#CPChatNow Recap- 7/14/2021

This past week in #CPChatNow was hopping as always. Members discussed seeing themselves walking, worries about falling, and what Disability Pride Month means to them. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, my wedding and me walking up the aisle sparked conversation about walking. I was surprised when I saw myself walking on my wedding highlight video. Members seemed to share the same sentiments.

i ask if anyone else gets surprised with how they walk. zach tweets its a jarring experience. jen tweets she rarely sees herself walking, but yes and she has cringed when she sees herself on video.
zach tweets seeing himself walking is less jarring due to seeing himself in drive thru window, alessandro compared himself to a newborn giraffe, zach compared himself to a drunken stumble. chris tweets the worst thing is hearing herself speak and she knows why she is asked if she is australian, blemi tweets it shocks and horrifies her.
i tweeted it was momentary revulsion and then a thought that i put a lot of work for that walk

Next, members discussed worries about falling. Members specifically discussed concerns of falling at weddings and big events.

zach asked if members got nervous about falling at weddings and similar events. i tweeted i got nervous walking down the aisle and my gait gets worse. blemi tweeted she is skipping the aisle and she gets slower and more self conscious when she is nervous

Finally, members marked July being Disability Pride Month, by explaining what disability pride means to them.

i ask what disability pride means to members to celebrate disability pride month. i tweeted disability pride means identifying as disabled and furthering the notion disability is a beautiful part of diversity.
chris tweeted disability pride means not being ashamed of who she is. being around people who recognize the challenges of her disabilities, but also see the good in them. being comfortable in her disabled skin. blemi tweeted she loves chris' definition

This brings us to our Extend-The-Conversation Question: What is something that routinely surprises you about your disability? Please share your answers in the comments and join us each Wednesday on Twitter at #CPChatNow!

-Devin

#CPChatNow Recap- 6/30/2021

This past week in #CPChatNow was a happening as always. Members discussed how the heat impacts their CP, feelings after a job interview, and their favorite summer activity. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

Zach asked members how the heat impacts their CP. Most answered that the cold impacts them much more, but Grace described some impacts from the heat:

zach asked if members are impacted by heat. grace answered she gets spasticity in the cold, but prefers it to summer. she gets muscle spasms because of dehydration, headaches with barometric pressure changes, and depression with brain fog. grace thinks she has summer SAD

Zach has had job interviews lately and we discussed the feelings experienced after a job interview:

chris talked about how she was exhausted due to setting up her boyfriend's computer, zach tweeted he is tired due to work in the morning and a job interview in the afternoon, he tweeted it was emotionally tiring with nerves beforehand, second guessing afterwards. i tweeted that's the worst part of a job interview that it's helpful to look back, but only helpful to an extent
zach tweeted he is fortunate to have a great support system that gives him advice. at some point you have to trust yourself and answer how you feel is best.

Finally, members discussed their favorite summertime activity.

zach asked what is your favorite summer activity, he tweeted attending a baseball game is one of his favorites along with swimming, i tweeted i like to hang out in my parent's backyard, blemi tweeted she likes to sit outside and read.

Now it’s your turn! This brings us to our Extend-The-Conversation Question: What is the best advice you have received about a job interview? Please join us tonight at 8 Eastern on #CPChatNow on Twitter.

-Devin

#CPChatNow Recap- 6/16/2021

The #CPChatNow recap is back and I am back from my wedding and honeymoon! This week members discussed research and publishing, resuming attending large events, attitudes towards disability, and more! This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, I would like to share some recent exciting news! I’m married!

i tweet that i am married, zach asks if i put streamers and tin cans on the back of my wheelchair saying just married, i tweet that i did not and it was an opportunity missed, zach tweets he should made the suggestion sooner

I added some events to our mythical CP Olympics that I participated in during my wedding and honeymoon.

i tweet i can add putting on a tux and boarding a boat offshore to the CP olympics. chris tweeted she is not wearing a dress if she gets married because you need a bunch of people to help you and the weight of the dress

Next, members discussed returning to large events in the midst of the end of the pandemic.

zach tweeted he is still avoiding large events like indians games until he knows covid is not going to surge, i tweeted i am going to money in the bank and dynamite in july and probably going to wear a mask

Finally, I described differing attitudes towards disability that I experienced on my honeymoon and gave examples of differing responses.

i tweeted it is interesting that different countries have different attitudes towards disability. i tweeted on my honeymoon i was not seen as capable, but i did get to the front of a few lines

zach asked if i had an example of not being seen as capable. i tweeted about going through the airport in antigua, but i did get to go to the front of the line at customs, zach tweeted everything has positives and negatives and that efforts to help are not always helpful.

This brings us to our Extend-The-Conversation Question: When do you plan on returning to attending large events? Please share your answers in the comments and join each Thursday at 8 Eastern on Twitter!

