#CPChatNow Recap- 10/19/2022

This past week in #CPChatNow was positively jumping. Members discussed their appearance on a podcast and the intersection of disability and mental health. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, Veronica tweeted about her haiku being featured on the podcast, Haiku Pea Podcast. Way to go, Veronica!

veronica tweets her latest haiku was featured on the haiku pea podcast. zach asks if people submit a recording or the host reads them. veronica tweeted the hosts reads most of them, but the judge reads their picks and sometimes their own haiku

Next, October 10th being World Mental Health Day sparked conversation about the intersection of disability and mental health.

veronica tweeted about mental health day after zach tweeted about his video on positive mental health. veronica and i tweeted the positivity of disability is rarely mentioned. veronica shares she has lost 2 family members to suicide and they said people need to stop the stigma of talking about feelings. zach tweets it is problematic our society is so hush hush about feelings

Zach did a great video on the impact of CP on his mental health. Members talked about the importance of talking about the positives of mental health.

zach tweeted he is hoping to do more content about fostering mental health because people are often left asking how to be positive. i tweeted that toxic positivity can be a problem, like the idea you have to be positive no matter what. veronica tweeted a haiku she did on that topic; phony lift in voice, you're such an inspiration, pity loud and clear.

zach tweeted he thinks back to the days where he let his cp made him feel weak and inferior due to narrative in the mainstream media. chris tweets she grew up feeling awkward about her cp and it's funny because her CP impacts in a similar way to zach

This brings to our Extend-The-Conversation Question: What are your strategies to maintain positive mental health?

extend the conversation question graphic. what are your strategies to maintain positive mental health? there is an image of a drawing of a black head and a white heart with gears turning inside the head.

Thanks for reading! Please join us each Wednesday at 8 Eastern on Twitter at #CPChatNow!

-Devin

Advertisement

#CPChatNow Recap- 10-12-2022

Participants who joined the cerebral palsy (CP) Twitter chat #CPChatNow Wednesday, October 12th, 2022 enjoyed an engaging night of conversation. To tell you more, I am chat co-host Zachary Fenell. Welcome to your weekly recap!

Early in the evening our community bonded over different interests.

Participants in the #CPChatNow community bond over mascot Gritty appearing at WWE Extreme Rules.

My co-host Devin Axtman asked long-time regular and mascot enthusiast Jen, if she saw that Philadelphia Flyers mascot Gritty appeared at WWE Extreme Rules. Knowing Devin and I like wrestling Jen replied, “That’s what I was gonna show y’all.”

Such an ability to connect over interests outside CP helps reinforce our community’s roots. Although, the conversation did naturally transition to CP-related matters.

Those in the #CPChatNow community discuss a current events article about brothers Pierce and Leo Olsen.

Cerebral palsy centered dialogue sparked after I shared a recent story from patch.com, “NJ Teen Got His Little Brother, With Cerebral Palsy, On Football Team.” Devin related to the story, recalling, “That’s exactly what I did, help with film!”

Meanwhile, Chris approached the article skeptically. Her skepticism revolving around the headline’s “inspirational porn” feel. This concern left me posing a question.

Zachary asks #CPChatNow participants to come up with a better title for the article about the Olsen brothers.

In the spirit of fun I asked everyone, “What headline would you have given the story?” Devin suggested, “A Team Adds to a Brotherhood.” Then Devin put the pressure on me, pointing out, “You’re the writer Zach.”

Zachary shares his headline for the article about the Olsen brothers.

For a suggested headline, I recommended, “Teen Brothers Become Unlikely Teammates.” What about you though? Checkout the piece about Pierce and Leo Olsen and then answer for the week’s extend-the-conversation question, “What headline would you give the news story about the Olsen brothers?

Leave your answer in the “Comments.” Afterwards, make sure you set a reminder to join us each and every Wednesday on Twitter. The chat begins at 8pm ET.

Until next time, remember. Don’t blend in. Blend out!

