#CPChatNow Recap- 7-12-2017

Wednesday, July 12th, 2017 saw participants gather for our typical Wednesday night #CPChatNow Twitter chat. Considering context though, you could define “typical” with the word extraordinary. At least that remains my biased opinion as #CPChatNow co-host Zachary Fenell.

The communal atmosphere and ability to learn from one another all while enjoying ourselves makes our Twitter chat standout. Do you want proof the above happens? Keep reading!

Susanne Kate Brasset started getting the dialogue going by asking others about their experiences receiving botox injections. A topic on Susanne’s mind given her next botox treatment loomed.

Zachary answers Susanne's question, sharing he received botox from the ages 12 to 16.I shared I underwent botox treatment between the ages 12 and 16. However, we discontinued because the results did not seem worth the hassle. Co-host Devin Axtman also discussed undergoing botox treatment.

Co-host Devin Axtman remembers undergoing botox treatment in fourth and fifth grade.Devin explained the botox helped him feel a lot looser but to get the injections doctors needed to put him under general anesthesia. While the botox discussion continued, our resident celebrity Maysoon Zayid made time in her busy schedule to stop in and say hello.

Maysoon Zayid takes time out of her hustle to say hello to CPChatNow.A little later on a newcomer joined in, seeking advice regarding a particular issue.

Newcomer Grace asks #CPChatNow about remedying pain caused by temperature changes.In an effort to best answer Graces question I asked follow-up questions. I wound up recommending a product I like to use, ICYHOT.

Rachel Folly cracks a joke after Zachary recommends to Grace a product to help relieve pain.Rachel Folly sought the opportunity to use her “Them’s the rules” line. Comments I explained to Grace represented an inside joke. Not actual rules!

Zachary explains the "them's the rules" comment to be an inside joke.

Through continuing dialogue we learned Grace discovered us thanks to Maysoon’s earlier tweets. Anyways, shall we get serious and re-visit Grace’s question? Answer for the week’s extend-the-conversation question, “How do you handle pain caused by changes in temperatures?” Leave your reply in the “Comments” section.

Other noteworthy points coming out our July 12th, 2017 Twitter chat related to our upcoming monthly events. First co-host Jorge Otezia announced the July 2017 focus chat details.

Co-host Zachary Fenell, author of the cerebral palsy memoir Off Balanced, will lead a discussion on writing a CP related book/memoir on Wednesday, July 26th, 2017.I am very much looking forward to our discussion Wednesday, July 26th. Hopefully the aspiring authors within our group will find the chat beneficial. Additionally, remember the same week, on Thursday, July 27th, 2017 we will hold our monthly Google Hangout video chat. To get added to the invite list contact Devin, Jorge, or myself.

While a big week next week, let us not allow the anticipation to overshadow this week’s chat. The fun begins at 8pm ET! Before then answer the extend-the-conversation question.

This week's extend-the-conversation question asks "How do you handle pain caused by changes in temperatures?"“How do you handle pain caused by changes in temperatures?”

Answer below!

-Zachary

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#CPChatNow Recap- Aging with Cerebral Palsy Focus Chat

On Wednesday, May 31st, 2017 #CPChatNow presented a much anticipated focus chat about aging with cerebral palsy. Interim co-host Devin Axtman and I (co-host Zachary Fenell) alternated asking the questions you in our community suggested. Questions which triggered vibrant conversation. Some highlights follow below.

Now any credible chat on aging with cerebral palsy requires individuals willing to discuss their personal experiences. Therefore to start the Q & A we asked participants comfortable doing so to share their ages. Majority in the group fell between mid-20s and mid-30s. Although a few elder-statespeople ranging in age from 40 to 55 chimed in too. Meanwhile the youngest participant remains amidst her final year as a teenager.

Once we established our participants’ credibility, we delved into our more substantial questions. Our second question addressed what to expect aging with cerebral palsy and how to handle said expectations.

The second question of #CPChatNow's Aging with Cerebral Palsy focus chat asks about expectations aging and how to deal with these expectations.Rachel expressed concerns related to every day wear and tear to the body, symptoms possibly worsening, and even new symptoms. In my personal response to the question I mentioned lacking resources for adults with cerebral palsy.

Co-host Zachary Fenell mentions compared to kids, adults with cerebral palsy possess less resources to help deal with CP.Turned out others also related to using older braces. Alena‘s reply particularly revealed an ill-fated perception viewing new orthotics as a “kid thing.” Concentrating more towards items we can control, Maysoon Zayid offered up hope.

