#CPChatNow Recap- 6/15/22

This past week in #CPChatNow was bustling as always. Members talked about acceptance of CP, aging with CP, and the importance of walking. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

Stephen asked Zach when he accepted his CP and this led to a conversation about adjustment to disability:

stephen asks zach how long it took to accept his cp, zach tweeted he was 18 or 19, but it still can be a work in progress, i tweeted i don't think someone is ever fully adjusted to cp as life happens

Next, talk turned to a common topic among #CPChatNow members, aging with CP, after Chris shared an article about functional decline.

chris tweeted about an article about functional decline with cp

zach tweets about kids with cp having access to state and federal programs with insurance and a deficit for adolescents and adults, chris tweeted even people recognizing CP impacts adults differently and causes sorts of problems which we have to start teaching people

Finally, talk turned to the importance (or lack thereof) of walking. Members discussed the importance of staying active while also listening to their body as aging happens.

zach tweets about me saying not walking isn't bad and that walking can be bad if it puts extra stress on the body in order to walk independently. chris speculates this could have led to her arthritis, but she expressed frustration that doctors emphasize activity. zach tweets there is a need for balance with activity being important and nutrition being another piece with sleep also being important.
chris tweets she felt seen by the article she shared and with the struggles and frustration of watching her body change after being told it wouldn't while planning for life one way and cp impacting her body differently. grace tweets that her doctors overemphasize walking and walking without devices where they promise stability if you do that which not everyone can.

This brings us to our Extend-The-Conversation Question: What are some aspects of functional decline you have noticed with CP and aging? Please share your answers in the comments.

Thanks for reading and please join us tonight on Twitter at #CPChatNow.

-Devin

#CPChatNow Recap- 06-08-2022

Week in and week out those in the cerebral palsy (CP) community gather on Twitter Wednesday night for the live Twitter chat #CPChatNow. Wednesday, June 8th, 2022 proved no different. To delve into the details, I am chat co-host Zachary Fenell. Come join me for your weekly recap.

One topic which seemed popular revolved around spasticity.

Participants in #CPChatNow answer if they feel their spasticity increases when they feel like they are being watched.

Spasticity arose as a subject when I asked participants if they felt like their spasticity increases when they feel like they are being watched. To clarify what I meant by the question, I recalled an example. Years ago while signing a waiver, my hand began shaking more than usual. Alessandro let me know I was not alone by enthusiastically replying, “Hell yes #cpchatnow.”

Meanwhile, Timmy stated his spasticity increases when he thinks about it. Chris offered additional insights noting she knows, “spasticity changes and is pretty sensitive to happenings.” Keep the conversation going and answer for the week’s extend-the-conversation question, “What do you notice changes your CP’s spasticity levels?” Answer in the “Comments” section.

First though, allow me to finish recapping the discussion from June 8th, 2022. Besides spasticity, participants discussed their favorite social media platforms.

The #CPChatNow community discusses their favorite social media platforms.

Curious, I asked participants to name their favorite social media platforms. Jen said her top two are Twitter and Instagram. Replying to Jen, I explained I find Twitter, “good for getting to meet people you don’t know yet.” Continuing, I complimented Facebook as, “good for keeping in touch with people you already know.”

Sentiments Chris agreed with, mentioning thanks to Twitter she has, “met cool people and learned all kinds of things.” The fondness for Twitter showed up elsewhere in the chat too.

Stephen expresses his love for everybody in the #CPChatNow community.

Indirectly showing admiration for Twitter, Stephen expressed how much he loves everybody in the #CPChatNow community. Experience the community for yourself by joining us each and every Wednesday. The fun kicks off at 8pm ET.

In the meantime, remember to answer the week’s extend-the-conversation question, “What do you notice changes your CP’s spasticity levels?”

This week's extend-the-conversation question asks, "What do you notice changes your CP's spasticity levels?
Answer below.

Until next time, remember. Don’t blend in. Blend out!

-Zachary

#CPChatNow Recap- 06-01-2022

Friendly vibes emanated from the cerebral palsy (CP) Twitter chat #CPChatNow Wednesday, June 1st, 2022. To tell you more, I am chat co-host Zachary Fenell. Welcome to your weekly recap!

Early in the evening participants discussed housework.

Participants in #CPChatNow discuss their favorite and least favorite housework.

Housework arose as a subject after Veronica mentioned spending the day doing such work. Curious, I asked everyone about their favorite and least favorite housework. Answering my own question, I said dusting and cleaning dishes are my favorite housework. On the opposite end, putting on bedsheets is my least favorite because the corners always seem to come undone. Frustrating!

Meanwhile Stephen said his favorite housework is taking out the trash. Unlike Stephen and myself, Veronica said she had no favorite. As far as least favorites go, Veronica named dishes and laundry. She explained, “They’re never actually done.” A truth, seeing how we are always dirtying more dishes and clothes.

As the night continued, so did the friendly dialogue.

Alessandro and Zachary discuss Alessandro's Jordan's collection.

Alessandro shared he now has 100 pairs of retro Jordan’s in his collection. Looking to learn more, I asked Alessandro about his collection. When did he start his collection? What compelled him to start the collection? A big part turned out to involve the fact Alessandro grew up in Chicago in the 90s, meaning, “Jordan is everything.”

What about you though? Answer for the week’s extend-the-conversation question, “What do you collect? What made you start the collection?”

Answer below in the “Comments.” Afterwards, mark your calendar to join #CPChatNow each and every Wednesday on Twitter. The fun begins at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

This week's extend-the-conversation question asks, "What do you collect? What made you start the collection?"
Answer below!

#CPChatNow Recap-5/25

The #CPChatNow recap is back! This past week in #CPChatNow was rocking as always. Members discussed things like what they do when they’re nervous, attending comic cons, recommendations for TV shows, and if they have ever felt “normal.” This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

Stephen asked what members do when they are feeling nervous.

stephen asks how members deal with feeling nervous, zach tweets the answer depends on why he's nervous, and that the nerves might be a good thing and that they might be trying something new, stepehn tweets he is going back to the exceptional foundation, jen tweets she tries to breathe

Next, Jen talks about a comic con she is going to go to and she asked for any tips people have.

jen tweets she is going to a comic con and asks if anyone has any tips, i ask if they have any ADA lines and advised her to check the website

zach advises to jen to make a list of people she wants to meet the most and see them first and also do what is comfortable social distance wise

Next, Zach asks if anyone has recommendations for new TV shows to watch.

zach asks if anyone has recommendations for tv shows, i recommend severance on apple tv and as we see it on prime
grace lapointe recommends orphan black on prime and tweeted about an essay she wrote that is her pinned tweet, zach tweeted it sounds compelling and he would read the essay after watching the show

Finally, Zach asked if members had a moment where they wondered if this is what “normal people” feel like:

zach asks if members have ever had a moment where they thought this is how normal people feel and this came to his mind after he stretched his hamstrings with his knee immobilizer/cast.

chris tweets when wakes up feeling a little rested and that lasts 10 minutes, zach tweets that having a sleeping disorder must be a living nightmare, i tweet that i can't say i have, but i don't dwell on it

This brings us to our Extend-The-Conversation Question: What is your favorite TV show of all time? Thanks for reading and join us each Wednesday at 8 Eastern on #CPChatNow at Twitter.

-Devin