-Devin

#CPChatNow Recap- 5/26/2021

This past week in #CPChatNow was fire as always. Members talked about their recent accomplishments, life insurance with CP, and their plans for the summer. It was evident that members are excited for COVID to be in the rearview mirror. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, I would like to recognize some members for their recent accomplishments. Timmy recently passed his qualifying exam to be a PhD candidate:

i ask timmy how he is doing. timmy tweets he passed his qualifying exam and is now a PhD candidate

Jorge also mentioned that he is about to graduate with his Master’s Degree from the University of Virginia:

jorge tweets t-2 weeks and then he wins the honors of honor which is graduating from the school founded by Thomas Jefferson
Jorge also tweeted about the unfortunate differences people with CP face when it comes to life insurance benefits:
jorge asked members if they knew due to cp that life insurance payouts would be reduced. zach asks what the reasoning is. jorge tweeted burden of care as not all cp cases remain stable. i tweeted that does make senes and guessed that is the case for a lot of stuff and wondered if i will get any money

Next, members talked about their varied plans for the summer.

i asked what everyone's plans are for the summer and that i'm getting married next week, veronica congratulated me and said she was stuck with the same date for way too many years, jen tweeted she doe not have much planned, zach tweeted he does not have much planned and that ohio is going back to normal june 2nd, he is planning to be cautious for about a month

Chris Johnson talked about the latest with his podcast, the Purple Knights Podcast, a podcast about Prince:

chris johnson tweeted he would like to keep up the momentum with his podcast and leave the single life behind, zach asked how he defined momentum, chris tweeted he wants to release episodes more often and continue to book well respected guests in the prince community and he has gotten some great ones lately. zach tweets he feels defined goals are easier to maintain

Finally, Chris tweeted about finishing her Master’s:

chris tweeted she is hoping to continue her masters and have it done by christmas

This brings us to our Extend-The-Conversation Question: What is your biggest goal for the summer?

Thanks for reading and join us each Wednesday at 8 Eastern time on Twitter at #CPChatNow

-Devin

#CPChatNow Recap- 5/12/2021

This past week in #CPChatNow was hopping as always. Members discussed routine tasks that are difficult for them with their CP, problematic teachers, and things they are looking forward to doing when the world returns to normal. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, Zach opened up the conversation by asking his Extend-The-Conversation Question from last week.

zach opens the conversation by asking which routine tasks feels like an olympic sport due to cp and how members adapt.

Zach shared his strategy for adapting to the routine task of carrying hot liquids:

zach mentions he adapts to the routine task of walking with a hot beverage by using his adult sippy cup, zach tweets he is unsure why he doesn't use his sippy cup around the house

I tweeted about the bane of many people with CP’s existence, buttoning a dress shirt.

i tweeted buttoning a dress shirt is difficult for me and asked for tips, veronica tweeted she buttons and zips one handed and has never had an issue, but it may be that women's button's are on the opposite side. zach tweeted they make shirts with magnetic buttons, i tweeted it reminded me of JJ's pants on speechless

Next, Tonia shared a blog post about an ableist teacher praising her parents and not her for her good report card.

tonia shares a blog post about an ableist teacher that used a report card to praise her parents, i praised her for being vulnerable, zach tweeted knowing when to ask for help is difficult as an adult, let alone being a child. he asks if the help was needed or perceived help. tonia tweeted the help was to be determined by her teacher so it was perceived help.

Finally, members discussed what they were most looking forward to when the pandemic ends:

i ask what members are most looking forward to when things go back to normal. i tweeted i am looking forward to going to sporting events. zach tweeted he is looking forward to doing in-person speaking and author events. veronica tweets she looking forward to seeing more friends and family.

This brings us to our Extend-The-Conversation Question. What do you think makes a good teacher good?

the extend-the-conversation question graphic. #CPChatNow logo in the upper right hand corner, What do you think makes a good teacher good? in middle above a photo of a woman standing in front of a chalkboard with chalk drawings of flexing arms at her shoulders. #CPCHATNOW in white text above a green background at bottom of graphic

Please share your answers in the comments and join us each Wednesday at 8 Eastern on Twitter. Thanks for reading!

-Devin

#CPChatNow Recap- 4/28/2021

This past week in #CPChatNow was cracking as always. Members discussed impacts from COVID vaccinations, strategies for trimming their toenails, and their latest book recommendations. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap!

Veronica and Zach both described the side effects they had experienced from their second COVID vaccination shots. If you’re interested, you can find more information about getting a vaccine appointment here.

zach asks veronica how her second vaccination shot went, veronica tweeted she was in bed for the entire day monday, but is getting better, zach tweeted the second dose gave him a fever and night sweats

People with CP and other disabilities often have to find creative ways to do everyday tasks. Zach asked members how they cut their toenails.

zach asks what position people use to cut their toenails. he tweets he sits on the floor with one leg at the side and the other one straight up and bent at the knee. i tweet i sit on the couch for back support and pull my legs up. blemi tweets she sits on the foilet and props her foot on the tub.

