#CPChatNow Recap- 04-17-2019

Assorted topics arose Wednesday, April 17th, 2019 during the weekly cerebral palsy Twitter chat #CPChatNow. I am co-host Zachary Fenell, here to meet all your recap needs. So allow me to get right into the action.

Long-time #CPChatNow regular Jen refused to let a storm threat stop her from joining in on the week’s fun. Actually the storm threat wound up stimulating conversation.

#CPChatNow participants discuss their least favorite parts of bad weather.

Based off Jen’s situation, I asked participants to name their least favorite parts about storms. Jen mentioned tornadoes and sirens. Meanwhile Seth said power outages remain his least favorite part. I noted the inconveniences power outages cause. My co-host Devin Axtman added insight, pointing out power outages create difficulties medication wise too.

Another conversational spark occurred when Devin asked if anyone has seen Netflix’s new TV show Special.

Special gave Molly an emotional reaction. She cried!
Based off Blemi's recommendation, Hannah and Devin intend to watch Special.

Molly said Special made her cry, meaning the show left an emotional impact on her. Blemi also enjoyed an emotional viewing experience, explaining how she identifies so much with Ryan’s character. Words leaving Devin to exclaim he will have to watch! Hannah additionally revealed her intentions to watch Special, putting the show on her things to watch list.

How about you? Answer for this week’s extend-the-conversation question, “Do you plan to watch Special? Why or why not?” Answer in the “Comments” section!

Speaking of plans, participants shared their upcoming Easter plans.

Hannah looks forward to coloring eggs for the first time in at least five years.

Blemi raised the subject, asking if anyone possessed big Easter plans. Hannah looked forward to coloring eggs for the first time in at least five years. Simultaneously, Grace revealed a unique Easter tradition her family partakes in.

Grace's family plays family trivia on Easter.

Oppose to an Easter egg hunt, Grace’s family plays family trivia. She pondered whether the tradition extends from her family seeking an accessible alternative to the more traditional Easter egg hunt. Either way, the trivia offers a fun time.

Perhaps your family enjoys their own unique holiday tradition. Join us on Twitter Wednesday evening starting at 8pm ET and share all about your tradition! Just remember to use the hashtag “#CPChatNow” in your tweet. Finally, also remember to answer the week’s extend-the-conversation question. “Do you plan to watch Special? Why or why not?” Comment below!

Until next time, remember. Do not blend in. Blend out!

-Zachary

Keep the conversation going! Answer, "Do you plan to watch Special? Why or why not?"
Answer by commenting below!
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#CPChatNow Recap- 4/10/2019

This past week in #CPChatNow was interesting as always. Members discussed various topics such as problematic Lyft rides, meeting a significant other’s parents, and patronizing words. In honor of the Stanley Cup Playoffs, here are the 3 stars of the week presented by #CPChatNow Co-Host, Devin Axtman.

First, Hannah shared a problematic story with a Lyft driver. Unfortunately, she experienced discriminatory behavior from a Lyft driver refusing to give a ride due to fears Hannah’s wheelchair would scratch the car, but the second driver was great:

Hannah's story about taking a lyft when the driver refused to take her due to worries about her wheelchair scratching the car

Next, Zach and I talked about meeting a significant other’s parents for the first time when you have CP. This morphed into a discussion about me being miffed at the phrase ”seeing past disability.”

zach asks about meeting significant other's parents with cp. i said it was not an issue with my girlfriend's parents. we discussed the phrase seeing past a disability and then not defining someone by their disability

Finally, this led to a discussion of what words or phrases miff people. Seth tweeted his thoughts:

seth tweets about his words he is miffed by 'special' and "you'll get a speeding ticket"

This brings us to our Extend-The-Conversation Question: What words or phrases used to describe disability miff you? Please join us each Wednesday at #CPChatNow on Twitter at 8 Eastern.

