#CPChatNow Recap- 10-09-2019

Curiosity roared throughout the live cerebral palsy Twitter chat #CPChatNow Wednesday, October 9th, 2019. Here to tell you more, I am co-host Zachary Fenell. Let the recapping begin!

Early in the evening I posed a question. Originally I saw the question asked in a cerebral palsy related Facebook group I belong to.

Zachary shares a question he first saw a mother ask in a cerebral palsy Facebook group.

Within said Facebook group, a mother wanted input on what others consider the best ramp material. Both chat regular Seth and my co-host Devin Axtman deemed metal the best material for a personal ramp. Information I relayed back to that Facebook group.

Elsewhere in our chat Devin raised a thought provoking question.

#CPChatNow participants discuss whether they find World CP Day helpful.

Saturday, October 5th, 2019 marked World CP Day 2019. The recently passed date left Devin asking if we find such days helpful or if all the awareness (World CP Day, CP Awareness Month, National CP Awareness Day) blends in together. Long-time chat regular Blemi said she thinks the occasion is just another way to spread “inspirational porn.” Devin agreed, saying a lot of World CP Day comes across as cliché or just checking a box. I added my thoughts too.

Zachary gives his input on cerebral palsy awareness.

Personally, I believe there remains no such thing as too much awareness. However, I indicated awareness should possess tangible substance. Otherwise you simply end up with awareness as a buzzword. Devin agreed, hitting what I consider an essential point. “Make it (awareness) something people can do something about.”

What do you think? Answer as the week’s extend-the-conversation question, “Do you find things like World CP Day helpful?” Reply in the “Comments” section.

Another intriguing topic arose October 9th when I asked participants about their exercise habits.

Jeni and Zachary discuss their exercise habits.

Specifically I wondered how often people exercised. Jeni showed impressive frequency, explaining she exercises five or six days a week, about 90 minutes at a time. Her exercise regimen has led her to experience less spasms. Others merely find living life with cerebral palsy enough of a workout.

Blemi explains why she doesn't exercise.

Blemi explained she never exercises because she lacks the energy. Daily life and working full-time proves her workout.

Besides a physical workout, exercise that mind by remembering to answer the week’s extend-the-conversation question. “Do you find things like World CP Day helpful?”

Respond below! Then double check your calendar. Make sure you write in #CPChatNow, every Wednesday on Twitter starting at 8pm ET. Until then, remember. Don’t blend in. Blend out!


This week's extend-the-conversation question asks "Do you find things like World CP Day helpful?"
Comment below and answer!

#CPChatNow Recap- 9/25/2019

This past week in #CPChatNow was jumping as always. Members discussed things like the perceptions of social media, the perceptions of parents with disabilities and CP, and what the news and society at large gets wrong about CP. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

#CPChatNow co-host, Zachary Fenell, wrote a blog post, defending social media while talking about the positive impact of #CPChatNow.

zach writes a blog defending social media and talks about what a positive impact #CPChatNow has had. I share that people like to focus on the negative

Next, the topic of the chat largely turned to society’s perceptions of Cerebral Palsy and what the members wished was different. Zach asked about a common topic in the disability community, news coverage of disability and more specifically CP.

zach asks what people would like to see change about news stories regarding cp. i shared treating us as normal with boring lives. zach shared he sees many stories where he asks why is this news? linds tweeted about focusing on the abilities they do have. zach expressed frustration that the focus is on the cannot

Next, Zach tweeted that he wished news stories focused on what the individual with CP thinks rather than bystanders. Zach feels more people blogging and sharing their experiences will be beneficial.

zach tweets he wishes news stories focus more on individuals with CP rather than bystanders

Zach and I talked about how more direct quotes from the person would be more authentic.

zach feels more direct quotes could diffuse stigmas and an authentic portrayal. i bemoaned that many stories have one perfunctory quote. zach tweets he wonders why even if people use a communication device.

Finally, talk turned to an article Zach shared about an Irish mum with CP using a wheelchair:

zach asked if parents could relate to the article. veronica said no because she was mild and she had no issues caring for her children. dave smith tweets stories like this allow people to escape, tweets about her support and fan base.

I pointed out how it was interesting that the barriers she experienced were attitudinal barriers from the healthcare professionals:

I tweeted about the attitudinal barriers from the healthcare professionals. Zach points out that barriers form attitudes are a lot more difficult to navigate than physical barriers

This brings us to our Extend-The-Conversation Question: What are some attitudinal barriers you have experienced in your life?

Thanks for reading! Join us each Wednesday at 8 Eastern on Twitter at #CPChatNow.