#CPChatNow Recap- 06-14-2017

Wednesday, June 14th, 2017 participants who joined #CPChatNow experienced a stroll down memory lane. I am Zachary Fenell, a proud #CPChatNow co-founder and current chat co-host. Fittingly I receive the pleasure to recap the June 14th, 2017 chat. This should feel like writing a #CPChatNow history lesson!

Before delving into our history though, you might notice a certain someone missing from the highlights. Last week my co-host Blake Henry and I announced Devin Axtman‘s move to permanent co-host. He, Blake, and I will all work together to serve our community. Anyhow, Devin to celebrate his new promotion possessed special plans June 14th.

Devin shares he will be absent as he prepares to go to Disney World. Now, I am joking around about the reason for Devin’s visit to Disney World. I know he planned the trip months ago. The timing with his #CPChatNow co-host promotion just proved too tempting. I couldn’t resist the “I’m going to Disney!” joke.

Moving along, the previously mentioned stroll down memory lane’s catalyst came when some new faces emerged.

Christina joins #CPChatNow for the first time.Upon learning Christine Ruiz‘s newbie status, Susanne Kate Jones teased some hazing. Christine’s response indicated she will likely fit right in with our humorous bunch.

After #CPChatNow veteran Susanne Kate Jones teased hazing, newbie Christine Ruiz gives a response indicating she should get along with our community. Thankfully Christine caught onto the comedic tone behind Susanne’s remarks. Another newcomer surfaced a little past our second hour.

CerebralPalsySpeaks stumbles into #CPChatNow, fearing to have missed the chat. Quickly within the 50 minutes left CerebralPalsySpeaks grew intrigued by our community. Enter the question, “So, who started this lovely hashtag?”

CerebralPalsySpeaks asks who started #CPChatNow.Based off participants’ responses, I am glad CerebralPalsySpeaks asked. After all, every party involved in the origins deserves credit.

Susanne credits John W. Quinn for starting #CPChatNow.Rachel credits Zachary for starting #CPChatNow but he corrects he co-founded #CPChatNow along with John W. Quinn and Handicap This.Susanne credited Someone Like Me author John W. Quinn as the #CPChatNow originator. Meanwhile Rachel Folly gave said distinction to me. Both remained partially correct. John and I each explained we together with Handicap This founded the hashtag. I offered up the visual evidence, tweeting out the promotional image we used to promote the very first #CPChatNow.

Long-time #CPChatNow participant Hannah Pike recalls seeing the original promotional graphic I shared while we all discussed #CPChatNow's history.Long-time #CPChatNow regular Hannah Pike remembered seeing the image. She admitted letting shyness keep her away initially. That caused me to joke since the #CPChatNow train design shirt we sold last year extends back to a life experience Hannah once shared with us. The joke surprised Susanne who didn’t know #CPChatNow apparel existed.

In 2016 we at #CPChatNow held two shirt sales using Custom Cat. Proceeds went to Handicap This’ non-profit Keep On Keeping On Foundation. Between the two sales we raised $170 for KOKO. If interested in us relaunching the shirt sale, tell us!

Answer for the week's extend-the-conversation question "How did you learn about #CPChatNow?"Also why not contribute to the #CPChatNow history lesson? Answer for the week’s extend-the-conversation question, “How did you learn about #CPChatNow?” Respond by commenting below!

Until next time.

-Zachary

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#CPChatNow Recap- Aging with Cerebral Palsy Focus Chat

On Wednesday, May 31st, 2017 #CPChatNow presented a much anticipated focus chat about aging with cerebral palsy. Interim co-host Devin Axtman and I (co-host Zachary Fenell) alternated asking the questions you in our community suggested. Questions which triggered vibrant conversation. Some highlights follow below.

Now any credible chat on aging with cerebral palsy requires individuals willing to discuss their personal experiences. Therefore to start the Q & A we asked participants comfortable doing so to share their ages. Majority in the group fell between mid-20s and mid-30s. Although a few elder-statespeople ranging in age from 40 to 55 chimed in too. Meanwhile the youngest participant remains amidst her final year as a teenager.

Once we established our participants’ credibility, we delved into our more substantial questions. Our second question addressed what to expect aging with cerebral palsy and how to handle said expectations.

The second question of #CPChatNow's Aging with Cerebral Palsy focus chat asks about expectations aging and how to deal with these expectations.Rachel expressed concerns related to every day wear and tear to the body, symptoms possibly worsening, and even new symptoms. In my personal response to the question I mentioned lacking resources for adults with cerebral palsy.

Co-host Zachary Fenell mentions compared to kids, adults with cerebral palsy possess less resources to help deal with CP.Turned out others also related to using older braces. Alena‘s reply particularly revealed an ill-fated perception viewing new orthotics as a “kid thing.” Concentrating more towards items we can control, Maysoon Zayid offered up hope.

Maysoon Zayid explains lifestyle changes she made in order to help lessen her cerebral palsy symptoms. Through lifestyle changes like practicing yoga regularly and avoiding animal products, preservatives, dyes, and caffeine Maysoon explained that her CP symptoms lessened. What about you? Your turn to add to the conversation! Answer for the week’s extend-the-conversation question, “What changes to cerebral palsy with regards to aging should we expect and how do you deal with them?” Leave your response in the “Comments” section.

Maybe similar to Maysoon, you benefited thanks to yoga. Actually, similar to Maysoon and others considering multiple people praised yoga during our “Aging with Cerebral Palsy” focus chat.

Newcomer to #CPChatNow Grace Lapointe also has had positive experience with yoga.John W. Quinn, one of the original #CPChatNow co-hosts, finds yoga helps with balance issues plus back and hip pain.#CPChatNow newcomer Grace Lapointe and a fellow #CPChatNow founding father John W. Quinn alike endorsed practicing yoga. All the praise left another newcomer Christine seeking advice for getting started.

Christine wonders about yoga and expresses concern about toppling over.Christine vocalized hesitation in getting started, nervous about toppling over. Participants rallied to encourage Christine. John and Maysoon both disclosed using assistance when first beginning yoga.

John W. Quinn and Maysoon Zayid talk about their beginnings with yoga.Alongside the yoga chatter, our set questions for the evening continued. Question three asked about others’ experiences and tips to make life easier. That led to Maysoon offering up an observation.

Maysoon Zayid notes an observation that many individuals with cerebral palsy forget aging impacts everyone.Similarly, John advised separating cerebral palsy from emerging health issues.

John W. Quinn advises to separate cerebral palsy from emerging health issues.Next the conversation transitioned to the biggest surprise and frustration to accompany aging.

Dwindling mobility and discomfort sleeping proved re-occuring answers from #CPChatNow participants when discussing the biggest surprise and frustration caused by aging.

A couple re-occurring themes appeared when community members named the biggest surprise and frustration accompanying aging. Those themes including dwindling mobility and discomfort when trying to sleep. Ending the night optimistically, John recognized the potential boost ekoskeleton braces could offer the cerebral palsy community in the future.

John W. Quinn believes ekoskeleton braces could provide the CP community a boost in the future.Hopefully our “Aging with Cerebral Palsy” focus chat recap will give you a boost in dealing with CP in your future. Remember you may keep the conversation going by answering the week’s extend-the-conversation question.

Answer in the "Comments" section- What changes to cerebral palsy with regards to aging should we expect and how do you deal with them? “What changes to cerebral palsy with regards to aging should we expect and how do you deal with them?”

Respond by commenting below. Expect Devin in the next few days with the recap for our June 7th Twitter chat. Until next time!

-Zachary