#CPChatNow Recap- 1-15-2020

This past week in #CPChatNow was bouncing as always. Members talked about what they are reading and what gifts CP has given them. Also, we have a focus chat on 1/22! This is #CPChatNow co-host, Devin Axtman, taking you along for the recap.

First, we have an exciting announcement at #CPChatNow. We will be doing a focus chat with member and former Paralympian, Ayden “The Jet” Jent. You can read Ayden’s bio here.

Zach announces a focus chat on 1/22 with Ayden Jent about the Paralympics

Next, Zach asked members what they are currently reading. Members shared a variety of different books and Chris shared Haben Girma’s memoir, the story of a deafblind woman graduating from Harvard Law School and becoming a lawyer for disability rights.

zach asked what people are currently reading. blemi tweeted Nora & Kettle, chris tweeted she is meaning to read Haben Girma's memoir

I bring up reading because in more exciting news #CPChatNow co-host, Zachary Fenell, is going to release his book, Off Balanced, in paperback! You can buy it now in Kindle form here.

Zach announcing Off Balanced is soon to be available in paperback. There is a picture of him holding up the book

Finally, we move to a great question asked by Blemi. She asked what Cerebral Palsy had given people. Members shared a variety of different positives which illustrates the wide variety of experiences in disability.

blemi asked what cp has given people. zach credits his work ethic to cp and to listen to his body, along with a BS filter. i tweeted I do not get too high or too low.
Daryl Perry tweets CP has made him resilient, robyn tweeted resilience and ability to adapt along grip strength. jen tweeted empathy.

This brings us to our Extend-The-Conversation Question: What do you like about your CP?

an orange, blue, and green #CPChatNow logo in the upper right hand corner, extend-the-conversation question in green with what do you like about your CP? in black. The Facebook like button is in the lower left hand corner.

Please share your answers in the comments and join us for the focus chat on Wednesday, January 22nd at 8 Eastern.

-Devin

#CPChatNow Recap- 01-08-2020

With the holidays over, we in the #CPChatNow community resumed our regular Wednesday evening schedule January 8th, 2020. To tell you more about the January 8th Twitter chat, I am chat co-host Zachary Fenell. Regular readers will know exactly how I plan to do this. Your weekly recap!

Over the years we within #CPChatNow have enjoyed a few laughs together. A trend which continues chugging along!

Time cannot derail #CPChatNow's train joke.

My co-host, Devin Axtman, arrived to the chat late because his bus was late to his train. All because the bus ended up stuck behind another train!

Although, the humor does not lay in Devin’s predicament. Rather, the fact Devin’s story involves trains creates the humorous tone. Early in #CPChatNow’s existence Hannah shared a funny story which included a train reference. Ever since simply mentioning trains invokes chuckles from our community’s long-time regulars.

Such a re-occurring joke helped us build a communal feel. Another pillar which allowed us to build our community returns in 2020.

Zachary teases the return of focus chats.

As I shared January 8th, this year will see focus chats return! I noted Devin and I should be ready to announce our first focus chat of the year next week (January 15th). Happily, I am able to confirm we will make this announcement during the January 15th chat. Make sure to join us then!

Also, to ensure we deliver focus chats which interest you, answer as the week’s extend-the-conversation question, “What topics would you like to see focus chats on?” Answer by leaving a reply in the “Comments” section. Your feedback proves vital towards maximizing focus chats’ value.

Perhaps a possible focus chat topic could entail the positives and negatives social media offers the cerebral palsy community. A topic briefly touched upon January 8th.

#CPChatNow participants discuss Twitter regrets.

Curious, I asked participants if they ever regretted posting something to Twitter. Devin replied affirmatively, saying he regrets getting into certain political arguments. His regrets deal less with what he said and more just feeling like the discussions ended up pointless.

Meanwhile Hannah made the insightful point that everyone probably regrets posting something. She continued, noting there are in-person conversations she regrets having too. Quite the relatable sentiment, or so I think.

Anyways, enough about what I think. What do you think would make for a good focus chat in 2020? Remember to answer the week’s extend-the-conversation question. “What topics would you like to see focus chats on?”

Answer for the week's extend-the-conversation question, "What topics would you like to see focus chats on?"

