#CPChatNow Recap- 11-29-2017

Assorted conversations occurred Wednesday, November 29th, 2017 during the cerebral palsy Twitter chat #CPChatNow. I am co-host Zachary Fenell, here to summarize the dialogue into your weekly recap. Tone throughout the night varied from empathetic and humorous to more serious.

Rachel shares she almost fell earlier in the day without a sense of what happened.Both co-host Devin and I empathized with Rachel when she shared she almost fell earlier in the day. Rachel described the situation tweeting in-part, “don’t even have a sense of what happened… my muscles just decided to go on strike.”

Her description made me recall the second fall I endured amidst my marathon Sunday, October 8th, 2017. Meanwhile Devin noted experiencing similar scenarios. For him he ends up going backwards. Devin and I additionally each answered a question raised by participant Seth.

Seth asks if anyone knows a republican with cerebral palsy.Curiosity sparked Seth to ask if anyone knows a republican with CP. I mentioned seeing social media posts containing republican ideals published by others with CP. However, I added not asking about party affiliation. Close-minded attitudes make political discourse difficult to enjoy in my opinion. Devin agreed, expressing indifference towards the two main parties. Furthermore Devin voiced frustration regarding another subject.

Devin is tired of a society where individuals with disabilities are never seen and even worse, killed in an act of "mercy."Retweeting a news story emerging too often, Devin vocalized disgust. The piece centers around an adult woman with a disability who some “never seen” and her parents. The father killed the mom and daughter prior to taking his own life. Actions certain people in society reacted to with sympathy. A reaction tiring to Devin.

Similarly, I found the news piece sickening. I theorized such instances happen due to the misconception people with disabilities cannot live valuable lives. #CPChatNow regular Shira Sadiky chimed in, saying these unfortunate attitudes motivate her. She wants to prove those people wrong!

Fellow #CPChatNow regular Susanne Kate Brasset also provided her insight.

Susanne considers news stories like the one Devin shared as a communications tool to get word out about what people with disabilities can do.Susanne viewed the scenario partially a communication issue. She sees multiple people with disabilities posting online unfamiliar with available resources. Within her comments Susanne hit upon key advice. “You never know unless you ask.”

Later in the evening chatter returned to advice when I tweeted an article I read previously in the day.

Zachary asks #CPChatNow what advice they would give their younger selves.Building off the article I tweeted, I asked “What advice would you give your younger self?” Long-time chat regular Blemi would advise her younger self to “Keep on keeping on. Life does get better.”

Seth additionally encouraged with his wisdom. “Living on your own isn’t as scary as you think.” Your turn! Ponder your life lessons and answer for the week’s extend-the-conversation question, “What advice would you give your younger self?”

This week's extend-the-conversation question asks "What advice would you give your younger self?"

Answer the week’s extend-the-conversation question with a comment in the “Comments” section.

Leave a comment in the “Comments” section below to respond. No reason the conversation must stop after Wednesday. Keep the dialogue going!

Plus consider following our Facebook fan page. The page shares recent cerebral palsy related stories and will keep you updated on our latest announcements.

Until next time!

-Zachary

 

 

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#CPChatNow Recap- 11-22-2017

The chat before Thanksgiving was very eventful as members talked about moving their impacted side(s), difficulty with insurance companies, inaccessible houses during the holidays, and more.  This is #CPChatNow Co-Host, Devin Axtman, and I will be taking you along for this week’s recap.

We begin this week’s recap with Rachel and I discussing having to purposely focus more on moving our impacted side(s):

Rachel and I discussion about movement on our impacted side

Next, Chris and Zach discussed the difficulties of dealing with insurance companies and the added frustration that comes with knowing the proposed treatment would save money in the long run:

Chris discussing frustration with getting her asthma treatments covered

Finally, much of the talk in the chat was surrounding member’s holiday plans.  Talk soon turned to accessibility issues members had while visiting family and strategies they had to deal with them:

Paul and Zach also discussed family member’s houses with stairs and sliding on their butts to go down them:

Paul and Zach discussing sliding down the stairs on their butts

This brings to our Extend-The-Conversation Question: What are some out of the box solutions you have used in inaccessible situations?  Please share your answers in the comments and join us every Wednesday at 8 Eastern at #CPChatNow on Twitter.

The extend-the-conversation question with a picture of a box with a green arrow in the center

-Tweet you later

Devin

 

#CPChatNow Recap- 11-15-2017

Participants in the live cerebral palsy Twitter chat #CPChatNow enjoyed thought provoking conversation Wednesday, November 15th, 2017. I am co-host Zachary Fenell, here to capture the riveting dialogue and allow you to further contemplate the various topics discussed. My co-host Devin Axtman provoked thought early as Blemi and I discussed wait times at the doctor.

While Blemi and Zachary complain about untimely doctors, Devin offers helpful perspective.While Blemi and I joked about untimely doctors, Devin supplied helpful advice and perspective. He plans at least a 30-minute wait into his schedule when he sees the doctor. When waits grow irritatingly long, Devin reminds himself not everyone possesses access to such specialists. What a great mindset!

Dreams emerged another popular topic during the chat November 15th. Seth wondered why so many guys with CP watch wrestling. In my response I suggested a possible “sub-conscious urge to be as muscular and strong.” That idea led Linds to transition the topic to dreams.

Linds asked if anyone in #CPChatNow is ever able-bodied in their dreams. Linds asked if anyone else ends up in their dreams either able-bodied or possessing super strength. Both Seth and I never experienced those abilities in our dreams, but what about you? Answer for the week’s extend-the-conversation question, “Have you ever been completely able-bodied in your dreams?”  Leave your response in the “Comments” section!

Moving on Shira Sadiky joined in the chat expressing her dislike for the term “special needs.” People within our community held passionate opinions regarding the term.

Those in the #CPChatNow community give their opinions on the term "special needs."Devin theorized the term “special needs” remains people’s efforts to make disability “cute.” Shira agreed, suggesting the cuter phrasing enable those without a disability to feel better when thinking about us with disabilities. Talking out the subject left Shira frustrated, asking “They don’t even experience it so why do they get to decide?”

Empathizing Devin referenced the disability rights movement rally cry “Nothing about us without us.” The fact people make decisions regarding disabilities without talking to those with disabilities sickens Shira. I helped place context to the situation explaining how only decades ago many thought death offers a better fate than living with a disability. Said point hit home with Blemi.

Blemi remembers as a little girl telling her father she wished she was never born.Blemi recalled as a little girl telling her father she wished she was never born. Remembering the comment saddened Blemi. Shira and I however understood the difficulty and why little girl Blemi would say what she said.

Meanwhile Devin analyzed the potential reasoning behind the “Better dead than living with a disability” mentality.

Devin speculates an assumption of incompetence as the reason for the attitude "better dead than living with a disability."Assumptions people with disabilities cannot do many tasks Devin believes powers the “better dead than living with a disability” attitude. Any incompetent assumptions get destroyed by looking at our #CPChatNow recap archives. Our community showcases thriving possibilities and will continue doing so. That leads to a couple community specific discussions. First, Devin announced our November 2017 Google Hangout date.

#CPChatNow will hold their November 2017 Google Hangout Thursday, November 30th at 8pm ET.Hopefully you join us for our video chat via Google Hangouts Thursday, November 30th, 2017. We do not share the link publicly for privacy reasons. So if you wish to join us, message the #CPChatNow Facebook fan page.

Secondly, #CPChatNow also stands ready to start planning a new shirt sale. Initial steps involves collecting design ideas. Time to speak up on what you want to see in the next #CPChatNow gear.

#CPChatNow co-hosts want your design ideas for the next #CPChatNow shirt.Think like Shira and let us co-hosts Devin, Jorge Otezia, and I know your design ideas for the next #CPChatNow shirt. Before sharing your shirt ideas with us though, remember the extend-the-conversation question awaiting your response.

Answer in the "Comments" section "Have you ever been completely able-bodied in your dreams?"“Have you ever been completely able-bodied in your dreams?”

Respond below in the “Comments.” If yes, please give some details.

Until next time,

-Zachary

 

#CPChatNow Recap- 11-8-2017

This past week’s #CPChatNow Twitter chat was eventful as always.  Members discussed fixing accessibility problems at work, the helpfulness of blogging, and the independence that something like a parking tag can bring.

A continual theme on #CPChatNow has been working with employers on addressing accessibility related issues.  Zach relayed a story of working with his employer to address a folding mat over a carpet:

Zach relaying a story of working with his employer to correct a folding carpet mat

Next, Lindsey and Zach discussed the importance of blogging in their lives. Lindsey and Zach discussed how blogging is a way to express their thoughts to the world:

Lindsey and Zach discussed how blogging is a way to express their thoughts to the world

Zach and Lindsey also discussed the difficulty of caring what others think:

Zach and Lindsey discussing the difficulty of getting over caring what others think

Next, talked turned to the mixed feelings that using an aid such as a wheelchair, cane, or accessible parking placard can bring:

Zach, Lindsey, and Devin talking about the mixed feelings that come with using an aid that increases independence

Zach and Veronica discussed the assistance that having an accessible parking placard can provide when navigating the giant falling hazards that are known as parking lots:

Zach and Veronica discussing the aid that an accessible parking placard can be when navigating parking lots and the benefits of living in Arizona

This brings us to our Extend-The-Conversation question: What tools related to your CP give you mixed feelings?

Please share your answer in the comments!

Tweet you later

-Devin

#CPChatNow Recap- 11-01-2017

Another Wednesday passed Wednesday, November 1st, 2017 and with Wednesday comes another cerebral palsy Twitter chat. Obviously I, co-host Zachary Fenell, am referencing our beloved #CPChatNow. For nearly four years our chat has given us in the cerebral palsy community reason to anticipate Hump Day.

The very first #CPChatNow happened Tuesday, December 3rd, 2013. I along with fellow authors John W. Quinn (Someone Like Me: An Unlikely Story of Challenge and Triumph Over Cerebral Palsy) and Handicap This‘ Tim Wambach (How We Roll) joined forces to co-host the special chat. At the time we did not plan to make the chat a weekly deal. However, YOUR feedback quickly turned #CPChatNow into a weekly occurrence.

Truthfully, I felt honored putting my name alongside Tim and John’s as #CPChatNow co-founders. Both individuals I came to know about and respect through my set “cerebral palsy” Google Alerts. Connecting personally with them each started on Twitter. An opportunity no longer available with one.

Zachary shares news that #CPChatNow original co-host John W. Quinn has left Twitter.John decided to leave Twitter due to increased negativity on the platform. As I explained to regular Shira Sadiky the news saddened me because others will not enjoy the same opportunity I enjoyed to connect with John. Nevertheless those around in the early days will surely recall John preaching not to dwell on problems but find solutions. That led me to ask a question.

Zachary and Jen discuss staying positive and tuning out negative forces.Long-time regular Jen looked forward to learning how others stay positive and tune out negative forces. I offered up my tips. Ignore people trolling. Avoid Twitter during highly politicized events. Also hide aggressive and insulting users from your feed so you do not see their tweets.

Your turn now! Answer for the week’s extend-the-conversation question “How do you stay positive and tune out negative forces?”

The week's extend-the-conversation question asks, "How do you stay positive and tune out negative forces?" Reply in the "Comments" section.Respond in the “Comments” section below! Then remember to join us tonight on Twitter at 8pm ET! Twitter recently expanded character limits to 280 characters. That should allow our conversations to thrive more!

Tweet you then,

Zachary

#CPChatNow Recap- 10-11-2017

Celebratory vibes pulsed through the live cerebral palsy Twitter chat #CPChatNow Wednesday, October 11th, 2017. I am co-host Zachary Fenell and I am here to recap the congratulatory messages and laughter. Admittedly the night failed to start on an uplifting note. Participants remained emotionally drained from difficult weeks. They hoped others possessed better moods. A hope I could fulfill.

Zachary Fenell takes #CPChatNow into an uplifting mood with news he successfully completed the Towpath Marathon the previous Sunday (October 8th 2017)

Finishing the Towpath Marathon’s entire 26.2-mile course the previous Sunday (October 8th, 2017) left me entering the chat still maintaining positive momentum. The congratulations given by the #CPChatNow community continued the cheerful feedback I received since October 8th. Many people knew my story heading into the marathon due to a news article published in Cleveland’s The Plain Dealer.

Zachary asks #CPChatNow participants for their thoughts on The Plain Dealer article covering his unreasonable marathon journey.After jokingly hassling me for my self-centered focus, Susanne Kate Brasset gave her approval on the piece. Susanne specifically liked my point calling normal a myth. Take a read yourself and form your own opinion, “A Man, His Cane, and 26.2 ‘Unreasonable’ Miles to Prove His Own Doubts Wrong.”

Meanwhile my co-host Devin Axtman expressed interest in the details relating to my near 12-hour walk.

Devin asks Zachary if he took any breaks during the marathon and what he ate throughout the day.Particularly Devin wondered what I ate and if I took any breaks. Enough marathon talk nonetheless! We discussed other subjects too! In fact I announced our October focus chat guest. One #CPChatNow co-founder and original co-host Handicap This! piped up to call a “great get.”

Dr. Karen Pape receives praise from original #CPChatNow co-founder Handicap This!Current co-host Jorge Oteiza played a vital role in scheduling the Dr. Karen Pape focus chat. Dr. Pape possesses an incredible reputation as a groundbreaking and innovating clinical neuroscientist. We excitedly welcome her to #CPChatNow.

While groundbreaking and innovating work in the medical field stands important, do not forget the basics. The cliche “laughter is the best medicine” comes to mind. Laughter’s value emerged a hot topic Wednesday, October 11th.

The #CPChatNow community discusses the merits of laughter.Like Susanne states, laughter emits much positive energy. Perhaps you rely on a certain joke to get you laughing amidst rough times. Tell us that joke by answering the week’s extend-the-conversation question.

Answer this week's extend-the-conversation question, "What is your go-to joke you tell yourself when you need to laugh?"“What is your go-to joke you tell yourself when you need to laugh?” 

Share by commenting below. I’m ready to begin laughing hysterically.

Until next time #CPChatNow!

-Zachary

 

#CPChatNow Recap- 09-27-2017

Another month in the live cerebral palsy Twitter chat #CPChatNow’s history came to a close Wednesday, September 27th, 2017. I am original #CPChatNow co-founder and current co-host Zachary Fenell, here with highlights for all. You know what I am talking about, recap time!

Familiar faces returning gave the night a reunion-like feel. First, past participant Timmy Le popped in.

A familiar face to long-time CPChatNow regulars found time for the September 27th Twitter chat, Timmy Le! Unfortunately, at the start “everyone” only included Jen and myself. However with time, more individuals started showing up.

Co-host Devin Axtman apologizes for his tardiness, mentioning a rough March. Yes, March!My co-host Devin Axtman apologized for his tardiness, citing a tough March! Devin quickly realized his misspeak.

Devin quickly catches his misspeak.Regular Hannah Pike noted forgetting the month signifies a long month. I jokingly theorized the mix-up related to cerebral palsy awareness initiatives. The United States acknowledges March as CP Awareness Month. Meanwhile an international awareness initiative, World CP Day, remains days away!

A short while later another name from CPChatNow’s past re-surfaced.

Kate takes a study break from nursing school to re-surface in CPChatNow.Kate found time in her busy nursing school schedule to check in with us at #CPChatNow. Devin expressed admiration towards Kate’s desire to go into nursing. The course load proves challenging in general, let alone with the additional obstacles cerebral palsy may cause.

Potential cerebral palsy caused obstacles also came up regarding interacting with children. Recently becoming an uncle, I possessed curiosity about others with nieces or nephews and how CP impacts their abilities as an aunt or uncle.

Zachary asks if having CP hinders anyone's abilities to be an aunt or uncle.Susanne Kate Brasset responded, mentioning kids’ ability to adapt. Sentiments Jocelyn supported, talking about her niece and nephew.

Jocelyn recalls a recent conversation she had with her seven-year old niece about disability.Jocelyn talks more about her niece and nephew, noting her four-year old nephew warned her about a railing issue.The stories Jocelyn shared about her niece and nephew displayed children’s willingness to learn and their thoughtfulness. Maybe you hold insights helpful to the subject. Keep the conversation going then!

Answer for the week's extend-the-conversation question, "Have you found cerebral palsy hinders your ability to be an aunt or uncle at all?" Leave your reply in the "Comments" section.Answer for the week’s extend-the-conversation question, “Have you found cerebral palsy hinders your ability to be an aunt or uncle at all?”

Leave your reply by commenting below. Until next time!

-Zachary