This past week in #CPChatNow was festive as always. Members discussed a new book by a disabled author, online dating, and their oldest friendship. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.
Next, Chris asked whether people had success online dating and mentioned he was thinking about joining match.com. Members shared various levels of success, but I wanted to highlight people who have had success to show that finding love with a disability is possible.
Finally, #CPChatNow talked about something that’s very important, friends. Members discussed their longest friendship and why they felt it had lasted so long.
This brings us to our Extend-The-Conversation Question: What is the key to your friendship with your best friend?
Thanks for reading and please join us each Wednesday at 8 Eastern at #CPChatNow.
Participants in the weekly cerebral palsy Twitter chat #CPChatNow brought up interesting topics during the chat Wednesday, July 22nd, 2020. Or so at least I, chat co-host Zachary Fenell, found the topics interesting. You can make your own judgments by reading the weekly recap. All aboard!
Much conversation revolved around a link Amanda shared earlier in the week.
Earlier in the week Amanda used our hashtag when tweeting out Elizabeth Lilly’s Buzzfeed article “35 Things People with Limited Mobility Swear By.” I asked if anybody uses items on the list. Blemi answered saying she uses a shelf reacher. Although, Blemi quickly added she uses the shelf reacher more due to her height oppose to her CP.
Furthering the conversation surrounding the Buzzfeed article, I asked participants another question.
After I finished reading the Buzzfeed list, I asked if there was anything on the list you would think about starting to use. Responding to my own question I stated the garment steamer and pot tipper items intrigued me. Amanda gave the pot tipper a ringing endorsement saying “The pot tipper I love!!!!”
While my co-host Devin Axtman agreed, calling the pot tipper a “genius idea” a different item on the list caught his attention.
From the 35 items Lilly mentioned in her Buzzfeed article, the electric can opener caught Devin’s attention. This prompted Karen to sing the item’s praise. Karen noted how the electric can opener creates a smooth edge, ensuring she doesn’t cut herself.
What about you? Read through the Buzzfeed article and answer for the week’s extend-the-conversation question “Was there anything on the list you would think about starting to use?” Leave your replies in the “Comments” section.
Elsewhere in the July 22nd chat, participants discussed dating and sex.
The dating and sex subjects emerged when Seth shared his friend would be speaking to a group of disabled teens about sex. News I found cool because the topic can often go overlooked in the disability community.
Continuing the conversation Seth revealed his friend planned to use Life Goes On as an example. He warned her to expect a lot of blank faces. When I asked Seth what he would recommend instead, Seth named Speechless. Additionally, Karen offered recommendations.
Beyond Speechless, Karen named Margarita with a Straw and Crip Camp as projects depicting sex with disabled characters. Feel free to add your own suggestions too. First though, answer the week’s extend-the-conversation question. Again, the question refers to the Buzzfeed adaptive equipment list and asks “Was there anything on the list you would think about starting to use?”
Answer below in the comments!
Until next time, remember. Don’t blend in. Blend out!
This past week in #CPChatNow was cracking as always. Members discussed various topics like their brags for the day, creating their own podcast, life hacks, and what part of the day they feel at their best.
Zach opened the conversation by asking members what their brag for the day was. He shared that his book is now offered at the library he works at:
My brag was advocating to my apartment to finally finish a wheelchair ramp on a sidewalk:
Various subjects came and went Wednesday, July 8th, 2020 during the live cerebral palsy Twitter chat #CPChatNow. To tell you more I am chat co-host Zachary Fenell. Welcome to your weekly recap!
Early dialogue from the evening involved participants discussing different mask mandates. Through the conversation we discovered most mandates possess similar disability exemptions. This led to some interesting questions.
After we began discussing the mask mandate exemptions, I asked how many people with disabilities will feel like they will need to prove themselves as disabled. Plus, I questioned how many non-disabled individuals will lie and claim a disability just to get out of wearing a mask.
My co-host Devin Axtman who works in a college’s disability service office, answered the questions. He expects a tough balance between having people get documentation versus people just asking. Meanwhile chat regular Heather expressed doubts a lot of places will ask for documentation.
Enforcing mask mandate exemptions sure does bring about certain complications. Let us continue that discussion. Answer as the week’s extend-the-conversation question, “How would you enforce mask mandate exemptions?” Leave your answer in the “Comments” section.
