#CPChatNow Recap- 5/26/2021

This past week in #CPChatNow was fire as always. Members talked about their recent accomplishments, life insurance with CP, and their plans for the summer. It was evident that members are excited for COVID to be in the rearview mirror. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, I would like to recognize some members for their recent accomplishments. Timmy recently passed his qualifying exam to be a PhD candidate:

i ask timmy how he is doing. timmy tweets he passed his qualifying exam and is now a PhD candidate

Jorge also mentioned that he is about to graduate with his Master’s Degree from the University of Virginia:

jorge tweets t-2 weeks and then he wins the honors of honor which is graduating from the school founded by Thomas Jefferson
Jorge also tweeted about the unfortunate differences people with CP face when it comes to life insurance benefits:
jorge asked members if they knew due to cp that life insurance payouts would be reduced. zach asks what the reasoning is. jorge tweeted burden of care as not all cp cases remain stable. i tweeted that does make senes and guessed that is the case for a lot of stuff and wondered if i will get any money

Next, members talked about their varied plans for the summer.

i asked what everyone's plans are for the summer and that i'm getting married next week, veronica congratulated me and said she was stuck with the same date for way too many years, jen tweeted she doe not have much planned, zach tweeted he does not have much planned and that ohio is going back to normal june 2nd, he is planning to be cautious for about a month

Chris Johnson talked about the latest with his podcast, the Purple Knights Podcast, a podcast about Prince:

chris johnson tweeted he would like to keep up the momentum with his podcast and leave the single life behind, zach asked how he defined momentum, chris tweeted he wants to release episodes more often and continue to book well respected guests in the prince community and he has gotten some great ones lately. zach tweets he feels defined goals are easier to maintain

Finally, Chris tweeted about finishing her Master’s:

chris tweeted she is hoping to continue her masters and have it done by christmas

This brings us to our Extend-The-Conversation Question: What is your biggest goal for the summer?

Thanks for reading and join us each Wednesday at 8 Eastern time on Twitter at #CPChatNow

-Devin

#CPChatNow Recap- 05-19-2021

Quietly Wednesday, May 19th, 2021 snuck up on participants in the cerebral palsy (CP) Twitter chat #CPChatNow. Please allow me, chat co-host Zachary Fenell, to tell you more. Just keep reading.

As already mentioned, Wednesday evening quietly snuck up on our community.

#CPChatNow had a slow start Wednesday, May 26th, 2021.

My co-host Devin Axtman admitted forgetting it was Wednesday. Meanwhile long-time regular Blemi remained distracted by the NHL playoffs. Nevertheless, our chat persevered through the momentary forgetfulness and outside distractions.

#CPChatNow co-hosts Zachary and Devin discuss what they would like to see from future cerebral palsy documentaries.

Conversation between Devin and I thrived when I asked a question based around a Disability Scoops article I read. The article, “Teen’s Documentary About Life With Disabilities To Screen Worldwide,” highlighted 17-year old Faith Guilbault’s documentary about life with disabilities. Leading me to ask what others would want the audience takeaway to be if they created a documentary about living with CP.

Replying Devin said he wanted to see a documentary focused on people at various stages in their lives. Continuing the conversation I remarked to Devin such a documentary would be comprehensive and a great resource. What about you, though? Keep the dialogue going. Answer as the week’s extend-the-conversation question, “If you were to create a documentary about living with CP, what would you want the audience takeaway to be?” Respond in the “Comments” section.

Perhaps, your takeaway might involve emphasizing how cerebral palsy impacts people differently. If so, you would relate to further discussion from the night.

The topic surfaced after I watched Blemi’s Youtube video about “inbetween-living.” Feel free to watch for yourself.

Curious, I asked Blemi if certain feedback she received sparked the video. She replied yes. Hoping to counter the negative voices, Devin and I both offered our support. Devin specifically noting CP has “a spectrum of severity.” Sounds like a possible audience takeaway for a documentary to me. Bringing us back to the week’s extend-the-conversation question, “If you were to create a documentary about living with CP, what would you want the audience takeaway to be?”

This week's extend-the-conversation questions asks, "If you were to create a documentary about living with CP, what would you want the audience takeaway to be?"

Answer below! Afterwards mark your calendars to join us each and every Wednesday on Twitter. The fun begins at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

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#CPChatNow Recap- 5/12/2021

This past week in #CPChatNow was hopping as always. Members discussed routine tasks that are difficult for them with their CP, problematic teachers, and things they are looking forward to doing when the world returns to normal. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, Zach opened up the conversation by asking his Extend-The-Conversation Question from last week.

zach opens the conversation by asking which routine tasks feels like an olympic sport due to cp and how members adapt.

Zach shared his strategy for adapting to the routine task of carrying hot liquids:

zach mentions he adapts to the routine task of walking with a hot beverage by using his adult sippy cup, zach tweets he is unsure why he doesn't use his sippy cup around the house

I tweeted about the bane of many people with CP’s existence, buttoning a dress shirt.

i tweeted buttoning a dress shirt is difficult for me and asked for tips, veronica tweeted she buttons and zips one handed and has never had an issue, but it may be that women's button's are on the opposite side. zach tweeted they make shirts with magnetic buttons, i tweeted it reminded me of JJ's pants on speechless

Next, Tonia shared a blog post about an ableist teacher praising her parents and not her for her good report card.

tonia shares a blog post about an ableist teacher that used a report card to praise her parents, i praised her for being vulnerable, zach tweeted knowing when to ask for help is difficult as an adult, let alone being a child. he asks if the help was needed or perceived help. tonia tweeted the help was to be determined by her teacher so it was perceived help.

