#CPChatNow Recap- 12/29/2021

The last #CPChatNow of 2021 had members looking back on their highs and lows of the year and what they had learned along with looking forward to 2022. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, members discussed their highs and lows from 2021:

zach asks about highs and lows, i tweet getting married and low of the cubs season, zach tweeted his high is progressing on his book and getting promoted at work, low is not getting video work done to work on book, blemi tweeted her high is getting engaged and her low is having to leave work

Next, members discussed what they had learned during the year.

zach asks about life lessons from 2021, chris tweets don't ignore what you think are little or insignificant health issues
zach tweets his life lesson is to focus on the present and that he injured his groin because he was not focused on the present. i tweeted that he stole mine and that sometimes things are worth waiting for.

Finally, members discussed their goals for 2022.

zach asks about goals for 2022, i tweeted to stretch more regularly, he tweeted simple goals can have great results and the cold weather has had him needing to stretch, blemi tweeted continuing to get her health back in order.
stephen tweeted to get a girlfriend, zach tweeted getting a signficant other is hard because things are out of your control and it's better to be single than in a bad relationship, chris tweeted to finish her master's degree.

This brings us to our Extend-The-Conversation Question: What are your goals for 2022? Please share your answers in the comments and join us each Wednesday at 8 Eastern on #CPChatNow!

-Devin

#CPChatNow Recap- 12/22/21

The #CPChatNow recap is back! This past week in #CPChatNow was bouncing as always. Members discussed holiday traditions, driving, eye surgeries, and more! This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, I would like to recognize Stephen Commander on his recent birthday! I hope you enjoyed your day!

I also want to recognize Zach’s cool “Don’t blend in, blend out!” holiday sweater.

zach tweeted a picture of him in blue mask and his green don't blend in, blend out green holiday sweater with white snowflakes, sleighs, and reindeer

Fittingly for a few days before Christmas, members discussed their favorite holiday traditions.

zach asks what members favorite holiday traditions are. stephen said eating homemade chex mix with corn and wheat chex, peanuts, and pretzels
blemi tweets she loves watching people open presents she gave them. zach tweets he loves giving gifts when he doesn't have to ask

Next, members discussed the challenges and opportunities that can come from not being able to drive.

stephen tweets he wishes he could drive and not have to rely on his parents. veronica tweeted she was chauffeured by her son this afternoon.
veronica tweeted it was a condition of him getting his license and second car. veronica tweeted her children learned it is different to have a parent with a disability, but they help pay for his car expenses wile he goes through veterinary school
zach responds to stephen by saying he understands, but he has found benefits to not driving by spending bonus time with people he cares about

Finally, Veronica tweeted about her recent laser eye surgery and members asked questions about it.

veronica tweets about a laser treatment she had her eye to help the lens with reading. i ask if the treatments are painful. veronica tweeted the treatment was not painful, she just heard some clicking sounds and built it up to be worse than it is
veronica asked if members have looked at lasik stating she got lasik done after her cataract surgery to fix her stigmatism, blemi tweeted she is always told she is not a candidate for lasik

This brings us to our Extend-The-Conversation Question: What is your most significant medical procedure you have undergone?

extend-the-conversation question graphic:#CPChatNow multicolored logo in upper right hand corner, what is the most significant medical procedure you have undergone? above a picture of 3 people in medical scrubs working on a patient in an operating room

Please share your answers in the comments and join us each Wednesday on Twitter at 8 Eastern on #CPChatNow!

-Devin

#CPChatNow Recap- 12-08-2021

On Wednesday, December 8th, 2021 the weekly cerebral palsy Twitter chat #CPChatNow enjoyed a lively conversation. To tell you more, I am chat co-host Zachary Fenell. Shall we get to recapping?

Several topics came and went throughout the evening Wednesday, December 8th. Thus why I described the night as “lively.” Early in the evening Alessandro brought life to the chat, asking a question.

Alessandro asks #CPChatNow if they have moments where they are so deep into whatever they're doing, that they forget they have CP.

Alessandro explained recently he has experienced moments where he has been so deep into whatever he was doing, that for a split second he forgets he has CP. Curious, he wanted to know if others encountered similar experiences. Both my co-host Devin Axtman and I said no, even noting dealing with cerebral palsy in our dreams. Meanwhile, Jen said sometimes. However, she could not pinpoint an exact moment. Jen and Alessandro were not alone either.