Reply below to answer. Afterwards make your plans to join #CPChatNow each and every Wednesday, starting at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

#CPChatNow- 1/2/2020

The first #CPChatNow of the new decade was bumping as always. Members discussed what they hoped to accomplish in 2020, projects they are currently working on, and the realities of being an introvert on World Introvert Day. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

First, members discussed what they hoped to accomplish in 2020:

Zach asks what members hope to accomplish in 2020. Blemi tweets about paying off her line of credit. Zach tweets about paying off his student loans.
Zach tweets he will be publishing his marathon memoir and he has a title in mind

Zach also asked what word members would use to describe their 2020 on December 31st, 2020 and said he will describe his year as extraordinary:

Zach tweets he will look back on the year and describe it as extraordinary

Finally, January 2nd was apparently World Introvert Day. Zach pointed this out and it sparked a discussion on being an introvert.

Zach points out it is world introvert day and asks if people would describe themselves as an introvert
Blemi tweets she feels she is an introvert and experiences anxiety in social situations
linds tweets she is an extroverted when necessary introvert and she used the example of working at a bakery causing her to need her to be introverted

This leads us to our Extend-The-Conversation Question:

Orange, blue, and green #CPChatNow logo in the upper right hand corner. Extend-the-conversation question in green: Do you consider yourself an introvert? in black. An emoji with blue eyes and a zipper over his mouth.

Thank you for reading and join us each Wednesday at 8 Eastern at #CPChatNow on Twitter.

-Devin

#CPChatNow Recap- 12-26-2019

Christmas 2019 came and went Wednesday, December 25th, but the celebratory mood continued into the weekly cerebral palsy Twitter chat #CPChatNow Thursday, December 26th. To officially close out the year for our community, I am chat co-host Zachary Fenell. Recapping the year’s 52nd and final chat seems the most fitting way to do this.

Long-time chat regular, “The Positivity Princess,” Linds helped to get the dialogue off to a cheery start.

Linds shares her exciting news!

After three years patiently waiting, Linds received her “most longtime coming gift.” A paralegal job in Cedar Rapids! Once again, congratulations Linds!

Keeping the conversation personal, participants reflected on their respective 2019s.

Participants in #CPChatNow describe their 2019s in one word.

I asked people to describe their 2019 in one word. My co-host Devin Axtman answered, saying “transformative.” Devin further explained his choice in words saying 2019 saw him enjoy “lots of good life changes.” Unfortunately, not everyone could say the same.

Hannah honestly describes her 2019 as "heartbreaking."

Beloved community member Hannah replied honestly, saying she would describe 2019 as “heartbreaking.” The year brought “a downward spiral of bad things” not just for Hannah but the people she loves. At the same time, Hannah acknowledged throughout the year she did enjoy “some pretty spectacular moments.” Moments she will never forget.

Looking to keep the dialogue positive, allow me to ask as the week’s extend-the-conversation question, “On December 31st, 2020 when you look back on your year, what word will you use to describe it?” Reply to this post to answer.

First though, let us finish seeing off 2019. Besides personal matters, our community conducted a year in review for cerebral palsy in general.

The #CPChatNow community recalls their most memorable cerebral palsy related stories of 2019.

Participants recalled memorable cerebral palsy related stories. Personally, I named a negative remembering Speechless‘ cancellation. Thankfully other community members offered positive memories. Jeni mentioned the little boys with CP who tag-teamed the role Tiny Tim in a Broadway production of A Christmas Carol. Meanwhile long-time chat regular Blemi highlighted Netflix’s new series Special.

Hopefully stories like the ones Jeni and Blemi reference foreshadow greater progress for the cerebral palsy community in 2020. Remember to forecast your own 2020 by answering the week’s extend-the-conversation question. “On December 31st, 2020 when you look back on your year, what word will you use to describe it?”

This week's extend-the-conversation questions asks on December 31st, 2020 when you look back on your year, what word will you use to describe it?

Answer below! Then help us kick off the New Year by joining our first #CPChatNow in 2020 Thursday, January 2nd at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

#CPChatNow Recap- 12/18/2019

This past week in #CPChatNow was festive as always. As you might imagine, talk centered largely around the upcoming holidays, but other topics were also discussed. Hop in the sleigh for this week’s #CPChatNow recap led by your Co-Host, Devin Axtman.

First, we have an announcement. #CPChatNow will be changing dates to Thursday for the next two weeks due to the holidays.

Zach announcing the next #CPChatNow is Thursday instead of Wednesday

Kate joined us after graduating nursing school and shared some of her challenges of being a nurse with CP. She shared she would feel very fatigued when coming home from work:

Zach congratulates kate on graduating nursing school. kate shared cp added trouble to starting her job.

