This past week in #CPChatNow was jumping as always. Members talked about topics like submitting their first manuscript, snapping their fingers, and the bane of many people with CP’s existence, shoes. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.
First, I would like to recognize #CPChatNow’s resident scientist, Timmy. Timmy is starting his PhD program and submitted his first 1st author manuscript. Good luck this year Timmy!
Next, Zach asked if members are able to snap their fingers, something that is difficult for many people with CP.
Talk then turned to whether members could do things like the Vulcan Salute, sing, and play an instrument.
Next, talk turned to how long member’s shoes last them. Keens and Docs were popular durable shoes. Many members expressed that shoes did not last them long.
Finally, Zach mentioned a CP life hack he used at a recent wedding, wearing black tennis shoes rather than dress shoes.
Zach’s tweet about tennis shoes inspires our Extend-The-Conversation Question: What are your CP life hacks? Share your answers in the comments!
Thanks for reading and join us each Wednesday at #CPChatNow at 8 Eastern on Twitter.
Wednesdays equal appointment tweeting, at least for participants in the live cerebral palsy Twitter chat #CPChatNow. To tell you more, I am chat co-host Zachary Fenell. In my opinion the best way to demonstrate the appointment tweeting concept remains delivering you your weekly recap.
Since everyone begins gathering at 8pm ET, you can expect almost immediate responses to your tweets. Such quick response time helps to build a bond between those who contribute to the dialogue. For example, take a look at how others responded to a humorous story my co-host Devin Axtman shared.
Devin brought up a Lyft driver who recognized Devin’s cerebral palsy. The driver’s familiarity with CP stemmed from a family member having the “Palsy.” The tale gave me flashbacks to college when a peer saw my movements and asked a similar question. Like long-time chat regular Blemi observed, “People who know. Know.”
Another attribute which makes #CPChatNow appointment tweeting involves the life updates. Each week chat regulars share the happenings in their lives. On Wednesday, August 21st, 2019 Shira shared an awesome development.
Shira recently learned every week her college brings in therapy dogs for de-stressing. Devin mentioned the college he works for does the same during finals, an especially stressful time! Unfortunately, stress knows no bounds. Whether school or life, you can easily become stressed. Hence the importance to find an outlet to relieve your anxiety. With that said, answer as the week’s extend-the-conversation question “How do you relieve stress?”
Leave your reply in the “Comments” section. Then afterwards make sure to add #CPChatNow to your weekly calendar. The Twitter chat takes place every Wednesday, beginning at 8pm ET. Include the hashtag in your tweets and join the conversation! I hope to tweet you soon.
Until next time, remember. Don’t blend in. Blend out!
This past week in #CPChatNow was buzzing as always! Members talked about various things such as therapy they enjoyed over the years, learning to fall, and disaster preparedness with a disability. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.
First, we start with a dreaded subject when you have CP, falls. This was sparked by a post in The Mighty about falling. Members discussed things such as learning to fall and their fear of falling. Hannah learned to fall so well she taught others!
Zach shared his fears about falling were largely about messing up large events. I shared I had to wear wrist guards due to fear of hurting myself. Heather did not have to worry about this since her mom is a nurse:
Zach had a security meeting at work with problematic representation about those with disabilities in an active shooter situation. Chris tweets about experiencing similar things and disaster planning for earthquakes:
Zach and Shira tweet about the active shooter preparation video with Zach expressing dismay about the portrayal of wheelchair users. Zach and Shira tweeted about how you might experience issues with speed if you are trying to escape an active shooter situation in a wheelchair:
We have talked about some heavy things in this recap, so I would like to end by focusing on a lighter topic. Therapy is a constant in many people’s lives with CP. Zach focused on therapy that was effective for us. Grace and I discussed horse therapy:
This brings us to our Extend-The-Conversation Question: What was your favorite moment in therapy? Please share your answer in the comments and join us each Wednesday at 8 Eastern at #CPChatNow on Twitter.
