#CPChatNow Recap- 4/22/2020

This past week #CPChatNow was out of this world on Earth Day! Members discussed Earth Day, trying new things while staying at home, and their thoughts around reopening. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

April 22nd was the 50th anniversary of Earth Day. Jorge asked if folks were enjoying Earth Day.

Jorge asked if people got out to enjoy the earth on Earth day. Veronica tweeted her husband created a sitting area in her backyard where she drinks her coffee.

Next, members discussed trying new things while staying at home during the COVID pandemic. I discussed cooking more while at home and Hailey discussed trying a latch hook kit:

I ask if people have tried new things while staying home. Hailey tweeted about trying latch hook kit, but is worried about her motor skills

Jorge asked about a common topic that is impacted by the COVID pandemic, colleges and universities.

Jorge asks if I think colleges will open up in the Fall. I tweeted I felt it will be a patchwork of plans, but they would try. Jorge brings up the issue of international enrollment. jorge tweets he is applying to several schools.

Finally, Zach asked where different member’s home states are in the COVID pandemic reopening.

Zach asks where each member's area is on reopening. Grace tweets she is relieved Massachusetts is following guidelines and not considering reopening. I tweeted I am nervous that Texas is starting to open. I am nervous about going back to work and am nervous if I will continue to be able to work from home.

This brings us to our Extend-The-Conversation Question: What new things have you been trying while staying at home during the COVID pandemic?

extend-the-conversation question graphic. An image of a green road sign reading discovery with the extend-the-conversation question and multicolored #CPChatNow logo in the upper right hand corner

Please share your answers in the comments and join us each Wednesday at 8 Eastern on #CPChatNow.



#CPChatNow Recap- 04-15-2020

During our current social isolating times, the live weekly cerebral palsy Twitter chat #CPChatNow provides a way for individuals to come together and safely enjoy social interaction. The chat Wednesday, April 15th, 2020 proved no different. Here to tell you more, I am chat co-host Zachary Fenell. Play the highlight reel (also known as your weekly recap)!

Early discussion Wednesday, April 15th turned to how community members continue to cope with staying home while the Coronavirus pandemic persists.

#CPChatNow participants discuss how they are coping with staying home.

Both long-time regular Blemi and my co-host Devin Axtman noted staying home so much has been wearing on them. Meanwhile Veronica explained the stay at home order did not entail such a massive adjustment for her. She has been a stay-at-home mom for over 20 years. Additionally, she doesn’t drive. She mentioned if anything, she has less isolation now.

Going back a point, the non driver issue Veronica brought up drove the dialogue forward. Pun entirely intended.

Veronica offers Devin and Zachary an alternative to drive-thrus. All three are non drivers.

Responding to Veronica, I identified the worst part about not driving in this situation is places with an open drive-thru remain closed to us non drivers. A sentiment Devin further echoed. However, Veronica did offer us a potential solution in suggesting Ubereats, Grub Hub, and Postmates. All three companies she called “great restaurant delivery services.”

Keeping to the delivery theme, discussion directed toward getting your groceries delivered.

#CPChatNow participants talk about grocery delivery.

In answering my question about making adjustments to home life due to the stay home orders Devin mentioned getting groceries delivered. This piqued Veronica’s attention, who wanted to know how grocery delivery was working now. Devin advised needing to take a strategic approach, indicating delivery time takes a couple of days.

Elsewhere, I named a couple home life adjustments I am making to cope with staying home.

Zachary and Veronica discuss their fondness for coffee.

One particular adjustment for me involves using the afternoons as exercise time. I find exercising in the afternoon gives me a healthier midday energy boost compared to grabbing another coffee. How about you? Answer for the week’s extend-the-conversation question, “How do you give yourself a midday energy boost?”

Leave your reply in the “Comments” section below. Then remember to join us on Twitter each and every Wednesday starting at 8pm ET.

Until then, remember. Don’t blend in. Blend out!


This week's extend-the-conversation question asks "How do you give yourself a midday energy boost?"
Answer by comment below!