Maysoon Zayid explains lifestyle changes she made in order to help lessen her cerebral palsy symptoms. Through lifestyle changes like practicing yoga regularly and avoiding animal products, preservatives, dyes, and caffeine Maysoon explained that her CP symptoms lessened. What about you? Your turn to add to the conversation! Answer for the week’s extend-the-conversation question, “What changes to cerebral palsy with regards to aging should we expect and how do you deal with them?” Leave your response in the “Comments” section.

Maybe similar to Maysoon, you benefited thanks to yoga. Actually, similar to Maysoon and others considering multiple people praised yoga during our “Aging with Cerebral Palsy” focus chat.

Newcomer to #CPChatNow Grace Lapointe also has had positive experience with yoga.John W. Quinn, one of the original #CPChatNow co-hosts, finds yoga helps with balance issues plus back and hip pain.#CPChatNow newcomer Grace Lapointe and a fellow #CPChatNow founding father John W. Quinn alike endorsed practicing yoga. All the praise left another newcomer Christine seeking advice for getting started.

Christine wonders about yoga and expresses concern about toppling over.Christine vocalized hesitation in getting started, nervous about toppling over. Participants rallied to encourage Christine. John and Maysoon both disclosed using assistance when first beginning yoga.

John W. Quinn and Maysoon Zayid talk about their beginnings with yoga.Alongside the yoga chatter, our set questions for the evening continued. Question three asked about others’ experiences and tips to make life easier. That led to Maysoon offering up an observation.

Maysoon Zayid notes an observation that many individuals with cerebral palsy forget aging impacts everyone.Similarly, John advised separating cerebral palsy from emerging health issues.

John W. Quinn advises to separate cerebral palsy from emerging health issues.Next the conversation transitioned to the biggest surprise and frustration to accompany aging.

Dwindling mobility and discomfort sleeping proved re-occuring answers from #CPChatNow participants when discussing the biggest surprise and frustration caused by aging.

A couple re-occurring themes appeared when community members named the biggest surprise and frustration accompanying aging. Those themes including dwindling mobility and discomfort when trying to sleep. Ending the night optimistically, John recognized the potential boost ekoskeleton braces could offer the cerebral palsy community in the future.

John W. Quinn believes ekoskeleton braces could provide the CP community a boost in the future.Hopefully our “Aging with Cerebral Palsy” focus chat recap will give you a boost in dealing with CP in your future. Remember you may keep the conversation going by answering the week’s extend-the-conversation question.

Answer in the "Comments" section- What changes to cerebral palsy with regards to aging should we expect and how do you deal with them? “What changes to cerebral palsy with regards to aging should we expect and how do you deal with them?”

Respond by commenting below. Expect Devin in the next few days with the recap for our June 7th Twitter chat. Until next time!

-Zachary

#CPChatNow Recap- 04-05-2017

Hit sitcom Speechless and aging with cerebral palsy proved popular topics during the April 5th, 2017 #CPChatNow. I am co-host Zachary Fenell here with the better late than never Twitter chat recap. Conversation turned to Speechless shortly after our usual Wednesday evening salutations.

Zachary asks about topics people want to see addressed on the show Speechless.Discussion initiated when I asked about subjects people want to see Speechless address in future episodes. Blemi spoke up, saying she wants to see an episode addressing fake friends. Another participant went further, expressing a desire to guest star on the sitcom. Not as farfetched a possibility as you might think!

Comedian and actress Maysoon Zayid wants to guest star on Speechless as Maya's disabled friend.Yes, actress and comedian Maysoon Zayid popped in to join our Wednesday evening chat. She wishes to guest star on Speechless, playing Maya’s disabled friend and hang/fight with the other moms. Does that sound intriguing to you? Tweet Speechless on Twitter and tell them you want to see Maysoon guest star!

Maysoon’s presence also brought a newcomer to #CPChatNow. He shared what he hopes to see in a future Speechless episode.

Newcomer to #CPChatNow Dave Smith wants to see a variety of CP cases on a Speechless episode.Personally, I like Dave’s idea to showcase the wide spectrum cerebral palsy offers. Your turn, though. Answer for the week’s extend-the-conversation question, “Is there a topic you would like to see Speechless address in its show that they have yet to address?” Respond in the “Comments” section.

Eventually the night’s dialogue moved beyond Speechless. Although the first new topic remained Speechless inspired. The night’s episode delved into the ways teachers interact with their disabled students. #CPChatNow regular Hannah reacted to this.

#CPChatNow participants discuss their teachers and the levels of expectation they possess for disabled students. While Hannah couldn’t relate directly to what happens in the episode, she shared a similar experience and the emotional impact said situation created. Emotions discussed soon transitioned from hurt to fear thanks to chat regular Jen.

