#CPChatNow Recap- 7/29/20

This past week in #CPChatNow was festive as always. Members discussed a new book by a disabled author, online dating, and their oldest friendship. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

#CPChatNow always loves to highlight projects produced by disabled creators. Zach highlighted Disfigured: On Fairy Tales, Disability, and Making Space (Exploded Views) by Amanda Leduc.

zach asks if anyone has heard of amanda leduc's book on fairy tales and disability. blemi tweeted that she is intrigued, zach tweeted the book just came out and he bought the book after checking it out from the library.

Next, Chris asked whether people had success online dating and mentioned he was thinking about joining match.com. Members shared various levels of success, but I wanted to highlight people who have had success to show that finding love with a disability is possible.

chris asks if people have had luck with online dating and said he is thinking about joining match.com. i shared that i am engaged after using okcupid with a picture of me and my fiancee.
lorna tweeted she met her husband on match 11 years ago and that it is a good site for sifting out time wasters and matching.

Finally, #CPChatNow talked about something that’s very important, friends. Members discussed their longest friendship and why they felt it had lasted so long.

zach asks what is member's oldest friendships and the keys to maintaining it. kate tweeted she has a friendship of 14 years and she is 22. she thinks the key is being there for each other, but recognizing they can't talk everyday.
paul tweeted his longest friendship is his wife of 20 years who he has known for 21 years. he tweeted the key is they are different from each other, but that makes it work.
heather tweets she and her twin sister are close with a friend they met at age 4. they have been friends for 38 years. heather tweets it never feels like time has passed when they talk

This brings us to our Extend-The-Conversation Question: What is the key to your friendship with your best friend?

extend-the-conversation question in white at the top of the graphic. a picture of two women jumping on the beach with waves crashing in front of a sunset. What is the key to your friendship with your best friend? in white below them with the #cpchatnow white logo in the bottom left hand corner

Thanks for reading and please join us each Wednesday at 8 Eastern at #CPChatNow.

-Devin

#CPChatNow Recap- 07-22-2020

Participants in the weekly cerebral palsy Twitter chat #CPChatNow brought up interesting topics during the chat Wednesday, July 22nd, 2020. Or so at least I, chat co-host Zachary Fenell, found the topics interesting. You can make your own judgments by reading the weekly recap. All aboard!

Much conversation revolved around a link Amanda shared earlier in the week.

Zachary retweets Amanda's tweet linking to a Buzzfeed article listing adaptive equipment.

Earlier in the week Amanda used our hashtag when tweeting out Elizabeth Lilly’s Buzzfeed article “35 Things People with Limited Mobility Swear By.” I asked if anybody uses items on the list. Blemi answered saying she uses a shelf reacher. Although, Blemi quickly added she uses the shelf reacher more due to her height oppose to her CP.

Furthering the conversation surrounding the Buzzfeed article, I asked participants another question.

#CPChatNow participants discuss items on the Buzzfeed adaptive equipment list which they would be interested in using.

After I finished reading the Buzzfeed list, I asked if there was anything on the list you would think about starting to use. Responding to my own question I stated the garment steamer and pot tipper items intrigued me. Amanda gave the pot tipper a ringing endorsement saying “The pot tipper I love!!!!”

While my co-host Devin Axtman agreed, calling the pot tipper a “genius idea” a different item on the list caught his attention.

Devin shares what piece of adaptive equipment on the Buzzfeed list he may start using.

From the 35 items Lilly mentioned in her Buzzfeed article, the electric can opener caught Devin’s attention. This prompted Karen to sing the item’s praise. Karen noted how the electric can opener creates a smooth edge, ensuring she doesn’t cut herself.

What about you? Read through the Buzzfeed article and answer for the week’s extend-the-conversation question “Was there anything on the list you would think about starting to use?” Leave your replies in the “Comments” section.

Elsewhere in the July 22nd chat, participants discussed dating and sex.

#CPChatNow participants discuss subjects related to disability dating and sex.

The dating and sex subjects emerged when Seth shared his friend would be speaking to a group of disabled teens about sex. News I found cool because the topic can often go overlooked in the disability community.

