#CPChatNow Recap- 7/15/20

This past week in #CPChatNow was cracking as always. Members discussed various topics like their brags for the day, creating their own podcast, life hacks, and what part of the day they feel at their best.

Zach opened the conversation by asking members what their brag for the day was. He shared that his book is now offered at the library he works at:

zach tweets he spotted his book while working at the library. an image of zach's book on a book shelf between two books.

My brag was advocating to my apartment to finally finish a wheelchair ramp on a sidewalk:

i tweet my brag is advocating to my apartment to finally finish a wheelchair ramp. an image of a wheelchair ramp by a pickup

Travis tweeted about starting his podcast, Off The Crutch.

travis tweeted about starting his podcast, off the crutch. he came up with the name because he uses forearm crutches.

Amanda tweeted a Buzzfeed article with tips for people with limited mobility. This might be helpful for some people with CP.

amanda shared a video from buzzfeed about 35 tips from people with limited mobility

Finally, members discussed what part of the day they felt the best at:

zach asked what part of the day people feel their best at. zach tweets he would've said 7-10 pm in college, but now he said in the morning. i tweeted right after i take a shower, veronica tweeted in the early afternoon.
karen tweeted she feels better at night because she is still sleepy in the morning so she has less balance.

This brings us to our Extend-The-Conversation: What is your favorite part of the day?

the extend the conversation question graphic. a picture of a sunset with a person standing in front of the ocean. extend-the-conversation question in white with what is your favorite part of the day? and the white #cpchatnow logo in the bottom right hand corner

Thank you for reading and join us each Wednesday at 8 Eastern on Twitter at #CPChatNow

-Devin

#CPChatNow- 6-10-2020

This past week in #CPChatNow was busy as always, but this week brought new members. Members discussed the Moro Reflex and media representation of CP. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap!

First, members discussed a dreaded part of CP for some people, an exaggerated startle reflex.

amelia asks if a startle reflex is a thing with cp and a german sheppard startled her. i tweeted about dogs and seth tweeted about storms.

Karen tweeted about the name for the reflex, the Moro reflex.

karen tweets some links explaining the moro reflex. amelia tweeted she did not know it had a name. tonia tweeted lots of aspects of cp are rarely discussed

Next, talk turned to different representations of CP in the media. Members discussed the Netflix documentary Crip Camp and various issues of representation in the documentary.

karen asks what people thought of the depiction of cp in crip camp. heather tweets about surpirse of cp being at the low end of hierachy. i tweet about how much of that is how visible cp is
amelia tweeted she was happy to be represented in crip camp, but she didn't feel she could relate. karen tweeted cp comes in so many forms.

Talk also turned to the sadly canceled ABC show, Speechless, and issues related to representation. Members had varying opinions on whether they could relate to JJ.

zach tweets about how some felt they could not relate to JJ"s character. karen tweeted about how CP is so different from each person that many don't use a chair or are nonverbal. karen's main problem was too many subplots. I tweeted my agreement

Karen connected the lack of a ramp in the season 2 finale of Speechless with the abelism highlighted in Crip Camp.

zach tweets about a favorite scene from the season 2 finale when an award show director discovered there was not a ramp. i tweeted about accepting an award in the same situation. karen tweets she won an award in college and was told a ramp would be a fire hazard.

This brings us to our Extend-The-Conversation Question: Have you ever been denied recognition due to physical inaccessibility?

Thanks for reading this week’s recap and join us at 8 Eastern each Wednesday on Twitter at #CPChatNow!

-Devin

#CPChatNow Recap- 2/26/2020

This past week in #CPChatNow was interesting as always. We had members with big life changes, discussions of things members didn’t like but grew used to, and a robust discussion of the effectiveness of awareness months. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

I would like to take a moment to congratulate Chris for accomplishing a long term goal and obtaining her certification as a substitute teacher:

zach congratulates chris on obtaining her teacher's certificate

Zach asked about something that members did not like, but grew used to. Chris mentioned that she did not like Physical Therapy (PT), but grew used to it.

zach asked about something members grew used to, but did not like. chris mentioned pt, zach said that he did not like or dislike pt, pt was a necessity to him

Finally, there was considerable discussion about March being Cerebral Palsy awareness month and the effectiveness of awareness months in general.

zach and beau discussed the effectiveness of cp awareness month, beau asked why people can't do things year round, i stated often people plan for the sake of planning. beau tweeted about awareness fatigue and zach tweeted about raising awareness being an empty buzzword and advocating feels more fitting

This brings us to our Extend-The-Conversation question: What was a necessary evil when it came to your CP?

Thank you for reading and please join us on Twitter each Wednesday at 8 eastern at #CPChatNow

-Devin