This past week’s #CPChatNow occured on Halloween and as you might guess, there was a lot of talk about Halloween and how it related to CP. Members talked about costumes, trudging through the snow, and going up stairs. Also, I burned my finger. This is #CPChatNow Co-Host, Devin Axtman, and I’m taking you along for the ride on this week’s recap.
First, co-host Zachary Fenell tweeted about a cool Beetlejuice costume that incorporated a wheelchair. Well done!
I shared my story of a burned finger due to an oven mishap and Zach and Hannah talked about difficulties with pot holders:
Next, talk turned to Halloween and Zach’s question of the most difficult part about Halloween with CP.
Jen answered Zach’s question by stating it was difficult to get to houses that had stairs.
I talked about the difficulty of putting a costume on and Zach mentioned the difficulty of putting on face paint:
Blemi then talked about the difficulty of having to trudge up and down the stairs in the snow:
This brings us to our Extend-The-Conversation Question: Halloween is part of participating in your community. What improvements do you wish for that would make it easier to participate in your community?
Please share your answers in the comments and join us tomorrow night at 8 Eastern time on Twitter.
This past week’s #CPChatNow Twitter chat was lively as always. Members talked about their latest accomplishments, the newest season of Speechless, a runner with CP being signed to a pro contract by Nike, and changes in the weather. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.
Timmy shared his latest research that he presented at a conference. Great work Timmy!
Next, members talked about the ongoing third season of Speechless on ABC.
Jen and Zach talked about the miserable weather in Texas and Cleveland:
Jen and Zach also tweeted about their hatred for severe weather and tornado sirens:
Finally, Zach tweeted about Justin Gallegos, the runner with CP who got a professional running contract with Nike. Please check out the video in this tweet. Please note that Justin has asked to have the phrase “suffers from CP” changed to “lives with CP.” We couldn’t agree more Justin. Run on!
This brings us to our Extend-The-Conversation Question: What are other types of representation you feel Cerebral Palsy or disability needs? Share your answer in the comments!
Tweet you later!
This past week in #CPChatNow was busy as always. This is Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.
Seth worked with his aide to reset his modem while speaking different languages. Zach shared he could have asked Blake to be a translator:
On a serious note, Zach shared he is participating in a suicide prevention documentary, discussing his friend’s suicide. You can find more information about the documentary at A Tale of Two Mothers. If you or someone you know needs help, please dial the National Suicide Prevention Hotline which is available 24/7 at 1-800-273-8255:
Zach asked what part of the day members feel at their physical best. We talked about being night owls that were forced by society to become morning people.
Finally, the Survivor premier was last Wednesday. Zach asked about how CP would impact someone’s ability to compete on Survivor:
This brings us to our extend-the-conversation question: Which reality show would you like to participate in?
Please join us each Wednesday on Twitter at #CPChatNow at 8 Eastern!
#CPChatNow was rocking as always last week. Members discussed the upcoming season of Speechless, the importance of senses, and what character they would be in a book. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.
First, members talked about the upcoming season of Speechless.
Next, Hannah shared her excitement about new glasses. She shared how much easier life has been since regaining her vision:
Zach and Hannah discussed the loss of different senses and Hannah shared that she would likely deal OK with losing her hearing because of her knowledge of ASL:
This brings us to our extend-the-conversation question, “Which of the five senses do you feel is the most important?” Leave your answer in the “Comments” section.
Continuing on, Zach asked what book people would add themselves to and how they would change the story.
Zach tweeted about being a character in To Kill A Mockingbird and sticking up for Boo Radley:
Make sure to keep the conversation going by answering the week’s extend-the-conversation question. Again that question asks, “Which of the five senses do you feel is the most important?” Leave your answers below!
This past week in #CPChatNow was bustling as always. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.
Zach announced that he is going to do a 5K as a warm up to another marathon in October:
Members also talked about doing a Real Housewives of CP program:
Jen and Hannah talked about Hannah’s dog Levi walking alongside her walker at PetSmart:
Finally, Zach talked about a moment at work when he accidentally pushed over a book cart a la WWE wrestler Braun Stroman:
Please join us every Wednesday at 8 PM Eastern on Twitter at #CPChatNow!
#CPChatNow was bumpin this past week as usual. Members talked about making Palsy playlists, running, their startle reflex, hand movement, and sharing their CP with family members. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.
We start the recap with Rachel sharing her awesome palsy playlist with songs related to movement:
Next, Rachel, Zach, and Pickman discussed their challenges with running and frustration with not being able to do more:
Next, Pickman discussed feeling jumpy and Rachel told him about the dreaded Moro startle reflex:
Next, Ciarán noted that it is becoming easier for her to move the fingers in her right hand. Rachel bemoaned the lack of movement in her right hand while coming up with a great metaphor of using her right hand being like picking up cereal with a fork:
Finally, talk turned to how much (if at all) families talked about member’s CP. Molly stated her family did not talk to her brother about her CP and asked when other’s families did. I shared age appropriate things my parents would say to tell other kids:
This brings us to our Extend-The-Conversation Questions inspired by Molly’s tweet: When did your parents talk to your siblings about your CP?
Please share your answers in the comments and join us each Wednesday at 8 Eastern at Twitter on #CPChatNow
This past week in #CPChatNow was a banger as the kids say. Members talked about topics ranging from receiving hugs and using mobility aids abroad to sharing their accomplishments in school plus more. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.
First, Timmy shared his latest accomplishment in graduate school, a cool presentation that I still don’t understand even after an explanation tweet.
Blemi talked about how she doesn’t like hugs because she sometimes almost gets knocked over:
Finally, Hailey shared she is going to Ireland and is thinking about whether to use crutches or a cane.
This brings us to our extend-the-conversation question: What goes into your decision when deciding to use a mobility aid?
Answer with a comment below. Then remember to join our live Twitter chat Wednesday at 8pm ET.