#CPChatNow Recap- 04-17-2024

Community, creativity, and more remained on display Wednesday, April 17th, 2024 during the live weekly cerebral palsy (CP) X chat #CPChatNow. To tell you more, I am chat co-host Zachary Fenell. Welcome to your weekly recap.

Our chat’s communal vibe emerged early in the evening.

#CPChatNow participants wish Casey a happy birthday.

Casey mentioned the day was her birthday. Both Veronica and I wished Casey a happy birthday. Keeping the conversation going, I then asked participants about highlights and learning experiences from the past week.

Answering my own question, I called working on my latest blog post my highlight. The post, “A Meaningful Birthday Celebration,” (my annual birthday reflection post), doubled as a learning experience. I explained, “I thought of a goal to publish one blog post and one YouTube video a month. First, I discouraged myself thinking those goals weren’t ambitious enough, but then I realized those numbers would still double the content I released each of the last two years.”

Encouraging words came from Veronica, who replied, “It’s good to start small and build off it.” Meanwhile for Veronica her learning experience for the week occurred elsewhere.

Veronica and Zachary discuss writing poetry.

With April being National Poetry Month in the United States, Veronica commented, “Being April I’m open to learning about poetry. I’ve written a couple forms I haven’t tinkered with in awhile.”

In response, I mentioned feeling creativity’s temptation. I detailed, “An idea for a poem came to me today. In college I performed a poem titled ‘Who am I?’ celebrating my contributions to the college. With the college closing after this semester, I plan to rewrite the poem to celebrate my contributions to the college’s legacy.”

If the poem sounds interesting to you, stay tuned! First though, let us stay focused on finishing this recap. I went on to ask a question which sparked thought-provoking dialogue.

Participants in #CPChatNow discuss the phrase, "The only disability in life is a bad attitude."

Curious, I asked the question, “What well-meaning phrase of positive advice irks you the most?” My co-host Devin Axtman responded, “The only disability in life is a bad attitude.” Devin explained his dislike for the phrase, saying “It’s not true and makes it seem like disability is a bad thing.”

Behind the bad stands well-meaning motives. As Veronica noted, “It’s common for teachers to see (say) thinking it helps students try new things.”

In response Devin admitted, “It’s not a terrible sentiment on its face.” However, he pointed out, “If you smile at a flight of stairs, they’re not gonna turn into a ramp.”

Adding to the discussion, I suggested, “the phrase would be better if it just focused on the power of attitude.” Offering the following as an alternative, “Conquering challenges starts with your attitude.” Your turn though to keep the conversation going. Answer for the week’s extend-the-conversation question, “What well-meaning phrase of positive advice irks you the most?”

This week's extend-the-conversation question asks, "What well-meaning phrase of positive advice irks you the most?"

Answer below in the “Comments.” Afterwards, mark your calendar and join us every Wednesday on X. The fun begins at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

#CPChatNow Recap- 4/10/24

This past week in #CPChatNow was hopping as always. Members discussed art projects, learning how to fall, and their favorite summer activities. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, members discussed their like (or dislike) of doing art projects. Timmy shared photography he had done and Chris shared an art project she recently completed.

zach asked if members liked doing art projects. Timmy shared his photography with pictures of baseball
chris shares a picture of a recent art project she did

Next, members discussed a common activity for people with Cerebral Palsy, learning how to fall in Physical Therapy.

zach tweets he learned  how to fall one summer in physical therapy to prevent serious injuries. i tweeted i did the same thing after falling on the playground and almost breaking my wrist. zach tweets he suffered a concussion after a fall in school
veronica tweeted she was taught to go limp when she fell and because it saves her body from more injuries.

Finally, Veronica and Zach talked about their favorite summer activities.

zach asked what members favorite summer activities are. Veronica tweeted swimming, but she doesn't have a pool so she doesn't get to swim often

This brings us to our Extend-The-Conversation Question: What do you remember learning to do in Physical Therapy? I remember I went out by the elementary’s schools playground and I had to try to walk straight on the line students wait behind for the buses. If I fell off to either side, I fell in the “alligator pit.”

Thanks for reading and join us on X at #CPChatNow at 8 Eastern each Wednesday.

-Devin

#CPChatNow Recap- 04/03/2024

Different topics came and went Wednesday, April 3rd, 2024 during the weekly cerebral palsy (CP) X (formerly Twitter) chat #CPChatNow. To tell you more, I am chat co-host Zachary Fenell. Welcome to your recap!

Early chit chat from the evening led to discussion about house hunting.

Zachary asks Devin what the more challenging parts of house hunting are.

My co-host Devin Axtman mentioned being on the hunt for a house, “which is tough.” That led me to ask what the more challenging parts of house hunting are. Devin responded, “That doesn’t fit in a tweet lol. Cost, interest rates, finding something we agree on, location, actually making an offer.”

The conversation led Veronica to express her relief over purchasing her house years ago.

Veronica adds to the house hunting conversation.

Specifically, Veronica said, “So glad we bought our house over 20 years ago. Between inflation, supply shortages and interest rates, buying a house now is difficult.”

Elsewhere in the chat I made a point to wish Veronica a happy National Poetry Month.

National Poetry Month conversation turns into dialogue about travel.

In her reply to me Veronica mentioned writing a poem about an airport adventure she experienced when moving out to Phoenix 25 years earlier. The poem (which you can read here) led us to discuss air travel with a disability. Our dialogue inspired me to ask a question.

Zachary asks #CPChatNow for tips about traveling with a disability.

Sparked by the air travel conversation, I asked participants for a tip on traveling with a disability. Devin answered, “Always get there early and pre board.” He further explained, “It gives me time to not feel rushed.”

Devin’s tip closely matched mine. As I stated, “I would rather wait an extra 30 minutes over being stressed about whether I am going to make it in time and rushing.” Adding, “Especially, since rushing means you aren’t focused like you should be which makes an injury more likely.”

What about you though? Answer for the week’s extend-the-conversation question, “What is a traveling with a disability tip you have?”

Answer for the week's extend-the-conversation question, "What is a traveling with a disability tip you have?"

Leave your tip in the comments below. Afterwards, mark your calendar to join us on X each and every Wednesday. The fun begins at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

#CPChatNow Recap- 3/27/24

This past week in #CPChatNow was buzzing as always. Members discussed what they did for CP Awareness Day, the lack of research for adult treatments for CP, and what they are looking forward to this Spring. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

March 25th was World Cerebral Palsy Awareness Day. Veronica Hosking wrote a haiku talking about the lack of research into adult treatments for CP:

veronica hosking's haiku of: Cerebral Palsy lifelong disability, unveil new research with a picture of Veronica and a stuffed animal

Veronica’s haiku sparked further conversation about the lack of research into adult treatments for CP.

i tweet about how the treatments for cp haven't changed in the 33 years I have been alive. veronica tweets she has been alive for 50 years and now much has changed along with difficulty finding a PCP familiar with CP.

Also, Zach shared photos of himself in a Riddler costume and said he was going to do a video of if the Riddler had CP. Check it out!

Finally, Zach asked what members are looking forward to this spring.

zach asks what members are looking forward to this spring. veronica tweets she will write poetry in april and zach tweets he has some poems in his head. hannah tweets she is looking forward to the cone and zach tweets that is an acceptable answer.

This brings us to the Extend-The-Conversation Question: What do you wish medical professionals knew about Cerebral Palsy?

Thanks for reading and please be sure to join us each Wednesday on X at 8 Eastern!

-Devin