#CPChatNow Recap- 07-10-2019

To those who participate in the live cerebral palsy Twitter chat #CPChatNow, each week Wednesday provides a hub for community. A place to find emotional support, plus share similar interests, common experiences, and more! The July 10th, 2019 chat proved no different. Here with the details I am chat co-host Zachary Fenell. Enjoy your weekly recap.

Unfortunately for long-time chat regular Hannah, health woes prevented her from participating July 10th.

#CPChatNow community members provide emotional support to long-time chat regular Hannah.

Community members responded to Hannah’s news by sending her sympathy. Meanwhile a power outage caused another long-time chat regular Jen to join late. Ironically the power outage helped to power the night’s discussion.

Participants began chatting about what they like to do when without power. I mentioned reading, but you can only read if enough natural light remains available. On that note, chat regular Shira brought up lighting candles. Jen said she couldn’t light a candle to save her life, instead preferring flashlights. I seconded the notion, saying flames and CP equal a nerve-wrecking combination. My co-host Devin Axtman further supported Jen’s flashlight preference.

Devin also prefers flashlights over candles.

Whether reading by flashlight, natural light, or another source multiple members in our community expressed a liking towards If At Birth You Don’t Succeed by Zach Anner. Personally, Anner’s raw honesty within If At Birth You Don’t Succeed wowed me.

#CPChatNow participants discuss If At Birth You Don't Succeed by Zach Anner.

If At Birth You Don’t Succeed stayed on my mind’s forefront as earlier in the week I finished reviewing the book for my website. Getting back to the chat though, Heather additionally gave the book praise.

Heather shares why she likes If At Birth You Don't Succeed by Zach Anner.

Heather found Anner “quite relatable and funny!” Your turn now! Keep the conversation going. Answer for the week’s extend-the-conversation question, “What cerebral palsy related book do you recommend?”

Leave your recommendation in the comments below! Then join the fun LIVE! Mark your calendar for #CPChatNow, every Wednesday on Twitter starting at 8pm ET!

Until then, remember. Don’t blend in. Blend out!

-Zachary

This week's extend-the-conversation question asks, "What cerebral palsy related book do you recommend?"
Answer by commenting below!

Advertisements

#CPChatNow Recap- 7/3/2019

It was the day before the 4th of July and #CPChatNow brought the fireworks as usual. Members talked about fireworks, disability podcasts, wheelchair seats at sporting events, and just how far you mind can help overcome your disability. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride of this week’s recap.

First, members talked about fireworks themselves. Fireworks are also known as the bane of existence when you have the Cerebral Palsy startle reflex.

Zach asked if fireworks startled members. Jen stated they do and Daryl Perry agreed

Next, Zach brought up the cool story of Peter Kline. He has completed 45 marathons with disabled rider athletes. Well done Mr. Kline!

Zach posts about Peter Kline completing 45 marathons with different rider athletes
Paul Miller and Addiengeorge tweeted their appreciation towards Peter Kline

I would like to highlight one of my favorite podcasts (disability or otherwise), the Disability Visibility podcast. The podcast is hosted by Alice Wong and looks at different issues surrounding disability:

I recommend the Disability Visibility podcast. Zach recognized the host, Alice Wong, from the #CripTheVote chats.

Next, members talked about wheelchair seats at sporting events. Chris is going to an Indy Car race in Portland in September. She talked about an organization, @halfaccess, where people can post about the accessibility of a venue.

Zach tweeted about going to Bowling for Soup but being concerned about standing room only conditions. I reported it sucked when other people stood up when I had wheelchair seats and newer stadiums with elevated seats tended to be better. Chris tweeted about an organization called halfaccess that catalogue accessibility

Finally, #CPChatNow was tagged in an intriguing question by @cpandm. They asked if it was OK to be frustrated by others saying, “The body will do what you decide to make it do.” In other words, whether it is OK to be frustrated by your mind not being able to will your body to do things.

I responded to @cpandm's question. They felt frustrated since they can't will themselves to walk. I posted that the body doing what the mind wants it to do is unrealistic and that the will can't overcome things.
Zach's answer was that every case is different and the realm of possibility is different and that we need to listen to our bodies.

This brings us to our Extend-The-Conversation Question: How do you know when your body is telling you you’re at your limit? Share your answer in the comments and join us each Wednesday at 8 Eastern on #CPChatNow.

Thanks for reading!

-Devin

#CPChatNow Recap- 06-26-2019

On Wednesday, June 26th, 2019 participants in the live cerebral palsy Twitter chat #CPChatNow discussed living with CP, emphasizing in-particular the LIVING part. Oppose to keeping the dialogue strictly CP related, members chatted about various subjects. Topics I, #CPChatNow co-host Zachary Fenell, will seek to summarize and deliver to you the best way I know how. Your weekly recap!

Recent college graduate and beloved #CPChatNow member Jorge Oteiza expressed wonderment over when he will get to put his newly obtained degree to use.

Jorge wonders when he will get to put his college degree to use.

Others expressed similar sentiments too.

#CPChatNow participants discuss the usefulness of their respective college degrees.

Personally, I mention career wise not really getting use from my degree. Nevertheless I still find the lessons I learned both inside and outside the classroom valuable. Similarly long-time chat regular Blemi said she does not particularly use her degree either, noting “Sociology and Polisci is a far cry from finance.”

Offering an insightful observation, #CPChatNow regular Shira commented “I guess it’s a reminder the path you take is rarely the one you’ll think you’ll take.” Shira herself ventures off to college for the first time this fall. She confided to #CPChatNow worries about maintaining current friendships once college begins. Qualms our community helped to ease.

Hannah reassures Shira that Shira will be able to maintain friendships.

Long-time community member Hannah reassured Shira. Hannah demonstrated her point by citing a friendship which dates back to preschool. All that leads to the week’s extend-the-conversation question, “How far back does your oldest friendship go?”

Answer below in the “Comments.” Then add to your calendar #CPChatNow. Our Twitter chat meets each Wednesday, starting at 8pm ET. I hope to tweet you soon.

Until then, remember. Don’t blend in. Blend out!

-Zachary

This week's extend-the-conversation question asks, "How far back does your oldest friendship go?"
Reply in the comment section!