Continuing the conversation Seth revealed his friend planned to use Life Goes On as an example. He warned her to expect a lot of blank faces. When I asked Seth what he would recommend instead, Seth named Speechless. Additionally, Karen offered recommendations.

Karen recommends TV shows and movies which depict sex with disabled characters.

Beyond Speechless, Karen named Margarita with a Straw and Crip Camp as projects depicting sex with disabled characters. Feel free to add your own suggestions too. First though, answer the week’s extend-the-conversation question. Again, the question refers to the Buzzfeed adaptive equipment list and asks “Was there anything on the list you would think about starting to use?”

Answer below in the comments!

Until next time, remember. Don’t blend in. Blend out!

-Zachary

#CPChatNow Recap- 7/15/20

This past week in #CPChatNow was cracking as always. Members discussed various topics like their brags for the day, creating their own podcast, life hacks, and what part of the day they feel at their best.

Zach opened the conversation by asking members what their brag for the day was. He shared that his book is now offered at the library he works at:

zach tweets he spotted his book while working at the library. an image of zach's book on a book shelf between two books.

My brag was advocating to my apartment to finally finish a wheelchair ramp on a sidewalk:

i tweet my brag is advocating to my apartment to finally finish a wheelchair ramp. an image of a wheelchair ramp by a pickup

Travis tweeted about starting his podcast, Off The Crutch.

travis tweeted about starting his podcast, off the crutch. he came up with the name because he uses forearm crutches.

Amanda tweeted a Buzzfeed article with tips for people with limited mobility. This might be helpful for some people with CP.

amanda shared a video from buzzfeed about 35 tips from people with limited mobility

Finally, members discussed what part of the day they felt the best at:

zach asked what part of the day people feel their best at. zach tweets he would've said 7-10 pm in college, but now he said in the morning. i tweeted right after i take a shower, veronica tweeted in the early afternoon.
karen tweeted she feels better at night because she is still sleepy in the morning so she has less balance.

This brings us to our Extend-The-Conversation: What is your favorite part of the day?

the extend the conversation question graphic. a picture of a sunset with a person standing in front of the ocean. extend-the-conversation question in white with what is your favorite part of the day? and the white #cpchatnow logo in the bottom right hand corner

Thank you for reading and join us each Wednesday at 8 Eastern on Twitter at #CPChatNow

-Devin

#CPChatNow Recap- 07-08-2020

Various subjects came and went Wednesday, July 8th, 2020 during the live cerebral palsy Twitter chat #CPChatNow. To tell you more I am chat co-host Zachary Fenell. Welcome to your weekly recap!

Early dialogue from the evening involved participants discussing different mask mandates. Through the conversation we discovered most mandates possess similar disability exemptions. This led to some interesting questions.

#CPChatNow participants discuss how the disability exemption part of mask mandates will be enforced.

After we began discussing the mask mandate exemptions, I asked how many people with disabilities will feel like they will need to prove themselves as disabled. Plus, I questioned how many non-disabled individuals will lie and claim a disability just to get out of wearing a mask.

My co-host Devin Axtman who works in a college’s disability service office, answered the questions. He expects a tough balance between having people get documentation versus people just asking. Meanwhile chat regular Heather expressed doubts a lot of places will ask for documentation.

Enforcing mask mandate exemptions sure does bring about certain complications. Let us continue that discussion. Answer as the week’s extend-the-conversation question, “How would you enforce mask mandate exemptions?” Leave your answer in the “Comments” section.

Moving beyond masks, chat regular Seth shared an interesting experience he had July 4th weekend.

Seth shares a Fourth of July story.
Seth and Zachary react to Seth's Fourth of July story.

As Seth explained, at a fireworks party, two kids became intrigued by Seth’s voice. Resulting, Seth ended up playing “Guess What the Gimp is Saying” with the kids. I found Seth’s story super cool, assuming Seth was cool with the game. An assumption Seth confirmed as true. Ultimately by having a sense of humor, Seth transformed a potentially awkward or frustrating situation into a positive moment.

Returning to a more serious tone, remember to answer the week’s extend-the-conversation question “How would you enforce mask mandate exemptions?” Answer below! Then mark your calendar for #CPChatNow each and every Wednesday starting at 8pm ET.

