#CPChatNow Recap- 1-2-2019

This past week in #CPChatNow was a happening as always. As you might imagine, New Year’s resolutions were a hot topic. Members also talked about accessible seating and watching the ball drop.

Amanda shared an unfortunate experience of accessible seating not being guaranteed at a concert she wanted to go to. This is all too common unfortunately.

Amanda expressed frustration about accessible seating not being guaranteed

Next, Shira brought up the fact she would not want to go to Time’s Square to watch the ball drop:

Shira and Zach tweet about not wanting to go to Time's Square to see the ball drop

Finally, talk turned to New Year’s resolutions. Hannah talked about wanting to go to Nashville for a vacation and blog:

Hannah tweets about wanting to blog more and go to Nashville

Zach shared many ideas including going to Cincinnati for a Reds game and also to meet the #CPChatNow crew near there:

Zach and Hannah tweeting about Zach going to Cincinnati to see a reds game and visit the #CPChatNow crew

This brings us to our Extend-The-Conversation question: What are your 2019 New Year’s Resolutions?

Please join us at #CPChatNow on Twitter tonight at 8 Eastern!

-Devin

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#CPChatNow Recap- 12/19/2018

This past week in #CPChatNow was busy as always.  With the holidays coming up members talked about the difficulty of gift wrapping and the greatest gift they have ever given.  This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

First, members talked about the difficulty of wrapping gifts with CP:

Jen tweets about never wrapping gifts herself. Zach tweets that gift bags are the perfect solution and the need for a wrap battle for CPChatNow

Next, members talked about the greatest gift they have ever given with a variety of cool answers:

Zach asks what the greatest gifts members have ever given. I reply a Traeger grill and talk with Jake about how much he likes it

Blemi tweets about the leather journals she gave to Rob

I tweet about TEKS shoes I got for my mom and Paul tweets about a grandfather clock he got from his mom

Don’t forget our Hangout Thursday, December 27th and answer our Extend-The-Conversation Question: What is the best gift you have ever given someone?

Please share your answer in the comments.

-Devin

#CPChatNow Recap- 12-5-2018

This past week #CPChatNow was lit as always.  Members talked about claiming handicapped parking spots and what makes someone strong.  This week’s chat was also a unique chat as it was #CPChatNow’s 5th anniversary.  Members talked about positive effects from #CPChatNow and what they would make the official theme song of #CPChatNow.  This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

First, Blemi sparked an intriguing discussion by asking if she should feel guilty for claiming the only handicapped parking spot:

A discussion about Blemi asking if it was bad she claimed the only handicapped parking spot. I tweeted that she should never feel sorry for claiming access

Next, there was an enlightening discussion sparked by Shira’s tweet asking what members thought made someone strong in a community that is often seen as strong by default:

Shira tweeted asking about what makes someone strong. Zach tweeted about perseverance. Shira tweeted about people seeing the disabled community persisting through challenges. Zach tweeted that others probably do not agree on what is difficult

I added in the importance of attitude towards others:

Zach and I tweeted about the importance of attitude towards others in making someone strong

Zach asked about how #CPChatNow had been a positive and many members talked about a positive of finding community.  Cirán discussed the positive of his distrust of escalators being validated from a previous discussion about the dangers of using escalators with CP:

Ciran tweets about a positive of his childhood distrust of the escalator validated

Zach then asked members what they would make the official theme song of #CPChatNow:

Shira tweets Fight Song by Rachel Platten being the official theme song of #CPChatNow. Karre Sloan tweets I get knocked down by Chumbawamba

This brings to our Extend-The-Conversation Question: What is the theme song of your life with CP?  Please share your answers in the comments and join us each Wednesday at 8 Eastern on #CPChatNow on Twitter

Extend-the-conversation question in red with What is the theme song of your life with CP? in red as well. There is a black and white picture of a microphone with some knobs.

-Devin

#CPChatNow- 11-28-2018

This past week the #CPChatNow Cerebral Palsy Twitter chat was bumping as always.  Members talked about their holiday wish list, what they wanted to be when they grew up, and what they feel is the worst occupation for someone with CP.  This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

Not surprisingly, members’ holiday wish lists dominated the early conversation.  Members shared their gifts were becoming more practical as they aged.

Zach and Devin tweeted about holiday wish lists. Zach tweeted about a bright winter coat so people can see him and I shared I recently bought lights for my wheelchair

Next, members talked about what they wanted to be when they grew up as a kid.  There were definitely some amusing answers, but some also achieved their goal!

Zach tweets about wanting to be a Cleveland Indians player and then shifting his goal to becoming a writer. We talked about mourning not being able to play sports.

Zach and I had a common goal, playing baseball.  I had a little bit more lofty ambitions however, and Ayden would like to be the Leader of the Free World!

Ayden tweeted about wanting to become President

Zach asked about the occupations that members felt were the worst for people with CP. Dave shared some difficult positions he has had, a stagehand and line cook.

Zach and Dave tweet about bad occupations for people with CP. Dave tweets about stagehand and line cook being difficult on the knees

Heather won the unofficial title of Tweet of the Night with a tightrope walker being the worst occupation for someone with CP

Heather tweets that a tightrope walker would be the worst occupation

This brings us to our Extend-The-Conversation question: What was your dream job when you were growing up and did CP require you to change it?  Please share your answer in the comments and join us at #CPChatNow on Twitter at 8 Eastern each Wednesday.

