past week in #CPChatNow was busy as always.  Members talked about birthdays, lost family members, and writing books. This is #CPChatNow Co-Host, Devin Axtman, taking you along for this week’s recap.

First, we have to wish a happy birthday to Shira!  She talked about her feelings upon turning 17:

Shira discussing her feelings upon turning 17, sometimes feeling old, sometimes feeling like a young girl

Talk then turned a memorial service at my university and Zach shared it was his late aunt’s birthday:

Zach pointing out that today was his late aunt's 63 birthday. Shira stated it was OK to remember loved ones. Zach shared his aunt was a pediatric nurse that helped his family

Zach and I discussed how his aunt’s occupation as a pediatric nurse helped his family with his CP diagnosis:

Zach and I discussed how his aunt's occupation as a pediatric nurse helped his family with his CP diagnosis

Finally, Zach talked about going to author events in preparation for writing his next book, a story on his journey from not participating in PE to completing a marathon this past year:

Zach and Shira talking about Zach going to author events in preparation for his new book on his journey to being a marathoner

This bring us to our Extend-The-Conversation Question: If you wrote a book about your life, what would be your topic?  Please share your answers in the comments!

Tweet you later!

-DevinA notebook on a brown table with a pen. Extend-The-Conversation Question and If you wrote a book about your life, what would be the topic? are in white above the notebook. The multicolored #CPChatNow logo is in the bottom lefthand corner

#CPChatNow Recap- 04-04-2018

Assorted subjects came and went during the live cerebral palsy Twitter chat #CPChatNow Wednesday, April 4th, 2018. I am co-host Zachary Fenell here to play reporter and give you your weekly recap. A challenge given the various topics discussed!

Early on the chatter contained a downer tone. Participants shared difficult life situations they currently face. Looking to turn the dialogue upbeat, I asked about positive happenings, no matter how small!

Zachary seeks to turn the conversation positive by asking participants to share even the smallest positive happening!Shira expressed feeling happy despite some physical health issues. Meanwhile the Texas Rangers winning the night before gave Jen joy. Sports became a re-occurring topic when I tweeted out a recent news story, “Watonsville Student-Athlete with Cerebral Palsy Hopes to Inspire, Bring Change.”

Devin and Zachary discuss what impresses them about Carlos' story.My co-host Devin also enjoyed the article. He and I noted what resonated with our respective selves. Devin liked how Carlos seemed “like he’s one of the guys.” Personally, the coach working with Carlos’ psychologist and physical therapist impressed me.

Speaking about physical therapists, physical therapy arose as a conversation generator.

Chris finds PT should stand for physical torture!Chat regular Chris made mention her neurologist ordered “physical torture.”  Physical torture meaning physical therapy (PT). I recalled other participants vocalizing similar sentiments towards PT in past chats.

Want to add in your opinion? You can by answering this week’s extend-the-conversation question. “How would you describe physical therapy?” Leave your response in the “Comments” section.

Also worth mentioning from our chat Wednesday, April 4th, we announced the date for our April 2018 Google Hangout.

#CPChatNow will hold their monthly Google Hangout for April 2018 Thursday, April 26th.If you like joining the monthly video chat, mark your calendars for Thursday, April 26th. To maintain a safe environment, we do not send out the Hangout link publicly. To get added to the invite list, contact Devin or myself. Before reaching out though, remember to answer the week’s extend-the-conversation question.

This week's extend-the-conversation questions asks, "How would you describe physical therapy?"“How would you describe physical therapy?”

Respond via commenting below.

Until next time!

-Zachary

#CPChatNow Recap- 3-28-2018

#CPChatNow was especially fantastic last week!  Longtime member, Rachel Folly, led a focus chat on the past year in members’ lives and developments for adults with CP.

Rachel introducing the chat topic

For her first question, Rachel asked if members had any CP related goals for the year and how they went.  Zach and Linds talked about blogging: Zach and Linds talking about their goals of blogging. Linds stated she does not have a specific posting goal

Zach said he has accomplished a goal of increasing his reverse crunches:

Zach tweeting about increasing his reverse crunches from 37 to 43

Rachel then asked members about how their CP has changed as they have aged and what they are doing in response.  Linds mentioned exercising by doing things like Zumba:

Rachel asked members if their CP had changed and what they were doing about it. Linds mentioned Zumba

Zach and I talked about increased back pain.  Zach combats this by strategically placed pillows:

Zach and I talked about back pain. Zach said he combats back pain with pillows

Jen mentioned that she experiences pain, but sometimes feels guilty because it is moderate. Rachel tweeted that everyone’s CP is unique.

Jen worried about her moderate CP pain and Rachel tweeted that everyone's CP experience is different

The next question revolved around what members saw in the media about adults with CP in the past year and how it impacted them.  Members largely answered with the story of an adult with CP being assaulted at a gas station. Additionally stories mentioning Zach and another person with CP completing a marathon arose.

Rachel asked about stories in the media about adults with CP. Members mainly shared stories about the adult with CP who was attacked at a gas station Rachel then asked what members would like to see change regarding CP next year.  Members talked about a need for medical professionals to learn how to better manage CP:

Rachel asking what members want to see change with CP. Jen mentioned better medical management

Linds tweeted about wanting to continue to educate others that people with CP are first and foremost human, like anyone else.

Linds tweeted she will continue her education of normal being a myth

Rachel’s final question asked what members do to stay upbeat and focused on the long term.  Linds stated she will do what she wants despite her health conditions:

Rachel asked what members do to stay upbeat. Linds stated she will continue to do what she wants to experience

Yasmin talked about the power of music and other activities in her life:

Yasmin tweeted about taking it day by day and importance of music, reading, and other activities

This brings us to our extend-the-conversation question.  As we move past CP Awareness Month, what are your goals for the upcoming year in regards to CP? Extend the conversation graphic. Goal in blue letters with the O a bullseye. The Extend-The-Conversation Question As we move past CP Awareness Month, what are your goals for the upcoming year in regards to CP? is below the graphic  Please share your answers in the comments!

Thanks for following along and tweet you later!

-Devin