This past week in #CPChatNow was buzzing as always. Members talked about a recent Micah Fowler interview, a computer mouse versus a track pad, coffee mugs, and also a peanut butter debate. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.
First, Speechless continues to be a popular topic during the chats. Forbes had a recent interview with Micah Fowler that is definitely worth checking out. The interview sparked discussion during the chat about how Speechless handled family and disability.
Next, debate turned to whether members prefer a trackpad or a mouse with opinions mixed between a trackpad and a mouse.
Also, #CPChatNow weighed in on the age old debate, smooth or crunchy peanut butter.
Next, Zach asked members how they handle their coffee mug. Blemi and Shira responded they handle both the handle and the mug.
Zach shared he uses travel mugs because they do not get hot and they have lids to prevent spills.
This brings us to our Extend-The-Conversation Question: What common items not designed specifically for accessibility do you use to meet your access needs?
Thanks for reading this week’s recap! Join us each Wednesday at 8 Eastern at #CPChatNow on Twitter.
It was the day before the 4th of July and #CPChatNow brought the fireworks as usual. Members talked about fireworks, disability podcasts, wheelchair seats at sporting events, and just how far you mind can help overcome your disability. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride of this week’s recap.
First, members talked about fireworks themselves. Fireworks are also known as the bane of existence when you have the Cerebral Palsy startle reflex.
Next, Zach brought up the cool story of Peter Kline. He has completed 45 marathons with disabled rider athletes. Well done Mr. Kline!
I would like to highlight one of my favorite podcasts (disability or otherwise), the Disability Visibility podcast. The podcast is hosted by Alice Wong and looks at different issues surrounding disability:
Next, members talked about wheelchair seats at sporting events. Chris is going to an Indy Car race in Portland in September. She talked about an organization, @halfaccess, where people can post about the accessibility of a venue.
Finally, #CPChatNow was tagged in an intriguing question by @cpandm. They asked if it was OK to be frustrated by others saying, “The body will do what you decide to make it do.” In other words, whether it is OK to be frustrated by your mind not being able to will your body to do things.
This brings us to our Extend-The-Conversation Question: How do you know when your body is telling you you’re at your limit? Share your answer in the comments and join us each Wednesday at 8 Eastern on #CPChatNow.
This past week in #CPChatNow was hopping as always. Members talked about various topics like having multiple disabilities, horror movies and CP, and their personal analogy for the CP community. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!
First, two long time members of the #CPChatNow community finally met each other in-person with Hannah Pike and my other co-host, Zachary Fenell, meeting:
Shira asked if having CP made you more likely to have multiple disabilities:
Members chimed in that they had multiple diagnoses with CP and that other symptoms from CP might lead to a diagnosis:
Next, members talked about the impacts from CP and their startle reflex on watching horror movies:
Finally, Zach asked if members had an analogy for the Cerebral Palsy community:
Seth chimed in with his own analogy borrowing from a Lady Gaga song:
This brings us to our Extend-The-Conversation Question: What analogy would you use for the CP community? Please share your answers in the comments!
Join us every Wednesday at 8 Eastern at #CPChatNow on Twitter.
This past week in #CPChatNow was interesting as always. Members discussed various topics such as problematic Lyft rides, meeting a significant other’s parents, and patronizing words. In honor of the Stanley Cup Playoffs, here are the 3 stars of the week presented by #CPChatNow Co-Host, Devin Axtman.
First, Hannah shared a problematic story with a Lyft driver. Unfortunately, she experienced discriminatory behavior from a Lyft driver refusing to give a ride due to fears Hannah’s wheelchair would scratch the car, but the second driver was great:
Next, Zach and I talked about meeting a significant other’s parents for the first time when you have CP. This morphed into a discussion about me being miffed at the phrase ”seeing past disability.”
Finally, this led to a discussion of what words or phrases miff people. Seth tweeted his thoughts:
This brings us to our Extend-The-Conversation Question: What words or phrases used to describe disability miff you? Please join us each Wednesday at #CPChatNow on Twitter at 8 Eastern.