Moving beyond masks, chat regular Seth shared an interesting experience he had July 4th weekend.
As Seth explained, at a fireworks party, two kids became intrigued by Seth’s voice. Resulting, Seth ended up playing “Guess What the Gimp is Saying” with the kids. I found Seth’s story super cool, assuming Seth was cool with the game. An assumption Seth confirmed as true. Ultimately by having a sense of humor, Seth transformed a potentially awkward or frustrating situation into a positive moment.
Returning to a more serious tone, remember to answer the week’s extend-the-conversation question “How would you enforce mask mandate exemptions?” Answer below! Then mark your calendar for #CPChatNow each and every Wednesday starting at 8pm ET.
#CPChatNow opened up July discussing a wide range of topics. Members discussed Canada Day, critical topics such as their favorite type of M&M’s, and if it was difficult to obey their limits. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.
First, I would like to highlight an important conversation The Accessible Stall podcast had about systemic racism and abelism. You can find the episode here.
I also wanted to highlight a recent blog post by co-host, Zachary Fennell, about his experience during the Cleveland UCP Race to Empower.
July 1st was Canada Day and Blemi tweeted that it was very different than the normal celebrations due to the COVID pandemic.
Next, talk turned to a very important question, what are member’s favorite M&M’s. This was inspired by some delicious Crispy M&M’s I was enjoying.
Finally, members discussed a common struggle for folks with CP, obeying their limits.
This brings us to our Extend-The-Conversation Question: What is your favorite candy?
Thanks for reading and be sure to join us each Wednesday at 8 Eastern on Twitter at #CPChatNow.
On Wednesday, June 24th, 2020 participants in the weekly cerebral palsy Twitter chat #CPChatNow continued adjusting to life in a COVID19 world. To tell you more, I am chat co-host Zachary Fenell. Allow me to serve as your conductor on this metaphorical train ride known as your weekly recap. All aboard!
As aforementioned, much dialogue from the night related to the COVID19 world we all now live in. For example, Major League Baseball (MLB) announcing their plans for the 2020 season.
Bonds in our community prove strong, in-part due to commonalities beyond cerebral palsy. My co-host Devin Axtman brought one such commonality up, mentioning baseball. Specifically, MLB’s plan for the 2020 season. Many participants possess their favorite teams. Devin loves the Chicago Cubs. I am a huge Cleveland Indians fan. We learned relative newcomer to the group Chris supports the Indians’ divisional rival Minnesota Twins.
Meanwhile long-time regular Jen roots for the Texas Rangers. Her Rangers fandom showed when I asked a question about customizing face masks.
Seeking ideas for custom face masks, I asked #CPChatNow what would everyone put on a custom face mask. Jen replied, saying maybe the Philadelphia Flyers’ mascot Gritty or the Texas Rangers’ mascot Rangers Captain. Also replying, Devin said our #CPChatNow logo. His comment sparked my creativity.
Taking a moment I went over to Custom Ink and generated a possible #CPChatNow mask. Both Devin and Chris liked what they saw. I still need to look into the logistics more, but stay tuned! #CPChatNow face masks could become available soon.
Would you want a #CPChatNow face mask? If not, what would you put on a custom face mask? Answer that for the week’s extend-the-conversation question!“What would you put on a custom face mask?”
Answer below! Then plan to join us on Twitter, each and every Wednesday starting at 8pm ET. I look forward to tweeting you then. Until then though, remember. Don’t blend in. Blend out!
This past week in #CPChatNow was busy as always, but this week brought new members. Members discussed the Moro Reflex and media representation of CP. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap!
First, members discussed a dreaded part of CP for some people, an exaggerated startle reflex.
Karen tweeted about the name for the reflex, the Moro reflex.
Next, talk turned to different representations of CP in the media. Members discussed the Netflix documentary Crip Camp and various issues of representation in the documentary.
Talk also turned to the sadly canceled ABC show, Speechless, and issues related to representation. Members had varying opinions on whether they could relate to JJ.
Karen connected the lack of a ramp in the season 2 finale of Speechless with the abelism highlighted in Crip Camp.
This brings us to our Extend-The-Conversation Question: Have you ever been denied recognition due to physical inaccessibility?
Thanks for reading this week’s recap and join us at 8 Eastern each Wednesday on Twitter at #CPChatNow!
