Tag Archives: cerebral palsy

#CPChatNow Recap- 10-17-2018

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This past week’s #CPChatNow Twitter chat was lively as always.  Members talked about their latest accomplishments, the newest season of Speechless, a runner with CP being signed to a pro contract by Nike, and changes in the weather.  This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

Timmy shared his latest research that he presented at a conference.  Great work Timmy!

Timmy tweeted about presenting his latest research at a conference. There is an image of Timmy presenting at a conference.

Next, members talked about the ongoing third season of Speechless on ABC.

Zach tweeted about episode 3 of Speechless having nothing to do with disabilities. I tweeted about liking the 2nd episode. We had mixed feelings about "The wrong ones are non verbal joke"

Jen and Zach talked about the miserable weather in Texas and Cleveland:

Zach and Jen talking about cold, rain, and hail in Texas and Cleveland

Jen and Zach also tweeted about their hatred for severe weather and tornado sirens:

Jen tweeted about she gets nervous about tornadoes and tornado warnings

Finally, Zach tweeted about Justin Gallegos, the runner with CP who got a professional running contract with Nike.  Please check out the video in this tweet.  Please note that Justin has asked to have the phrase “suffers from CP” changed to “lives with CP.” We couldn’t agree more Justin.  Run on!

Zach tweets about Justin Gallegos' contract with Nike and that he loves that he is just an athlete to Nike

This brings us to our Extend-The-Conversation Question: What are other types of representation you feel Cerebral Palsy or disability needs?  Share your answer in the comments!

A green background with Extend-The-Conversation at the top and What are other types of representation you feel Cerebral Palsy or disability needs? at the bottom in yellow. The white #CPChatNow logo is at the bottom left

Tweet you later!

-Devin

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#CPChatNow Recap- 9-26-2018

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This past week in #CPChatNow was busy as always.  This is Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

Seth worked with his aide to reset his modem while speaking different languages. Zach shared he could have asked Blake to be a translator:

Seth had his Spanish speaking aide reset his modem. Zach pointed out Blake could be a translator.

On a serious note, Zach shared he is participating in a suicide prevention documentary, discussing his friend’s suicide. You can find more information about the documentary at A Tale of Two Mothers.  If you or someone you know needs help, please dial the National Suicide Prevention Hotline which is available 24/7 at 1-800-273-8255:

Zach shared a documentary about his friend's suicide is premiering

Zach asked what part of the day members feel at their physical best. We talked about being night owls that were forced by society to become morning people.

Zach said he feels his best after his first cup of coffee. We both agreed we are night owls that were forced by society to become morning people

Finally, the Survivor premier was last Wednesday.  Zach asked about how CP would impact someone’s ability to compete on Survivor:

Zach asked if members could compete on Survivor with CP. I recommended Paralympia Ayden Jent who said he would do it

ETC- Which Reality Show Would You Like to Participate InThis brings us to our extend-the-conversation question: Which reality show would you like to participate in?

Please join us each Wednesday on Twitter at #CPChatNow at 8 Eastern!

-Devin

#CPChatNow Recap- 9-12-2018

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#CPChatNow was rocking as always last week.  Members discussed the upcoming season of Speechless, the importance of senses, and what character they would be in a book.  This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

First, members talked about the upcoming season of Speechless.

Zach and Blemi discussed the upcoming season of Speechless. Blemi states she stopped watching it in season 1. Zach said he can relate sometimes while not at others.

Next, Hannah shared her excitement about new glasses.  She shared how much easier life has been since regaining her vision:

Hannah shares her excitement about new glasses and increased vision. Zach shared his reliance on vision for walking and Hannah concurred

Zach and Hannah discussed the loss of different senses and Hannah shared that she would likely deal OK with losing her hearing because of her knowledge of ASL:

Zach and Hannah discussed the loss of different senses and Hannah shared that she would likely deal with losing her hearing because of her knowledge of ASL

This brings us to our extend-the-conversation question, “Which of the five senses do you feel is the most important?” Leave your answer in the “Comments” section.

Continuing on, Zach asked what book people would add themselves to and how they would change the story.

Zach asks what book members would add themselves to. Ayden shares the Count of Monte Cristo to support Dantes

Zach tweeted about being a character in To Kill A Mockingbird and sticking up for Boo Radley:

Zach tweets about being in To KIll A Mockingbird and helping Boo Radley

Extend the Conversation Question in black. A graphic with the five senses in circles around a brain with a drawing of a nose, mouth, ear, hand, and eye. Which of the five senses do you feel is the most important? on the bottom with the multi-colored #CPChatNow logo on the leftMake sure to keep the conversation going by answering the week’s extend-the-conversation question. Again that question asks, “Which of the five senses do you feel is the most important?” Leave your answers below!