The Extend-The-Conversation Question graphic. There is a tan background with a picture of a little girl daydreaming. What was your dream job when you were growing up and did CP require you to change it? is in red with the multicolored #CPChatNow logo

-Devin

#CPChatNow Recap- 10-31-2018

This past week’s #CPChatNow occured on Halloween and as you might guess, there was a lot of talk about Halloween and how it related to CP.  Members talked about costumes, trudging through the snow, and going up stairs.  Also, I burned my finger.  This is #CPChatNow Co-Host, Devin Axtman, and I’m taking you along for the ride on this week’s recap.

First, co-host Zachary Fenell tweeted about a cool Beetlejuice costume that incorporated a wheelchair.  Well done!

 

Zach tweeted about a costume incorporating a mobility aid. The image is the image of a kid's wheelchair being pushed by a parents and wearing a Beetlejuice costume with 2 characters sitting beside him

I shared my story of a burned finger due to an oven mishap and Zach and Hannah talked about difficulties with pot holders:

I talked about burning my hand while cooking and Zach and Hannah tweeted about loathing pot holders

Next, talk turned to Halloween and Zach’s question of the most difficult part about Halloween with CP.

Jen answered Zach’s question by stating it was difficult to get to houses that had stairs.

Jen answered Zach's difficult question with getting to houses with stairs

I talked about the difficulty of putting a costume on and Zach mentioned the difficulty of putting on face paint:

Zach and I tweet about the difficulty of putting on costumes. Zach mentions the difficulty of face paint with fine motor skills

Blemi then talked about the difficulty of having to trudge up and down the stairs in the snow:

Blemi said going up and down stairs in snow was difficult and she relied on her brother to get candy

This brings us to our Extend-The-Conversation Question: Halloween is part of participating in your community.  What improvements do you wish for that would make it easier to participate in your community?

Extend-The-Conversation Graphic- What improvements do you wish for that would make it easier to participate in your community? on the bottom along with various people holding COMMUNITY in multi-colored letters with the multi-colored #CPChatNow logo in the upper left hand corner

Please share your answers in the comments and join us tomorrow night at 8 Eastern time on Twitter.

#CPChatNow Recap- 10-17-2018

This past week’s #CPChatNow Twitter chat was lively as always.  Members talked about their latest accomplishments, the newest season of Speechless, a runner with CP being signed to a pro contract by Nike, and changes in the weather.  This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

Timmy shared his latest research that he presented at a conference.  Great work Timmy!

Timmy tweeted about presenting his latest research at a conference. There is an image of Timmy presenting at a conference.

Next, members talked about the ongoing third season of Speechless on ABC.

Zach tweeted about episode 3 of Speechless having nothing to do with disabilities. I tweeted about liking the 2nd episode. We had mixed feelings about "The wrong ones are non verbal joke"

Jen and Zach talked about the miserable weather in Texas and Cleveland:

Zach and Jen talking about cold, rain, and hail in Texas and Cleveland

Jen and Zach also tweeted about their hatred for severe weather and tornado sirens:

Jen tweeted about she gets nervous about tornadoes and tornado warnings

Finally, Zach tweeted about Justin Gallegos, the runner with CP who got a professional running contract with Nike.  Please check out the video in this tweet.  Please note that Justin has asked to have the phrase “suffers from CP” changed to “lives with CP.” We couldn’t agree more Justin.  Run on!

Zach tweets about Justin Gallegos' contract with Nike and that he loves that he is just an athlete to Nike

This brings us to our Extend-The-Conversation Question: What are other types of representation you feel Cerebral Palsy or disability needs?  Share your answer in the comments!

A green background with Extend-The-Conversation at the top and What are other types of representation you feel Cerebral Palsy or disability needs? at the bottom in yellow. The white #CPChatNow logo is at the bottom left

Tweet you later!

-Devin

#CPChatNow Recap- 9-26-2018

This past week in #CPChatNow was busy as always.  This is Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

Seth worked with his aide to reset his modem while speaking different languages. Zach shared he could have asked Blake to be a translator:

Seth had his Spanish speaking aide reset his modem. Zach pointed out Blake could be a translator.

On a serious note, Zach shared he is participating in a suicide prevention documentary, discussing his friend’s suicide. You can find more information about the documentary at A Tale of Two Mothers.  If you or someone you know needs help, please dial the National Suicide Prevention Hotline which is available 24/7 at 1-800-273-8255:

Zach shared a documentary about his friend's suicide is premiering

Zach asked what part of the day members feel at their physical best. We talked about being night owls that were forced by society to become morning people.

Zach said he feels his best after his first cup of coffee. We both agreed we are night owls that were forced by society to become morning people

Finally, the Survivor premier was last Wednesday.  Zach asked about how CP would impact someone’s ability to compete on Survivor:

Zach asked if members could compete on Survivor with CP. I recommended Paralympia Ayden Jent who said he would do it

ETC- Which Reality Show Would You Like to Participate InThis brings us to our extend-the-conversation question: Which reality show would you like to participate in?

Please join us each Wednesday on Twitter at #CPChatNow at 8 Eastern!

-Devin