#CPChatNow Recap-5/8/24

This past week in #CPChatNow was bumping as always. Members discussed engagements, job searches, new sports, and how CP impacts their mental health. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, we would like to congratulate #CPChatNow co-host, Jorge Oteiza, on his recent engagement!

jorge oteiza announcing his engagement with a picture of him proposing to his fiance

Next, Gracielita discussed her search for jobs, specifically work from home jobs.

gracelita and zach discussed the job search process, specifically work from home jobs to maintain her health

Next, Stephen mentioned that he has been getting into tennis by watching it on TV and playing video games.

steven and zach tweeted about how stephen has gotten into tennis by watching and playing video games

Finally, Zach and I talked about the changing impact of CP on mental health as we age. I also want to recommend folks check the recent episode The Accessible Stall Podcast did on the subject of cures.

zach asks how CP impacts people's mental health. i shared this has changed as i have aged and experienced more pain. zach agreed aging creates new challenges

This brings us to our Extend-The-Conversation Question: What are your favorite things to do for mental health self-care?

-Devin

#CPChatNow Recap- 05-01-2024

Different subjects came and went during the live weekly X (formerly Twitter) cerebral palsy (CP) chat #CPChatNow Wednesday, May 1st, 2024. If you missed the discussion, do not worry! I, #CPChatNow co-host, Zachary Fenell, am here to provide you with your recap. Shall we get started?

Early in the evening my co-host Devin Axtman sent out congratulations to a previous chat co-host.

Congratulations to previous chat co-host Blake Henry on his recent engagement.

Devin congratulated Blake Henry on his recent engagement. The exciting news Blake had shared on Instagram. Through keeping in touch on multiple platforms, the connections made in our community transcend our weekly chats. In the process, expanding our support system. A good support system helps nurture other benefits. For example, self-confidence.

Devin and Zachary discuss self-confidence.

Self-confidence surfaced as a topic for discussion when I asked the chat, “What helps you fuel your self-confidence?” Within Devin’s reply he mentioned his support system, saying, “(I) remind myself people have confidence in me.”

Regarding other people showing confidence in you I said, “I find the last part kind of builds into itself. Other people have confidence in you which gives you confidence and as a result more people end up having confidence in you.”

As the self-confidence dialogue progressed, Devin named an element vital to self-confidence, “You have to love yourself. Part of that is not comparing yourself to others.”

In my opinion, an important pillar for learning to love yourself stems from positive representation in media, whether the news, TV shows, or books. In relation to disability and children’s books, I sought recommendations, asking “Do you have any recommendations of picture books for introducing a child to disabilities?”

#CPChatNow participants discuss recommendations of picture books for introducing a child to disabilities.

The subject lingered in my mind after coming across I Am Extraordinary by Stephen Curry at work. Summarizing my thoughts on the book, I said, “The overall message is great (pretty much don’t blend in. Blend out!) However, there are a couple portions that feel too ‘inspirational porn’ like.”

Beyond I Am Extraordinary, Veronica named the children’s series, The Abilities in Me. Each book in the series explores a different disability, such as ADHD, autism, and cerebral palsy. Your turn now! Keep the conversation going and answer for the week’s extend-the-conversation question, “What picture books do you recommend for introducing a child to disabilities?”

This week's extend-the-conversation question asks, "What picture books do you recommend for introducing a child to disabilities?"

Answer below! Afterwards mark your calendar to join #CPChatNow each and every Wednesday on X. The fun begins at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

#CPChatNow Recap- 04-24-2024

Every Wednesday folks gather on X (formerly Twitter) for the live cerebral palsy (CP) chat, #CPChatNow. Here to provide highlights from the April 24th, 2024 chat, I am #CPChatNow co-host Zachary Fenell. Get ready for your weekly recap!

The power community offers remained on display early in the evening.

Stephen explains how #CPChatNow has empowered him.

Chat regular Stephen shared, “Thanks to #cpchatnow I can say what I want to say.” When I expressed an interest in learning more about his comment, Stephen explained, “It was I can say whatever I want and I know yall will understand.”

Elsewhere in the night’s discussion, understanding showed with participants chatting about how cerebral palsy can impact going to a concert. The dialogue eventually led to a concert-related question.

#CPChatNow participants discuss their favorite venues for seeing concerts.

I asked participants what their favorite venues for seeing concerts are. My co-host Devin Axtman and I both named outdoor venues in our respective areas. Regarding outside concerts, I commented, “Part of a outside concert’s charm is weather. Weather influences the atmosphere of a show. I’ve been to concerts where it down poured for a portion of the show and it only made the concert that much more memorable.”