#CPChatNow Recap- 04-03-2019

Conversation remained buzzing Wednesday, April 3rd, 2019 during the weekly cerebral palsy Twitter chat #CPChatNow. I am co-host Zachary Fenell, here to bring you the highlights the best way I know how. Your weekly recap!

Topics to discuss began arriving before the live chat even began at 8pm ET. Earlier in the week Sue Tonnesen included our hashtag in a tweet seeking podcast recommendations.

#CPChatNow participants offer their podcast recommendations.

#CPChatNow regular Seth recommended the Speechless podcast Zach Anner hosts. Meanwhile my co-host Devin Axtman highly recommended The Accessible Stall. Another topic which came up prior to Wednesday evening involved accessibility.

#CPChatNow participants discuss accessible travel.

CP and Me asked the question “Accessible transport, how is it for you?” Devin mentioned using an accessible taxi once in Chicago, comparing the experience to seeing a unicorn. Imagery meant to emphasize how difficult finding accessible taxis stands. I suggested an inability to schedule an accessible taxi in advance feeds into the availability problem to which Devin agreed.

Keeping the dialogue flowing into the night, Devin asked a question.

Devin asks #CPChatNow, "What improvements would you make for a Speechless season 4?"

Hypothetically assuming Speechless gets renewed, Devin asked what improvements people would make to the show. Seth expressed interest in seeing more adult themes. For example, have JJ join a frat.

Personally I would enjoy JJ encountering an inconsiderate jerk and needing to learn to find peace with having such jerks out there and being unable to educate them all. Hopefully the opportunity for either Seth or my scenario to play out happens. Stay tuned to the #CPChatNow Facebook fan page. We will surely post updates about whether Speechless receives a renewal.

Now though, let us return to recapping the April 3rd, 2019 #CPChatNow. A trending hashtag from earlier in the day inspired me to ask a question.

Zachary asks #CPChatNow "What would be your don't tell Mom that scenario?"

The aforementioned hashtag “#DontTellMomThat” left me asking participants to share their don’t tell Mom that scenario. Devin said his would be trying to walk on his own before physical therapy after a surgery. Interestingly enough my answer also entailed physical activity.

Zachary shares his #DontTellMomThat story.

I said not to tell Mom I started experimenting with taking the stairs in high school instead of taking the elevator like I was suppose to. What about you? Keep the conversation going by answering for the extend-the-conversation question, “What is your #DontTellMomThat story?”

Answer in the comments below! Then remember to join us on Twitter Wednesdays starting at 8pm ET.

Until next time, remember. Do not blend in. Blend out!

-Zachary

This week's extend-the-conversation question asks, "What is your #DontTellMomThat story?"

#CPChatNow Recap- 3/27/2019

*SPORTS ANCHOR VOICE* “IT’S TIME FOR YOUR WEEKLY HIGHLIGHTS OF THE PAST WEEK IN #CPCHATNOW! I’M DEVIN AXTMAN, the #CPChatNow Co-Host, taking you along for the ride on this week’s recap. PLAY BALL!

First, our other #CPChatNow Co-Host, Zachary Fenell offered a preview of his next video, If Bob Ross had Cerebral Palsy:

Zach teasing his next video, If Bob Ross had Cerebral Palsy

Next, Zach and I discussed the opening day for baseball season and whether our disability impacts our plans at the ballpark:

Zach asked how people's disabilities impact their experience at the ballpark when Devin tweeted he is going to opening day
zach said once he is seated he does not get up and relies on friends to get food. I tweeted this was my same plan.

Continuing down the lineup of chat highlights, talk turned to the sitcom Speechless and member’s thoughts on season 3. Zach and Seth offered their thoughts on a recent episode while I shared one of my recent favorites.