Until then, don’t blend in. Blend out!

-Zachary

This week's extend-the-conversation question asks, "How would you enforce mask mandate exemptions?"
Answer below!

#CPChatNow Recap- 7/1/2020

#CPChatNow opened up July discussing a wide range of topics. Members discussed Canada Day, critical topics such as their favorite type of M&M’s, and if it was difficult to obey their limits. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, I would like to highlight an important conversation The Accessible Stall podcast had about systemic racism and abelism. You can find the episode here.

i tweet about the accessible stall podcast episode on systemic racism

I also wanted to highlight a recent blog post by co-host, Zachary Fennell, about his experience during the Cleveland UCP Race to Empower.

zach tweets about a guest blog post about cleveland UCP"s race to empower

July 1st was Canada Day and Blemi tweeted that it was very different than the normal celebrations due to the COVID pandemic.

blemi tweeted everything is canceled so she was having a low key canada day at home, zach asks about usual activities, blemi tweeted her hometown usually had a parade and rodeo and there are always family get togethers. zach tweets that sounds like fun and a low key day is good sometimes

Next, talk turned to a very important question, what are member’s favorite M&M’s. This was inspired by some delicious Crispy M&M’s I was enjoying.

i ask what people's favorite m&m's were. chris tweeted peanut or nutella.

Finally, members discussed a common struggle for folks with CP, obeying their limits.

zach asks if it is difficult for people to obey their limits. zach tweets his question was inspired by passing on some sub opportunities at work. i tweet i sometimes have trouble with walking long distances.
chris tweets he does not push his physical limitations and it has been a struggle because he used to resent his cp. he also tweets his immune system has never been strong and all 4 sides are affected so he wishes he could be more physically active.

This brings us to our Extend-The-Conversation Question: What is your favorite candy?

the extend-the-conversation graphic. the orange, blue, and green #CPChatNow logo is in the right hand corner, extend-the-conversation question is above the question in green with the question of what is your favorite candy above a picture of M&M's on pretzel sticks. #cpchatnow is in white text behind a green background

Thanks for reading and be sure to join us each Wednesday at 8 Eastern on Twitter at #CPChatNow.

-Devin

#CPChatNow Recap- 06-24-2020

On Wednesday, June 24th, 2020 participants in the weekly cerebral palsy Twitter chat #CPChatNow continued adjusting to life in a COVID19 world. To tell you more, I am chat co-host Zachary Fenell. Allow me to serve as your conductor on this metaphorical train ride known as your weekly recap. All aboard!

As aforementioned, much dialogue from the night related to the COVID19 world we all now live in. For example, Major League Baseball (MLB) announcing their plans for the 2020 season.

#CPChatNow participants discuss a common interest, baseball.

Bonds in our community prove strong, in-part due to commonalities beyond cerebral palsy. My co-host Devin Axtman brought one such commonality up, mentioning baseball. Specifically, MLB’s plan for the 2020 season. Many participants possess their favorite teams. Devin loves the Chicago Cubs. I am a huge Cleveland Indians fan. We learned relative newcomer to the group Chris supports the Indians’ divisional rival Minnesota Twins.

Meanwhile long-time regular Jen roots for the Texas Rangers. Her Rangers fandom showed when I asked a question about customizing face masks.

#CPChatNow participants discuss customizing face masks.

Seeking ideas for custom face masks, I asked #CPChatNow what would everyone put on a custom face mask. Jen replied, saying maybe the Philadelphia Flyers’ mascot Gritty or the Texas Rangers’ mascot Rangers Captain. Also replying, Devin said our #CPChatNow logo. His comment sparked my creativity.

Taking a moment I went over to Custom Ink and generated a possible #CPChatNow mask. Both Devin and Chris liked what they saw. I still need to look into the logistics more, but stay tuned! #CPChatNow face masks could become available soon.

Would you want a #CPChatNow face mask? If not, what would you put on a custom face mask? Answer that for the week’s extend-the-conversation question!“What would you put on a custom face mask?”

Answer below! Then plan to join us on Twitter, each and every Wednesday starting at 8pm ET. I look forward to tweeting you then. Until then though, remember. Don’t blend in. Blend out!

