#CPChatNow Recap- 06-13-2018

Discussion proved quite active Wednesday, June 13th, 2018 for our live weekly cerebral palsy Twitter chat #CPChatNow. I am co-host Zachary Fenell here with some highlights. Cue the screenshot reel!

#CPChatNow participants discuss ideas for getting more physically active.Early on multiple participants mentioned increasing physical activity. A subject initially raised when regular Folly noted her goal to improve her posture. I shared I too recently completed research, looking to add more variety to my current exercise routines. Meanwhile Chris expressed her interest in attending an upcoming Paralympic sample day hosted by Seattle Adaptive Sports.

Enough movement and you can expect to grow tired. Fittingly that topic also surfaced within the chat June 13th, 2018.

#CPChatNow regular Folly gives her tips to avoid getting frustrated by fatigue.The cerebral palsy community’s tendency to fatigue faster compared to our able-bodied counterparts stood at my mind’s forefront, given a personal increase in activities. Therefore I asked if anyone else could relate and how they handle their frustrations.

Folly offered various solutions including listening to music, counting in your head to distract yourself, and keeping your focus towards your breathing. She additionally named preventive measures, yoga and drinking water.

Simultaneously participant Veronica Hosking interpreted my question differently.

Veronica advises not to get frustrated over fatigue.She advised taking tasks slow to avoid fatiguing yourself. I clarified I meant feeling fatigue after finishing a task. What would you suggest? Answer for the week’s extend-the-conversation question, “How do you handle fatigue related frustrations?”

Leave a comment in the “Comments” section to answer. Who knows? Your response could provide the support someone reading needs. Essentially your reply possesses the chance to act as a supportive gesture, similar to a hug. Hugs actually became a concentration amidst the chatter.

Folly wonders if people with CP need hugs more than others.

Hannah gives her take on receiving hugs.

Originally Folly brought up hugging, pondering if people with CP need hugs more. I retorted saying the answer varies based off the hugger. Long-time regular Hannah Pike echoed those sentiments. Concurrently others identified a serious issue hugs may create.

Devin and Hailey discuss how they react to falls.#CPChatNow participants discuss how hugs or even a friendly pat on the back can lead to falls.Hailey Hughes and my co-host Devin said hugs, particularly side and back hugs, can surprise them. This triggers jumpy behavior. Considering the balance challenges associated alongside CP, falls may result. The aforementioned transitioned the conversation to falling.

#CPChatNow participants discuss how onlookers react to their falls. Delving into details, Hailey and I chatted back and forth discussing falls. We agreed we become accustomed to our falls. However, add a bonfire or hot liquid to the situation and nerves heightened.

Elsewhere in the chat, we gathered community feedback before finalizing our June 2018 Google Hangout date. That will happen THIS Thursday (June 21st, 2018). The link does not get sent out publicly. If you possess interest in joining the Hangout, send a message to our CPChatNow Facebook fan page.

This week's extend-the-conversation question asks, "How do you handle fatigue related frustration?"Before you go though, remember to answer the week’s extend-the-conversation question. “How do you handle fatigue related frustration?” Reply below in the “Comments” section.

Until next time, remember. Do not blend in. Blend out!

-Zachary

 

 

 

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