While rain can help make an outside concert more memorable, I occasionally feel I need something to make all tasks on my to-do list memorable. Therefore, I asked a question.

#CPChatNow participants share their tactics for staying organized.

Seeking ideas, I asked, “How do you stay organized and keep track of everything you have to do?” Stephen said, “My memory.” Quite impressive, at least in my opinion.

Meanwhile Devin answered, “notes app on my phone. Memory a bit too but that’s not working as well.” What about you though? Answer for the week’s extend-the-conversation question, “How do you stay organized and keep track of everything you have to do?” Reply in the comments.

However, first mark your calendar to join us each and every Wednesday on X. The fun begins at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

Answer for the extend-the-conversation question, "How do you stay organized and keep track of everything you have to do?"

#CPChatNow Recap- 04-17-2024

Community, creativity, and more remained on display Wednesday, April 17th, 2024 during the live weekly cerebral palsy (CP) X chat #CPChatNow. To tell you more, I am chat co-host Zachary Fenell. Welcome to your weekly recap.

Our chat’s communal vibe emerged early in the evening.

#CPChatNow participants wish Casey a happy birthday.

Casey mentioned the day was her birthday. Both Veronica and I wished Casey a happy birthday. Keeping the conversation going, I then asked participants about highlights and learning experiences from the past week.

Answering my own question, I called working on my latest blog post my highlight. The post, “A Meaningful Birthday Celebration,” (my annual birthday reflection post), doubled as a learning experience. I explained, “I thought of a goal to publish one blog post and one YouTube video a month. First, I discouraged myself thinking those goals weren’t ambitious enough, but then I realized those numbers would still double the content I released each of the last two years.”

Encouraging words came from Veronica, who replied, “It’s good to start small and build off it.” Meanwhile for Veronica her learning experience for the week occurred elsewhere.

Veronica and Zachary discuss writing poetry.

With April being National Poetry Month in the United States, Veronica commented, “Being April I’m open to learning about poetry. I’ve written a couple forms I haven’t tinkered with in awhile.”

In response, I mentioned feeling creativity’s temptation. I detailed, “An idea for a poem came to me today. In college I performed a poem titled ‘Who am I?’ celebrating my contributions to the college. With the college closing after this semester, I plan to rewrite the poem to celebrate my contributions to the college’s legacy.”

If the poem sounds interesting to you, stay tuned! First though, let us stay focused on finishing this recap. I went on to ask a question which sparked thought-provoking dialogue.

Participants in #CPChatNow discuss the phrase, "The only disability in life is a bad attitude."

Curious, I asked the question, “What well-meaning phrase of positive advice irks you the most?” My co-host Devin Axtman responded, “The only disability in life is a bad attitude.” Devin explained his dislike for the phrase, saying “It’s not true and makes it seem like disability is a bad thing.”

Behind the bad stands well-meaning motives. As Veronica noted, “It’s common for teachers to see (say) thinking it helps students try new things.”

In response Devin admitted, “It’s not a terrible sentiment on its face.” However, he pointed out, “If you smile at a flight of stairs, they’re not gonna turn into a ramp.”

Adding to the discussion, I suggested, “the phrase would be better if it just focused on the power of attitude.” Offering the following as an alternative, “Conquering challenges starts with your attitude.” Your turn though to keep the conversation going. Answer for the week’s extend-the-conversation question, “What well-meaning phrase of positive advice irks you the most?”

This week's extend-the-conversation question asks, "What well-meaning phrase of positive advice irks you the most?"

Answer below in the “Comments.” Afterwards, mark your calendar and join us every Wednesday on X. The fun begins at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

#CPChatNow Recap- 4/10/24

This past week in #CPChatNow was hopping as always. Members discussed art projects, learning how to fall, and their favorite summer activities. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, members discussed their like (or dislike) of doing art projects. Timmy shared photography he had done and Chris shared an art project she recently completed.

zach asked if members liked doing art projects. Timmy shared his photography with pictures of baseball
chris shares a picture of a recent art project she did

Next, members discussed a common activity for people with Cerebral Palsy, learning how to fall in Physical Therapy.

zach tweets he learned  how to fall one summer in physical therapy to prevent serious injuries. i tweeted i did the same thing after falling on the playground and almost breaking my wrist. zach tweets he suffered a concussion after a fall in school
veronica tweeted she was taught to go limp when she fell and because it saves her body from more injuries.

