Tag Archives: cerebral palsy

#CPChatNow Recap- 2-20-2019

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This past week in #CPChatNow was buzzing as always. Members talked about how #DisabledPeopleAreHot, plans for CP Awareness Month, incompetent nurses, and controversy with Walmart and an employee with CP. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

The hashtag #DisabledPeopleAreHot swept Twitter the past week. Many #CPChatNow members posted pictures for the hashtag. Here is a newcomer to #CPChatNow, Lionel Menchaca.

Lionel's #DisabledPeopleAreHot picture

March is Cerebral Palsy Awareness month. Zach asked if members had plans for the upcoming month. Veronica and Zach discuss upcoming CP awareness plans

Veronica Hosking talked about a phone bank for the local UCP and Zach talked about a team for the Race to Empower which is held in May due to Cleveland winters:

Hannah tweeted about her frustration of being in the hospital and her leg spasms triggering an alarm. A hospital tech asked a truly unbelievably incompetent question:

Hannah tweeted about a tech asking to predict her leg spasms so she doesn't trigger the bed alarm. Blemi and Devin tweeted how nice it would be to predict spasms.

Finally, #CPChatNow shared collective outrage at a change in Walmart policy which may cause a greeter with CP to lose his job:

Hannah passes along a tweet about a Walmart greeter with CP possibly losing his job due to a change in job description. I express disbelief an accommodation cannot be worked out

#CPChatNow members shared our frustrations with employment and attitudes of employees:

Hannah tweets the employment system is rigged. Hosking Poet shares they need to be reminded of EOE laws. Blemi shares she is glad she stopped shopping there and many greeters may be out of jobs.


This brings us to our Extend-The-Conversation Question: What is the worst thing a healthcare employee has said to you? Please join us each Wednesday at 8 Eastern on #CPChatNow.

This week's extend-the-conversation question asks "What is the worst thing a healthcare employee has said to you?

-Devin

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#CPChatNow Recap- 2-6-2019

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#CPChatNow included various different topics last Wednesday including: future employability, Valentine’s Day coming up, and even member’s favorite breakfast cereal. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

First, Shira shared the memory of encountering a Deaf employee at the bowling alley and struggling to communicate with him. She raised an issue many people with disabilities fear, their future employability:

Zach and Shira talking about a memory at a bowling alley and how it relates to fears about future employability
Zach and Blemi chat about Valentine's Day being a forced holiday

Zach brought up Valentine’s Day and members shared various thoughts from extreme indifference to excitement. Blemi and Zach talked about the day sometimes being a forced holiday:

Finally, Zach and Paul talked about their favorite breakfast cereals:

Zach and Paul talk about breakfast cereals. Paul likes Count Chocula and Zach likes Cocco Puffs followed by Fruity Pebbles with a shout out to Trix for the best commercials.

This brings us to our Extend-The-Conversation Question: Have you ever had fears related to your employability due to your disability?

Thanks for reading and join us each Wednesday at 8 Eastern on #CPChatNow on Twitter

#CPChatNow Recap 1-23-2019

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This past week in #CPChatNow was bustling as always. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

First, we have to congratulate #CPChatNow member, Timmy Le, for getting accepted to a PhD program at the University of Massachusetts.

Timmy announces acceptance to a PhD program

Next, members talked about annoying aspects of having a disability like fixing your wheelchair or having to renew a permanent handicap parking placard

I talked about getting my chair fixed. Zach and Blemi talked about having to renew a prescription or pay for a placard

Various members talked about the positives and negative impacts of social media. Zach and I talked about negatives like getting addicted to “likes,” but also positives like having access to information you would not have like parents finding community.

Zach and I talked about getting addicted to "likes," but also having access to information you would not have like parents with a CP diagnosis.

Next, members talked about potential figures of speech that are offensive due to disability. Shira and Zach talked about the figure of speech “A leg to stand on”

Shira and Zach talked about the figure of speech "A leg to stand on" and wondered if it would be offensive

Finally, I shared my experience as a wheelchair user of people commonly worrying whether saying “Let’s walk over there” is offensive:

We tweeted about whether figures of speech were offensive. I shared many people worried whether the figure of speech "Let's walk over there" is offensive

This brings us to our Extend-The-Conversation Question: Do you feel social media is a net negative or positive in your life?

This week's extend-the-conversation question asks "Do you feel social media is a net negative or positive in your life?"

Please share your answers in the comments and join us each Wednesday on #CPChatNow on Twitter at 8 Eastern.

-Devin

#CPChatNow Recap- 1-2-2019

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This past week in #CPChatNow was a happening as always. As you might imagine, New Year’s resolutions were a hot topic. Members also talked about accessible seating and watching the ball drop.

Amanda shared an unfortunate experience of accessible seating not being guaranteed at a concert she wanted to go to. This is all too common unfortunately.

