#CPChatNow Recap- 7/3/2019

It was the day before the 4th of July and #CPChatNow brought the fireworks as usual. Members talked about fireworks, disability podcasts, wheelchair seats at sporting events, and just how far you mind can help overcome your disability. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride of this week’s recap.

First, members talked about fireworks themselves. Fireworks are also known as the bane of existence when you have the Cerebral Palsy startle reflex.

Zach asked if fireworks startled members. Jen stated they do and Daryl Perry agreed

Next, Zach brought up the cool story of Peter Kline. He has completed 45 marathons with disabled rider athletes. Well done Mr. Kline!

Zach posts about Peter Kline completing 45 marathons with different rider athletes
Paul Miller and Addiengeorge tweeted their appreciation towards Peter Kline

I would like to highlight one of my favorite podcasts (disability or otherwise), the Disability Visibility podcast. The podcast is hosted by Alice Wong and looks at different issues surrounding disability:

I recommend the Disability Visibility podcast. Zach recognized the host, Alice Wong, from the #CripTheVote chats.

Next, members talked about wheelchair seats at sporting events. Chris is going to an Indy Car race in Portland in September. She talked about an organization, @halfaccess, where people can post about the accessibility of a venue.

Zach tweeted about going to Bowling for Soup but being concerned about standing room only conditions. I reported it sucked when other people stood up when I had wheelchair seats and newer stadiums with elevated seats tended to be better. Chris tweeted about an organization called halfaccess that catalogue accessibility

Finally, #CPChatNow was tagged in an intriguing question by @cpandm. They asked if it was OK to be frustrated by others saying, “The body will do what you decide to make it do.” In other words, whether it is OK to be frustrated by your mind not being able to will your body to do things.

I responded to @cpandm's question. They felt frustrated since they can't will themselves to walk. I posted that the body doing what the mind wants it to do is unrealistic and that the will can't overcome things.
Zach's answer was that every case is different and the realm of possibility is different and that we need to listen to our bodies.

This brings us to our Extend-The-Conversation Question: How do you know when your body is telling you you’re at your limit? Share your answer in the comments and join us each Wednesday at 8 Eastern on #CPChatNow.

Thanks for reading!

-Devin

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#CPChatNow Recap- 6/19/2019

This past week in #CPChatNow was hopping as always. Members talked about various topics like having multiple disabilities, horror movies and CP, and their personal analogy for the CP community. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, two long time members of the #CPChatNow community finally met each other in-person with Hannah Pike and my other co-host, Zachary Fenell, meeting:

Pictures of zach and hannah. zach and hannah are holding a homemade #cpchatnow poster, zach is sitting with hannah's dog levi, and there is a picture of Hannah's #cpchatnow sign

Shira asked if having CP made you more likely to have multiple disabilities:

Shira asked if having CP made you more likely to have multiple disabilities:

Members chimed in that they had multiple diagnoses with CP and that other symptoms from CP might lead to a diagnosis:

Heather reports she has multiple diagnoses. I point out symptoms from CP can cause other issues

Next, members talked about the impacts from CP and their startle reflex on watching horror movies:

zach asked if startle reflex impacted horror movies. Hannah tweeted about liking Devil's knot and needing to watch a quiet place, grace lapointe said her startle reflex impacts her, but she loved get out. Blemi tweeted they are not her type of movie.
members continue to talk about issues with horror movies and startle reflex. members also talked cellphones

Finally, Zach asked if members had an analogy for the Cerebral Palsy community:

zach asks what analogy people would use for the cerebral palsy communtiy
zach says the CP community is like a music festival- there is a common bond in attendance (CP), but everyone has different experiences (seeing different bands)

Seth chimed in with his own analogy borrowing from a Lady Gaga song:

seth opines the cp community is closest to the LGBTQ community- born this way

This brings us to our Extend-The-Conversation Question: What analogy would you use for the CP community? Please share your answers in the comments!

Join us every Wednesday at 8 Eastern at #CPChatNow on Twitter.

Thanks for reading!

-Devin

#CPChatNow Recap- 5-22-2019

This past week in #CPChatNow was busy as always. Members discussed their support system, issues with transportation companies and graduation, and more. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

It’s graduation season! Members shared their experiences and difficulties with graduation due to accessibility issues. Chris shared her graduation is at a baseball stadium and Blake shared he was able to successfully navigate his ceremony. I shared my difficulties at my ceremony, but also on a happy note some improvements that were made.

Zach and i discuss my graduation difficulties. zach shared he stayed off to the side in the procession as well because of stairs which caused a girl to knock off her graduation cap seeing him

Next, members talked about issues with transportation, Uber and Lyft and also paratransit. There have been continuing issues with accessing Uber and Lyft for disabled people. This conversation stemmed from an Uber driving refusing to pick up a wheelchair user and Lyft being in an ADA lawsuit and arguing they are not a transportation company.

zach shares an uber driver refused to pick a wheelchair user, i shared lyft said they are not a transportation company in an ADA lawsuit, chris confirmed they consider themselves a tax company

Chris shared she had a continuing wait for paratransit today per usual. Zach shared his hesitancy to sign up for paratransit because of the need to see a neurologist who he hasn’t seen in years.

zach shared he thought of applying for paratransit but he would need to see a neurologist. i tweeted that i felt a doctor could provide that info and zach agreed

Next, members talked about support systems. Chris shared her disability support system has helped her in numerous ways.

chris shared she gets support from her disability community and she is trying to pay it forward

This brings us to our Extend-The-Conversation Question. Let’s talk about support systems. Zach shared in the chat his support system helped him accomplish his goal of being a marathoner. What is the biggest thing your support system has helped you accomplish?

the extend-the-conversation question of what is the biggest thing your support system has helped you accomplish? extend-the-conversation is in green with #cpchatnow in white text on a green background on the bottom. multi-colored #CPChatNow logo on the upper right hand corner

#CPChatNow Recap 5-8-2019

This past week in #CPChatNow was stimulating as always as members discussed Speechless, kind deeds by friends, and the continued passage of time. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

First, I would like to highlight Co-Host, Zachary Fenell’s participation in the Cleveland UCP’s Race to Empower. In a cool note, he completed it with his childhood Physical Therapist.

zach with his race to empower team
zach with his childhood pt

Next, Zach asked members about a time a friend did something nice. Raisa chimed in about a friend helping her at a pub:

Next, we talked about the passage of time and how long people have spent at jobs:

i tweeted about spending 8 years at my job, zach tweeted it is his two year anniversary at the library, heather recently quit her job of 11 years to start school

Finally, members talked about the season finale of Speechless:

zach and hannah tweet about the season finale of speechless, zach said he enjoyed season 3 over 2, hannah tweeted she enjoyed the character development, but zach tweeted the development may have outgrown the show's concept
seth tweeted he got why jj lied about getting into NYU, zach said he understood the character's motives and that it inspired his graduation speech, seth tweeted he felt it is wrong

Unfortunately, Friday brought news Speechless was canceled, but I did get a like on my tweet from Minnie Driver:

minnie driver's tweet announced speechless had been canceled, i tweeted i watched the last two episodes and loved them both

This brings us to our Extend-The-Conversation Question: What is your favorite memory of Speechless?

Thanks for reading! Please join us each Wednesday at 8 Eastern at #CPChatNow on Twitter.

-Devin

#CPChatNow Recap- 4/24/2019

Hello Internet! #CPChatNow was buzzing last week. Members talked about walking in the rain, their favorite photo of themselves, and the need for rails while using stairs.

Zach and I lamented about recent experiences while walking and rolling in the rain.

i tweeted about needing a wheelchair umbrella and my poncho died on the way home, zach tweeted he needed a hat umbrella and that kind people recently gave him a ride home

Next, Zach shared one of his favorite photos of himself being near his goal of completing a marathon:

zach sharing his favorite photo of him passing mile marker 25 during his marathon

Zach asked about what side of the street members with Hemiplegic Cerebral Palsy prefer to face. This then morphed into a conversation about stairs and handrails:

zach asked about which side of the street members with hemiplegic cp prefer to face. jeni tweeted no preference, but she prefers to walk on the inside of the sidewalk if possible
ciaran tweeted he likes to have a railing on his unaffected side, zach tweeted he likes his good leg facing the street, zach goes without railings to build his balance, i tweeted lack of railings was an issue at wrigley field
zach tweeted he has been to wrigley and saw the cubs and brewers play in 2013 when he only went up one steps. zach also lamented the gap between gymnasium rails and the strategy he uses to move to the next rail

This brings us to our Extend-The-Conversation Questions (for the hemis): Are there particular things you like to do with you non-affected side?

Thanks for reading! Join us each Wednesday at 8pm Eastern on Twitter. Use the hashtag #CPChatNow!

#CPChatNow Recap- 4/10/2019

This past week in #CPChatNow was interesting as always. Members discussed various topics such as problematic Lyft rides, meeting a significant other’s parents, and patronizing words. In honor of the Stanley Cup Playoffs, here are the 3 stars of the week presented by #CPChatNow Co-Host, Devin Axtman.

First, Hannah shared a problematic story with a Lyft driver. Unfortunately, she experienced discriminatory behavior from a Lyft driver refusing to give a ride due to fears Hannah’s wheelchair would scratch the car, but the second driver was great:

Hannah's story about taking a lyft when the driver refused to take her due to worries about her wheelchair scratching the car

Next, Zach and I talked about meeting a significant other’s parents for the first time when you have CP. This morphed into a discussion about me being miffed at the phrase ”seeing past disability.”

zach asks about meeting significant other's parents with cp. i said it was not an issue with my girlfriend's parents. we discussed the phrase seeing past a disability and then not defining someone by their disability

Finally, this led to a discussion of what words or phrases miff people. Seth tweeted his thoughts:

seth tweets about his words he is miffed by 'special' and "you'll get a speeding ticket"

This brings us to our Extend-The-Conversation Question: What words or phrases used to describe disability miff you? Please join us each Wednesday at #CPChatNow on Twitter at 8 Eastern.

#CPChatNow Recap- 3/27/2019

*SPORTS ANCHOR VOICE* “IT’S TIME FOR YOUR WEEKLY HIGHLIGHTS OF THE PAST WEEK IN #CPCHATNOW! I’M DEVIN AXTMAN, the #CPChatNow Co-Host, taking you along for the ride on this week’s recap. PLAY BALL!

First, our other #CPChatNow Co-Host, Zachary Fenell offered a preview of his next video, If Bob Ross had Cerebral Palsy:

Zach teasing his next video, If Bob Ross had Cerebral Palsy

Next, Zach and I discussed the opening day for baseball season and whether our disability impacts our plans at the ballpark:

Zach asked how people's disabilities impact their experience at the ballpark when Devin tweeted he is going to opening day
zach said once he is seated he does not get up and relies on friends to get food. I tweeted this was my same plan.

Continuing down the lineup of chat highlights, talk turned to the sitcom Speechless and member’s thoughts on season 3. Zach and Seth offered their thoughts on a recent episode while I shared one of my recent favorites.

Zach and seth tweeted about their enjoyment of the most recent episode of speechless. i shared I liked when Maya made the board game. zach tweeted he likes when everyone is involved

Zach and I then shared our thoughts on recent direction of the show and what characters we enjoyed watching:

i shared i thought this season was the weakest, but still worth watching. i shared i tune out kenneth and jimmy but enjoy ray and dillon. zach shared jimmy and ray are his favorite characters and he enjoys this season more than the last.

Next, Paul and Zach brought up the fact that JJ is unable to speak on the show while the actor, Micah Fowler, can speak fine.

paul asks why JJ is non-verbal while the actor is verbal. zach said no idea with a chris farley gif

This brings us to our Extend-The-Conversation question: What improvements would you like in a Speechless season 4?

the extend-the-conversation graphic. a green highway sign with the word improvement in front of a blue sky. there is a black text saying 'what improvements would you like to see in a speechless season 4?' the white #CPChatNow logo is in the left hand corner

*SPORTS ANCHOR VOICE* “THANKS FOR WATCHING! PLEASE JOIN US EACH WEDNESDAY AT 8 EASTERN AT #CPChatNow on Twitter! THIS IS DEVIN AXTMAN SIGNING OFF!