Jen wants to discuss fears, a notion seconded by Blemi.Here the previously mentioned aging with cerebral palsy subject arose.

#CPChatNow participants discuss the possibility of losing mobility as they age. Amidst the sharing and peer learning Maysoon offered some well needed positivity.

Maysoon recommends yoga to help combat aging with cerebral palsy. Hamda seconds the suggestion sharing a list of yoga resources. Hamda supported Maysoon’s yoga suggestion, linking to a resource list for adaptive yoga. Checkout the list, courtesy American Academy for Cerebral Palsy and Developmental Medicine. Maybe you will discover something worthwhile to you.

Answer for this week's extend-the-conversation question "Is there a topic you would like to see Speechless address in the show that they have yet to address?"However before viewing the list, remember to answer the extend-the-conversation question. “Is there a topic you would like to see Speechless address in its show that they have yet to address?” Reply below in the “Comments” section.

Thank you for your interest in #CPChatNow. I look forward to tweeting you tonight.

Sincerely,

-Zachary

#CPChatNow Recap- Maysoon Zayid Q & A

On Wednesday, February 15th we at #CPChatNow held our monthly focus chat for February 2017, welcoming to the chat comedian and actress Maysoon Zayid. Now I am #CPChatNow co-host Zachary Fenell, here to condense the evening down into our weekly recap. Rather than concentrating on a certain topic, we used our time with Maysoon for an open Q & A session.

While I thanked her during the night, I want to again express #CPChatNow’s gratitude for Maysoon fitting us into her busy schedule. In fact Maysoon did not join us until the 9pm ET hour due to a gig in the prior hour. That enabled us to utilize our first hour to catch up on each others’ weeks. Eventful weeks they proved too!

#CPChatNow community members enjoyed eventful weeks.Community regular Hannah Pike reminded us eventfulness can emerge from the simple things.

Hannah Pike reminds #CPChatNow that you can find joy from the simpliest items, like buying a new hat!Beyond eventful, you could also describe participants’ weeks as busy. Exciting projects occupying their schedules.

Exciting projects are keeping #CPChatNow participants well occupied.Personally, I am happy to share I published my new Rocky Balboa inspired exercise montage over the weekend. Take a look!

Come tweet me on Twitter and let me know your thoughts. Thanks for indulging my self-promotion. Shall we return to #CPChatNow business?

Upon entering the #CPChatNow dialogue, Maysoon also answered my question about exciting projects.

Maysoon Zayid will soon star in her own sitcom I Can Can.News about Maysoon Zayid’s upcoming sitcom triggered our community’s curiosity. Just like the above screen shot shows! The questions flowed in and Maysoon kept pace with her answers.

Maysoon Zayid shares details about her upcoming sitcom I Can Can.In I Can Can Maysoon will play a Jersey girl who dreams about being on broadway.Maysoon Zayid eyes a September release for her sitcom I Can Can.Summarizing what we learned February 15th, Maysoon Zayid will star in her own romantic comedy sitcom titled I Can Can. She plays a Jersey girl with Broadway dreams. Given a September air date, expect more details to arrive shortly. As 2017 progresses I can surely envision the show becoming a popular talking point amidst our chats. Plus I’m confident along with my co-hosts Devin Axtman and Blake Henry we will keep you apprised on new details via the #CPChatNow Facebook fan page.

Outside I Can Can talk turned to serving as a role model. Community regular Hamda explained why she considers Maysoon a role model.

Maysoon Zayid gives her thoughts on being called a role model.By clarifying when the term “role model” bothers her, Maysoon brought up a key point. One I say we examine in-depth circa the week’s extend-the-conversation question. Answer “Who is your role model? Why?” Leave your reply in the “Comments” section.

Honestly I am guessing identity will stand a common reason for choosing role models. Seeing others similar to you rise above unfair misconceptions and stereotypes empowers. Regarding misconceptions, Maysoon named what she deems the biggest misconceptions Americans hold about Muslims.

Maysoon names the biggest misconceptions Americans possess about Muslims.Dispelling misconceptions albeit about Muslims or another group leads to a better world. Understanding different cultures improves ability to treat others respectfully. Such a code of conduct we should all strive for!

To wrap up let me one last time thank Maysoon Zayid for joining us Wednesday, February 15th, 2017. Tonight interim co-host Devin Axtman and I will announce our March 2017 focus chat. I hope you can stop in. The fun begins at 8pm ET. Until then remember to answer the extend-the-conversation question.

Keep the conversation going! Answer for this week's extend-the-conversation question "Who is your role model? Why?"“Who is your role model? Why?”

Respond in the “Comments” section below. Tweet you later.

Sincerely,

-Zachary