Blemi shares her experiences about forgetting she has cerebral palsy and what jolts her to remember.

Blemi stated she tends to forget she has CP until she trips over something. Or, until she leaves the house and people stare at her. Stares which sometimes lead to ridiculous comments. Another subject our community discussed December 8th. A discussion prompted by Blemi.

Blemi asks #CPChatNow "What is the most ridiculous question someone has ever asked you?"

In asking participants what the most ridiculous question they have ever been asked, Blemi triggered our participants to recall some truly dumbfounding inquiries. Devin remembered getting asked “How do you go to college?” His tale reminded Blemi of a similar situation. Blemi recounted for us people always asked if she had different admission requirements.

Nevertheless, the most ridiculous question received arguably goes to Hannah. She told us about being told she must have some other palsy because she has not “OUTGROWN IT YET?” Although, for argument sake, you could debate the question’s ridiculousness level.

Veronica offers an explanation for why some people think you outgrow cerebral palsy.

Like Veronica pointed out, many people don’t realize you don’t outgrow CP because CP gets advertised as the biggest birth defect in children. Veronica mentioning “using the word children makes it sound like it can be outgrown.”

A sentiment I agreed with 100%. To keep the conversation going, answer for the week’s extend-the-conversation question “What are other ways we can debunk the myth you ‘outgrow cerebral palsy’?” Leave your ideas in the “Comments” section.

Afterwards, mark your calendars to join us each and every Wednesday on Twitter for #CPChatNow. The fun begins at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

Answer the extend-the-conversation question, "What are other ways we can debunk the myth you 'outgrow cerebral palsy'?"
Answer below!

#CPChatNow Recap 12/1/2021

This past week in #CPChatNow was a banger as always. Members discussed the 8 year anniversary of #CPChatNow, stretching hip flexors, and their favorite part of the holiday season. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

We have a milestone to mark this week, the 8 year anniversary of #CPChatNow! Members discussed the passage of time and Zach shared some history of the chat.

zach tweets we have provided us answers for 8 years with our 8 year anniversary, i tweet that is 2 presidential terms and zach tweets it's time to write a book and jokes oh wait.
zach tweets about members who have been there since near the beginning, blemi, myself, jen, others.
zach tweets december 3rd, 2013 was the first #cpchatnow and shares a graphic with @handicapthis, John Quinn, and @zacharyfenell

Next, I asked if members could share ideas on stretching hip flexors independently. Blemi shared some tips.

i ask if anyone knew how to stretch hip flexors independently. zach tweeted no, but on googling it would be hard for him to do himself.
blemi tweeted to lay on your back with a towel under your knee while moving the towel in the opposite direction, i tweeted i have had hip pain lately, blemi tweeted she got the stretch from her pt and she wraps the towel like a sling to move her leg

Finally, Zach asked about member’s favorite part of the holiday season and #CPChatNow OG, Hannah Pike, chimed in.

zach asked what the favorite part of the holiday season is for members, hannah tweets surprising those that she can and she reminded zach he was on the end of a surprise her dad came up with

This brings us to our Extend-The-Conversation Question: What is your favorite holiday tradition?

extend-the-conversation question graphic, multicolored #cpchatnow logo, what is your favorite holiday tradition? above a picture that says holiday traditions with a variety of gift boxes surrounding it

Please share your answers in the comments and join us each Wednesday at 8 Eastern on Twitter at #CPChatNow.

-Devin

#CPChatNow Recap- 11-24-2021

The weekly cerebral palsy Twitter chat #CPChatNow lives! Or, for accuracy I, co-host Zachary Fenell, should say thrives! Yes. Despite the lull in recaps throughout November, our community has been going strong. Do not simply take my word though. Let me show you by recapping our chat from Wednesday, November 24th, 2021.

Enthusiastic newcomer Stephen has helped our community garner a thriving atmosphere.

On the eve of Thanksgiving #CPChatNow participants discussed what they are thankful for. A question raised by chat newcomer Stephen Commander.

Stephen learned about our chat from long-time #CPChatNow regular and “Life with Blemi” Youtube personality Blemi. In the few weeks since joining our family Stephen has grown thankful for our community, saying “I look forward to this every week.” Sentiments Stephen shared after asking participants what they are thankful for.

