#CPChatNow Recap- 10-31-2018

This past week’s #CPChatNow occured on Halloween and as you might guess, there was a lot of talk about Halloween and how it related to CP.  Members talked about costumes, trudging through the snow, and going up stairs.  Also, I burned my finger.  This is #CPChatNow Co-Host, Devin Axtman, and I’m taking you along for the ride on this week’s recap.

First, co-host Zachary Fenell tweeted about a cool Beetlejuice costume that incorporated a wheelchair.  Well done!

 

Zach tweeted about a costume incorporating a mobility aid. The image is the image of a kid's wheelchair being pushed by a parents and wearing a Beetlejuice costume with 2 characters sitting beside him

I shared my story of a burned finger due to an oven mishap and Zach and Hannah talked about difficulties with pot holders:

I talked about burning my hand while cooking and Zach and Hannah tweeted about loathing pot holders

Next, talk turned to Halloween and Zach’s question of the most difficult part about Halloween with CP.

Jen answered Zach’s question by stating it was difficult to get to houses that had stairs.

Jen answered Zach's difficult question with getting to houses with stairs

I talked about the difficulty of putting a costume on and Zach mentioned the difficulty of putting on face paint:

Zach and I tweet about the difficulty of putting on costumes. Zach mentions the difficulty of face paint with fine motor skills

Blemi then talked about the difficulty of having to trudge up and down the stairs in the snow:

Blemi said going up and down stairs in snow was difficult and she relied on her brother to get candy

This brings us to our Extend-The-Conversation Question: Halloween is part of participating in your community.  What improvements do you wish for that would make it easier to participate in your community?

Extend-The-Conversation Graphic- What improvements do you wish for that would make it easier to participate in your community? on the bottom along with various people holding COMMUNITY in multi-colored letters with the multi-colored #CPChatNow logo in the upper left hand corner

Please share your answers in the comments and join us tomorrow night at 8 Eastern time on Twitter.

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#CPChatNow Recap- 10-17-2018

This past week’s #CPChatNow Twitter chat was lively as always.  Members talked about their latest accomplishments, the newest season of Speechless, a runner with CP being signed to a pro contract by Nike, and changes in the weather.  This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

Timmy shared his latest research that he presented at a conference.  Great work Timmy!

Timmy tweeted about presenting his latest research at a conference. There is an image of Timmy presenting at a conference.

Next, members talked about the ongoing third season of Speechless on ABC.

Zach tweeted about episode 3 of Speechless having nothing to do with disabilities. I tweeted about liking the 2nd episode. We had mixed feelings about "The wrong ones are non verbal joke"

Jen and Zach talked about the miserable weather in Texas and Cleveland:

Zach and Jen talking about cold, rain, and hail in Texas and Cleveland

Jen and Zach also tweeted about their hatred for severe weather and tornado sirens:

Jen tweeted about she gets nervous about tornadoes and tornado warnings

Finally, Zach tweeted about Justin Gallegos, the runner with CP who got a professional running contract with Nike.  Please check out the video in this tweet.  Please note that Justin has asked to have the phrase “suffers from CP” changed to “lives with CP.” We couldn’t agree more Justin.  Run on!

Zach tweets about Justin Gallegos' contract with Nike and that he loves that he is just an athlete to Nike

This brings us to our Extend-The-Conversation Question: What are other types of representation you feel Cerebral Palsy or disability needs?  Share your answer in the comments!

A green background with Extend-The-Conversation at the top and What are other types of representation you feel Cerebral Palsy or disability needs? at the bottom in yellow. The white #CPChatNow logo is at the bottom left

Tweet you later!

-Devin

#CPChatNow Recap- 9-26-2018

This past week in #CPChatNow was busy as always.  This is Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

Seth worked with his aide to reset his modem while speaking different languages. Zach shared he could have asked Blake to be a translator:

Seth had his Spanish speaking aide reset his modem. Zach pointed out Blake could be a translator.

On a serious note, Zach shared he is participating in a suicide prevention documentary, discussing his friend’s suicide. You can find more information about the documentary at A Tale of Two Mothers.  If you or someone you know needs help, please dial the National Suicide Prevention Hotline which is available 24/7 at 1-800-273-8255:

Zach shared a documentary about his friend's suicide is premiering

Zach asked what part of the day members feel at their physical best. We talked about being night owls that were forced by society to become morning people.

Zach said he feels his best after his first cup of coffee. We both agreed we are night owls that were forced by society to become morning people

Finally, the Survivor premier was last Wednesday.  Zach asked about how CP would impact someone’s ability to compete on Survivor:

Zach asked if members could compete on Survivor with CP. I recommended Paralympia Ayden Jent who said he would do it

ETC- Which Reality Show Would You Like to Participate InThis brings us to our extend-the-conversation question: Which reality show would you like to participate in?

Please join us each Wednesday on Twitter at #CPChatNow at 8 Eastern!

-Devin

#CPChatNow Recap- 9-12-2018

#CPChatNow was rocking as always last week.  Members discussed the upcoming season of Speechless, the importance of senses, and what character they would be in a book.  This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

First, members talked about the upcoming season of Speechless.

Zach and Blemi discussed the upcoming season of Speechless. Blemi states she stopped watching it in season 1. Zach said he can relate sometimes while not at others.