Finally, members talked about the books they were reading and other book recommendations.

i ask if anyone has any book recommendations. alessandro tweeted the ables, a story about superhero kids with different disabilities.
You can find The Ables here.
audacity magazine recommended the josie prescott series.

Finally, Zach tweeted that Amanda Leduc’s book, Disfigured: On Fairy Tales, Disability, and Making Space, is on his to read list.

Zach tweeted that Amanda Leduc's book, Disfigured: On Fairy Tales, Disability, and Making Space, is on his to read list

This brings us to our Extend-The-Conversation Question: What is your favorite book you have ever read? Please share your answers in the comments!

extend-the-conversation question graphic, orange, blue, and green #CPChatNow logo in upper right hand corner, what is your favorite book you have ever read? above a picture of vintage books stacked, #CPCHATNOW in white text with a green background on the border

Please share your answers in the comments and join us each Wednesday at 8 Eastern on Twitter at #CPChatNow!

-Devin

#CPChatNow Recap- 4/14/21

This past week in #CPChatNow was a happening as always. Members discussed new jobs, their accomplishments for the week, canes, and stretching. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, I would like to recognize some good news and a strong GIF game from Linds!

linds tweets that she got a job with a gif of spongebob talking on the phone with his eyes up. zach tweets congratulations and asks if it will take her away from #cpchatnow

Linds also tweeted about her cane and feeling accomplished by finishing laundry. I can certainly relate to finishing laundry sometimes feeling like an accomplishment!

zach asks about what members have accomplished in the last seven days, linds tweets she has started to use a cane and has a 31 wpm typing speed, she tweeted she also did another load of laundry, zach asks what her cane looked like and if she multiple so she can treat it like an accessory, linds tweeted her canes are blue scrolling paisley or tropical flowers

We had some new folks join the chat this week! Constance Jamet talked about her various accomplishments this week which including finishing some things for work and walking a bit more.

zach tweeted asking what members had accomplished in the last seven days, constance tweeted she has improved on the kneeling knight position, meeting deadlines on her job, and walking a little more after being immobile for a few weeks

Constance’s tweets led to a further conversation about stretching with Zach and I tweeting about our stretching routines.

zach and i tweet about stretching, i tweeting i can understand the difficulty of learning to stretch something new and that i have done that throughout my life with new muscles, zach tweets he has to stretch consistently, he tweets his body feels like it's being squeezed by a snake if he doesn't stretch

This brings us to our Extend-The-Conversation Question: What is your stretching routine? Please share your answers in the comments and join us each Wednesday at 8 Eastern at #CPChatNow.

extend-the-conversation question graphic, orange, blue, and green #cpchatnow logo in upper right hand corner, extend-the-conversation question in green, what is your stretching routine? above a picture of

Thanks for reading!

-Devin

#CPChatNow Recap- 3/03/2021

This past week in #CPChatNow recap was rambunctious as always. Members discussed spiked cane tips and creatively completing routine tasks. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, members discussed a way to deal with winter, spiked cane tips.

zach tweets about a blog he wrote with tips for getting through winter with cp and mentions he uses spiked cane tips after being recommended them by chris, blemi tweets she used them before she moved to her trip tip so she 2 canes ready in winter, zach tweets he had to replace his cane tip after doing two marathons in in 2018.

I checked in with Zach on the progress on his book about the process of becoming a marathoner.

i ask zach how his book is coming, zach tweeted he has not touched it in the past week, but he is planning on getting to the editing process tomorrow morning

Next, talk turned to the process of completing routine tasks and the frustrations that can sometimes come with asking for help.

i tweet that it is a bit annoying to ask for help with routine things, blemi tweeted asking for help with routine tasks makes her feel like less of a grownup, heather tweeted it is hard when living alone during a pandemic, zach asked if heather has a time she got creative with a routine task

Next, talk turned to getting creative to solve routine tasks in ways that may not be routine.

zach asks heather if she has an example of time she got creative with a routine task, heather tweets she thinks bench vises should be standard in kitchens because they make kitchen tasks doable one handed and that she often uses tools in ways they are not intended, blemi tweets she is often creative

This brings us to our Extend-The-Conversation Question: What is an example of when you got creative with tools to complete a routine task?

extend-the-conversation question graphic: #cpchatnow logo in the upper right hand corner, extend-the-conversation question in green with What is an example of where you got creative to complete a routine task? and a graphic of pliers, screwdriver, a wrench, and a hammer with orange handles

Thank you for reading and make sure to join us each Wednesday at 8 Eastern on Twitter at #CPChatNow!