Other answers included Blemi saying she is thankful for everything she currently has. Plus, my co-host Devin Axtman said he is thankful for finally being married after COVID postponed his wedding in 2020. Marriage and relationships in general would continue as a discussion topic.

#CPChatNow participants offer dating advice.

Both Devin and Blemi offered Stephen dating wisdom. Devin noting that although meeting someone is tough, it is possible. Touting as evidence the fact multiple people in our community are married or are in relationships. Bottom line, Devin advised “Try and have fun!”

Meanwhile Blemi provided similar advice. Seconding how dating is tough and can seem even harder with cerebral palsy. Nonetheless, you could still find someone. She recommended keeping an “open mind and putting yourself out there.”

Participants’ open minds remained apparent throughout the night November 24th. In addition to dating and what we are thankful for, various topics arose.

Blemi asks #CPChatNow if anyone in the group has sleep apnea.
The sleep apnea discussion continues.

Amongst the assorted topics, Blemi asked if anyone has sleep apnea. A question spurred by a doctor telling her sleep apnea is very common in the CP community. News to many in the chat! Long-time chat regular Jen and I each responded negatively, at least stipulating we do not think so. What about you? Keep the conversation going and answer for the extend-the-conversation question “Do you have sleep apnea?” Reply in the “Comments” section.

Maybe your reaction to the sleep apnea-cerebral palsy news echoes Sean who stated “Is it?! That would explain a few things…” However you reacted, do not let the news cause you to fall over in surprise. Anyway, speaking of falling,

#CPChatNow participants discuss how they react to seeing others fall.

After watching my co-worker fall and hurt herself earlier in the week, I asked the chat if anyone else finds seeing others fall to be unsettling. This diverged into further dialogue about reactions when we ourselves fall. Sean mentioning his mother’s reaction to when she hears a thud. She yells “Scream or bang on something if you need me.” Otherwise, she resumes whatever she was doing.

A similar reaction to how the people in Blemi’s life respond. Blemi sharing those close to her will just carry on when she falls. Unless Blemi starts laughing. The laughter an indicator she hurt herself.

Now, we all know better then to tell someone “Don’t fall.” Nevertheless, let me suggest avoiding falling in with a forgetful crowd. Instead, remember to answer the week’s extend-the-conversation question. “Do you have sleep apnea?”

Answer below! Afterwards set a reminder to join us each and every Wednesday on Twitter. The fun starts at 8pm ET. In the meantime I will return within the week to recap our chat from Wednesday, December 1st, 2021.

Until then, remember. Don’t blend in. Blend out!

-Zachary

Answer the extend-the-conversation question- "Do you have sleep apnea?"
Respond below!

#CPChatNow Recap- 10/27/2021

This past week in #CPChatNow was “A Happening” as Gorilla Monsoon would say. Members discussed driving, Halloween plans and struggles, and how they would describe the year 2021. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, members discussed what went into the decision on whether to drive or not with a variety of considerations going into member’s decisions.

zach asks what factors went into people's decision to drive or not, veronica tweeted there is a lack of hand eye coordination and everything is set up for right handed people and her right hand doesn't work
blemi tweets she did not feel she would not be able to, zach tweets he has a dull sensation in high right leg from back surgery complications and hand controls make him nervous due to hand-eye coordination and that if his hand-eye coordination isn't good enough to play little league, should he be driving?

Next, members discussed their Halloween plans and concerns they have surrounding accessibility of trick or treating.

zach asks if anyone has halloween plans, carrie tweets she is taking her daughter out to trick or treat and that she hates walking in the dark so she is glad she has a coop behind her and she is praying it is not raining, zach tweets navigating front steps is the trickiest part of trick or treating and many front steps don't have a handrail

Finally, Zach asks members how they would describe the year 2021 at this point.

zach asks what word members would use to describe the year 2021 and what they plan to accomplish still, veronica used the word frustrating with her eye still adjusting to a new lens, zach tweets his theme is patience with two job rejections, a groin strain, and progressing on his book.

This brings us to our Extend-The-Conversation Question which is inspired by Halloween: What is your favorite Halloween costume of all time?

extend-the-conversation question graphic, multicolored #cpchatnow logo, extend-the-conversation question in green with what is your favorite halloween costume of all time below with a photo of family in halloween costumes

Please share your answers in the comments and join us each Wednesday at 8 Eastern on Twitter at #CPChatNow. Thanks for reading!