Finally, Veronica and Zach talked about their favorite summer activities.

zach asked what members favorite summer activities are. Veronica tweeted swimming, but she doesn't have a pool so she doesn't get to swim often

This brings us to our Extend-The-Conversation Question: What do you remember learning to do in Physical Therapy? I remember I went out by the elementary’s schools playground and I had to try to walk straight on the line students wait behind for the buses. If I fell off to either side, I fell in the “alligator pit.”

Thanks for reading and join us on X at #CPChatNow at 8 Eastern each Wednesday.

-Devin

#CPChatNow Recap- 04/03/2024

Different topics came and went Wednesday, April 3rd, 2024 during the weekly cerebral palsy (CP) X (formerly Twitter) chat #CPChatNow. To tell you more, I am chat co-host Zachary Fenell. Welcome to your recap!

Early chit chat from the evening led to discussion about house hunting.

Zachary asks Devin what the more challenging parts of house hunting are.

My co-host Devin Axtman mentioned being on the hunt for a house, “which is tough.” That led me to ask what the more challenging parts of house hunting are. Devin responded, “That doesn’t fit in a tweet lol. Cost, interest rates, finding something we agree on, location, actually making an offer.”

The conversation led Veronica to express her relief over purchasing her house years ago.

Veronica adds to the house hunting conversation.

Specifically, Veronica said, “So glad we bought our house over 20 years ago. Between inflation, supply shortages and interest rates, buying a house now is difficult.”

Elsewhere in the chat I made a point to wish Veronica a happy National Poetry Month.

National Poetry Month conversation turns into dialogue about travel.

In her reply to me Veronica mentioned writing a poem about an airport adventure she experienced when moving out to Phoenix 25 years earlier. The poem (which you can read here) led us to discuss air travel with a disability. Our dialogue inspired me to ask a question.

Zachary asks #CPChatNow for tips about traveling with a disability.

Sparked by the air travel conversation, I asked participants for a tip on traveling with a disability. Devin answered, “Always get there early and pre board.” He further explained, “It gives me time to not feel rushed.”

Devin’s tip closely matched mine. As I stated, “I would rather wait an extra 30 minutes over being stressed about whether I am going to make it in time and rushing.” Adding, “Especially, since rushing means you aren’t focused like you should be which makes an injury more likely.”

What about you though? Answer for the week’s extend-the-conversation question, “What is a traveling with a disability tip you have?”

Answer for the week's extend-the-conversation question, "What is a traveling with a disability tip you have?"

Leave your tip in the comments below. Afterwards, mark your calendar to join us on X each and every Wednesday. The fun begins at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

#CPChatNow Recap- 3/27/24

This past week in #CPChatNow was buzzing as always. Members discussed what they did for CP Awareness Day, the lack of research for adult treatments for CP, and what they are looking forward to this Spring. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

March 25th was World Cerebral Palsy Awareness Day. Veronica Hosking wrote a haiku talking about the lack of research into adult treatments for CP:

veronica hosking's haiku of: Cerebral Palsy lifelong disability, unveil new research with a picture of Veronica and a stuffed animal

Veronica’s haiku sparked further conversation about the lack of research into adult treatments for CP.

i tweet about how the treatments for cp haven't changed in the 33 years I have been alive. veronica tweets she has been alive for 50 years and now much has changed along with difficulty finding a PCP familiar with CP.

Also, Zach shared photos of himself in a Riddler costume and said he was going to do a video of if the Riddler had CP. Check it out!

Finally, Zach asked what members are looking forward to this spring.

zach asks what members are looking forward to this spring. veronica tweets she will write poetry in april and zach tweets he has some poems in his head. hannah tweets she is looking forward to the cone and zach tweets that is an acceptable answer.

This brings us to the Extend-The-Conversation Question: What do you wish medical professionals knew about Cerebral Palsy?

Thanks for reading and please be sure to join us each Wednesday on X at 8 Eastern!

-Devin

#CPChatNow Recap- 02-28-2024

Every Wednesday people gather on X (formerly Twitter) for the live cerebral palsy chat #CPChatNow. To tell you about the discussion from Wednesday, February 28th, 2024, I am chat co-founder and current co-host Zachary Fenell. Welcome to your weekly recap!

With February coming to a close, participants in our community naturally looked ahead to the next month.

Participants in #CPChatNow discuss their plans for Developmental Disabilities/Cerebral Palsy Awareness Month.

In the United States of America we recognize March as Developmental Disabilities/Cerebral Palsy Awareness Month. Curious, I asked if anyone had plans for the month. My co-host Devin Axtman shared he will give another presentation on ableism.