-Devin

#CPChatNow Recap- 02-17-2021

To quote Gorilla Monsoon, this past week in #CPChatNow was a happening as always. Members discussed various topics such as obtaining Assistive Technology, maintaining motivation, publishing a book, and learning to fall. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

Chris shared something I thought was cool that you might want to look into in your area and state. Chris discussed the concept of lending libraries for Assistive Technology that she used to obtain products.

zach retweets heather's tweet about her swedish cutting board being her favorite assistive product, chris tweeted she has seen that and the state of washington has an AT lending lab that brought her things to check out

Zach talked about the difficulties he has experienced maintaining motivation and stated he goes through streaks of low motivation. Other members chimed in with their experiences and how they remain motivated.

zach asks if anyone went through streaks with motivation, i tweeted that i do and especially so with work being canceled for the week, zach tweets he was frustrated when his hours were cut in half, but it gave him more time to finish his book, but it took him a few weeks
zach tweets he asks himself what he will regret if he dies tomorrow, blemi tweets that is an ok way to motivate himself, zach tweets he feels it is a good attitude as long as the person does not overdo it

I would like to recognize that Zach has finished his manuscript and it is now in the editing phase. Zach is planning to write a book about the process of his training for a marathon.

zach tweets about the topics of his book, anxieties and falls he experienced, learning to refocus, how to stay motivated during training, he tweets he only did races that mentioned walking at first, chris tweets that she understands zach's anxiety towards running and shared experiences from high school

Finally, members discussed a common thing that is surprising to many able bodied people, learning to fall either in therapy or other areas.

i tweeted i learned how to fall in physical therapy, blemi tweeted her brother taught her after second judo class and it has saved her from many injuries, zach tweeted it is amazing he has never hurt himself despite the falls he has taken
blemi tweeted she bent her pinky finger this year and it is her most significant injury from a fall,

This brings us to our Extend-The-Conversation Question: What is the oddest thing you have learned how to do related to your disability?

extend-the-conversation question graphic: an orange, blue, and green #CPChatNow logo in the upper right hand corner, extend-the-conversation question in green, What is the oddest thing you have learned how to do related to your disability? in black, an illustration of a half orange and half red lightbulb that looks like a brain with a variety of shapes and letters inside the brain, #CPCHATNOW in white with a green background

Thanks for reading and please join us each Wednesday on Twitter at 8 Eastern at #CPChatNow!

-Devin

#CPChatNow Recap- 02-10-2021

Cold weather made an impact on the live cerebral palsy Twitter chat #CPChatNow Wednesday, February 10th, 2021. To tell you more, I am chat co-host Zachary Fenell. Time to fix yourself a hot beverage or situate yourself around the fire place so you can warmly enjoy your weekly recap.

Early dialogue in the evening related to unusually cold temperatures.

#CPChatNow participants from Texas discuss their unusually cold winter.

In Texas where my co-host Devin Axtman and long-time chat regular Jen lives, temperatures remained in the 20s (Fahrenheit). Quite cold for them! This led me to ask a question.

Participants in #CPChatNow discuss how they get by  when temperatures are cold.

Curious, I asked others how they manage in the cold. Devin answered he “just wear layers and complain haha.” Similar to my own response.

Zachary talks about how he manages to get by when the temperatures are cold.

Like Devin, I mentioned wearing layers. In-particular noting I wear two pairs of socks. Additionally, I find myself using my heating pad (Cure Choice electric heating pad) a lot more. As we continued to discuss the impact cold weather has on cerebral palsy, Devin and I discovered another similarity.

#CPChatNow participants discuss needing to stretch more due to colder weather.

Through chat regular Chris, the havoc cold weather can cause on spastic muscles arose as a subject. Devin and I both noting we need to stretch our hamstrings more in the winter. Our specific stretches possessing some resemblance with both involving reaching for our toes. A stretch I do in a standing position. Meanwhile Devin sits on the floor and tries to touch his toes.

What about you? Answer for the week’s extend-the-conversation question, “How do you stay stretched out?” Leave your answer down below in the “Comments.”

On a related matter, the extend-the-conversation question Devin posed in the February 3rd, 2021 recap also surfaced during our Twitter chat February 10th.

#CPChatNow participants discuss their favorite assistive products.

As a reminder, Devin asked in the February 3rd recap, what people’s favorite assistive products are. Heather responded, linking to her Swedish cutting board. The cutting board making cutting with one hand a lot easier!

Please remember to keep the conversation going by answering this week’s extend-the-conversation question. “How do you stay stretched out?”

This week's extend-the-conversation question asks, "How do you stay stretched out?"
Answer in the “Comments” section.

Afterwards, write yourself a reminder to join our Twitter chat each and every Wednesday. The fun begins at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary