Various conversation topics came and went Wednesday, September 19th, 2018 during the live cerebral palsy Twitter chat #CPChatNow. I am co-host Zachary Fenell, here with the highlights. Early on a recent news story stimulated dialogue.
Personally I found the story “10-year old proves to have ‘no limits’ despite her disability” interesting for multiple reasons. I asked what stands out first to others. Ciaróg noted how reading articles like this act as a reminder that cerebral palsy varies so much. Meanwhile my co-host Devin Axtman felt the story contained an “inspirational porn” vibe and pointed out the negative cognition related to wheelchairs. The latter gave me mixed emotions.
As I explained, Riley’s parents refusing to let the wheelchair inside the house caused me contradictory emotions. Yes, she ended up stronger. However, said approach would not benefit everyone. Though, Devin questioned the apparent strength.
Taking a long-term look at the situation Devin acknowledged not using a wheelchair now may cause damage down the line. He emphasized the importance to knowing limits. Better understanding CP helps to best understand where limitations lay. Instilling such an understanding into able-bodied people’s minds involves finding ways to effectively describe the condition. Another subject which surfaced Wednesday, September 19th!
Originally our beloved “Resilient Wench” Rachel raised the matter, asking about how others describe CP to able-bodied individuals. Ciaróg considers CP “as every movement getting snagged by a web of invisible elastic bands.” I liked the spastic muscles to probably how you might feel if a boa-constrictor constricted around you. Risking crossing the TMI line, Rachel herself compared how her muscles feel to menstrual cramps “but all over and all the time.”
What imagery might you use to describe cerebral palsy? Do tell by answering the week’s extend-the-conversation question. “How would you describe your cerebral palsy?” Leave your reply in the “Comments” section.
Continuing to a less serious matter, participants enjoyed fun discussing what makes them feel old.
Rachel recounting a youngster unable to appreciate a Stevie Nicks reference led to the subject. Then I mentioned the lovely dial-up Internet days, a time multiple participants remembered well. Devin even shared a funny story from his childhood where his dad became stuck at work due to Devin’s dial-up use. Navigating between Internet and phone use certainly proved a challenge during the world wide web’s infant years. A different challenge emerged later within the chat after I asked what others find most challenging while grocery shopping.
Ciaróg named a few challenges. Those included packing and paying quickly, plus carrying bags home. I shared the difficulty I face browsing items on low shelves. Devin also deemed lower shelves difficult. Nevertheless an area I encounter less troubles revolves around memory. Therefore let me remind you to answer the week’s extend-the-conversation question.
“How would you describe your cerebral palsy?”
Until next time, remember. Don’t blend in. Blend out!