#CPChatNow Recap- 3-28-2018

#CPChatNow was especially fantastic last week!  Longtime member, Rachel Folly, led a focus chat on the past year in members’ lives and developments for adults with CP.

Rachel introducing the chat topic

For her first question, Rachel asked if members had any CP related goals for the year and how they went.  Zach and Linds talked about blogging: Zach and Linds talking about their goals of blogging. Linds stated she does not have a specific posting goal

Zach said he has accomplished a goal of increasing his reverse crunches:

Zach tweeting about increasing his reverse crunches from 37 to 43

Rachel then asked members about how their CP has changed as they have aged and what they are doing in response.  Linds mentioned exercising by doing things like Zumba:

Rachel asked members if their CP had changed and what they were doing about it. Linds mentioned Zumba

Zach and I talked about increased back pain.  Zach combats this by strategically placed pillows:

Zach and I talked about back pain. Zach said he combats back pain with pillows

Jen mentioned that she experiences pain, but sometimes feels guilty because it is moderate. Rachel tweeted that everyone’s CP is unique.

Jen worried about her moderate CP pain and Rachel tweeted that everyone's CP experience is different

The next question revolved around what members saw in the media about adults with CP in the past year and how it impacted them.  Members largely answered with the story of an adult with CP being assaulted at a gas station. Additionally stories mentioning Zach and another person with CP completing a marathon arose.

Rachel asked about stories in the media about adults with CP. Members mainly shared stories about the adult with CP who was attacked at a gas station Rachel then asked what members would like to see change regarding CP next year.  Members talked about a need for medical professionals to learn how to better manage CP:

Rachel asking what members want to see change with CP. Jen mentioned better medical management

Linds tweeted about wanting to continue to educate others that people with CP are first and foremost human, like anyone else.

Linds tweeted she will continue her education of normal being a myth

Rachel’s final question asked what members do to stay upbeat and focused on the long term.  Linds stated she will do what she wants despite her health conditions:

Rachel asked what members do to stay upbeat. Linds stated she will continue to do what she wants to experience

Yasmin talked about the power of music and other activities in her life:

Yasmin tweeted about taking it day by day and importance of music, reading, and other activities

This brings us to our extend-the-conversation question.  As we move past CP Awareness Month, what are your goals for the upcoming year in regards to CP? Extend the conversation graphic. Goal in blue letters with the O a bullseye. The Extend-The-Conversation Question As we move past CP Awareness Month, what are your goals for the upcoming year in regards to CP? is below the graphic  Please share your answers in the comments!

Thanks for following along and tweet you later!

-Devin

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One thought on “#CPChatNow Recap- 3-28-2018

  1. Comprehensive recap Devin! Well done! My goals moving past CP Awareness Month are plentiful. I would like to blog more frequently. Physically I am looking to complete the Towpath Marathon again, this time in under 10 hours. Plus I am looking to do more public speaking to help educate about CP.

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