#CPChatNow was rocking as always last week. Members discussed the upcoming season of Speechless, the importance of senses, and what character they would be in a book. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.
First, members talked about the upcoming season of Speechless.
Next, Hannah shared her excitement about new glasses. She shared how much easier life has been since regaining her vision:
Zach and Hannah discussed the loss of different senses and Hannah shared that she would likely deal OK with losing her hearing because of her knowledge of ASL:
This brings us to our extend-the-conversation question, “Which of the five senses do you feel is the most important?” Leave your answer in the “Comments” section.
Continuing on, Zach asked what book people would add themselves to and how they would change the story.
Zach tweeted about being a character in To Kill A Mockingbird and sticking up for Boo Radley:
Make sure to keep the conversation going by answering the week’s extend-the-conversation question. Again that question asks, “Which of the five senses do you feel is the most important?” Leave your answers below!
This past week in #CPChatNow was bustling as always. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.
Zach announced that he is going to do a 5K as a warm up to another marathon in October:
Members also talked about doing a Real Housewives of CP program:
Jen and Hannah talked about Hannah’s dog Levi walking alongside her walker at PetSmart:
Finally, Zach talked about a moment at work when he accidentally pushed over a book cart a la WWE wrestler Braun Stroman:
Please join us every Wednesday at 8 PM Eastern on Twitter at #CPChatNow!
#CPChatNow was bumpin this past week as usual. Members talked about making Palsy playlists, running, their startle reflex, hand movement, and sharing their CP with family members. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.
We start the recap with Rachel sharing her awesome palsy playlist with songs related to movement:
Next, Rachel, Zach, and Pickman discussed their challenges with running and frustration with not being able to do more:
Next, Pickman discussed feeling jumpy and Rachel told him about the dreaded Moro startle reflex:
Next, Ciarán noted that it is becoming easier for her to move the fingers in her right hand. Rachel bemoaned the lack of movement in her right hand while coming up with a great metaphor of using her right hand being like picking up cereal with a fork:
Finally, talk turned to how much (if at all) families talked about member’s CP. Molly stated her family did not talk to her brother about her CP and asked when other’s families did. I shared age appropriate things my parents would say to tell other kids:
This brings us to our Extend-The-Conversation Questions inspired by Molly’s tweet: When did your parents talk to your siblings about your CP?
Please share your answers in the comments and join us each Wednesday at 8 Eastern at Twitter on #CPChatNow
This past week in #CPChatNow was a banger as the kids say. Members talked about topics ranging from receiving hugs and using mobility aids abroad to sharing their accomplishments in school plus more. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.
First, Timmy shared his latest accomplishment in graduate school, a cool presentation that I still don’t understand even after an explanation tweet.
Blemi talked about how she doesn’t like hugs because she sometimes almost gets knocked over:
Finally, Hailey shared she is going to Ireland and is thinking about whether to use crutches or a cane.
This brings us to our extend-the-conversation question: What goes into your decision when deciding to use a mobility aid?
Answer with a comment below. Then remember to join our live Twitter chat Wednesday at 8pm ET.
There was a bit of a change to #CPChatNow this week. The chat was moved to Tuesday to accommodate the 4th of July. However, the chat was still busy as members talked about how often they think about CP, burning calories, and doing chores. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.
Talk started with whether members thought about their CP regularly.
Zach and Rachel talked about the impact (or lack-thereof) of CP on burning calories:
Next, talk turned to chores that are more difficult because of CP. Members quickly agreed that making the bed can be very difficult with CP:
Ironing remained another chore discussed:
This brings us to our extend-the-conversation question: What is the most difficult chore for you with CP?
Share your answers in the comments and join us tonight at 8 pm eastern!
#CPChatNow was brisk this past week. Members discussed competing as a Paralympic athlete, baby announcements, stubbornness, and the difficulty of trying to convince others to use mobility devices. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.
First, we’re starting the recap with some happy news! The creator of #CPChatNow, Tim Wambach, from Handicap This just welcomed a baby girl. Congrats Tim!
Also, #CPChatNow welcomed a new member in Ayden Jent. Ayden is a Paralympian, two-time World Championship US team member, and Para Pan-Am silver medalist.
Next, talk turned to whether members had talked loved ones into using a mobility device. Zach and Hannah talked about coming to terms with using their respective mobility devices:
Discussion then turned to mobility aids being tools for independence:
Hannah and I then talked about how the experiences of CP make adjusting to a mobility device easier:
This brings us to our extend-the-conversation question: What has been your toughest form of disability related adjustment? Please share your answer in the comments!
#CPChatNow was chipper this past week as members talked about things such as teaching their friends, what they would like their legacy to be, and whether they prefer moving or sitting activities. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.
First, #CPChatNow would like to note the passing of someone who meant a lot to many in the cerebral palsy community, Dr. Karen Pape. Dr. Pape was a clinical neuroscientist and author. You can find her TED Talk here. She also did a focus chat for #CPChatNow. You can find the recap for the focus chat here.
Next, Amanda shared a story of a friend helping a man using a walker leave a restaurant. This is a great example of knowledge of disability expanding knowledge and empathy.
Legacy soon became an emerging topic, sparked by Dr. Pape’s death mentioned earlier. Community members discussed the legacies they want to leave:
Continuing the widespread dialogue, members talked about whether they prefer activities that involve movement or activities that involve sitting. The consensus was movement, but that a balance was necessary to prevent overwhelming fatigue. Hot showers were a favorite as well.
This brings us to our extend-the-conversation question: What are your go to activities to get moving? Please share your answers in the comments!
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