#CPChatNow Recap- 4/14/21

This past week in #CPChatNow was a happening as always. Members discussed new jobs, their accomplishments for the week, canes, and stretching. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, I would like to recognize some good news and a strong GIF game from Linds!

linds tweets that she got a job with a gif of spongebob talking on the phone with his eyes up. zach tweets congratulations and asks if it will take her away from #cpchatnow

Linds also tweeted about her cane and feeling accomplished by finishing laundry. I can certainly relate to finishing laundry sometimes feeling like an accomplishment!

zach asks about what members have accomplished in the last seven days, linds tweets she has started to use a cane and has a 31 wpm typing speed, she tweeted she also did another load of laundry, zach asks what her cane looked like and if she multiple so she can treat it like an accessory, linds tweeted her canes are blue scrolling paisley or tropical flowers

We had some new folks join the chat this week! Constance Jamet talked about her various accomplishments this week which including finishing some things for work and walking a bit more.

zach tweeted asking what members had accomplished in the last seven days, constance tweeted she has improved on the kneeling knight position, meeting deadlines on her job, and walking a little more after being immobile for a few weeks

Constance’s tweets led to a further conversation about stretching with Zach and I tweeting about our stretching routines.

zach and i tweet about stretching, i tweeting i can understand the difficulty of learning to stretch something new and that i have done that throughout my life with new muscles, zach tweets he has to stretch consistently, he tweets his body feels like it's being squeezed by a snake if he doesn't stretch

This brings us to our Extend-The-Conversation Question: What is your stretching routine? Please share your answers in the comments and join us each Wednesday at 8 Eastern at #CPChatNow.

extend-the-conversation question graphic, orange, blue, and green #cpchatnow logo in upper right hand corner, extend-the-conversation question in green, what is your stretching routine? above a picture of

Thanks for reading!

-Devin

#CPChatNow Recap- 3/31/2021

This past week in #CPChatNow was hopping as always. Members discussed good things from the pandemic, renewing their handicap parking placard, accessibility issues at a sporting event, and what makes a good doctor. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

Zach talked with Blemi about one good thing from the pandemic:

zach asks about a good thing that resulted form the pandemic after blemi talked about online yoga classes, zach discussed finishing his next book, stating he had planned to edit the draft in march, but was sidetracked by instagram posts, blemi tweeted striving for bigger material items is pointless

Next, I asked about something that is a common annoyance to disabled people, having to renew their permanent handicapped parking placard.

i asked how often people have to renew their permanent handicapped parking placard, zach tweeted he is not sure because he always gets a reminder to renew
blemi tweeted it is every five years to renew a placard in alberta, zach tweeted it is a pet peeve to have to renew the placard since the cp doesn't go away, chris tweets she has to do the same with paratransit even though she lives in the same house and her disabilities are permanent

Next, talk turned to the biggest accessibility concerns members had while at sporting events.

zach asked about accessibility issues members face at sporting events, chris tweeted about bleachers without handrails and buses with long routes that take forever, blemi tweeted hand rails that start and stop
veronica tweets bringing food to and from her seat is why she keeps her husban around

Finally, talk turned to a common issue for people with CP and other disabilities, finding a good doctor. Zach asked about the traits that make a doctor a good doctor:

zach asks what makes a doctor a good doctor, he tweets a crucial trait of a good doctor is the willingness to listen, blemi tweeted listening as well but also not just assuming something is CP related

Chris also tweeted about the traits that made someone a good doctor and the importance of building trust by being open about what the doctor doesn’t know.

chris tweeted about her experiences at valley healthcare's residency program, she tweets she appreciates people they saying they don't know, but they would consult and she tweeted she feels doctors care more if you are open about your health.

This brings us to our Extend-The-Conversation Question: What made your favorite doctor so great?

extend-the-conversation question graphic: orange, blue, and green #CPChatNow logo in upper right hand corner, extend-the-conversation question in green, what made your favorite doctor so great? with a picture of white man using a wheelchair sitting by a hospital bed

Please join us each Wednesday at 8 Eastern on Twitter at #CPChatNow. Thanks for reading!

-Devin

#CPChatNow Recap- 3/17/2021

This past week in #CPChatNow was happening as always. Members discussed positives that were occurring in their life and how their disability has helped them stand out. We are also proud to announce our Family Reunion Focus Chat! This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, we are excited to announce our Family Reunion Focus Chat. Please join us Wednesday (3/24) on Twitter to reconnect (or connect!) with #CPChatNow community members, both longtime and new!

zach tweets announcing the #cpchatnow family reunion for march 24th. there is a graphic announcing the reunion and inviting people too join

Next, I would like to recognize Dick Hoyt’s death. Dick and his son Rick who has CP have inspired many by their participation in marathons and triathlons.

i recognize the death of dick hoyt and share a link to his obituary, there is a picture of him pushing his son rick.
zach tweets dick hoyt's death made him think of ultimate warrior's promo before his death. dick hoyt helped others believe and made their blood pulse through their body.

