#CPChatNow Recap- 5-27-2020

Hello #CPChatNow! As Matt Hardy would say, the past week in #CPChatNow was wonderful! Thanks for stopping by for this week’s recap. This is your co-host, Devin Axtman, taking you along for the ride.

We will begin this week’s recap by discussing an aspect of CP that is certainly annoying, hamstring stretches. Zach made a video of his different hamstring stretches and shared it in the chat.

zach asking what hamstring stretches people do and sharing his youtube video

Also, Jorge checked in with an update on his plans for graduate school:

jorge shared he applied to UVA, Rice, McCombs, Syracuse, UNC, and wake forrest

Finally, this brings us to a cool story about the invention of an adaptive gaming controller for people with disabilities:

i tweeted a story about an adaptive gaming controller. zach tweeted he is not a gamer, but related to something being annoying as hell like OT

Jen pointed out an obvious issue if people do not play XBOX, they could not use the controller:

jen pointed out that if people didn't play xbox, they couldn't use the controller.

This bring us to our Extend-The-Conversation Question: What common household adapted item do you use?

Thanks for reading and join us each Wednesday at 8 Eastern on Twitter at #CPChatNow.

-Devin

#CPChatNow Recap- 05-20-2020

Wednesday, May 20th, 2020 saw participants in the weekly cerebral palsy Twitter chat #CPChatNow discuss many different topics. To tell you all about the various discussions, I am chat co-host Zachary Fenell. Welcome to your weekly recap!

Admittedly the night started off on the quiet side. Knowing sometimes people like to lurk, I asked lurkers to say hi. That led to a good laugh.

Zachary and Heather joke about creepy GIFs.

Following up my tweet asking lurkers to say hi, I explained I originally wanted to ask lurkers to tweet out a creepy GIF, but I did not want to affiliate lurking with being creepy. Responding to me, Heather tweeted a GIF which received a seal of approval via a couple likes.

With any ice needing breaking, broke the conversation began flowing. Chat regular Seth mentioned some disability related movies.

#CPChatNow discuss the films 37 Seconds and Margarita with a Straw.

In-particular Seth referenced seeing two interesting films recently, 37 Seconds and Margarita with a Straw. My co-host Devin Axtman said he enjoyed Margarita with a Straw. He described the film as “a very nuanced story.”

Meanwhile I said I did not know about the films. Seth educated me, explaining both essentially tell the same story. A young woman with CP discovering her sexuality. Adding, between the two, he liked Margarita with a Straw better.

Elsewhere in the chat, I echoed a question first asked earlier in the day by Chris.

#CPChatNow participants discuss their stiffness varying.

Chris had asked if others find their stiffness varies. Grace resoundingly responded affirmatively. When asked, Grace named activity, weather, and date as possible triggers for increased stiffness. Thanks to muscle relaxants though, Grace said the issue proves less constant.

How about you? Let us keep the dialogue going. Answer as the week’s extend-the-conversation question “How do you manage when you feel extra stiff?” Comment to answer!

Continuing forward with the May 20th, 2020 recap, participants also discussed shaving.

The #CPChatNow community discusses shaving and cerebral palsy.

The shaving subject came to the forefront when I asked if anyone had stories about trouble shaving. Personally I use to cut my ears while shaving, a happening I credited to poor depth perception. Nonetheless, over time I just got better.

Additionally, Tonia shared a shaving story. She recalled shaving a razor-sized chunk of skin off her shin when 11 years old. She still has a scar to this day.

Finally, before bringing this recap to a close I wish to incorporate an update from long-time chat regular Hannah Pike.

Zachary shares an update about one of our OG members, Hannah Pike.

Hannah messaged me during the chat and gave me permission to share with the community an update about her. Beyond what remains captured in the above screen shot, Hannah wanted to express she still truly loves the chat. However, given her health she finds staying on Twitter for long periods difficult. Please continue to keep Hannah in your thoughts and prayers.

Also, do not forget to answer the week’s extend-the-conversation question. This week’s question asks, “How do you manage when you feel extra stiff?” Answer below!

Then join us each and every Wednesday on Twitter. The fun starts at 8pm ET. Until then, remember. Don’t blend in. Blend out!

-Zachary

This week's extend-the-conversation question asks, "How do you manage when you feel extra stiff?"
Leave your answer below.