-Zachary

This week's extend-the-conversation question asks, "What would you put on a custom face mask?"
Answer below!

#CPChatNow- 6-10-2020

This past week in #CPChatNow was busy as always, but this week brought new members. Members discussed the Moro Reflex and media representation of CP. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap!

First, members discussed a dreaded part of CP for some people, an exaggerated startle reflex.

amelia asks if a startle reflex is a thing with cp and a german sheppard startled her. i tweeted about dogs and seth tweeted about storms.

Karen tweeted about the name for the reflex, the Moro reflex.

karen tweets some links explaining the moro reflex. amelia tweeted she did not know it had a name. tonia tweeted lots of aspects of cp are rarely discussed

Next, talk turned to different representations of CP in the media. Members discussed the Netflix documentary Crip Camp and various issues of representation in the documentary.

karen asks what people thought of the depiction of cp in crip camp. heather tweets about surpirse of cp being at the low end of hierachy. i tweet about how much of that is how visible cp is
amelia tweeted she was happy to be represented in crip camp, but she didn't feel she could relate. karen tweeted cp comes in so many forms.

Talk also turned to the sadly canceled ABC show, Speechless, and issues related to representation. Members had varying opinions on whether they could relate to JJ.

zach tweets about how some felt they could not relate to JJ"s character. karen tweeted about how CP is so different from each person that many don't use a chair or are nonverbal. karen's main problem was too many subplots. I tweeted my agreement

Karen connected the lack of a ramp in the season 2 finale of Speechless with the abelism highlighted in Crip Camp.

zach tweets about a favorite scene from the season 2 finale when an award show director discovered there was not a ramp. i tweeted about accepting an award in the same situation. karen tweets she won an award in college and was told a ramp would be a fire hazard.

This brings us to our Extend-The-Conversation Question: Have you ever been denied recognition due to physical inaccessibility?

Thanks for reading this week’s recap and join us at 8 Eastern each Wednesday on Twitter at #CPChatNow!

-Devin

#CPChatNow Recap- 06-03-2020

Community, both past and present, took center stage during the weekly cerebral palsy (CP) Twitter chat #CPChatNow Wednesday, June 3rd, 2020. Here to tell you more I am chat co-host Zachary Fenell. Join me for our weekly tradition also known as the #CPChatNow recap.

Early in the night humor from our chat’s past emerged into our conversation.

Zachary and Devin share a laugh over humor from #CPChatNow's past.

Jokingly I asked my co-host Devin Axtman if he had any drinks on hand because I may experience technical difficulties throughout the night. A joke referencing the days when our community held monthly video chats via Google Hangouts. Notoriously I would experience technical difficulties, mostly due to my aged laptop’s inability to properly run during group video chats. At one point in a monthly Hangout Devin quipped about turning my technical difficulties into a drinking game. His joke soon became a running gag within our community.

Although, we no longer host monthly video chats our community continues growing in other ways. For example, continuing to welcome new participants to our chats. Newcomers, like Chris Johnson!

The #CPChatNow community learns more about newcomer Chris Johnson.

Judging by his return, I dare assume Chris enjoyed his first #CPChatNow experience Wednesday, May 27th, 2020. Devin happily welcomed Chris back by asking him about his hobbies. That led to a reveal Chris has a podcast about the iconic musician Prince.

Keeping the music vibe going I pointed out music stands a familiar topic within our chat.

#CPChatNow participants discuss music.

Offering an example about our past music discussions, I noted how we discussed music’s therapeutic abilities. A sentiment Chris connected to himself. In-particular he mentioned working on a book about music’s healing qualities especially in the spiritual sense.

Allow us to maintain the music theme beat. Answer for the week’s extend-the-conversation question, “Who is your favorite musician and why?”

Leave your answers below in the comments! Afterwards mark your calendars as a reminder to join us each and every Wednesday on Twitter starting at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

This week's extend-the-conversation question asks, "Who is your favorite musician and why?"
Answer below!

#CPChatNow Recap- 5-27-2020

Hello #CPChatNow! As Matt Hardy would say, the past week in #CPChatNow was wonderful! Thanks for stopping by for this week’s recap. This is your co-host, Devin Axtman, taking you along for the ride.