Zach also asked members about a positive in their week. Tonia shared a blog post she wrote in the past week about 10 things no one tells you about aging with CP. I can definitely agree with number 3!

zach asked what about a positive thing from member's past week's. tonia shares a new blog post about 10 things no one tells you about aging with cp.

Finally, Zach asked members how their disability has helped them standout.

zach asks how member's disabilities have helped them standout and excel. i tweeted it has given me an opportunity to share my story with others and build relationships. zach tweets he can say the same thing and his cp gave him a purpose, more than clocking in and out of a job.
Chris also shared her favorite quote about disability regarding being open to differences and fighting for social justice as the ways she tries to standout.
chris tweets about her favorite quote from an activist and social worker with CP, there is an image of the quote, zach tweets he feels he is a better friend to others because he is more open minded and willing to listen, chris tweets she likes the quote because she feels the memoir is the first time she is reading about herself or her experiences

This brings us to our Extend-The-Conversation Question: How has your disability helped you excel? Please share your answers in the comments and join us next Wednesday, March 24th for our Family Reunion Focus Chat on Twitter at 8 PM Eastern.

-Devin

#CPChatNow Recap- 3/03/2021

This past week in #CPChatNow recap was rambunctious as always. Members discussed spiked cane tips and creatively completing routine tasks. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, members discussed a way to deal with winter, spiked cane tips.

zach tweets about a blog he wrote with tips for getting through winter with cp and mentions he uses spiked cane tips after being recommended them by chris, blemi tweets she used them before she moved to her trip tip so she 2 canes ready in winter, zach tweets he had to replace his cane tip after doing two marathons in in 2018.

I checked in with Zach on the progress on his book about the process of becoming a marathoner.

i ask zach how his book is coming, zach tweeted he has not touched it in the past week, but he is planning on getting to the editing process tomorrow morning

Next, talk turned to the process of completing routine tasks and the frustrations that can sometimes come with asking for help.

i tweet that it is a bit annoying to ask for help with routine things, blemi tweeted asking for help with routine tasks makes her feel like less of a grownup, heather tweeted it is hard when living alone during a pandemic, zach asked if heather has a time she got creative with a routine task

Next, talk turned to getting creative to solve routine tasks in ways that may not be routine.

zach asks heather if she has an example of time she got creative with a routine task, heather tweets she thinks bench vises should be standard in kitchens because they make kitchen tasks doable one handed and that she often uses tools in ways they are not intended, blemi tweets she is often creative

This brings us to our Extend-The-Conversation Question: What is an example of when you got creative with tools to complete a routine task?

extend-the-conversation question graphic: #cpchatnow logo in the upper right hand corner, extend-the-conversation question in green with What is an example of where you got creative to complete a routine task? and a graphic of pliers, screwdriver, a wrench, and a hammer with orange handles

Thank you for reading and make sure to join us each Wednesday at 8 Eastern on Twitter at #CPChatNow!

-Devin

#CPChatNow Recap- 02-17-2021

To quote Gorilla Monsoon, this past week in #CPChatNow was a happening as always. Members discussed various topics such as obtaining Assistive Technology, maintaining motivation, publishing a book, and learning to fall. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

Chris shared something I thought was cool that you might want to look into in your area and state. Chris discussed the concept of lending libraries for Assistive Technology that she used to obtain products.

zach retweets heather's tweet about her swedish cutting board being her favorite assistive product, chris tweeted she has seen that and the state of washington has an AT lending lab that brought her things to check out

Zach talked about the difficulties he has experienced maintaining motivation and stated he goes through streaks of low motivation. Other members chimed in with their experiences and how they remain motivated.

zach asks if anyone went through streaks with motivation, i tweeted that i do and especially so with work being canceled for the week, zach tweets he was frustrated when his hours were cut in half, but it gave him more time to finish his book, but it took him a few weeks
zach tweets he asks himself what he will regret if he dies tomorrow, blemi tweets that is an ok way to motivate himself, zach tweets he feels it is a good attitude as long as the person does not overdo it

I would like to recognize that Zach has finished his manuscript and it is now in the editing phase. Zach is planning to write a book about the process of his training for a marathon.

