#CPChatNow was bumpin this past week as usual. Members talked about making Palsy playlists, running, their startle reflex, hand movement, and sharing their CP with family members. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.
We start the recap with Rachel sharing her awesome palsy playlist with songs related to movement:
Next, Rachel, Zach, and Pickman discussed their challenges with running and frustration with not being able to do more:
Next, Pickman discussed feeling jumpy and Rachel told him about the dreaded Moro startle reflex:
Next, Ciarán noted that it is becoming easier for her to move the fingers in her right hand. Rachel bemoaned the lack of movement in her right hand while coming up with a great metaphor of using her right hand being like picking up cereal with a fork:
Finally, talk turned to how much (if at all) families talked about member’s CP. Molly stated her family did not talk to her brother about her CP and asked when other’s families did. I shared age appropriate things my parents would say to tell other kids:
This brings us to our Extend-The-Conversation Questions inspired by Molly’s tweet: When did your parents talk to your siblings about your CP?
Please share your answers in the comments and join us each Wednesday at 8 Eastern at Twitter on #CPChatNow