#CPChatNow Recap 3-22-2017

Wednesday, March 22nd, 2017, saw a meandering #CPChatNow Twitter chat that moved from CP-like symptoms in dogs, to parenting with CP, to efforts to increase fitness in people with Cerebral Palsy during CP Awareness Month.  I am your #CPChatNow Interim-Co-Host, Devin Axtman, and I will be your conductor on this week’s recap.

The evening began on a goofy note as the gang discussed Cerebral Palsy-like symptoms in dogs:

The group discussing Cerebral Hypoplasia, CP in dogs

Things turned to a happy note as a #CPChatNow regular, Brooklyn, came back to chat and discuss her children enrolling in jiu jitsu:

Brooklyn discussing her kids enrollment in jitsu and benefits

The chat turned to a happy announcement as Co-Host, Zachary Fennell, announced that #CPChatNow’s apparel sales raised $170 for the Keep On Keeping On Foundation:

Zach announces #CPChatNow raised $170 for the Keep on Keeping On Foundaton

Next, talk turned to fitness and CP. Zach mentioned the #SweatForCP challenge:

Zach asking if anyone has heard about the #SweatForCP challenge and sharing an article

Finally, I brought up the 7 Minute Workout App from the Cerebral Palsy Foundation. Talk turned to how showcasing people with CP demonstrating their fitness routines is becoming more of a priority.

Devin bringing up the CPF 7 Minute fitness app. Zach bringing up the fact people with CP are shown doing exercises

This brings us to this week’s Extend-The-Conversation question: What are ways you have tried to increase your fitness level with CP?  Please leave your responses in the comments!

Finally, please don’t forget our Google Hangout next Thursday, March 30th at 8 PM EST!

Picture of a sunset with "What are ways you try to increase your fitness level with CP?

Me announcing the Hangout and Zach Have a great week everyone!

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#CPChatNow Recap- 03-15-2017

Wednesday, March 15th, 2017 saw a well-needed #CPChatNow Twitter chat. I am co-host Zachary Fenell, here to document the chat for the history books. Or, at least recap the evening discussion for our website’s archives.

The evening began on a happy note, with some familiar faces returning following MIA status.

Some familiar names returned to the March 15th, 2017 #CPChatNow chat. Unfortunately, the joyful vibes hit some turbulence. Like the above screen shot shows Jocelyn’s appearance coincided with a rough week for her. Although Jocelyn proved not the only one.

Many seemed in-midst a tough week. Hence the reason I described the chat earlier as “well-needed.” Possessing a community to confide in remains extremely beneficial.

Rachel shares battling fatigue throughout the week..Now my response asking about a difference between CP related fatigue and everyday fatigue sparked some chatter. Specifically, whether there actually exists a difference.

#CPChatNow participants discuss the relation between fatigue and cerebral palsy.Looking to expand beyond troubles to solutions, I asked how others cheer themselves up when facing hard times.

#CPChatNow co-host Zachary Fenell wants to know how participants turn their frowns upside down.Yasmin shares activities she does to feel better.Jocelyn’s response in-part segued the conversation to another topic, friendships. More precisely how to maintain strong friendships while the years progress on. So staying friends when living in different states and starting families. You know, those adult life related issues!

Zachary asks how #CPChatNow participants successfully maintain long-time friendships.#CPChatNow regular Hannah Pike identified making time as an important task. Yasmin meanwhile spoke about trust.

Yasmin believes trust is instrumental to enjoying long lasting friendships.How about we keep the dialogue going? Answer for the week’s extend-the-conversation question “When it comes to long-time friends, how have you successfully maintained those relationships?” Reply in the “Comments” section.

Also during the night I announced our March 2017 Google Hangout date.

#CPChatNow's March 2017 Google Hangout will happen Thursday, March 30th at 8pm ET.I hope you will join us Thursday, March 30th for our March 2017 Google Hangout. With no character limits, the video chat always provides an opportunity to delve into deeper conversations. Please contact interim co-host Devin Axtman or myself with any questions about joining.

Answer this week's extend-the-conversation question in the "Comments" section. When it comes to long-time friends, how have you successfully maintained those relationships?Additionally remember to answer the week’s extend-the-conversation question.

When it comes to long-time friends, how have you successfully maintained those relationships?

Reply by commenting below.

Until tonight!

-Zachary

#CPChatNow Recap- 3-8-2017

This week on #CPChatNow there were a variety of topics talked about as always.  The topics ranged from our co-host’s time in Spain on his study abroad trip to the difficulty of finding shoes.  This is your interim co-host, Devin Axtman, taking you along on this week’s recap.  All aboard!