#CPChatNow Recap- 5/13/2020

The #CPChatNow recap returns as we recap the happenings of last week’s chat. To quote the late WWE Hall of Famer, Gorilla Monsoon, it was A Happening! Members discussed the latest in their life at home and positives that were happening during quarantine. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, members discussed a hot topic these days, wearing masks and the annoyances that brought:

zach tweeted his face mask is fogging up and it slides off his face, i tweeted i have worn one, but it is hot

Next, talk turned to how things have gone when members have ventured out and what the experience has been of others observing social distancing (or not):

i tweeted i had been to a park, grocery store, and fast food restaurant. blemi tweeted she had only been to grocery store, the vehicle registry, and her parent's place and that she missed people. zach tweeted he misses human interaction.
zach asked about social distancing in different settings stating he has only been walking down streets and in a park. blemi tweets that she wears a mask because people don't observe the 6 foot rule, i tweeted we stayed away from people at the park but others didn't, the grocery store wasn't that packed, and the fast food restaurant was in and out

Finally, let’s end this recap with some positivity! Zach asked members to share some positivity:

zach asked members to share positive news. blemi tweeted about seeing rob's family, chris tweeted she passed her mock class and did the paperwork for her teaching job

This brings us to our Extend-The-Conversation Question: What positive things have happened to you during the quarantine? Please share your answers in the comments and join us each Wednesday at 8 Eastern on #CPChatNow.

extend the conversation graphic. multicolored #cpchatnow logo in the upper right hand corner. the question: what positive things have happened to you during this quarantine? the word positivity above a field of daisies and a blue sky

Thanks for reading and join us each Wednesday at 8 Eastern on Twitter at #CPChatNow!

-Devin

#CPChatNow Recap- 04-29-2020

On Wednesday, April 29th, 2020 participants in our weekly cerebral palsy Twitter chat #CPChatNow discussed mental health and much more. Here with the details, I am chat co-host Zachary Fenell. Get ready to enjoy your weekly recap.

The aforementioned discussion about mental health started from a conversation between our “Positivity Princess” Linds and myself over working from home.

Zachary and Linds discuss working from home.

Checking in with Linds, I asked her how she was liking working from home. She admitted to feeling shaky about it at first, but now she loves it! One particular reason Linds had initially felt shaky dealt with her not knowing it was okay to voice her concerns.

Such self-doubt can wreck havoc on anyone’s mental health. Borrowing a fellow #CPChatNow co-founder’s mindset (John W. Quinn), we redirected the conversation to focus on solutions. Not problems!

Linds shares what she tells herself to overcome self-doubt.

Solution focused, I asked Linds if she has a phrase or mantra that helps her refocus when self-doubt begins to sabotage her. She answered yes, “I love me.”

Additionally, I shared what I say to myself when negative emotion starts to overwhelm me.

Zachary and Devin share what they tell themselves when they begin feeling overwhelmed.

Personally, I will start feeling overwhelmed. To calm myself down I internally repeat “One thing at a time.” My co-host Devin Axtman chimed in and said he tells himself the same. What about you? Answer as the week’s extend-the-conversation question, “When you find yourself feeling negative, what phrase or mantra do you use to pull yourself through?” Leave your answer in the “Comments” section.

Perhaps rather than repeating a phrase or mantra, you crank up some music. Recently I read about Joey Odum, a blues musician with cerebral palsy.

#CPChatNow participants discuss doing a watch party for Joey Odum's upcoming Facebook stream.
Veronica would be in for a watch party.

Joey Odum plans to play a live Facebook stream this Saturday, May 9th at 3pm ET/2pm CT. Veronica, Devin, and I all expressed interest in doing a watch party for the stream. Please consider joining us! After the stream starts, I will begin the watch party at the CPChatNow Facebook page. So, Saturday afternoon, stay tuned to the page.

In the meantime remember to answer the week’s extend-the-conversation question. “When you find yourself feeling negative, what phrase or mantra do you use to pull yourself through?” Comment below with your reply.

Until next time remember. Don’t blend in. Blend out!

-Zachary

This week's extend-the-conversation question asks, "When you find yourself feeling negative, what phrase or mantra do you use to pull yourself through?"
Comment below to answer.

#CPChatNow Recap- 4/22/2020

This past week #CPChatNow was out of this world on Earth Day! Members discussed Earth Day, trying new things while staying at home, and their thoughts around reopening. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

April 22nd was the 50th anniversary of Earth Day. Jorge asked if folks were enjoying Earth Day.

Jorge asked if people got out to enjoy the earth on Earth day. Veronica tweeted her husband created a sitting area in her backyard where she drinks her coffee.

Next, members discussed trying new things while staying at home during the COVID pandemic. I discussed cooking more while at home and Hailey discussed trying a latch hook kit:

I ask if people have tried new things while staying home. Hailey tweeted about trying latch hook kit, but is worried about her motor skills

Jorge asked about a common topic that is impacted by the COVID pandemic, colleges and universities.

Jorge asks if I think colleges will open up in the Fall. I tweeted I felt it will be a patchwork of plans, but they would try. Jorge brings up the issue of international enrollment. jorge tweets he is applying to several schools.

Finally, Zach asked where different member’s home states are in the COVID pandemic reopening.

Zach asks where each member's area is on reopening. Grace tweets she is relieved Massachusetts is following guidelines and not considering reopening. I tweeted I am nervous that Texas is starting to open. I am nervous about going back to work and am nervous if I will continue to be able to work from home.