-Devin

 

#CPChatNow Recap- 8/29/2018

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This past week in #CPChatNow was bustling as always.  This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

Zach announced that he is going to do a 5K as a warm up to another marathon in October:

Zach announcing he has registered for the Helping Hands Heroes 5K which benefits the hospital where he had surgery

Members also talked about doing a Real Housewives of CP program:

Rachel tweeted there should be a real housewives of CP program. Heather said for enough money she could learn to be catty. Zach shared a Ted Dibase gif

Jen and Hannah talked about Hannah’s dog Levi walking alongside her walker at PetSmart:

Jen asked how Levi is doing with the walker training. Hannah said they haven't done it again

Finally, Zach talked about a moment at work when he accidentally pushed over a book cart a la WWE wrestler Braun Stroman:

Zach talks about accidentally flipping over a book cart at work.

Please join us every Wednesday at 8 PM Eastern on Twitter at #CPChatNow!

#CPChatNow Recap- 7-3-2018

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There was a bit of a change to #CPChatNow this week.  The chat was moved to Tuesday to accommodate the 4th of July.  However, the chat was still busy as members talked about how often they think about CP, burning calories, and doing chores.  This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

Talk started with whether members thought about their CP regularly.

Zach and Chris talked about if CP is constantly on their minds. They both agreed they think about it, but not overtly

Zach and Rachel talked about the impact (or lack-thereof) of CP on burning calories:

Rachel and Zach talked about whether CP impacted their calories burned, particularly when it came to posture

Next, talk turned to chores that are more difficult because of CP.  Members quickly agreed that making the bed can be very difficult with CP:

Jeni and Zach talking about the difficulty of making the bed

Ironing remained another chore discussed:

Zach and Wum talked about the difficulty of ironing and folding with CP

Zach asked how often members ironed. Devin and Chris talked about their infrequency of ironing

This brings us to our extend-the-conversation question: What is the most difficult chore for you with CP?

Share your answers in the comments and join us tonight at 8 pm eastern!

-Devin

#CPChatNow Recap 6-6-2018

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#CPChatNow was chipper this past week as members talked about things such as teaching their friends, what they would like their legacy to be, and whether they prefer moving or sitting activities.  This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

First, #CPChatNow would like to note the passing of someone who meant a lot to many in the cerebral palsy community, Dr. Karen Pape.  Dr. Pape was a clinical neuroscientist and author. You can find her TED Talk here. She also did a focus chat for #CPChatNow.  You can find the recap for the focus chat here.

Zach tweeting about Dr Pape's death on June 2nd

Next, Amanda shared a story of a friend helping a man using a walker leave a restaurant.  This is a great example of knowledge of disability expanding knowledge and empathy.

Amanda shared a story of a friend helping a man using a walker leave a restaurant.  She shared a story of the friend saying knowing Amanda has helped expand his knowledge.

Legacy soon became an emerging topic, sparked by Dr. Pape’s death mentioned earlier. Community members discussed the legacies they want to leave:

Members discussed the legacy they hoped to leave. Zach and I shared our thoughts. Rachel cautioned about doing too much for others

Continuing the widespread dialogue, members talked about whether they prefer activities that involve movement or activities that involve sitting.  The consensus was movement, but that a balance was necessary to prevent overwhelming fatigue.  Hot showers were a favorite as well.

Rachel prefer movement oriented activities where her muscles are engaged in active and passive stretch like yoga or taking a hot shower. Zach agreed on liking hot showers

Chris agreed with Zach and Rachel on need for moving activities, but talked about the need for a balance.

This brings us to our extend-the-conversation question: What are your go to activities to get moving?  Please share your answers in the comments!

Extend-The-Conversation Question in white at the top. What are your go to activities to get moving? in the middle with the #CPChatNow white logo. A person is standing in the middle of trees with their arm up

Tweet you later!

-Devin

 

 

 

#CPChatNow Recap- 5-23-2018

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This past week in #CPChatNow was bustling as always.  Members talked about recent hikes, riding bikes, and physical therapy being fun.  This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, I wanted to highlight a tweet from a member about something that occurred outside of the regular #CPChatNow window of 8-10pm eastern time each Wednesday.  Regular member, Timmy, shared a photo of a weekend hike:

A picture of Timmy standing by the Mount Everett summit sign

Timmy showed that #CPChatNow and people with CP are doing things all of the time!

Riding bikes was a common theme in this week’s chat after Zach shared a story about a man excelling at adaptive cycling.  Zach and Linds chatted about their history of riding bikes:

Zach and Linds talked about bike riding. Zach said he did not have the core strength to get beyond training wheels. Linds tweeted she used to ride and sometimes fell off, but has been unable to due to health reasons and no time to recover

The bike conversation went in another direction as Zach and I talked about how our physical therapists thought of fun ways to get us involved in physical therapy (PT):

Zach and I tweeted about sports being a part of physical therapy. I tweeted sports were a big part of therapy and zach expressed that he wished sports was a bigger part of his therapy

I tweeted a milestone in physical therapy was running around the bases. Zach recalled getting in catcher position to catch bean bags and the challenge of keeping his balance

This brings us to our extend-the-conversation question, “What did your therapists do to keep you interested in therapy?”

A picture of a baseball stadium in the background. Extend-The-Conversation Question in white with the extend-the-conversation question at the top of the picture. The white #CPChatNow logo at the bottom

Please share your answers in the comments and join us each Wednesday at 8pm Eastern on Twitter at #CPChatNow.