-Zachary

For this week's extend-the-conversation question, let us know, "What headline would you give the news story about the Olsen brothers?"
Answer below!

#CPChatNow Recap- 9/28/22

This past week in #CPChatNow was rocking as always. Members discussed things such as their emergency preparedness plans and what they do for relaxation. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, I would like to share this great picture of Hannah and some friends. We are thinking of you Hannah!

hannah tweeted she is popping in to share a happy note that she got to meet her nonbiological sister. there is a picture of hannah with her friend's mom and hannah is holding her dog levi

Next, Zach asked members about their personal emergency preparedness plan, a timely topic given Hurricane Ian. Most members stated they did not have much of a personal emergency preparedness plan. Zach shared a link to a series he previously did for Handicap This on emergency preparedness and disability.

zach asked about members emergency preparedness, i tweeted that i don't think about, but i should. thomas tweeted a recommendation to memorize things to not trust on technology, chris tweeted she does not really have an emergency plan and hoped they don't have an earthquake.

zach tweeted a 3 part series on emergency preparedness he wrote for handicap this and that those in safer states think they don't need to plan, but they do

Finally, Chris talked about her recent exploration with progressive muscle relaxation.

chris tweets about progressive muscle relaxation with her therapist sending her a video she can follow. chris tweets progressive muscle relaxation allows her to relax and recognize body signals like when she is beginning to tense up

Veronica and Chris discussed the difficulties they have had relaxing during medical appointments.

veronica and chris tweet about difficulty relaxing during things like mammograms and chris tweeted her therapist's video with concrete actions help. veronica tweeted it is hard to relax when trying not to fall over

This brings us to our Extend-The-Conversation Question: What are things you do to relax? Please share your answers in the comments and join us each Wednesday at 8 Eastern on Twitter at #CPChatNow.

-Devin

#CPChatNow Recap- 09-14-2022

Wednesday after Wednesday Twitter users gather on the platform to partake in the cerebral palsy (CP) Twitter chat #CPChatNow. To tell you about the conversation from the September 14th, 2022 chat, I am co-host Zachary Fenell. Welcome to your weekly recap.

Various subjects came and went throughout the night September 14th. However, one particular subject seemed quite popular.

#CPChatNow co-host Devin Axtman brings up the subject of cooling temperatures.

Initially, my co-host Devin Axtman raised the heavily discussed topic when he asked participants, “Who is excited for cooler weather?” Devin whimsically added, “I want it to get cool but not cold.” A notion Blemi responded to, saying “Like a perpetual fall and no winter.” Steph also vocalized support for a “perpetual fall.”

Unfortunately, reality dictates fall eventually gives way to winter. The change in seasons led me to ask a question.

Zachary asks #CPChatNow participants about what changes they make to their physical self-care during the different seasons.

Curious, I asked participants, “Do you make changes to your physical self-care depending on the season?” Timmy responded, saying he goes outside more during the warm weather months. In regards to the colder months, multiple people spoke up.

#CPChatNow Participants discusses self-care habits they utilize during colder months.

Both Blemi and Steph mentioned staying warm in the winter months. Steph does this by keeping her apartment nice and warm and by wearing warm clothes. Besides staying warm, Blemi noted she takes more vitamins and eats better in the winter. As she stated, “Anything to get me through another Canadian winter.”

Meanwhile, Devin answered he doesn’t alter his physical self-care depending on the season. Although, he admitted, “I should stretch more in the winter.” Let us keep the self-improvement focus. Answer for the week’s extend-the-conversation question, “What activity could you do to better your life?” Leave your response in the “Comments” section.

After answering, make sure to mark your calendars so you remember to join us each and every Wednesday on Twitter. The fun starts at 8pm ET.

Not sure how Twitter chats work? Checkout my “How to Participate in a Twitter Chat” tutorial.

I hope to talk soon. As always, remember. Don’t blend in. Blend out!

-Zachary

This week's extend-the-conversation question asks, "What activity could you do to better your life?"
Respond below!

