On the day before Halloween, #CPChatNow was busier than a chainsaw in a haunted house. Members talked about carving pumpkins and Halloween plans, inspiration porn, and naming mobility devices. This is #CPChatNow co-host, Devin Axtman taking you along for the ride on this week’s recap.
First, members discussed their plans for Halloween. Zach dressed up as a professional for Halloween.
Next, I shared a story that has gone viral recently, a mom helping her son with Cerebral Palsy experience the skatepark and proclaimed that was better than inspiration porn
This led to talk about a common topic with disability, inspiration porn. This discussion was a bit different in that it talked about the definition of inspiration porn and how it fit into taking someone with a disability to prom.
Finally, the talk turned to whether people have named their mobility aids. Zach tweeted he was thinking about naming his cane and Blemi tweeted that she is thinking about naming her canes:
Zach wrote a blog about destigmatizing mobility devices and said he got tired of writing “my cane.” Jeni tweeted about naming her elbow crutch, but not naming her AFOs.
This brings us to our Extend-The-Conversation Question: Have you ever named your mobility device? Please share your answer in the comments and join us each Wednesday at 8 Eastern on #CPChatNow.
#CPChatNow was active as always last week. Members discussed things such as what makes someone courageous, how their CP can help them avoid hazards, and the difficulty of asking for help. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.
First, Zach asked what it is that makes someone courageous. I shared my opinion that courage is doing something that is needed even if you are scared.
Next, Zach talked about avoiding tripping at a family clam bake due to being extra conscious of a misplaced step.
Next, talked turned to a difficult issue that many people with Cerebral Palsy and disabilities in general face, asking for help. I shared I sometimes don’t ask for help due to the many things I am unable to do and wanting to maximize the things I can do. Zach shared a similar story at the clam bake.
Hannah and Zach tweeted about the feelings surrounding asking for help.
Hannah and Zach also tweeted further about the fear of being a bother:
I want to go back to Zach’s tweet about the step and the clam bake. I know I have been in situations where my CP spidey sense saved me from a sticky situation that people without CP experienced. This brings us to our Extend-The-Conversation Question: How has CP helped you avoid bad situations able bodied people experienced? Please share your answers in the comments and join us each Wednesday at 8 Eastern on #CPChatNow on Twitter.
This past week in #CPChatNow was jumping as always. Members discussed things like the perceptions of social media, the perceptions of parents with disabilities and CP, and what the news and society at large gets wrong about CP. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.
#CPChatNow co-host, Zachary Fenell, wrote a blog post, defending social media while talking about the positive impact of #CPChatNow.
Next, the topic of the chat largely turned to society’s perceptions of Cerebral Palsy and what the members wished was different. Zach asked about a common topic in the disability community, news coverage of disability and more specifically CP.
Next, Zach tweeted that he wished news stories focused on what the individual with CP thinks rather than bystanders. Zach feels more people blogging and sharing their experiences will be beneficial.
Zach and I talked about how more direct quotes from the person would be more authentic.
Finally, talk turned to an article Zach shared about an Irish mum with CP using a wheelchair:
I pointed out how it was interesting that the barriers she experienced were attitudinal barriers from the healthcare professionals:
This brings us to our Extend-The-Conversation Question: What are some attitudinal barriers you have experienced in your life?
Thanks for reading! Join us each Wednesday at 8 Eastern on Twitter at #CPChatNow.
This past week in #CPChatNow was animated as always. Members talked about things like getting a bad night’s sleep, their routine in the morning, and the age old debate of audio books versus physical books.
Members first talked about something that plagues everyone from time to time, a bad night’s sleep and how long it takes them to recover:
Next, Zach asked members if they have to wake up earlier to get ready because of CP:
I also recommended a book that I am listening to, Strangers Assume My Girlfriend Is My Nurse. Zach and I discussed what I do when I listen to audiobooks:
Next, members engaged in the new school age old debate, physical books or audio books. Zach discussed audiobooks with Blemi who prefers physical books, but does like to use her e-reader.
