#CPChatNow Recap- 3-25-2020

This past week in #CPChatNow was interesting as always. Members discussed CP awareness, working from home, and famous people with CP. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

March 25th by coincidence happened to be Cerebral Palsy Awareness Day. Members discussed whether wishing people a happy CP Awareness Day was appropriate.

zach asked whether it's ok to wish someone a happy cp awareness day. heather asked why not. zach tweeted it feels weird and you don't wish someone happy breast cancer awareness. i asked why cp was bad. shira tweeted she did not feel it was good. zach tweeted it has positives and negatives.

Hannah also popped in to wish everyone a happy CP Awareness Day:

hannah said hi and wished everyone a happy cp awareness day.

Talked turned to the effectiveness of a common strategy for raising CP awareness, wearing green.

zach asked whether green is effective to raising awareness. i asked people know CP's color is green, heather tweeted she felt it was unknown by many, zach tweeted that people might notice something was happening if enough people were wearing green

Zach and I discussed positives and negatives of wearing green:

zach tweeted the positives for wearing green are seeing community and the negatives are what is actually learned. i asked about the negatives and he tweeted about the lack of substance in awareness.

Finally, talk turned to a common topic during the COVID outbreak, working from home.

i asked if people were working from home. zach asked if i liked it, linds tweeted that she was going to regardless of the pandemic, blemi tweeted she liked it and i tweeted there seemed to be less distractions.

However, Veronica tweeted about how the recent changes with the pandemic have impacted the availability of her work of scoring standardized tests:

This brings us to our Extend-The-Conversation question: How is CP impacting staying at home?

an orange, blue, and green #cpchatnow logo in the upper right hand corner, extend-the-conversation question in green with 'how is cp impacting staying at home?' below and a picture of a house with #CPCHATNOW in white with a green border behind

Please share your answers in the comments, join us at #CPChatNow at 8 Eastern each Wednesday on Twitter and most importantly, stay home and stay safe!

-Devin

#CPChatNow Recap- 3-11-2020

This past week in #CPChatNow was intriguing as always. Members discussed desires for stylish adaptive equipment, actors and actresses with CP, and advice for parents. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

Zach and Blemi tweeted about their desire for adaptive equipment to be stylish and why attention may not be paid to that:

blemi tweets about using her grandpa's walker and needing to make it stylish with a desire that companies take note. zach tweets that he feels it is due to society not viewing disability as a life. blemi tweets she would have adaptive equipment for every outfit

Next, attention turned to people’s favorite actors and actresses with CP:

toni says asked about favorite disabled actors. she tweeted alice kina diehl and gavin mchugh
zach tweets about micah fowler from speechless. i tweet about aj murray from becoming bulletproof. emily tweeted alice kina diehl and micah fowler

Finally, Zach asked what advice people would give to parents of someone with CP. Members offered a variety of advice, but most centered around connecting with community and exposing their children to people with disabilities:

zach asks what advice people would give to parents with cp. tonia and zach talked about connecting with their child's community with cp. zach tweets that community is vital for building self-confidence
blemi tweets that she would tell parents she is not lazy, just tired. chris tweeted that she wishes parents should help kids find opportunities to be around disabled people and adults

This brings us to our Extend-The-Conversation Question: What piece of advice do you wish your parent would have known about CP or having a disability?

Please share your answers in the comments and join us each Wednesday at 8 Eastern on Twitter.

-Devin

#CPChatNow Recap- 2/26/2020

This past week in #CPChatNow was interesting as always. We had members with big life changes, discussions of things members didn’t like but grew used to, and a robust discussion of the effectiveness of awareness months. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

I would like to take a moment to congratulate Chris for accomplishing a long term goal and obtaining her certification as a substitute teacher:

zach congratulates chris on obtaining her teacher's certificate

Zach asked about something that members did not like, but grew used to. Chris mentioned that she did not like Physical Therapy (PT), but grew used to it.

zach asked about something members grew used to, but did not like. chris mentioned pt, zach said that he did not like or dislike pt, pt was a necessity to him

Finally, there was considerable discussion about March being Cerebral Palsy awareness month and the effectiveness of awareness months in general.

zach and beau discussed the effectiveness of cp awareness month, beau asked why people can't do things year round, i stated often people plan for the sake of planning. beau tweeted about awareness fatigue and zach tweeted about raising awareness being an empty buzzword and advocating feels more fitting

This brings us to our Extend-The-Conversation question: What was a necessary evil when it came to your CP?

Thank you for reading and please join us on Twitter each Wednesday at 8 eastern at #CPChatNow

-Devin

#CPChatNow Recap- 2/12/20

This past week in #CPChatNow was insightful as always. Members discussed things they had done to accommodate their CP, canes, and shoes. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

First, I would like to make a recommendation. Go buy Zachary Fennell’s book, Off Balanced. I bought it and I’m loving it so far:

I tweet about buying Zach's book with a picture of the cover of the book

Next, Zach brought up last week’s Extend-The-Conversation question about accommodating your Cerebral Palsy.

zach asks what people have done to accommodate their cerebral palsy. the extend-the-conversation graphic is below the tweet

Chris tweeted about being selective about her shoes while I shared I moved to using a wheelchair at school in high school.

chris tweets she pays close attention to the shoes she wears with brands like keens and sketchers. they don't wear holes in sole. she also has keen rainboots and uses elastic laces. i tweet about using a wheelchair in high school.