Next, Hannah shared her excitement about new glasses.  She shared how much easier life has been since regaining her vision:

Hannah shares her excitement about new glasses and increased vision. Zach shared his reliance on vision for walking and Hannah concurred

Zach and Hannah discussed the loss of different senses and Hannah shared that she would likely deal OK with losing her hearing because of her knowledge of ASL:

Zach and Hannah discussed the loss of different senses and Hannah shared that she would likely deal with losing her hearing because of her knowledge of ASL

This brings us to our extend-the-conversation question, “Which of the five senses do you feel is the most important?” Leave your answer in the “Comments” section.

Continuing on, Zach asked what book people would add themselves to and how they would change the story.

Zach asks what book members would add themselves to. Ayden shares the Count of Monte Cristo to support Dantes

Zach tweeted about being a character in To Kill A Mockingbird and sticking up for Boo Radley:

Zach tweets about being in To KIll A Mockingbird and helping Boo Radley

Extend the Conversation Question in black. A graphic with the five senses in circles around a brain with a drawing of a nose, mouth, ear, hand, and eye. Which of the five senses do you feel is the most important? on the bottom with the multi-colored #CPChatNow logo on the leftMake sure to keep the conversation going by answering the week’s extend-the-conversation question. Again that question asks, “Which of the five senses do you feel is the most important?” Leave your answers below!

-Devin

 

#CPChatNow Recap- 8/29/2018

This past week in #CPChatNow was bustling as always.  This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

Zach announced that he is going to do a 5K as a warm up to another marathon in October:

Zach announcing he has registered for the Helping Hands Heroes 5K which benefits the hospital where he had surgery

Members also talked about doing a Real Housewives of CP program:

Rachel tweeted there should be a real housewives of CP program. Heather said for enough money she could learn to be catty. Zach shared a Ted Dibase gif

Jen and Hannah talked about Hannah’s dog Levi walking alongside her walker at PetSmart:

Jen asked how Levi is doing with the walker training. Hannah said they haven't done it again

Finally, Zach talked about a moment at work when he accidentally pushed over a book cart a la WWE wrestler Braun Stroman:

Zach talks about accidentally flipping over a book cart at work.

Please join us every Wednesday at 8 PM Eastern on Twitter at #CPChatNow!

#CPChatNow Recap- 8/15/2018

#CPChatNow was bumpin this past week as usual.  Members talked about making Palsy playlists, running, their startle reflex, hand movement, and sharing their CP with family members.  This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

We start the recap with Rachel sharing her awesome palsy playlist with songs related to movement:

Rachel shares her Palsy playlist with Zach pointing out Born This Way is a perfect song

Next, Rachel, Zach, and Pickman discussed their challenges with running and frustration with not being able to do more:

Rachel, pickman, and Zach discussing their frustrations with running, not being able to do more, and dropfoot

Next, Pickman discussed feeling jumpy and Rachel told him about the dreaded Moro startle reflex:

Pickman and Rachel discussed the Moro/Startle Reflex and difficulty getting information from doctors

Next, Ciarán noted that it is becoming easier for her to move the fingers in her right hand. Rachel bemoaned the lack of movement in her right hand while coming up with a great metaphor of using her right hand being like picking up cereal with a fork:

Ciaran states it is easier to bunch the fingers in her right hand while Rachel bemoans the use of her right hand

Ciaran talks about flailing around with her right hand on the bus while Rachel compares using her right hand like using a fork to pick up cereal.

Finally, talk turned to how much (if at all) families talked about member’s CP. Molly stated her family did not talk to her brother about her CP and asked when other’s families did. I shared age appropriate things my parents would say to tell other kids:

Molly asks when other's parents talked about their disability. I shared my parents were honest and would tell me to say things like, "My muscles work, just not as good as yours"

This brings us to our Extend-The-Conversation Questions inspired by Molly’s tweet: When did your parents talk to your siblings about your CP?

A father walking with his children up a dirt road. One child is pushing a red wagon and the boy holding his father's hand. The extend the conversation question When did your parents talk to your siblings about your CP? is above them in yellow wording, the multicolor #CPChatNow logo is to their right, extend-the-conversation question is below them in red letters

Please share your answers in the comments and join us each Wednesday at 8 Eastern at Twitter on #CPChatNow

#CPChatNow Recap 8-1-2018

This past week in #CPChatNow was a banger as the kids say.  Members talked about topics ranging from receiving hugs and using mobility aids abroad to sharing their accomplishments in school plus more.  This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

First, Timmy shared his latest accomplishment in graduate school, a cool presentation that I still don’t understand even after an explanation tweet.

Timmy standing in front of his presentation

Timmy explaining his presentation

Blemi talked about how she doesn’t like hugs because she sometimes almost gets knocked over:

Blemi discusses how she doesn't like hugs

Finally, Hailey shared she is going to Ireland and is thinking about whether to use crutches or a cane.

Hailey talks about deciding whether to use a cane or crutches in Ireland

Hailey expressed concern about the rocky terrain in Ireland

This week's extend-the-conversation question asks, "What goes into your decision when deciding to use a mobility aid?"This brings us to our extend-the-conversation question: What goes into your decision when deciding to use a mobility aid?

Answer with a comment below. Then remember to join our live Twitter chat Wednesday at 8pm ET.

-Devin