#CPChatNow Recap- 5-27-2020

Hello #CPChatNow! As Matt Hardy would say, the past week in #CPChatNow was wonderful! Thanks for stopping by for this week’s recap. This is your co-host, Devin Axtman, taking you along for the ride.

We will begin this week’s recap by discussing an aspect of CP that is certainly annoying, hamstring stretches. Zach made a video of his different hamstring stretches and shared it in the chat.

zach asking what hamstring stretches people do and sharing his youtube video

Also, Jorge checked in with an update on his plans for graduate school:

jorge shared he applied to UVA, Rice, McCombs, Syracuse, UNC, and wake forrest

Finally, this brings us to a cool story about the invention of an adaptive gaming controller for people with disabilities:

i tweeted a story about an adaptive gaming controller. zach tweeted he is not a gamer, but related to something being annoying as hell like OT

Jen pointed out an obvious issue if people do not play XBOX, they could not use the controller:

jen pointed out that if people didn't play xbox, they couldn't use the controller.

This bring us to our Extend-The-Conversation Question: What common household adapted item do you use?

Thanks for reading and join us each Wednesday at 8 Eastern on Twitter at #CPChatNow.

-Devin

#CPChatNow Recap- 5/13/2020

The #CPChatNow recap returns as we recap the happenings of last week’s chat. To quote the late WWE Hall of Famer, Gorilla Monsoon, it was A Happening! Members discussed the latest in their life at home and positives that were happening during quarantine. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, members discussed a hot topic these days, wearing masks and the annoyances that brought:

zach tweeted his face mask is fogging up and it slides off his face, i tweeted i have worn one, but it is hot

Next, talk turned to how things have gone when members have ventured out and what the experience has been of others observing social distancing (or not):

i tweeted i had been to a park, grocery store, and fast food restaurant. blemi tweeted she had only been to grocery store, the vehicle registry, and her parent's place and that she missed people. zach tweeted he misses human interaction.
zach asked about social distancing in different settings stating he has only been walking down streets and in a park. blemi tweets that she wears a mask because people don't observe the 6 foot rule, i tweeted we stayed away from people at the park but others didn't, the grocery store wasn't that packed, and the fast food restaurant was in and out

Finally, let’s end this recap with some positivity! Zach asked members to share some positivity:

zach asked members to share positive news. blemi tweeted about seeing rob's family, chris tweeted she passed her mock class and did the paperwork for her teaching job

This brings us to our Extend-The-Conversation Question: What positive things have happened to you during the quarantine? Please share your answers in the comments and join us each Wednesday at 8 Eastern on #CPChatNow.

extend the conversation graphic. multicolored #cpchatnow logo in the upper right hand corner. the question: what positive things have happened to you during this quarantine? the word positivity above a field of daisies and a blue sky

Thanks for reading and join us each Wednesday at 8 Eastern on Twitter at #CPChatNow!

-Devin

#CPChatNow Recap- 4/22/2020

This past week #CPChatNow was out of this world on Earth Day! Members discussed Earth Day, trying new things while staying at home, and their thoughts around reopening. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

April 22nd was the 50th anniversary of Earth Day. Jorge asked if folks were enjoying Earth Day.

Jorge asked if people got out to enjoy the earth on Earth day. Veronica tweeted her husband created a sitting area in her backyard where she drinks her coffee.

Next, members discussed trying new things while staying at home during the COVID pandemic. I discussed cooking more while at home and Hailey discussed trying a latch hook kit:

I ask if people have tried new things while staying home. Hailey tweeted about trying latch hook kit, but is worried about her motor skills

Jorge asked about a common topic that is impacted by the COVID pandemic, colleges and universities.

Jorge asks if I think colleges will open up in the Fall. I tweeted I felt it will be a patchwork of plans, but they would try. Jorge brings up the issue of international enrollment. jorge tweets he is applying to several schools.

Finally, Zach asked where different member’s home states are in the COVID pandemic reopening.

Zach asks where each member's area is on reopening. Grace tweets she is relieved Massachusetts is following guidelines and not considering reopening. I tweeted I am nervous that Texas is starting to open. I am nervous about going back to work and am nervous if I will continue to be able to work from home.

This brings us to our Extend-The-Conversation Question: What new things have you been trying while staying at home during the COVID pandemic?

extend-the-conversation question graphic. An image of a green road sign reading discovery with the extend-the-conversation question and multicolored #CPChatNow logo in the upper right hand corner

Please share your answers in the comments and join us each Wednesday at 8 Eastern on #CPChatNow.

-Devin

#CPChatNow Recap- 4/8/2020

This past week in #CPChatNow was intriguing as always. Members discussed strategies for dealing with the COVID stay at home situation, special education during the pandemic, and finding connections via the CP community and blogging. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

#CPChatNow member Tonia has been sharing concerns related to paying for her laundry. She shared an awesome story of a friend helping her out. This shows the power of community during the times we are in.

Zach asks Tonia how she resolved her laundry quarter issue. Tonia says that a friend with CP sanitized 100 quarters and sent them to her

Next, Zach and I talked about an issue that has been in the news a lot lately, virtual learning and parents. Concerns are even more amplified when you are helping your disabled child with their special education.

zach posts an article about virtual special education and mentions sped students may have advantages with distance learning since they are used to technology. i mentioned stuff has to be accessible for the technology to be used. i also mentioned difficulty of physical and occupational therapy
zach mentions PT by video and parents being stressed. i tweeted i would be nervous as a parent to mess something up and about access to technology stating many of my mom's students don't have access. zach tweeted he has learned many people don't have access to the internet by working at the library

Next, talk turned to forming connections with the CP community. Zach asked about the first people with CP we connected with.

zach asks about our first connection with somone with cp. i tweeted about a person in physical therapy. Tonia tweeted about a girl she met at camp for kids with disabilities at 13.