-Devin

#CPChatNow Recap- 10-20-2021

While temperatures outside begin to drop, conversation during the cerebral palsy Twitter chat #CPChatNow heated up. Or so that remained the case Wednesday, October 20th, 2021. To tell you more, I am chat co-host Zachary Fenell. Welcome to your weekly recap!

The weather topic arose early in the night.

#CPChatNow participants discuss the challenges cooler temperatures cause individuals with spastic cerebral palsy.

Admittedly, I initiated the dialogue commenting how “it’s that time of year #CPChatNow when my spasticity is starting to increase due to colder temperatures.” Long-time chat regular Blemi responded, calling the week “a stark reminder of that” for her. Adding “It’s not even that cold yet!” Regarding Blemi’s “It’s not even that cold yet” statement, I speculated the actual temperature does not matter as much as how dramatic the decrease in temperature is.

Oppose to spending the night dwelling on the challenges we face due to the cooler weather, we re-focused to concentrate on solutions.

#CPChatNow participants answer "What is one product that helps you get through the winter months?"

A focus starting with me asking participants to name a product which helps them get through the winter months. Blemi showed love for her heated blanket and heated massage pad. I too almost said heating pad. However, after looking over my “Cerebral Palsy Winter Tips” blog post, another answer came to me. My shoes with rigid soles.

Alessandro, on the other hand, offered some humor. Crediting being Italian as what helps him through the winter months. The humorous answers did not stop with Alessandro.

Veronica injects more humor into the #CPChatNow dialogue with her solution to handling the winter months.

Veronica chimed in to say moving to Arizona helped her cope with the winter months. A solution I called “Perfect.” Nevertheless, not everyone has the option to move to Arizona. So, let us keep the solutions coming! Answer for the week’s extend-the-conversation question, “What is one product that helps you get through the winter months?” Leave your answer in the “Comments” section below.

Afterwards, mark your calendar to join us each and every Wednesday on Twitter for #CPChatNow. The fun starts at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

This week's extend-the-conversation question asks "What is one product that helps you get through the winter months?"
Answer below!

#CPChatNow Recap- 10/13/2021

This past week in #CPChatNow was hopping as always. Members discussed showing off their new walker, disability related books they would recommend, and the reasons they read. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, I wanted to give kudos to Blemi for showing off her new pink walker to help promote her Youtube channel. Making mobility aids “cool” is a challenge for disabled people, so any time we can it’s worthy of praise!

zach asks if blemi has had a chance to show off her pink walker, blemi tweeted she did a photo shoot with it with an instagram account that wants to feature her. she said it is a big deal because she used to only take photos from the waist up. zach tweeted it is an incredible feeling when others reach out and they want to partner with you or feature you.

Next, the rest of the chat turned to books and reading. This may have been inspired by Zach finishing the manuscript on his latest book! First, Zach asked members what disability related book they would host for a discussion.

zach asks what disability related book members would choose for a discussion, i tweeted john quinn's or judy huemann's book. huemann's book illustrates disability history and john explains cp so well. zach tweets john's book is one of his favorite books period, blemi tweets sitting pretty by Rebeckah Taussig

Finally, talk turned to the reasons people read. Members shared a variety of reasons. Also, you can find Emily Ladau’s book Blemi references here.

zach asks why members read and offers some reasons such as escape from reality, self-improvement, inspiration. blemi tweets she reads for the pleasure of it. zach tweeted he read for multiple reasons, sometimes escape from reality, others better skills (finance), or disability related material because they open him to other's experiences. blemi tweeted she picked up Emily Ladau's book Demystifying Disability
zach tweets he will eventually get to emily's book, but he has other things on his list. i tweet i mostly escape reality, but i like current event books.
extend-the-conversation question graphic: multi-colored #CPChatNow logo in upper right hand corner, extend-the-conversation question in green, what is your favorite book of all time? above a picture of books on a shelf, #CPCHATNOW in white letters in front of a green background on the bottom.

Please share your answers to the Extend-The-Conversation-Question in the comments and join us each Wednesday on Twitter at #CPChatNow at 8 Eastern!