Unfortunately, our other co-host, Zach Fenell, missed his first chat since September of 2014 due to a power outage.

Zach Fennell describing how he missed this chat due to a power outage

I also shared our regular co-host, Blake’s, blog from his study abroad trip in Spain.  The blog is worth checking out for the attempt at the wheelchair ramp alone!

Devin talking about Blake's blog on the ridiculous wheelchair ramp. Hannah saying it reminds her of escalators.

Next we talked about the common misperception people have that disability is something that needs to be fixed.  Hannah and Blemi agreed that the person with a disability has a right to decide whether they want to be fixed or not.

Hannah and Blemi talking about the misconception disability needs to be fixed

Hannah and I talked about ignorant comments others had made towards us including at a concert and when somebody blessed my legs.

Hannah talking about someone asking if she can stand at a concert. I responded with how somebody blessed my legs.

Finally, many chimed in with a common problem people with CP face, finding stylish shoes.

Discussion about difficulty of finding stylish shoes between Hannah, Devin, and Blemi.

What are some everyday things you find that are difficult to find because of your CP?This brings us to our extend-the-conversation question: What are some everyday things that are difficult to find because of your CP? Please share your responses in the comments.

Please join us next Wednesday for more #CPChatNow fun!

#CPChatNow Recap- “How Computer Science Benefits the CP Community” Focus Chat

Benefits computer science can bring the cerebral palsy community remained our focal point Wednesday, March 1st, 2017. Long-time #CPChatNow participant Alena Brand led us in the chat. I am co-host Zachary Fenell, finally here to recap the evening.

First, I apologize for the delay. Between a power outage and spotty Internet connection getting this recap done proved a challenge. In fact the power outage caused me to miss #CPChatNow Wednesday, March 8th for the first time since September 2014. Therefore I am looking forward to my co-host Devin Axtman‘s upcoming recap.

Anyways, enough self-revolving talk from me! Time to highlight our March 1st, 2017 chat. Oh, the many highlights too! Alena sparked great dialogue with her questions. Before diving into those however, Alena shared her credentials to lead our computer science focus chat.

Alena gives her credentials for leading a computer science orientated focus chat.To begin Alena asked us to name computer technology we use to help overcome cerebral palsy. Speech recognition software ended up a re-occurring answer. Specifically Dragon and Siri received mentions.

#CPChatNow participants share the computer technology they use to help overcome their cerebral palsy.Devin’s answer stood out against the other responses captured in the above screen shot. Although you may not necessarily think about auto correct as a disability related tool, my co-host made a valid point. Auto correct does enable you to type faster by lessening concerns over errors.

Next Alena inquired about if the non-disabled interpret the CP community’s computer technology based needs well.

Alena asks #CPChatNow "Do you feel people who don't have CP do a good job interpreting what sort of computer technology can help the disabled?"Devin responded to the question through a developer’s mindset. Indeed a successful developer understands the needs he or she seeks to meet. Additional dialogue looked at how the question could apply to occupational therapists and other special needs professionals. Sometimes their well-intentions fail to properly meet a person’s needs. Here my advice works well, “Instead of guessing, ask!”

Moving onto question three, Alena asked what improvements we want to see in computer technology which would benefit our daily activities.

Devin wants to see computer technology improve to a point where self-driving cars are both afforable and feasible. As other replies rolled in a desire for self-driving cars emerged a popular one.

In addition to self-driving cars Hannah wants to see afforable standing wheelchairs.Co-host Zachary Fenell and others also express interest in self-driving cars.Besides self-driving cars, Hannah also hopes to see affordable standing wheelchairs become more commonplace. What about you? Do you possess interest in self-driving cars? Do you want to see improvements with standing wheelchairs? Maybe another computer technology intrigues you. Add your input by answering as the extend-the-conversation question, “What computer technology improvements would you like to see that would help with daily activities?” Reply in the “Comments” section.

Going back to self-driving cars for now though, Shira raised a great point about hacking. An issue Alena echoed while bringing up other safety concerns with self-driving cars.

Alena addresses some safety concerns with self-driving cars.Continuing with an eye to the future we closed the night discussing computer technology currently in development, but which could benefit the CP community greatly in the future.

Devin has his eye on the self-tying shoe lace.If those shoes pique your curiosity, below you can watch the video Devin linked to.

This week's extend-the-conversation question asks "What computer technology improvements would you like to see that would help with daily activities?"

Respond to the extend-the-conversation question in the “Comments” section.

Wrapping up remember to answer the extend-the-conversation question.

“What computer technology improvements would you like to see that would help with daily activities?”

Answer by leaving a comment! Until next time.

-Zachary