zach tweets about the topics of his book, anxieties and falls he experienced, learning to refocus, how to stay motivated during training, he tweets he only did races that mentioned walking at first, chris tweets that she understands zach's anxiety towards running and shared experiences from high school

Finally, members discussed a common thing that is surprising to many able bodied people, learning to fall either in therapy or other areas.

i tweeted i learned how to fall in physical therapy, blemi tweeted her brother taught her after second judo class and it has saved her from many injuries, zach tweeted it is amazing he has never hurt himself despite the falls he has taken
blemi tweeted she bent her pinky finger this year and it is her most significant injury from a fall,

This brings us to our Extend-The-Conversation Question: What is the oddest thing you have learned how to do related to your disability?

extend-the-conversation question graphic: an orange, blue, and green #CPChatNow logo in the upper right hand corner, extend-the-conversation question in green, What is the oddest thing you have learned how to do related to your disability? in black, an illustration of a half orange and half red lightbulb that looks like a brain with a variety of shapes and letters inside the brain, #CPCHATNOW in white with a green background

Thanks for reading and please join us each Wednesday on Twitter at 8 Eastern at #CPChatNow!

-Devin

#CPChatNow Recap- 2-3-2021

This past week in #CPChatNow was busy as always. Members discussed scooters that look like cars, new adaptive shoes from Nike, and the struggles from CP caused by Old Man Winter. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, Zach pointed out this interesting scooter that looks like a car, but is sadly not street legal. We discussed the potential benefits from using the scooter.

zach tweets about a scooter that looks like a car that goes 18 miles per hour, but is not street legal. the tweet includes an image of a scooter with a body of a red car
zach tweets the scooter would cause a lot of second looks going down the street, i tweet that you would not get wet, zach tweets you could have room to put groceries in the back

Next, talk turned to Nike’s newest sneaker, the Go FlyEase, which is Nike’s newest effort at making athletic shoes accessible for disabled people.

zach asks what people think of nike's new go flyease shoes, there is a gif of someone wearing a yellow, pink, and teal shoe

Talk next turned to member’s thoughts on the usability of Nike’s new shoe:

timmy tweeted he would fall taking them off, i tweeted i think it's impossible to design a shoe for every type of disability, but at least nike tried, i tweeted i am not sure if the shoe would work for me, but it is a cool concept, blemi tweeted they look like a nightmare, zach tweeted they would have trouble with balance and he would need a hand to brace himself for balance which would make the shoes not hands free

Next, Zach asked members how winter impacts them the most:

zach asks how winter impacts people the most, i tweet it puts me on DL with hamstring tightness, but not as much in Texas, zach tweeted the DL is now the Injured List, blemi tweeted it makes her stiff, the wind and ice makes her fall, zach tweets he has been doing extra stretching to combat stiffness and that safely navigating winter elements is the worst part of winter for him

Finally, I would like to share a quote from one of the Nike team members about Nike’s recent efforts to develop shoes friendly to disabled people that Zach shared:

i tweet i feel it is impossible to design a shoe for every type of disability and at least nike is trying, timmy agreed and felt this is a really good start, zach shared a quote from the design team, "If you design for the most extreme needs, then you’re unlocking benefits for everybody. If a shoe works for someone who has no hands, then it will work for people who have two hands.”

This brings us to our Extend-The-Conversation question: What is your favorite adaptive or assistive product you have used? Please share your answer in the comments!

the extend-the-conversation question graphic: an orange, blue, and green #CPChatNow logo, extend-the-conversation question in green, What is your favorite adaptive or assistive product you have used? in black with a picture of a pink and green chameleon walking on a pink and blue vine, #CPCHATNOW in white above a green background

Thank you for reading and please join us each Wednesday on Twitter at 8 Eastern at #CPChatNow!

-Devin

#CPChatNow Recap- 1/20/2021

This past week in #CPChatNow was a roller coaster as always. Members talked about doing brain surgery on mice, their funniest falls, attending sporting events, and more! Oh, and we gotta have a Bernie at the inauguration meme related to disability. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, I would like to share a cool thing that a member is doing. Timmy is currently studying his PhD and shared the latest on his research:

timmy tweeted about doing mouse brain surgery, chris tweeted she volunteered the rats in her house, timmy tweeted he injects a gene so the brain cells are stimulated with light to understand how different brain regions communicate with each other in alcoholism and other addiction

Next, we have to share a Bernie at the inauguration meme related to disability from Imani Barbarin:

i shared a bernie at the inauguration meme tweeting that was funny and relatable, imani barbarin tweeted disabled people in that one accessible spot at the party with a picture of bernie sanders in a jacket and mittens at the inauguration