#CPChatNow Recap- 8-31-2022

This past week in #CPChatNow was bouncing as always. Members discussed acupuncture, going to concerts, and being involved in planning for their IEP. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, Blemi talked about how she does acupuncture to help with pain.

blemi tweets that she gets acupuncture to help manage pain and she loves it. zach tweets he has never tried acupuncture

Next, Blemi tweeted about a Hanson concert she went to and the venue was accommodating and allowed her to sit. It is always nice when venues are accommodating!

zach asks if blemi enjoyed hanson, she said it was a blast, but she was happy to be home, zach tweets he remembers being sore after seeing bowling for soup, blemi tweeted the venue was accommodating and allowed her to sit.

Next, talk turned to how involved (or not) members were in developing their IEP, Individualized Education Plan.

zach asks how involved people were in their IEP meetings. i tweeted not until high school, but i wish it would've been earlier, zach said he started in 7th and 8th grade.

hannah tweeted she was off and on in junior high, but all she needed was a place to keep her wheelchair and extra testing time, zach said he had two sets of textbooks- one for at home and one for the classroom, blemi asks what an iep is because they don't have them in canada, grace explains it is an individualized education plan for disabled students in the US

This brings us to our Extend-The-Conversation Question: What are some things you do regularly to manage pain?

Thanks for reading and please join us each Wednesday at 8 Eastern at #CPChatNow on Twitter.

-Devin

#CPChatNow Recap- 08-24-2022

Every Wednesday people gather on Twitter for the cerebral palsy (CP) Twitter chat #CPChatNow. To tell you about the chat from Wednesday, August 24th, 2022 I am chat co-host Zachary Fenell. Welcome to your weekly recap!

Assorted topics came and went during the night. My co-host Devin Axtman raised one such subject.

Participants in #CPChatNow discuss  adaptive activities.

Devin asked if anyone has tried any adaptive activities. I noted my marathon experiences required adaptation. For example, arranging an early start/late finish and using my cane. Arrangements I discuss in my latest memoir Slow and Cerebral (available at Amazon).

Sorry for the cheap plug! I could not resist. Returning our focus to the August 24th conversation, Chris expressed interest in trying adaptive activities. She mentioned an organization, Outdoors for All, which could possibly make that happen. Similarly, I named some activities I am interested in trying.

Zachary names some activities he would like to try.

As I recalled a few Wednesdays ago, I am interested in doing some wall climbing. I added August 24th, “another activity that would interest me is an adaptive Ninja Warrior course.” What about you, though? Answer for the week’s extend-the-conversation question, “What adaptive activities are you interested in trying?” Leave your response in the “Comments” section.

Success in any adaptive activity increases with finding the right coach or mentor. Somebody who could teach you the important ins and outs. The lasting impact a good teacher leaves surfaced while the night continued.

#CPChatNow participants recalls the teachers who have had the greatest impact on them.

Admittedly, I brought up the subject by asking the chat, “What teachers of yours had the greatest impact on you? What subject did they teach?” Stephen credited his fourth grade teacher Chris as the teacher who had the greatest impact on him. Meanwhile, Devin named his sixth grade teacher because of the life lessons he learned. On the other hand our Chris gave the greatest impact honor to her school PT, calling her a, “very influential lady.”

Time for you to keep the conversation going. Remember to answer for the week’s extend-the-conversation question, “What adaptive activities are you interested in trying?” Answer below! Afterwards, mark your calendar to join #CPChatNow each and every Wednesday on Twitter. For questions on how to participate in a Twitter chat, see my video, “How to Participate in a Twitter Chat Using a Computer.”

Until next time, remember. Don’t blend in. Blend out!

-Zachary

This week's extend-the-conversation question asks, "What adaptive activities are you interested in trying?"
Respond below.