Zach and Chris tweeted about their past use of canes and adventures with them.

zach tweeted that his cane tip was worn out after completing his second marathon. chris asks if he uses a quad tip. zach said he did when recovering from surgery. chris tweets she prefers a quad tip because it stands up by itself. zach tweets a traditional cane can easily get knocked if propped against the wall

This brings us to our Extend-The-Conversation Question: Have you worn a special type of shoe due to your CP?

the extend-the-conversation question graphic. the multicolored #CPChatNow logo is in the upper right hand corner, extend-the-conversation question in green with "Have you worn a special type of shoe due to your CP?' and green chuck taylor high top in the lower left hand corner. there is #cpchatnow in green

Thanks for reading! Please join us each Wednesday at 8 Eastern on Twitter at #CPChatNow.

-Devin

#CPChatNow Recap- 1/29/2020

This past week in #CPChatNow was hopping as always. Members discussed moving, the difficulty of battling through winter, and terrible compliments they have experienced related to their CP. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, we check in on Linds. She has moved to a new town to start her new job as a paralegal:

Jen asks Linds how her new hometown is. Linds said she is settling in and she hasn't gotten lost in a few days.

Next, members discussed a common nemesis of people with CP, old man winter. Zach asked if members felt more tired during winter:

Zach asked if members get mored tired in winter. I tweeted that I do and I also believe it has something to do with it getting darker earlier. Zach tweets about the darkness sapping his motivation.
Zach reports he has been feeling more tired lately due to an increased work schedule, but also feels he would be bouncing back better if temps were in the 60s.

Finally, talk turned to problematic compliments members had received. Zach tweeted about the “I don’t see you as disabled” stereotype and Jen tweeted about being prayed for once.

Zach asked about worst compliments members had received. Zach tweets about being called "the most non-disabled, disabled person" someone knew. He indicated that emphasizes stereotypes. Jen tweeted she got prayed for and at a movie theater.

Chris also tweeted about some problematic compliments.

Chris tweets her hatred of the I don't see you disabled compliment and states without her CP she would be a different person. She tweets she wonders the impact this has on kids. She also tweets her dislike for the the compliment about her giving people hope for the future.

This brings us to our Extend-The-Conversation Question: What is the worst compliment you have received related to your CP?

Thanks for reading and join us each Wednesday at 8 Eastern on Twitter at #CPChatNow.

-Devin

#CPChatNow Recap- 1-15-2020

This past week in #CPChatNow was bouncing as always. Members talked about what they are reading and what gifts CP has given them. Also, we have a focus chat on 1/22! This is #CPChatNow co-host, Devin Axtman, taking you along for the recap.

First, we have an exciting announcement at #CPChatNow. We will be doing a focus chat with member and former Paralympian, Ayden “The Jet” Jent. You can read Ayden’s bio here.

Zach announces a focus chat on 1/22 with Ayden Jent about the Paralympics

Next, Zach asked members what they are currently reading. Members shared a variety of different books and Chris shared Haben Girma’s memoir, the story of a deafblind woman graduating from Harvard Law School and becoming a lawyer for disability rights.

zach asked what people are currently reading. blemi tweeted Nora & Kettle, chris tweeted she is meaning to read Haben Girma's memoir

I bring up reading because in more exciting news #CPChatNow co-host, Zachary Fenell, is going to release his book, Off Balanced, in paperback! You can buy it now in Kindle form here.

Zach announcing Off Balanced is soon to be available in paperback. There is a picture of him holding up the book

Finally, we move to a great question asked by Blemi. She asked what Cerebral Palsy had given people. Members shared a variety of different positives which illustrates the wide variety of experiences in disability.

blemi asked what cp has given people. zach credits his work ethic to cp and to listen to his body, along with a BS filter. i tweeted I do not get too high or too low.
Daryl Perry tweets CP has made him resilient, robyn tweeted resilience and ability to adapt along grip strength. jen tweeted empathy.

This brings us to our Extend-The-Conversation Question: What do you like about your CP?

an orange, blue, and green #CPChatNow logo in the upper right hand corner, extend-the-conversation question in green with what do you like about your CP? in black. The Facebook like button is in the lower left hand corner.

Please share your answers in the comments and join us for the focus chat on Wednesday, January 22nd at 8 Eastern.

-Devin

#CPChatNow- 1/2/2020

The first #CPChatNow of the new decade was bumping as always. Members discussed what they hoped to accomplish in 2020, projects they are currently working on, and the realities of being an introvert on World Introvert Day. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

First, members discussed what they hoped to accomplish in 2020:

Zach asks what members hope to accomplish in 2020. Blemi tweets about paying off her line of credit. Zach tweets about paying off his student loans.
Zach tweets he will be publishing his marathon memoir and he has a title in mind

Zach also asked what word members would use to describe their 2020 on December 31st, 2020 and said he will describe his year as extraordinary:

Zach tweets he will look back on the year and describe it as extraordinary

Finally, January 2nd was apparently World Introvert Day. Zach pointed this out and it sparked a discussion on being an introvert.

Zach points out it is world introvert day and asks if people would describe themselves as an introvert
Blemi tweets she feels she is an introvert and experiences anxiety in social situations
linds tweets she is an extroverted when necessary introvert and she used the example of working at a bakery causing her to need her to be introverted

This leads us to our Extend-The-Conversation Question:

Orange, blue, and green #CPChatNow logo in the upper right hand corner. Extend-the-conversation question in green: Do you consider yourself an introvert? in black. An emoji with blue eyes and a zipper over his mouth.

Thank you for reading and join us each Wednesday at 8 Eastern at #CPChatNow on Twitter.

-Devin