Next, talk turned to member’s funniest falls with members sharing various stories:

zach asks what the silliest thing is that has caused a fall tweeting he tripped on his pant leg, blemi tweeted she fell turning to return something to the fridge, smacking her head on the cabinet with juice going everywhere, i tweeted about falling while emptying an electric pencil sharpener in 6th grade which got the shavings all over me
i also tweeted about a fall when i didn't hear my fiancee warn me about a step, zach tweeted that happened when he fell during a 3 mile walk, i tweeted my cat used to sprint at my legs and trip me, chris tweets she almost tripped over her cane when she didn't see it hanging up, timmy tweets he tripped over his foot

Finally, Blemi tweeted about an awkward fall she had on some bleachers. This led to a discussion about the perils of climbing bleachers and grandstands:

blemi tweets she fell to the bottom of the bleachers at a basketball game in college, she tweets that's how people though she injured herself, zach tweets bleachers are awkward for him because it's small railings and bigger railings which makes transitions difficult, chris tweets she cannot walk up bleachers and that's what they use for seating at race tracks and her friend needed to help her at the indy 500, zach tweets the lower seating at progressive field has no railings, but the steps are wide enough that he can get to them

This brings us to our Extend-The-Conversation Question: What are your typical feelings in reaction to a fall?

extend-the-conversation question graphic: multicolored #CPChatNow logo in the upper right hand corner, extend-the-conversation question in green above What are your typical feelings in reaction to a fall? in black, there is an drawing of a man in a dark green shirt and light green pants with tan shoes falling down the stairs with his arms out and a panicked expression on his face

Please share your answers in the comments and join us each Wednesday at 8 Eastern on Twitter at #CPChatNow.

Thanks for reading!

-Devin

#CPChatNow Recap- 1/06/2021

This past week in #CPChatNow members discussed being a night owl versus a morning person, getting a smartphone, and their hopes for positive things in the new year. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, there was a discussion on whether members are morning people or night owls. Chris tweeted that she is neither because she needs drugs to stay awake no matter what time:

zach asks members whether they are a morning person or night owl, chris tweets she has idiopathic hypersomnia so she is neither- she just feels permanently exhausted, zach asked if she is used to this, chris tweets she was used to it, but it has been much harder as it has gotten worse

Chris, Zach, and I all talked about being a night owl:

chris tweeted he is a night owl, zach asks if he has always been a night owl and tweets he shifted to being a morning person when working at the library, chris tweets he has not always been a night owl, but he has never been a morning person, zach tweets if he has to be up, getting up is easy, i tweet i am a night owl which makes waking up for the train hard

Next, Zach tweeted about getting a smartphone. Longtime #CPChatNow members will know that Zach has been resistant to getting a smartphone.

zach tweets he is shocking longtime members of #cpchatnow and graduating to a smartphone, he asks about must have apps, i ask him what kind while tweeting a gif of Patrick Star's head exploding
zach tweeted he got a Moto G Power, i tweeted i recommended zach get a nice case, zach tweeted he ordered a case on amazon

Finally, Zach asked about positives that members are looking forward to in 2021.

zach asked about positives they are looking forward to in 2021- tweeting he is looking forward to the release of his next book, stating he is 75% done and hopes to have it complete for editing by mid February
chris tweeted she will be saying goodbye to her gallbladder and she will be finishing her master's degree, zach tweeted wishing her good luck

This brings us to our Extend-The-Conversation Question: What is your biggest goal for 2021? Please share your answers in the comments and please be sure to join us each Wednesday at 8 Eastern on Twitter at #CPChatNow!

extend the conversation question graphic. multicolored #CPChatNow logo in the upper right hand corner, extend-the-conversation question in green above what is your biggest goal for 2021? in black, happy new year in white against a background of fireworks on a night sky, #CPCHATNOW in white text against a green background on the bottom

-Devin

#CPChatNow Recap- 12/23/2020

This past week in #CPChatNow occurred on Festivus, also known as Christmas Eve Eve. Members discussed their grievances about disability, a recent blog post from Tonia, their dream robotic health companion, and more. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, I would like to take a moment to recognize #CPChatNow’s 7th anniversary! Thank you to everyone who has participated with us!

zach tweets he realized it is the chat's seventh anniversary earlier this month. there is an image of two clinking champagne glasses with happy anniversary written above the glasses