Amanda expressed frustration about accessible seating not being guaranteed

Next, Shira brought up the fact she would not want to go to Time’s Square to watch the ball drop:

Shira and Zach tweet about not wanting to go to Time's Square to see the ball drop

Finally, talk turned to New Year’s resolutions. Hannah talked about wanting to go to Nashville for a vacation and blog:

Hannah tweets about wanting to blog more and go to Nashville

Zach shared many ideas including going to Cincinnati for a Reds game and also to meet the #CPChatNow crew near there:

Zach and Hannah tweeting about Zach going to Cincinnati to see a reds game and visit the #CPChatNow crew

This brings us to our Extend-The-Conversation question: What are your 2019 New Year’s Resolutions?

Please join us at #CPChatNow on Twitter tonight at 8 Eastern!

-Devin

#CPChatNow Recap- 10-17-2018

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This past week’s #CPChatNow Twitter chat was lively as always.  Members talked about their latest accomplishments, the newest season of Speechless, a runner with CP being signed to a pro contract by Nike, and changes in the weather.  This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

Timmy shared his latest research that he presented at a conference.  Great work Timmy!

Timmy tweeted about presenting his latest research at a conference. There is an image of Timmy presenting at a conference.

Next, members talked about the ongoing third season of Speechless on ABC.

Zach tweeted about episode 3 of Speechless having nothing to do with disabilities. I tweeted about liking the 2nd episode. We had mixed feelings about "The wrong ones are non verbal joke"

Jen and Zach talked about the miserable weather in Texas and Cleveland:

Zach and Jen talking about cold, rain, and hail in Texas and Cleveland

Jen and Zach also tweeted about their hatred for severe weather and tornado sirens:

Jen tweeted about she gets nervous about tornadoes and tornado warnings

Finally, Zach tweeted about Justin Gallegos, the runner with CP who got a professional running contract with Nike.  Please check out the video in this tweet.  Please note that Justin has asked to have the phrase “suffers from CP” changed to “lives with CP.” We couldn’t agree more Justin.  Run on!

Zach tweets about Justin Gallegos' contract with Nike and that he loves that he is just an athlete to Nike

This brings us to our Extend-The-Conversation Question: What are other types of representation you feel Cerebral Palsy or disability needs?  Share your answer in the comments!

A green background with Extend-The-Conversation at the top and What are other types of representation you feel Cerebral Palsy or disability needs? at the bottom in yellow. The white #CPChatNow logo is at the bottom left

Tweet you later!

-Devin

#CPChatNow Recap- 9-26-2018

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This past week in #CPChatNow was busy as always.  This is Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

Seth worked with his aide to reset his modem while speaking different languages. Zach shared he could have asked Blake to be a translator:

Seth had his Spanish speaking aide reset his modem. Zach pointed out Blake could be a translator.

On a serious note, Zach shared he is participating in a suicide prevention documentary, discussing his friend’s suicide. You can find more information about the documentary at A Tale of Two Mothers.  If you or someone you know needs help, please dial the National Suicide Prevention Hotline which is available 24/7 at 1-800-273-8255:

Zach shared a documentary about his friend's suicide is premiering

Zach asked what part of the day members feel at their physical best. We talked about being night owls that were forced by society to become morning people.

Zach said he feels his best after his first cup of coffee. We both agreed we are night owls that were forced by society to become morning people

Finally, the Survivor premier was last Wednesday.  Zach asked about how CP would impact someone’s ability to compete on Survivor:

Zach asked if members could compete on Survivor with CP. I recommended Paralympia Ayden Jent who said he would do it

ETC- Which Reality Show Would You Like to Participate InThis brings us to our extend-the-conversation question: Which reality show would you like to participate in?

Please join us each Wednesday on Twitter at #CPChatNow at 8 Eastern!

-Devin

#CPChatNow Recap- 9-12-2018

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#CPChatNow was rocking as always last week.  Members discussed the upcoming season of Speechless, the importance of senses, and what character they would be in a book.  This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

First, members talked about the upcoming season of Speechless.

Zach and Blemi discussed the upcoming season of Speechless. Blemi states she stopped watching it in season 1. Zach said he can relate sometimes while not at others.

Next, Hannah shared her excitement about new glasses.  She shared how much easier life has been since regaining her vision:

Hannah shares her excitement about new glasses and increased vision. Zach shared his reliance on vision for walking and Hannah concurred

Zach and Hannah discussed the loss of different senses and Hannah shared that she would likely deal OK with losing her hearing because of her knowledge of ASL:

Zach and Hannah discussed the loss of different senses and Hannah shared that she would likely deal with losing her hearing because of her knowledge of ASL

This brings us to our extend-the-conversation question, “Which of the five senses do you feel is the most important?” Leave your answer in the “Comments” section.

Continuing on, Zach asked what book people would add themselves to and how they would change the story.

Zach asks what book members would add themselves to. Ayden shares the Count of Monte Cristo to support Dantes

Zach tweeted about being a character in To Kill A Mockingbird and sticking up for Boo Radley:

Zach tweets about being in To KIll A Mockingbird and helping Boo Radley

Extend the Conversation Question in black. A graphic with the five senses in circles around a brain with a drawing of a nose, mouth, ear, hand, and eye. Which of the five senses do you feel is the most important? on the bottom with the multi-colored #CPChatNow logo on the leftMake sure to keep the conversation going by answering the week’s extend-the-conversation question. Again that question asks, “Which of the five senses do you feel is the most important?” Leave your answers below!

-Devin