#CPChatNow Recap- 4/8/2020

This past week in #CPChatNow was intriguing as always. Members discussed strategies for dealing with the COVID stay at home situation, special education during the pandemic, and finding connections via the CP community and blogging. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

#CPChatNow member Tonia has been sharing concerns related to paying for her laundry. She shared an awesome story of a friend helping her out. This shows the power of community during the times we are in.

Zach asks Tonia how she resolved her laundry quarter issue. Tonia says that a friend with CP sanitized 100 quarters and sent them to her

Next, Zach and I talked about an issue that has been in the news a lot lately, virtual learning and parents. Concerns are even more amplified when you are helping your disabled child with their special education.

zach posts an article about virtual special education and mentions sped students may have advantages with distance learning since they are used to technology. i mentioned stuff has to be accessible for the technology to be used. i also mentioned difficulty of physical and occupational therapy
zach mentions PT by video and parents being stressed. i tweeted i would be nervous as a parent to mess something up and about access to technology stating many of my mom's students don't have access. zach tweeted he has learned many people don't have access to the internet by working at the library

Next, talk turned to forming connections with the CP community. Zach asked about the first people with CP we connected with.

zach asks about our first connection with somone with cp. i tweeted about a person in physical therapy. Tonia tweeted about a girl she met at camp for kids with disabilities at 13.

Next, talk turned to connections created with a common activity, blogging.

zach asks what got other people into blogging. tonia tweeted it was after reading the post of a parent of a disabled child and wanting to offer her thoughts. linds tweeted she was angry about a teachable moment with a coworker. tonia tweeted she feels obligated to teach others while linds says she does not.

This brings us to our Extend-The-Conversation Question: Do you feel like you need to teach others about having CP? Please share your answers in the comments!

the extend-the-conversation question graphic. the extend the conversation question is: Do you feel like you need to teach others about having CP? The multicolored #cpchatnow logo in the upper right hand corner, #cpchatnow on the bottom, and an image of a female teacher with a red book drawing on a chalkboard

Thanks for reading and please join us each Wednesday at 8 Eastern on #CPChatNow!


#CPChatNow Recap- 04-01-2020

Throughout the night Wednesday, April 1st, 2020 participants in the live cerebral palsy Twitter chat #CPChatNow discussed various aspects related to the ongoing Coronavirus pandemic. Here with the details, I am chat co-host Zachary Fenell. Sit back and enjoy your weekly recap.

#CPChatNow participants discuss how they are holding up while practicing social distancing.

As I mentioned, this marked the third week practicing social distancing. I asked how everyone was coping. My co-host Devin Axtman noted his hamstrings getting tighter. Long-time regular Blemi replied she is getting weirder by the day.

Meanwhile Tonia described things for her as “pretty much business as usual.” She did express gratitude that her sister, who also has CP, received paid medical leave from her cashier job. Not everyone proves so fortunate.

Jorge checks in with #CPChatNow.

Essential member to our community and an essential employee to his community, Jorge Oteiza remains working. Although closed to the public, interaction with co-workers still leaves Jorge at higher risk to contract Coronavirus compared to those who can work from home.

Regarding staying home, the prior week’s extend-the-conversation question asking “How is CP impacting staying at home?” kept the dialogue moving.

#CPChatNow participants discuss how CP impacts them staying home.
Devin discusses how cerebral palsy helped to prepare him for staying home.

Props to Devin who first proposed the question in his March 25th, 2020 #CPChatNow recap. Tonia’s reply offered a great perspective. She stated staying home is good for her CP, noting the alternative would involve dealing with dangerous germs and/or exhausting herself.

Additionally, Devin provided new perspective. He mentioned staying home isn’t as big of a deal for him since he is used to staying home after surgeries. Essentially, you could say Devin’s cerebral palsy served as a positive in that way. To keep the positive vibes flowing, share some good news. Consider that this week’s extend-the-conversation question.

To answer this week's extend-the-conversation question, share some good news!

I think everyone could use the good news. So go ahead and share by leaving a comment below. Then remember to join us each and every Wednesday on Twitter, starting at 8pm ET.

Until then, remember. Don’t blend in. Blend out!