Zach and seth tweeted about their enjoyment of the most recent episode of speechless. i shared I liked when Maya made the board game. zach tweeted he likes when everyone is involved

Zach and I then shared our thoughts on recent direction of the show and what characters we enjoyed watching:

i shared i thought this season was the weakest, but still worth watching. i shared i tune out kenneth and jimmy but enjoy ray and dillon. zach shared jimmy and ray are his favorite characters and he enjoys this season more than the last.

Next, Paul and Zach brought up the fact that JJ is unable to speak on the show while the actor, Micah Fowler, can speak fine.

paul asks why JJ is non-verbal while the actor is verbal. zach said no idea with a chris farley gif

This brings us to our Extend-The-Conversation question: What improvements would you like in a Speechless season 4?

the extend-the-conversation graphic. a green highway sign with the word improvement in front of a blue sky. there is a black text saying 'what improvements would you like to see in a speechless season 4?' the white #CPChatNow logo is in the left hand corner

*SPORTS ANCHOR VOICE* “THANKS FOR WATCHING! PLEASE JOIN US EACH WEDNESDAY AT 8 EASTERN AT #CPChatNow on Twitter! THIS IS DEVIN AXTMAN SIGNING OFF!

#CPChatNow Recap- 3/20/2019

This past week in #CPChatNow was bumping as always. Members discussed doing art, surprising interests, and the trending hashtag #AbeldsAreWeird. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, I hope you will spare me some personal happy news. I was engaged on vacation at Disney World recently. I know this is sappy, but I want to encourage everyone to keep trying. All it takes is finding the right person:

Zach asked me how my vacation was. i replied with magical with a picture of my fiancee showing off her engagement ring. i am in a gray shirt with mickey mouse on it and she is in a white minnie mouse shirt

Next, Zach asked if members had surprising interests. Paul shared an interest in collecting things:

paul said he likes to collect stuff like figurines, wall hangings, records, etc. each room has a different color and vibe

Hannah also made some cool art and decided to share it with members:

Hannah tweeted her artistic side. She created a drawing that said, "Fight in me' with a teal and purple butterfly. there is gray, pink, orange, and yellow.

Finally, members discussed the recent trending #AbeldsAreWeird hashtag. I shared my experience of a comment while waiting for a train.

I tweeted my #abeldsareweird hashtag. i was waiting for a train. A guy responded if he was in a wheelchair, he would kill himself.

A member retweeted Nicole Rodovsky’s tweet about parents shushing their children when they ask questions and not directing their questions to the person using a wheelchair:

nicole rodvosky tweets the worst thing people do is shush their child or pull them away. encourage them to ask them face to face and ask the actual person.

This brings us to our Extend the Conversation part of the recap. What are some weird moments with your disability?

I hope you enjoyed the recap! Please join us for more conversation and community each Wednesday at 8 Eastern on Twitter at #CPChatNow.

-Devin

#CPChatNow Recap- 03-13-2019

Participants in the live cerebral palsy Twitter chat #CPChatNow discussed various subjects Wednesday, March 13th, 2019. I am co-host Zachary Fenell, here to provide some highlights via your weekly recap. Enjoy!

To get the conversation started I shared a video I found pretty cool.

Zachary and Seth share videos of people in wheelchairs doing backflips and double backflips.

The video features Katherine Beattie, the first woman to do a backflip in a wheelchair! Watch for yourself.

In response to the video, #CPChatNow regular Seth raised me another 360 degrees by linking to the world’s first double backflip in a wheelchair! Check that out too.

Both Katherine’s backflip and Aaron “Wheelz” Fotheringham’s double backflip remain impressive. Also looking to impress, long-time #CPChatNow regular Blemi turned to our community seeking ideas.

Zachary and Blemi discuss costume ideas for Blemi and her significant other.

Blemi and her significant other want to dress up for a Comicon type event they plan to attend. So Blemi asked about matching costumes ideas which would allow her to incorporate her cane. I fired up Google, hoping to help. Yet searching “female characters that use canes” proved not fruitful.