Hannah and Dave Smith also weighed in on the audiobook debate with Hannah tweeting that she likes physical books because she can physically turn the pages and Dave tweeting it depends on the thing he is reading:
This brings us to our Extend-The-Conversation Question. I will use Zach’s question and put my own twist on it: Do you have to adjust your routine due to disability? Please share your answers in the comments and join us each Wednesday at 8 Eastern on #CPChatNow.
Please join us each Wednesday at 8 Eastern on Twitter at #CPChatNow
This past week in #CPChatNow was jumping as always. Members talked about topics like submitting their first manuscript, snapping their fingers, and the bane of many people with CP’s existence, shoes. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.
First, I would like to recognize #CPChatNow’s resident scientist, Timmy. Timmy is starting his PhD program and submitted his first 1st author manuscript. Good luck this year Timmy!
Next, Zach asked if members are able to snap their fingers, something that is difficult for many people with CP.
Talk then turned to whether members could do things like the Vulcan Salute, sing, and play an instrument.
Next, talk turned to how long member’s shoes last them. Keens and Docs were popular durable shoes. Many members expressed that shoes did not last them long.
Finally, Zach mentioned a CP life hack he used at a recent wedding, wearing black tennis shoes rather than dress shoes.
Zach’s tweet about tennis shoes inspires our Extend-The-Conversation Question: What are your CP life hacks? Share your answers in the comments!
Thanks for reading and join us each Wednesday at #CPChatNow at 8 Eastern on Twitter.
This past week in #CPChatNow was buzzing as always! Members talked about various things such as therapy they enjoyed over the years, learning to fall, and disaster preparedness with a disability. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.
First, we start with a dreaded subject when you have CP, falls. This was sparked by a post in The Mighty about falling. Members discussed things such as learning to fall and their fear of falling. Hannah learned to fall so well she taught others!
Zach shared his fears about falling were largely about messing up large events. I shared I had to wear wrist guards due to fear of hurting myself. Heather did not have to worry about this since her mom is a nurse:
Zach had a security meeting at work with problematic representation about those with disabilities in an active shooter situation. Chris tweets about experiencing similar things and disaster planning for earthquakes:
Zach and Shira tweet about the active shooter preparation video with Zach expressing dismay about the portrayal of wheelchair users. Zach and Shira tweeted about how you might experience issues with speed if you are trying to escape an active shooter situation in a wheelchair:
We have talked about some heavy things in this recap, so I would like to end by focusing on a lighter topic. Therapy is a constant in many people’s lives with CP. Zach focused on therapy that was effective for us. Grace and I discussed horse therapy:
This brings us to our Extend-The-Conversation Question: What was your favorite moment in therapy? Please share your answer in the comments and join us each Wednesday at 8 Eastern at #CPChatNow on Twitter.
This past week in #CPChatNow was buzzing as always. Members talked about a recent Micah Fowler interview, a computer mouse versus a track pad, coffee mugs, and also a peanut butter debate. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.
First, Speechless continues to be a popular topic during the chats. Forbes had a recent interview with Micah Fowler that is definitely worth checking out. The interview sparked discussion during the chat about how Speechless handled family and disability.
Next, debate turned to whether members prefer a trackpad or a mouse with opinions mixed between a trackpad and a mouse.
Also, #CPChatNow weighed in on the age old debate, smooth or crunchy peanut butter.
Next, Zach asked members how they handle their coffee mug. Blemi and Shira responded they handle both the handle and the mug.
Zach shared he uses travel mugs because they do not get hot and they have lids to prevent spills.
This brings us to our Extend-The-Conversation Question: What common items not designed specifically for accessibility do you use to meet your access needs?
Thanks for reading this week’s recap! Join us each Wednesday at 8 Eastern at #CPChatNow on Twitter.