This brings us to our Extend-The-Conversation Question: What new things have you been trying while staying at home during the COVID pandemic?

extend-the-conversation question graphic. An image of a green road sign reading discovery with the extend-the-conversation question and multicolored #CPChatNow logo in the upper right hand corner

Please share your answers in the comments and join us each Wednesday at 8 Eastern on #CPChatNow.

-Devin

#CPChatNow Recap- 04-15-2020

During our current social isolating times, the live weekly cerebral palsy Twitter chat #CPChatNow provides a way for individuals to come together and safely enjoy social interaction. The chat Wednesday, April 15th, 2020 proved no different. Here to tell you more, I am chat co-host Zachary Fenell. Play the highlight reel (also known as your weekly recap)!

Early discussion Wednesday, April 15th turned to how community members continue to cope with staying home while the Coronavirus pandemic persists.

#CPChatNow participants discuss how they are coping with staying home.

Both long-time regular Blemi and my co-host Devin Axtman noted staying home so much has been wearing on them. Meanwhile Veronica explained the stay at home order did not entail such a massive adjustment for her. She has been a stay-at-home mom for over 20 years. Additionally, she doesn’t drive. She mentioned if anything, she has less isolation now.

Going back a point, the non driver issue Veronica brought up drove the dialogue forward. Pun entirely intended.

Veronica offers Devin and Zachary an alternative to drive-thrus. All three are non drivers.

Responding to Veronica, I identified the worst part about not driving in this situation is places with an open drive-thru remain closed to us non drivers. A sentiment Devin further echoed. However, Veronica did offer us a potential solution in suggesting Ubereats, Grub Hub, and Postmates. All three companies she called “great restaurant delivery services.”

Keeping to the delivery theme, discussion directed toward getting your groceries delivered.

#CPChatNow participants talk about grocery delivery.

In answering my question about making adjustments to home life due to the stay home orders Devin mentioned getting groceries delivered. This piqued Veronica’s attention, who wanted to know how grocery delivery was working now. Devin advised needing to take a strategic approach, indicating delivery time takes a couple of days.

Elsewhere, I named a couple home life adjustments I am making to cope with staying home.

Zachary and Veronica discuss their fondness for coffee.

One particular adjustment for me involves using the afternoons as exercise time. I find exercising in the afternoon gives me a healthier midday energy boost compared to grabbing another coffee. How about you? Answer for the week’s extend-the-conversation question, “How do you give yourself a midday energy boost?”

Leave your reply in the “Comments” section below. Then remember to join us on Twitter each and every Wednesday starting at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

This week's extend-the-conversation question asks "How do you give yourself a midday energy boost?"
Answer by comment below!

#CPChatNow Recap- 4/8/2020

This past week in #CPChatNow was intriguing as always. Members discussed strategies for dealing with the COVID stay at home situation, special education during the pandemic, and finding connections via the CP community and blogging. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

#CPChatNow member Tonia has been sharing concerns related to paying for her laundry. She shared an awesome story of a friend helping her out. This shows the power of community during the times we are in.

Zach asks Tonia how she resolved her laundry quarter issue. Tonia says that a friend with CP sanitized 100 quarters and sent them to her

Next, Zach and I talked about an issue that has been in the news a lot lately, virtual learning and parents. Concerns are even more amplified when you are helping your disabled child with their special education.

zach posts an article about virtual special education and mentions sped students may have advantages with distance learning since they are used to technology. i mentioned stuff has to be accessible for the technology to be used. i also mentioned difficulty of physical and occupational therapy
zach mentions PT by video and parents being stressed. i tweeted i would be nervous as a parent to mess something up and about access to technology stating many of my mom's students don't have access. zach tweeted he has learned many people don't have access to the internet by working at the library

Next, talk turned to forming connections with the CP community. Zach asked about the first people with CP we connected with.

zach asks about our first connection with somone with cp. i tweeted about a person in physical therapy. Tonia tweeted about a girl she met at camp for kids with disabilities at 13.

Next, talk turned to connections created with a common activity, blogging.

zach asks what got other people into blogging. tonia tweeted it was after reading the post of a parent of a disabled child and wanting to offer her thoughts. linds tweeted she was angry about a teachable moment with a coworker. tonia tweeted she feels obligated to teach others while linds says she does not.

This brings us to our Extend-The-Conversation Question: Do you feel like you need to teach others about having CP? Please share your answers in the comments!

the extend-the-conversation question graphic. the extend the conversation question is: Do you feel like you need to teach others about having CP? The multicolored #cpchatnow logo in the upper right hand corner, #cpchatnow on the bottom, and an image of a female teacher with a red book drawing on a chalkboard

Thanks for reading and please join us each Wednesday at 8 Eastern on #CPChatNow!

-Devin