However, Blemi noted the costume does not need to be for a female character. Doing a search for “costumes with gold canes” I finally came up with a suggestion, The Riddler for Blemi and Two-Face or another Batman villain for her significant other. The suggestion intrigued them!

Another item which seemed to intrigue Blemi included the different Girl Scout cookies we have in the United States of America. This came up when I asked people about their favorite Girl Scout cookie.

#CPChatNow participants discuss their favorite Girl Scout cookies.

Ayden answered tagalongs. Meanwhile Blemi revealed in Canada they only get three choices: mint, chocolate, and vanilla. Therefore tagalongs and our other options appear rather exotic.

This week's extend-the-conversation question asks, "What is your favorite Girl Scout cookie?"
Leave your answer in the “Comments.”

With said new perspective in mind, answer as the week’s extend-the-conversation question “What is your favorite Girl Scout cookie?”

Answer below! Then remind yourself to join the conversation every Wednesday on Twitter, starting at 8pm ET.

Until then, remember. Do not blend in. Blend out!

-Zachary

#CPChatNow Recap- 02-27-2019

Happy March! In the United States this month receives distinction as Cerebral Palsy (Developmental Disabilities) Awareness Month. Prior to the occasion participants in the live cerebral palsy Twitter chat #CPChatNow gathered for one last February Twitter chat. I am co-host Zachary Fenell, here to tell you all about the discussion via your weekly recap!

While still February, our heads remained focus towards cerebral palsy awareness.

Zachary mentions the Faces of Cerebral Palsy Project, headed up by Cerebral Palsy Research Alliance Foundation.

To commemorate CP Awareness Month Cerebral Palsy Alliance Research Foundation has started an ongoing curation of photos featuring individuals with CP titled “The Faces of Cerebral Palsy.” Familiar face to the chat Jocelyn tipped me off to the project and I further shared with our community. Fill out the Faces of Cerebral Palsy form to submit your photos and story.

You will notice the form includes a few questions. One in-particular sparked dialogue within our chat February 27th.

The question in question asked “What do you wish people knew about cerebral palsy?” My co-host Devin Axtman replied, saying “that it’s (CP) different in everyone and not tragic. It doesn’t end at 18.”

Meanwhile I explained what gave me trouble in answering, saying in-part “I realized my answer would differ based off who the ‘people’ are?” Nonetheless I eventually settled upon a reply.

Zachary expresses what he wishes people knew about cerebral palsy.

I decided I wished people to know “a lot more is possible when you focus on combating particular symptoms rather than focusing on the general diagnosis.” Alternatively participant Veronica Hosking communicated a different wish.

Veronica and Zachary discuss the visibility of cerebral palsy.

Watching the UCP of Central Arizona’s telethon, Veronica reported a mother called noting the mother never heard about cerebral palsy until her daughter received the diagnosis. This left Veronica wishing more people with CP would talk about the condition. I suggested the issues stands less with people not talking about their CP, but instead the discussion taking place on niche platforms.

Adding to my comment I emphasized the importance behind a show like Speechless airing on a mainstream channel. Veronica and I agreed such representation proves huge!

Another area where disability representation could use a boost includes within the workforce. A fact supported by statistics participant Shira provided.

Shira comments about the lack of representation people with disabilities have within the workforce.

Research for school led Shira to learn only 37% of the disabled population that is of working age have jobs. Devin reasoned the poor numbers come down to attitudes and assumptions. Let us try to debunk these bad attitudes and assumptions using our extend-the-conversation question. Remixing the aforementioned alongside the Faces of Cerebral Palsy question previously recapped, we get the following query.

“What do you wish employers knew about cerebral palsy?”

Leave your reply in the comments section and keep the conversation going! Then mark your calendars to remind yourself to join us on Twitter every Wednesday starting at 8pm ET.

Until then, remember. Do not blend in. Blend out!

-Zachary

This week's extend-the-conversation question asks, "What do you wish employers knew about cerebral palsy?"
Reply in the comments!