There was a bit of a change to #CPChatNow this week. The chat was moved to Tuesday to accommodate the 4th of July. However, the chat was still busy as members talked about how often they think about CP, burning calories, and doing chores. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.
Talk started with whether members thought about their CP regularly.
Zach and Rachel talked about the impact (or lack-thereof) of CP on burning calories:
Next, talk turned to chores that are more difficult because of CP. Members quickly agreed that making the bed can be very difficult with CP:
Finally, talk turned to the difficulty of ironing with CP:
This brings us to our Extend-The-Conversation Question: What is the most difficult chore for you with CP?
Share your answers in the comments and join us tonight at 8 Eastern!
#CPChatNow was brisk this past week. Members discussed competing as a Paralympic athlete, baby announcements, stubbornness, and the difficulty of trying to convince others to use mobility devices. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.
First, we’re starting the recap with some happy news! The creator of #CPChatNow, Tim Wambach, from Handicap This just welcomed a baby girl. Congrats Tim!
Also, #CPChatNow welcomed a new member in Ayden Jent. Ayden is a Paralympian, two-time World Championship US team member, and Para Pan-Am silver medalist.
Next, talk turned to whether members had talked loved ones into using a mobility device. Zach and Hannah talked about coming to terms with using their respective mobility devices:
Discussion then turned to mobility aids being tools for independence:
Hannah and I then talked about how the experiences of CP make adjusting to a mobility device easier:
This brings us to our extend-the-conversation question: What has been your toughest form of disability related adjustment? Please share your answer in the comments!
#CPChatNow was chipper this past week as members talked about things such as teaching their friends, what they would like their legacy to be, and whether they prefer moving or sitting activities. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.
First, #CPChatNow would like to note the passing of someone who meant a lot to many in the cerebral palsy community, Dr. Karen Pape. Dr. Pape was a clinical neuroscientist and author. You can find her TED Talk here. She also did a focus chat for #CPChatNow. You can find the recap for the focus chat here.
Next, Amanda shared a story of a friend helping a man using a walker leave a restaurant. This is a great example of knowledge of disability expanding knowledge and empathy.
Legacy soon became an emerging topic, sparked by Dr. Pape’s death mentioned earlier. Community members discussed the legacies they want to leave:
Continuing the widespread dialogue, members talked about whether they prefer activities that involve movement or activities that involve sitting. The consensus was movement, but that a balance was necessary to prevent overwhelming fatigue. Hot showers were a favorite as well.
This brings us to our extend-the-conversation question: What are your go to activities to get moving? Please share your answers in the comments!
Tweet you later!
This past week in #CPChatNow was bustling as always. Members talked about recent hikes, riding bikes, and physical therapy being fun. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.
First, I wanted to highlight a tweet from a member about something that occurred outside of the regular #CPChatNow window of 8-10pm eastern time each Wednesday. Regular member, Timmy, shared a photo of a weekend hike:
Timmy showed that #CPChatNow and people with CP are doing things all of the time!
Riding bikes was a common theme in this week’s chat after Zach shared a story about a man excelling at adaptive cycling. Zach and Linds chatted about their history of riding bikes:
The bike conversation went in another direction as Zach and I talked about how our physical therapists thought of fun ways to get us involved in physical therapy (PT):
This brings us to our extend-the-conversation question, “What did your therapists do to keep you interested in therapy?”
Please share your answers in the comments and join us each Wednesday at 8pm Eastern on Twitter at #CPChatNow.
This past week in #CPChatNow was jumping as always. Members talked about being ambidextrous, learning to fall, and rebelling against CP. This is #CPChatNow Co-Host, Devin Axtman, taking you along on this week’s recap.
Zach and Grace talked about being ambidextrous and whether that translated to falling to one side or the other:
Members then talked about learning to fall. Stacey expressed surprise that was a thing, but many members such as Zach and Hannah tweeted about learning to fall:
Zach and Hannah tweeted about different techniques regarding learning to fall in PT:
Zach, Hannah, and I tweeted about having private PT and our parents sweating over payment details:
Next, talk turned to an interesting question Zach had. He asked members about the first time they could remember rebelling against their CP.
Hannah tweeted about moving to Nashville and Zach tweeted about his parents being unsure about him competing in his first marathon:
This brings us to our Extend-The-Conversation question. Zach had all of the good questions this week, so I will ask his question again for those who couldn’t participate on Twitter: “What was the first decision you made to rebel against people’s concerns over your CP?” Share you answers and the results in the comments
The past week in #CPChatNow was humming as always. I’m #CPChatNow co-host, Devin Axtman, taking you along on this week’s recap.
We start the recap with some good news from Timmy!
Next, talk turned to a familiar topic with CP, falls. Rachel reported she had a fall recently and the importance of not falling on her right side. It is a fact of life with CP that you learn how to fall.
Next, talk turned to sick days and benefits (or lack-thereof at work) along with the difficulties of working for a small business.
Finally, talk turned to taking the staircase at events like sporting events and concerts. The consensus was to only get up if necessary and not to go alone:
This brings us to our extend-the-conversation Question: Do you avoid doing things in public alone due to your CP?
Share your answers in the comments. Tweet you later!
This past week in #CPChatNow was busy as always. Members talked about birthdays, lost family members, and writing books. This is #CPChatNow Co-Host, Devin Axtman, taking you along for this week’s recap.
First, we have to wish a happy birthday to Shira! She talked about her feelings upon turning 17:
Talk then turned a memorial service at my university and Zach shared it was his late aunt’s birthday:
Zach and I discussed how his aunt’s occupation as a pediatric nurse helped his family with his CP diagnosis:
Finally, Zach talked about going to author events in preparation for writing his next book, a story on his journey from not participating in PE to completing a marathon this past year:
This bring us to our Extend-The-Conversation Question: If you wrote a book about your life, what would be your topic? Please share your answers in the comments!
Tweet you later!