Meanwhile I noted I am working on a blog post titled, “31 Life Lessons Learned Living with Cerebral Palsy.” I plan to publish the post in March.

Keeping to the awareness month theme, I asked the chat another question.

Zachary asks #CPChatNow, "What CP misconception would you like to see debunked the most?"

Creating awareness includes debunking a disability’s misconceptions. So, I asked “What CP misconception would you like to see debunked the most?”

Devin replied, “I know we have said it but more research towards adult treatments. Also that it’s not a ‘disease.'” What about you though? Let us keep the dialogue going. Answer for the week’s extend-the-conversation question, “What CP misconception would you like to see debunked the most?”

This week's extend-the-conversation question asks, "What CP misconception would you like to see debunked the most?"

Leave your answer in the “Comments” section below. The extend-the-conversation question seeks to provide you the opportunity to add to the discussion without needing to belong to X. For those on X though, do mark your calendars to join us each and every Wednesday. The fun starts at 8pm ET and typically goes until 10pm ET. Feel free to come and go as your schedule allows.

Many who participate in the chat offer ringing endorsements. For example, Stephen.

Stephen states his love for participating in #CPChatNow.

Come checkout our community for yourself and see if we might be right for you.

Until then, remember. Don’t blend in. Blend out!

-Zachary

#CPChatNow Recap- 2/21/2024

Last week in #CPChatNow was hopping as always. Member discussed nostalgia, video games, and what they love about themselves. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, members discussed things that bring them nostalgia.

chris tweeted nick toons and swiss  miss hot chocolate make her nostalgic
veronica tweets cinnamon toast and tv shows such as scarecrow and mrs. king bring nostalgia.

Next, Stephen tweeted about how he was looking forward to the summer and the upcoming college football game.

stephen tweeted he can't wait for the summer along with a picture of ea sport's college football 25

Finally, members expanded on the Valentine’s Day spirit and tweeted what they liked about themselves.

chris tweeted she loves her ability to  care for others including her empathy and love for others. zach tweets empathy is an admirable quality
I tweeted i love my ability to adapt and keep my cool. zach tweets adaptability is important because life never goes as planned and you need to be able to adapt and having a disability prepares you to do that

This brings us to our Extend-The-Conversation Question. I would like to go back to our nostalgia conversation. What is your favorite childhood memory? Mine is going to a Green Bay Packers game. Please share your memories in the comments.

-Devin

#CPChatNow Recap- 02-14-2024

Thanks to Valentine’s Day, the live cerebral palsy X (formerly Twitter) chat #CPChatNow remained on the quieter side Wednesday, February 14th, 2024. Still, the chat went on. If you happened to miss the discussion, do not fret! I, chat co-host Zachary Fenell, am here with your weekly recap.

Those who missed the chat included my co-host Devin Axtman.

Devin stops by #CPChatNow to note he is at Valentine's Day dinner.

Although, Devin did stop by to inform us he was eating Valentine’s Day dinner at an Italian restaurant. While Devin and surely others focused on being present for their Valentine’s Day plans, Veronica and I enjoyed a Valentine’s Day related conversation.

Zachary and Veronica discuss self-love.

I initiated the discussion by posing the question, “I believe love starts with self-love. What do you love about yourself?” Veronica commented “Zach, asking the hard questions tonight,” before responding, “I love my smile and my writing.”

Meanwhile I shared, “I love the sense of purpose I have in life. That purpose (make a positive difference in the life of others) helps direct my actions and decisions I make.” What about you though? Answer for the week’s extend-the-conversation question, “What do you love about yourself?” Leave your reply in the “Comments” section.

Veronica and I continued to discuss self-love after Veronica linked to an ABC 7 KRCR story on the topic.

Zachary gives his thoughts on an article about self-love Veronica shared.

Once I read the piece, I noted, “A lot mentioned in that article was also discussed in the book I recently read How to Be the Love You Seek by Dr. Nicole LePera.” Adding in a separate reply, “Another point made in the article that I think a lot of people struggle with is worrying their self-love will be mistaken as arrogance.”

Checkout the story for yourself, “Redding therapist talks importance of practicing self-love on Valentine’s Day.” Then reassure yourself that self-love is not arrogance and answer the week’s extend-the-conversation question, “What do you love about yourself?”

Answer for the week's extend-the-conversation question, what do you love about yourself?

Answer below! Afterwards, mark your calendar to join us every Wednesday on X, starting at 8pm ET. Until then, remember. Don’t blend in. Blend out!

-Zachary