Next, not surprisingly talk to turned to the upcoming holidays. Talk turned to cooking for family and what made a kitchen accessible and CP friendly:

zach asks heather what makes a kitchen accessible. she likes prep surfaces where she can sit down and cut-proof gloves. zach tweeted he likes sitting uses knives

Zach then asked if people put up a Christmas tree and if CP impacted their ability to do so:

zach asked if people put up a christmas tree and if CP made things difficult. chris said she does not and heather tweeted she only did if she was hosting. i tweeted we have a small tree, but i need a lot of help with decorating

Finally, Zach asked what people’s favorite Christmas traditions were. People talked of getting together with family and looking at Christmas lights.

zach asked about christmas traditions. he tweeted about christmas eve at grandma's and getting in the car to look at christmas lights. kate tweets about liking christmas eve more than christmas. zach tweeted christmas eve is when his extended family got together

This brings us to our Extend-The-Conversation Question: What is your favorite Christmas tradition? Make sure to share your answers in the comments and join us on Thursday at 8 Eastern at #CPChatNow.

-Devin

#CPChatNow Recap- 12-11-2019

The weekly cerebral palsy Twitter chat #CPChatNow proved a newsworthy one Wednesday, December 11th, 2019. For the complete story, consider me your personal reporter. I am chat co-host Zachary Fenell and I will provide my report the best way I know, your weekly recap.

News disseminating from #CPChatNow December 11th varied. I made an announcement relevant to our entire community.

Zachary announces the #CPChatNow schedule for the weeks of Christmas and New Year's Day.

With Christmas Day and New Year’s Day landing on Wednesdays, my co-host Devin Axtman and I decided to reschedule #CPChatNow those weeks. Rather than our typical Wednesday chat, #CPChatNow will happen Thursday, December 26th and Thursday, January 2nd. Start time remains the same, 8pm ET. Make sure to mark your calendars!

Currently though, let us return to recapping the December 11th chat. Participants kept the news stream flowing by sharing personal good news. Admittedly, I played a large role in that.

Zachary shares his personal good news.
Zachary continues sharing more personal good news.

Indeed, I possessed much good news relating to myself. I received a quasi-promotion at work. More directly related to cerebral palsy, Expertido named my blog among the best cerebral palsy blogs. Plus a parent with a 12-year old who has cerebral palsy wrote me some heartfelt feedback after reading my memoir Off Balanced. If not enough good news, Ideastream included me in a story about self-publishing which aired on the radio.

Besides me, long-time chat regular Linds shared good news. No, wait. Great news!

Linds shares her own exciting news.

Linds revealed her depression entered remission! Shall we keep the positive vibes flowing? Answer as the week’s extend-the-conversation question- “What has been something positive happening in your life?” Answer in the comments below!

This week's extend-the-conversation question asks, "What has been something positive happening in your life?"

Once you answer, double check your calendar. Do you have the upcoming #CPChatNow Twitter chats correctly marked? The upcoming schedule looks like this.

  • Wednesday, December 18th, 2019- 8pm ET
  • Thursday, December 26th, 2019- 8pm ET
  • Thursday, January 2nd, 2020- 8pm ET

I hope to tweet you soon. Until next time, remember. Don’t blend in. Blend out!

-Zachary

#CPChatNow Recap- 12/4/2019

This past week in #CPChatNow was busy as always as members got ready for the holidays, discussed unique friendships, cool parts about #CPChatNow, and their doubts about CP.

The upcoming holidays were of course a topic of conversation. Zach asked whether people took disability into account when giving gifts:

Zach asks whether disability was taking into account when giving gifts. Hannah tweeted her grandma bought her shoes that often wouldn't fit and she had to tell her to stop because they wouldn't fit
Blemi tweeted disability had no impact on her gift giving. Zach said he got a baseball glove, but never did play baseball. I tweeted I was there was paralympics for baseball.

#CPChatNow recently turned 6 years old. Members talked about the coolest part of being a member:

I tweeted that the coolest part of #CPChatNow has been watching people grow up and lives change. Zach tweeted about people graduating high school, Blake and myself graduating college, and Blemi entering a long term relationship
Zach tweeted about the genuine bonds that have formed from #CPChatNow and the support system that has formed

Next, talk turned to the unique relationships that can come from online interactions and Yasmin shared that she has formed relationships from online Paramore clubs:

Yasmin tweets about making friendships through Paramore clubs that have stayed even though the forms have shut down. Zach shares that CP brought #CPChatNow together, but we have other common interests

Finally, I asked members what doubts they had as a result of their CP. It sparked some good conversation:

I ask about people's doubts about their CP. My doubt was about getting married. blemi tweeted she was unsure about holding down a full time job. zach worried about pinning his bib number for his 5k races

This leads us to our Extend-The-Conversation question: What is your biggest doubt about CP and what have you done to overcome it?

Please share your answers in the comments and join us each Wednesday at 8 Eastern on Twitter on #CPChatNow

-Devin