To mark Festivus, the annual airing of grievances, members shared their grievances about disability:

zach and i discussed our grievances about disability. i tweeted my primary grievance is the amount of time it takes up with longer commutes, more appointments. zach tweeted his grievance of winter making cerebral palsy more challenging

Next, a great blog post Tonia wrote about the frustration of when accessing basic needs is not basic sparked great conversation. I tweeted about my amazement that Pee Math has an actual name. Pee Math is a concept that disabled people in particular calculate how long they can be out before going to the restroom due to access needs and not always accessible bathrooms.

tonia tweets about her latest blog post, i tweeted about pee math and stated i didn't know it was a thing, but i do it when going out in large places, tonia tweeted she didn't know the name for it, but she does it as well

Zach shared his further thoughts on Tonia’s blog and praised her for being vulnerable.

zach tweets the post is emotional and praised tonia's courage, he agreed there is a difference between being there physically and emotionally, zach stated he grew frustrated nobody asked her how to make the kitchen more accessible and that she was blamed for not doing pt, zach asked if she had time limits for using the restroom, tonia tweeted there were not time limits, but they went between classes or risked missing material

Finally, Zach was inspired by the movie Big Hero 6 to ask what members would prefer in a personal robotic healthcare companion.

zach asked members what they would want a personal healthcare companion to assist with after being inspired by the movie big hero 6. there is an image of baymax in a red and blue suit. i tweeted i want my own personal driver/transportation device, chris tweeted she wanted robotic lungs when first diagnosed with asthma, but she would now like a robotic immune system so she could program so she wouldn't be so sick

This brings us to our Extend-The-Conversation Question: What disability related task do you wish could be automatically performed for you?

the extend-the-conversation graphic: #CPChatNow logo in the upper right hand corner, extend-the-conversation question in green above What disability related task do you wish could be automatically performed for you? in black, a picture of a white hand writing a to do list on top of a calendar, #CPCHATNOW in white text against a green background

Thanks for reading and please join us each Wednesday at 8 Eastern on Twitter at #CPChatNow!

-Devin

#CPChatNow Recap- 12/9/2020

This past week in #CPChatNow was thriving as always. Members discussed moving into new apartments, ideas for a disabled Disney princess, and their favorite toy growing up. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

Seth shared some life news that he had recently moved into a new apartment. Seth also shared a bit about the precautions his aides are taking to avoid spreading COVID.

seth shared that he recently moved into a new apartment after his name came up on a list. seth shared his 2 aides rotate and one brings her kids, but they stay in a room

Next, Zach brought up a Change.org petition that called for Disney to develop a disabled princess:

zach shared a change.org petition calling for disney to create a princess with a disability. he thanked jen for pointing out the petition

Zach bringing up the petition led to a conversation about the types of stories people would like to see Disney tell about a disabled princess:

zach tweets he could see a princess with a disability discovering accessible clothing and learning how to overcome ignorant comments like "You're so pretty. It's a shame you're disabled." I tweeted I liked Zach's second comment and he thanked me.
zach tweets he does not feel remarks are meant to be insulting, instead they come from a place of ignorance, i tweeted that i feel it's the cumulative impact of those remarks that is damaging, zach tweeted he agrees that the cumulative impact of those remarks creates a negative perception which is damaging, paul tweets his agreement and that it is sad

Finally, talk turned to a common topic around the holiday season, member’s favorite toys to play with growing up:

zach asked if people had favorite toys to play with, i tweeted a picture of my stuffed monkey Jibbs

Blemi tweeted quite an interesting story about how she played with dolls as a kid!

blemi tweeted she played baby dolls. zach asked if she played mom or babysitter, blemi tweeted she played a single mother stripper. zach tweeted that is quite the backstory with a gif of bray wyatt saying yowie wowie.

Next, Zach and Paul talked about their favorite stuffed animals as a kid:

paul tweets his favorite stuff animal is a teddy bear. zach asks paul if he takes it everywhere and he tweeted he had a stuffed animal he took everywhere growing up. paul tweets he did take it everywhere and kept it for a long time. he tweeted he wanted to pass it to his kids, but his mother left it. zach tweeted his grandma bought him another stuffed animal when he lost it.

This brings us to our Extend-The-Conversation Question: What is your favorite gift you have received? Please share your answers in the comments and join us each Wednesday at 8 Eastern on Twitter at #CPChatNow.

extend-the-conversation-question graphic. multicolored #CPChatNow logo in upper right hand corner. Extend-The-Conversation Question in green, what is your favorite gift you have received? in black text. there is a stack of wrapped presents in the middle with #CPCHATNOW in white on a green background.

Thanks for reading!

-Devin