Finally, members discussed what they were most looking forward to when the pandemic ends:

i ask what members are most looking forward to when things go back to normal. i tweeted i am looking forward to going to sporting events. zach tweeted he is looking forward to doing in-person speaking and author events. veronica tweets she looking forward to seeing more friends and family.

This brings us to our Extend-The-Conversation Question. What do you think makes a good teacher good?

the extend-the-conversation question graphic. #CPChatNow logo in the upper right hand corner, What do you think makes a good teacher good? in middle above a photo of a woman standing in front of a chalkboard with chalk drawings of flexing arms at her shoulders. #CPCHATNOW in white text above a green background at bottom of graphic

Please share your answers in the comments and join us each Wednesday at 8 Eastern on Twitter. Thanks for reading!

-Devin

#CPChatNow Recap- 05/05/2021

Connections within the #CPChatNow community grew stronger Wednesday, May 5th, 2021. To tell you more, I am chat co-host Zachary Fenell. Welcome to your weekly recap.

Participants in the chat bonded over various cerebral palsy related topics. For example, I joked about how carrying a hot beverage without spilling any should be an Olympic sport.

#CPChatNow participants discuss the challenges of carrying a beverage without spilling.

Carrying hot chocolate from my kitchen into the dining room prompted me to make the Olympic sport quip. Hence why I also specified “hot beverage.” A point relative newcomer to the community Alessandro corrected, noting carrying any beverage without spilling remains a challenge.

Add your input too. Answer as the week’s extend-the-conversation question, “What seemingly ‘routine’ tasks feel like an Olympic sport due to CP?” Actually, in order to avoid simply dwelling on problems, let us make this a two-part question. “What seemingly ‘routine’ tasks feels like an Olympic sport due to CP? How do you adapt to complete the task?” Reply in the “Comments” section.

As the night’s discussion progressed, other cerebral palsy challenges arose. A topic triggered by a question I asked.

Zachary asks #CPChatNow if they ever imagine what life would be like without CP.
Devin and Zachary reflect on how life would be different if they drove.

Curious, I asked if others ever imagined what life would be like if they didn’t have CP. Alessandro admitted wondering about this daily. Meanwhile in a response to chat regular Chris, I hypothesized the biggest difference for me would be driving. My response resonating with my co-host Devin Axtman who said he was going to say the same.

Attempting to maintain a positive outlook, I mentioned how everything has positives and negatives. Not driving creates challenges, but I am also able to say not driving has helped me strengthen friendships.

Keep the positivity rolling and remember to answer the week’s extend-the-conversation question, “What seemingly ‘routine’ tasks feels like an Olympic sport due to CP? How do you adapt to complete the task?” Answer below.

Afterwards, set a reminder to join us each and every Wednesday on Twitter, starting at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

This week's extend-the-conversation question is a two-parter, asking "What seemingly routine tasks feels like an Olympic sport due to CP? How do you adapt to complete the task?"
Reply below!

#CPChatNow Recap- 4/28/2021

This past week in #CPChatNow was cracking as always. Members discussed impacts from COVID vaccinations, strategies for trimming their toenails, and their latest book recommendations. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap!

Veronica and Zach both described the side effects they had experienced from their second COVID vaccination shots. If you’re interested, you can find more information about getting a vaccine appointment here.

zach asks veronica how her second vaccination shot went, veronica tweeted she was in bed for the entire day monday, but is getting better, zach tweeted the second dose gave him a fever and night sweats

People with CP and other disabilities often have to find creative ways to do everyday tasks. Zach asked members how they cut their toenails.

zach asks what position people use to cut their toenails. he tweets he sits on the floor with one leg at the side and the other one straight up and bent at the knee. i tweet i sit on the couch for back support and pull my legs up. blemi tweets she sits on the foilet and props her foot on the tub.

Finally, members talked about the books they were reading and other book recommendations.

i ask if anyone has any book recommendations. alessandro tweeted the ables, a story about superhero kids with different disabilities.
You can find The Ables here.
audacity magazine recommended the josie prescott series.

Finally, Zach tweeted that Amanda Leduc’s book, Disfigured: On Fairy Tales, Disability, and Making Space, is on his to read list.

Zach tweeted that Amanda Leduc's book, Disfigured: On Fairy Tales, Disability, and Making Space, is on his to read list

This brings us to our Extend-The-Conversation Question: What is your favorite book you have ever read? Please share your answers in the comments!

extend-the-conversation question graphic, orange, blue, and green #CPChatNow logo in upper right hand corner, what is your favorite book you have ever read? above a picture of vintage books stacked, #CPCHATNOW in white text with a green background on the border

Please share your answers in the comments and join us each Wednesday at 8 Eastern on Twitter at #CPChatNow!

-Devin