Community, both past and present, took center stage during the weekly cerebral palsy (CP) Twitter chat #CPChatNow Wednesday, June 3rd, 2020. Here to tell you more I am chat co-host Zachary Fenell. Join me for our weekly tradition also known as the #CPChatNow recap.
Early in the night humor from our chat’s past emerged into our conversation.
Jokingly I asked my co-host Devin Axtman if he had any drinks on hand because I may experience technical difficulties throughout the night. A joke referencing the days when our community held monthly video chats via Google Hangouts. Notoriously I would experience technical difficulties, mostly due to my aged laptop’s inability to properly run during group video chats. At one point in a monthly Hangout Devin quipped about turning my technical difficulties into a drinking game. His joke soon became a running gag within our community.
Although, we no longer host monthly video chats our community continues growing in other ways. For example, continuing to welcome new participants to our chats. Newcomers, like Chris Johnson!
Judging by his return, I dare assume Chris enjoyed his first #CPChatNow experience Wednesday, May 27th, 2020. Devin happily welcomed Chris back by asking him about his hobbies. That led to a reveal Chris has a podcast about the iconic musician Prince.
Keeping the music vibe going I pointed out music stands a familiar topic within our chat.
Offering an example about our past music discussions, I noted how we discussed music’s therapeutic abilities. A sentiment Chris connected to himself. In-particular he mentioned working on a book about music’s healing qualities especially in the spiritual sense.
Allow us to maintain the music theme beat. Answer for the week’s extend-the-conversation question, “Who is your favorite musician and why?”
Leave your answers below in the comments! Afterwards mark your calendars as a reminder to join us each and every Wednesday on Twitter starting at 8pm ET.
Wednesday, May 20th, 2020 saw participants in the weekly cerebral palsy Twitter chat #CPChatNow discuss many different topics. To tell you all about the various discussions, I am chat co-host Zachary Fenell. Welcome to your weekly recap!
Admittedly the night started off on the quiet side. Knowing sometimes people like to lurk, I asked lurkers to say hi. That led to a good laugh.
Following up my tweet asking lurkers to say hi, I explained I originally wanted to ask lurkers to tweet out a creepy GIF, but I did not want to affiliate lurking with being creepy. Responding to me, Heather tweeted a GIF which received a seal of approval via a couple likes.
With any ice needing breaking, broke the conversation began flowing. Chat regular Seth mentioned some disability related movies.
In-particular Seth referenced seeing two interesting films recently, 37 Seconds and Margarita with a Straw. My co-host Devin Axtman said he enjoyed Margarita with a Straw. He described the film as “a very nuanced story.”
Meanwhile I said I did not know about the films. Seth educated me, explaining both essentially tell the same story. A young woman with CP discovering her sexuality. Adding, between the two, he liked Margarita with a Straw better.
Elsewhere in the chat, I echoed a question first asked earlier in the day by Chris.
Chris had asked if others find their stiffness varies. Grace resoundingly responded affirmatively. When asked, Grace named activity, weather, and date as possible triggers for increased stiffness. Thanks to muscle relaxants though, Grace said the issue proves less constant.
How about you? Let us keep the dialogue going. Answer as the week’s extend-the-conversation question “How do you manage when you feel extra stiff?” Comment to answer!
Continuing forward with the May 20th, 2020 recap, participants also discussed shaving.
The shaving subject came to the forefront when I asked if anyone had stories about trouble shaving. Personally I use to cut my ears while shaving, a happening I credited to poor depth perception. Nonetheless, over time I just got better.
Additionally, Tonia shared a shaving story. She recalled shaving a razor-sized chunk of skin off her shin when 11 years old. She still has a scar to this day.
Finally, before bringing this recap to a close I wish to incorporate an update from long-time chat regular Hannah Pike.
Hannah messaged me during the chat and gave me permission to share with the community an update about her. Beyond what remains captured in the above screen shot, Hannah wanted to express she still truly loves the chat. However, given her health she finds staying on Twitter for long periods difficult. Please continue to keep Hannah in your thoughts and prayers.
Also, do not forget to answer the week’s extend-the-conversation question. This week’s question asks, “How do you manage when you feel extra stiff?” Answer below!
Then join us each and every Wednesday on Twitter. The fun starts at 8pm ET. Until then, remember. Don’t blend in. Blend out!