Next, talk turned to connections created with a common activity, blogging.

zach asks what got other people into blogging. tonia tweeted it was after reading the post of a parent of a disabled child and wanting to offer her thoughts. linds tweeted she was angry about a teachable moment with a coworker. tonia tweeted she feels obligated to teach others while linds says she does not.

This brings us to our Extend-The-Conversation Question: Do you feel like you need to teach others about having CP? Please share your answers in the comments!

the extend-the-conversation question graphic. the extend the conversation question is: Do you feel like you need to teach others about having CP? The multicolored #cpchatnow logo in the upper right hand corner, #cpchatnow on the bottom, and an image of a female teacher with a red book drawing on a chalkboard

Thanks for reading and please join us each Wednesday at 8 Eastern on #CPChatNow!

-Devin

#CPChatNow Recap- 3-25-2020

This past week in #CPChatNow was interesting as always. Members discussed CP awareness, working from home, and famous people with CP. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

March 25th by coincidence happened to be Cerebral Palsy Awareness Day. Members discussed whether wishing people a happy CP Awareness Day was appropriate.

zach asked whether it's ok to wish someone a happy cp awareness day. heather asked why not. zach tweeted it feels weird and you don't wish someone happy breast cancer awareness. i asked why cp was bad. shira tweeted she did not feel it was good. zach tweeted it has positives and negatives.

Hannah also popped in to wish everyone a happy CP Awareness Day:

hannah said hi and wished everyone a happy cp awareness day.

Talked turned to the effectiveness of a common strategy for raising CP awareness, wearing green.

zach asked whether green is effective to raising awareness. i asked people know CP's color is green, heather tweeted she felt it was unknown by many, zach tweeted that people might notice something was happening if enough people were wearing green

Zach and I discussed positives and negatives of wearing green:

zach tweeted the positives for wearing green are seeing community and the negatives are what is actually learned. i asked about the negatives and he tweeted about the lack of substance in awareness.

Finally, talk turned to a common topic during the COVID outbreak, working from home.

i asked if people were working from home. zach asked if i liked it, linds tweeted that she was going to regardless of the pandemic, blemi tweeted she liked it and i tweeted there seemed to be less distractions.

However, Veronica tweeted about how the recent changes with the pandemic have impacted the availability of her work of scoring standardized tests:

This brings us to our Extend-The-Conversation question: How is CP impacting staying at home?

an orange, blue, and green #cpchatnow logo in the upper right hand corner, extend-the-conversation question in green with 'how is cp impacting staying at home?' below and a picture of a house with #CPCHATNOW in white with a green border behind

Please share your answers in the comments, join us at #CPChatNow at 8 Eastern each Wednesday on Twitter and most importantly, stay home and stay safe!

-Devin

#CPChatNow Recap- 3-11-2020

This past week in #CPChatNow was intriguing as always. Members discussed desires for stylish adaptive equipment, actors and actresses with CP, and advice for parents. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

Zach and Blemi tweeted about their desire for adaptive equipment to be stylish and why attention may not be paid to that:

blemi tweets about using her grandpa's walker and needing to make it stylish with a desire that companies take note. zach tweets that he feels it is due to society not viewing disability as a life. blemi tweets she would have adaptive equipment for every outfit

Next, attention turned to people’s favorite actors and actresses with CP:

toni says asked about favorite disabled actors. she tweeted alice kina diehl and gavin mchugh
zach tweets about micah fowler from speechless. i tweet about aj murray from becoming bulletproof. emily tweeted alice kina diehl and micah fowler

Finally, Zach asked what advice people would give to parents of someone with CP. Members offered a variety of advice, but most centered around connecting with community and exposing their children to people with disabilities:

zach asks what advice people would give to parents with cp. tonia and zach talked about connecting with their child's community with cp. zach tweets that community is vital for building self-confidence
blemi tweets that she would tell parents she is not lazy, just tired. chris tweeted that she wishes parents should help kids find opportunities to be around disabled people and adults

This brings us to our Extend-The-Conversation Question: What piece of advice do you wish your parent would have known about CP or having a disability?

Please share your answers in the comments and join us each Wednesday at 8 Eastern on Twitter.

-Devin

#CPChatNow Recap- 2/26/2020

This past week in #CPChatNow was interesting as always. We had members with big life changes, discussions of things members didn’t like but grew used to, and a robust discussion of the effectiveness of awareness months. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

I would like to take a moment to congratulate Chris for accomplishing a long term goal and obtaining her certification as a substitute teacher:

zach congratulates chris on obtaining her teacher's certificate

Zach asked about something that members did not like, but grew used to. Chris mentioned that she did not like Physical Therapy (PT), but grew used to it.

zach asked about something members grew used to, but did not like. chris mentioned pt, zach said that he did not like or dislike pt, pt was a necessity to him

Finally, there was considerable discussion about March being Cerebral Palsy awareness month and the effectiveness of awareness months in general.

zach and beau discussed the effectiveness of cp awareness month, beau asked why people can't do things year round, i stated often people plan for the sake of planning. beau tweeted about awareness fatigue and zach tweeted about raising awareness being an empty buzzword and advocating feels more fitting

This brings us to our Extend-The-Conversation question: What was a necessary evil when it came to your CP?

Thank you for reading and please join us on Twitter each Wednesday at 8 eastern at #CPChatNow

-Devin