-Devin

#CPChatNow Recap- 09-29-2021

Navigating ups and downs, plus more highlighted the conversation during the live cerebral palsy Twitter chat #CPChatNow Wednesday, September 29th, 2021. Here to delve further into the details, I am chat co-host Zachary Fenell. Welcome to your weekly recap!

Early in the evening I touted a recent personal triumph.

Zachary recalls a 5k he recently completed.

While finishing far from a personal best time, I felt victorious in completing the 2021 Run Through History 5k. As I shared, due to my groin strain the prior month I went into the race not my best physically. Nevertheless, I persevered through the hilly course. Thinking about the hills, led me to ask a question.

Blemi answers whether she finds moving uphill or downhill more challenging.

Curious, I asked what others find more challenging, moving uphill or downhill? Long-time chat regular Blemi answered with no hesitation, saying downhill. I said the same, noting going downhill momentum builds making controlling yourself harder. Blemi and I soon found ourselves in good company.

Alessandro answers the question, "What do you find harder, moving uphill or downhill?"
Conversation about moving uphill and downhill also leads to discussion about ascending and descending stairs.

Alessandro concurred with my assessment about controlling momentum going downhill, just using more colorful wording. Additionally, Veronica replied with certainty. Calling downhill definitely harder. In response, I pondered if others would agree descending stairs remains more challenging then ascending them. My co-host Devin Axtman confidently replied “Without a doubt.”

As the night progressed, the chatter gradually moved from moving up and down hills and stairs to another subject.

Participants in #CPChatNow discuss the concept of Crip time.

Earlier in the day while reading Disability Visibility I came across the concept Crip time. Curiosity striking again, I asked how many people were familiar with the term. Devin hit on a key element involved, needing to plan on extra time. To offer a more comprehensive definition of Crip time I cited University of Minnesota‘s Crip time definition.

A concept arising from disabled experience that addresses the ways that disabled/chronically ill and neurodivergent people experience time (and space) differently than able-bodyminded folk.

-University of Minnesota

Veronica found herself realizing she uses Crip time without even knowing it! Mentioning in-particular always doubling prep time for recipes. What about you though? Answer for the week’s extend-the-conversation question, “How do you use Crip time?”

This week's extend-the-conversation question asks, "How do you use Crip time?"

Answer in the “Comments” below! Afterwards set a reminder to join us each and every Wednesday on Twitter. The fun starts at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

#CPChatNow Recap- 9/22/2021

This past week in #CPChatNow was hopping as always. Members discussed life events like completing a 5k, their favorite fall activities, and how Australia is handling COVID. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, I want to share a cool thing that Zach recently accomplished. He completed his first 5k after experiencing a significant fall. Way to go Zach!

zach tweets he is doing a run through history 5k this weekend and his goal is to not fall during the race. i tweet my encouragement

zach tweets he completed the 5k in one hour, 4 minutes and achieved his goal of not falling on the hilly course. there is a picture of zach standing by the finish line

Casey and Zach tweeted about their favorite ways to deal with pain from cold weather.

casey tweets they have been feeling more discomfort than normal due to cold weather, zach asks what they do to reduce discomfort and tweets he deals with back aches in winter, but he uses a heating pad, casey tweets they use heating pads, medicine, and laying down in the middle of the day.

AcquiDis checked in from Australia with an update on how the government is handling the COVID situation.

AcquiDis tweeted she is coming out of lockdown number 8 in australia, zach asks if a new lockdown starts once cases hit a certain number, AcquiDis tweets instances of COVID are detected in local areas which cause immediate lockdowns
zach tweets that sounds much different than the states, AcquiDis tweets there have been 766 cases with 4 deaths, zach tweeted he didn't know the numbers in northeast ohio, but he is an area of high transmission so his employer is requiring masks for everyone, but he is far from lockdown

Finally, Zach asked members what their favorite fall activities are.

zach asks what members favorite fall activities are, i tweet watching football and eating pumpkin delights, zach tweeted his favorite fall activity is watching Cleveland postseason baseball, but not this year
This brings us to our Extend-The-Conversation Question: What is your favorite part of the Fall? Please share your answers in the comments and join us each Wednesday at 8 Eastern on Twitter at #CPChatNow.

-Devin

extend-the-conversation question in green, multicolored #CPChatNow logo in the upper righthand corner, what is your favorite part of the Fall? above a picture of green, yellow, orange, and red leaves sitting on a grey log
Thanks for reading!

-Devin