#CPChatNow Recap- 3/20/2019

This past week in #CPChatNow was bumping as always. Members discussed doing art, surprising interests, and the trending hashtag #AbeldsAreWeird. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, I hope you will spare me some personal happy news. I was engaged on vacation at Disney World recently. I know this is sappy, but I want to encourage everyone to keep trying. All it takes is finding the right person:

Zach asked me how my vacation was. i replied with magical with a picture of my fiancee showing off her engagement ring. i am in a gray shirt with mickey mouse on it and she is in a white minnie mouse shirt

Next, Zach asked if members had surprising interests. Paul shared an interest in collecting things:

paul said he likes to collect stuff like figurines, wall hangings, records, etc. each room has a different color and vibe

Hannah also made some cool art and decided to share it with members:

Hannah tweeted her artistic side. She created a drawing that said, "Fight in me' with a teal and purple butterfly. there is gray, pink, orange, and yellow.

Finally, members discussed the recent trending #AbeldsAreWeird hashtag. I shared my experience of a comment while waiting for a train.

I tweeted my #abeldsareweird hashtag. i was waiting for a train. A guy responded if he was in a wheelchair, he would kill himself.

A member retweeted Nicole Rodovsky’s tweet about parents shushing their children when they ask questions and not directing their questions to the person using a wheelchair:

nicole rodvosky tweets the worst thing people do is shush their child or pull them away. encourage them to ask them face to face and ask the actual person.

This brings us to our Extend the Conversation part of the recap. What are some weird moments with your disability?

I hope you enjoyed the recap! Please join us for more conversation and community each Wednesday at 8 Eastern on Twitter at #CPChatNow.

-Devin

#CPChatNow Recap- 03-13-2019

Participants in the live cerebral palsy Twitter chat #CPChatNow discussed various subjects Wednesday, March 13th, 2019. I am co-host Zachary Fenell, here to provide some highlights via your weekly recap. Enjoy!

To get the conversation started I shared a video I found pretty cool.

Zachary and Seth share videos of people in wheelchairs doing backflips and double backflips.

The video features Katherine Beattie, the first woman to do a backflip in a wheelchair! Watch for yourself.

In response to the video, #CPChatNow regular Seth raised me another 360 degrees by linking to the world’s first double backflip in a wheelchair! Check that out too.

Both Katherine’s backflip and Aaron “Wheelz” Fotheringham’s double backflip remain impressive. Also looking to impress, long-time #CPChatNow regular Blemi turned to our community seeking ideas.

Zachary and Blemi discuss costume ideas for Blemi and her significant other.

Blemi and her significant other want to dress up for a Comicon type event they plan to attend. So Blemi asked about matching costumes ideas which would allow her to incorporate her cane. I fired up Google, hoping to help. Yet searching “female characters that use canes” proved not fruitful.

However, Blemi noted the costume does not need to be for a female character. Doing a search for “costumes with gold canes” I finally came up with a suggestion, The Riddler for Blemi and Two-Face or another Batman villain for her significant other. The suggestion intrigued them!

Another item which seemed to intrigue Blemi included the different Girl Scout cookies we have in the United States of America. This came up when I asked people about their favorite Girl Scout cookie.

#CPChatNow participants discuss their favorite Girl Scout cookies.

Ayden answered tagalongs. Meanwhile Blemi revealed in Canada they only get three choices: mint, chocolate, and vanilla. Therefore tagalongs and our other options appear rather exotic.

This week's extend-the-conversation question asks, "What is your favorite Girl Scout cookie?"
Leave your answer in the “Comments.”

With said new perspective in mind, answer as the week’s extend-the-conversation question “What is your favorite Girl Scout cookie?”

Answer below! Then remind yourself to join the conversation every Wednesday on Twitter, starting at 8pm ET.

Until then, remember. Do not blend in. Blend out!

-Zachary

#CPChatNow Recap- 02-27-2019

Happy March! In the United States this month receives distinction as Cerebral Palsy (Developmental Disabilities) Awareness Month. Prior to the occasion participants in the live cerebral palsy Twitter chat #CPChatNow gathered for one last February Twitter chat. I am co-host Zachary Fenell, here to tell you all about the discussion via your weekly recap!

While still February, our heads remained focus towards cerebral palsy awareness.

Zachary mentions the Faces of Cerebral Palsy Project, headed up by Cerebral Palsy Research Alliance Foundation.

To commemorate CP Awareness Month Cerebral Palsy Alliance Research Foundation has started an ongoing curation of photos featuring individuals with CP titled “The Faces of Cerebral Palsy.” Familiar face to the chat Jocelyn tipped me off to the project and I further shared with our community. Fill out the Faces of Cerebral Palsy form to submit your photos and story.

You will notice the form includes a few questions. One in-particular sparked dialogue within our chat February 27th.

The question in question asked “What do you wish people knew about cerebral palsy?” My co-host Devin Axtman replied, saying “that it’s (CP) different in everyone and not tragic. It doesn’t end at 18.”

Meanwhile I explained what gave me trouble in answering, saying in-part “I realized my answer would differ based off who the ‘people’ are?” Nonetheless I eventually settled upon a reply.

Zachary expresses what he wishes people knew about cerebral palsy.

I decided I wished people to know “a lot more is possible when you focus on combating particular symptoms rather than focusing on the general diagnosis.” Alternatively participant Veronica Hosking communicated a different wish.

Veronica and Zachary discuss the visibility of cerebral palsy.

Watching the UCP of Central Arizona’s telethon, Veronica reported a mother called noting the mother never heard about cerebral palsy until her daughter received the diagnosis. This left Veronica wishing more people with CP would talk about the condition. I suggested the issues stands less with people not talking about their CP, but instead the discussion taking place on niche platforms.

Adding to my comment I emphasized the importance behind a show like Speechless airing on a mainstream channel. Veronica and I agreed such representation proves huge!

Another area where disability representation could use a boost includes within the workforce. A fact supported by statistics participant Shira provided.

Shira comments about the lack of representation people with disabilities have within the workforce.

Research for school led Shira to learn only 37% of the disabled population that is of working age have jobs. Devin reasoned the poor numbers come down to attitudes and assumptions. Let us try to debunk these bad attitudes and assumptions using our extend-the-conversation question. Remixing the aforementioned alongside the Faces of Cerebral Palsy question previously recapped, we get the following query.

“What do you wish employers knew about cerebral palsy?”

Leave your reply in the comments section and keep the conversation going! Then mark your calendars to remind yourself to join us on Twitter every Wednesday starting at 8pm ET.

Until then, remember. Do not blend in. Blend out!

-Zachary

This week's extend-the-conversation question asks, "What do you wish employers knew about cerebral palsy?"
Reply in the comments!