We will begin this week’s recap by discussing an aspect of CP that is certainly annoying, hamstring stretches. Zach made a video of his different hamstring stretches and shared it in the chat.

zach asking what hamstring stretches people do and sharing his youtube video

Also, Jorge checked in with an update on his plans for graduate school:

jorge shared he applied to UVA, Rice, McCombs, Syracuse, UNC, and wake forrest

Finally, this brings us to a cool story about the invention of an adaptive gaming controller for people with disabilities:

i tweeted a story about an adaptive gaming controller. zach tweeted he is not a gamer, but related to something being annoying as hell like OT

Jen pointed out an obvious issue if people do not play XBOX, they could not use the controller:

jen pointed out that if people didn't play xbox, they couldn't use the controller.

This bring us to our Extend-The-Conversation Question: What common household adapted item do you use?

Thanks for reading and join us each Wednesday at 8 Eastern on Twitter at #CPChatNow.

-Devin

#CPChatNow Recap- 05-20-2020

Wednesday, May 20th, 2020 saw participants in the weekly cerebral palsy Twitter chat #CPChatNow discuss many different topics. To tell you all about the various discussions, I am chat co-host Zachary Fenell. Welcome to your weekly recap!

Admittedly the night started off on the quiet side. Knowing sometimes people like to lurk, I asked lurkers to say hi. That led to a good laugh.

Zachary and Heather joke about creepy GIFs.

Following up my tweet asking lurkers to say hi, I explained I originally wanted to ask lurkers to tweet out a creepy GIF, but I did not want to affiliate lurking with being creepy. Responding to me, Heather tweeted a GIF which received a seal of approval via a couple likes.

With any ice needing breaking, broke the conversation began flowing. Chat regular Seth mentioned some disability related movies.

#CPChatNow discuss the films 37 Seconds and Margarita with a Straw.

In-particular Seth referenced seeing two interesting films recently, 37 Seconds and Margarita with a Straw. My co-host Devin Axtman said he enjoyed Margarita with a Straw. He described the film as “a very nuanced story.”

Meanwhile I said I did not know about the films. Seth educated me, explaining both essentially tell the same story. A young woman with CP discovering her sexuality. Adding, between the two, he liked Margarita with a Straw better.

Elsewhere in the chat, I echoed a question first asked earlier in the day by Chris.

#CPChatNow participants discuss their stiffness varying.

Chris had asked if others find their stiffness varies. Grace resoundingly responded affirmatively. When asked, Grace named activity, weather, and date as possible triggers for increased stiffness. Thanks to muscle relaxants though, Grace said the issue proves less constant.

How about you? Let us keep the dialogue going. Answer as the week’s extend-the-conversation question “How do you manage when you feel extra stiff?” Comment to answer!

Continuing forward with the May 20th, 2020 recap, participants also discussed shaving.

The #CPChatNow community discusses shaving and cerebral palsy.

The shaving subject came to the forefront when I asked if anyone had stories about trouble shaving. Personally I use to cut my ears while shaving, a happening I credited to poor depth perception. Nonetheless, over time I just got better.

Additionally, Tonia shared a shaving story. She recalled shaving a razor-sized chunk of skin off her shin when 11 years old. She still has a scar to this day.

Finally, before bringing this recap to a close I wish to incorporate an update from long-time chat regular Hannah Pike.

Zachary shares an update about one of our OG members, Hannah Pike.

Hannah messaged me during the chat and gave me permission to share with the community an update about her. Beyond what remains captured in the above screen shot, Hannah wanted to express she still truly loves the chat. However, given her health she finds staying on Twitter for long periods difficult. Please continue to keep Hannah in your thoughts and prayers.

Also, do not forget to answer the week’s extend-the-conversation question. This week’s question asks, “How do you manage when you feel extra stiff?” Answer below!

Then join us each and every Wednesday on Twitter. The fun starts at 8pm ET. Until then, remember. Don’t blend in. Blend out!

-Zachary

This week's extend-the-conversation question asks, "How do you manage when you feel extra stiff?"
Leave your answer below.