#CPChatNow Recap- 8/17

This past week in #CPChatNow was hopping as always. Members discussed adaptive waterskiing, exciting research opportunities for CP, and seeing their doctor for medical issues. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, I want to share a really cool picture from Blemi recently doing some adaptive waterskiing.

blemi shares a picture of her doing adaptive waterskiing. there is a boat with two people behind the boat.

Next, Chris shared information about the Cerebral Palsy Research Network and research they are doing about falls and other topics common to CP.

chris tweets about a research study the cp research network is doing about falls and other things related to adults and recommends people check it out
zach tweets that the research might not benefit us, but it will create greater understanding of cp and adulthood making aging easier for the next generation

Chris also talks about some medical issues she has been having with her esophagus and discusses the importance of getting things checked out as soon as possible.

chris tweets about tests she has done to find issues with her swallowing. zach tweets that is good information to have and chris tweets as soon as anything feels weird it should be checked out.
zach tweets that cp has kept him having a relationship with his doctor since he is on baclofen and needs regular blood tests

This brings us to our Extend-The-Conversation Question: What adaptive activities have you tried?

extend the conversation question graphic. what adaptive activities have you tried? there is a picture of a blue bowling ball on a ramp in front of a bowling lane

Thanks for reading and join us tomorrow at 8 Eastern on Twitter at #CPChatNow.

-Devin

#CPChatNow Recap- 8/3/2022

#CPChatNow brought in August with a lively chat about things such as flying tips, who is their best friend and why, and how “You Know You Have CP When.” This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, Zach asked if members had tips for flying with a disability and I shared some of my favorites.

zach asks about tips for flying with a disability. i tweeted i always check a bag and bring my wheelchair or use one of the airport ones, but most importantly i pay for precheck.

Next, Stephen asked members who their best friend is and why.

stephen shares his best friend megan tidwell means more than word's can say and she's done things for him that he will never forget.
zach tweets his best friend from high school is his friend rob and he interviewed him for his youtube channel. veronica tweets she went to a small school with a class of 8 students once of which was her twin sister, but she is hoping to see friends soon.

veronica tweeted about her twin sister being a built in best friend and her husband is a big support. zach tweets that is the sign of a healthy relationship to call your husband your best friend.

Finally, Zach and Veronica talked about some ways you know you have CP when.

zach asks members to finish the sentence you know you have cp when. veronica tweets you know you have cp when you do everything with one hand. zach tweets you know you have cp when your bad dreams revolve around an escalator.

Let’s Extend-The-Conversation! Tell us some ways you know you have CP when.

extend the conversation graphic with #cpchatnow logo with tell us some ways you know you have CP when and a picture of a stick figure

Thanks for reading and join us on Twitter at 8 Eastern at #CPChatNow!

-Devin

#CPChatNow Recap- 07-27-2022

Various subjects came and went Wednesday, July 27th, 2022 during the live cerebral palsy Twitter chat #CPChatNow. Here to tell you more, I am chat co-host Zachary Fenell. Welcome to your weekly recap.

Early in the night I issued an important disclaimer.

Zachary warns #CPChatNow he is recording his participation in the chat that night in order to create a "How to Participate in a Twitter Chat" video for his YouTube channel.

I warned participants I planned to experiment with recording my participation in the chat that night in order to create a YouTube video with step by step instructions on how to participate in Twitter chats. The experiment proved successful as you will see below from my video “How to Participate in a Twitter Chat Using a Computer.”

Regarding topics discussed July 27th, Chris mentioned assistive technology (AT). In-particular Chris talked about using grabbers for assistance in getting dressed. I recalled trying to use grabbers following my surgery aftermath at 14 years old. My comment inadvertently shifted the dialogue’s focus to surgery experiences.

Members in the #CPChatNow community discuss their experiences with different surgeries.

Chris recalled my co-host Devin Axtman also underwent major surgery when younger. Devin did his best to fit his surgical history into one tweet, saying, “I have had about 15 ish surgeries of different levels. The biggest one was where they sawed my femur and tibia in half and put them back together with a plate.”

Besides Devin, Chris and I discussed our histories with surgeries. Nothing too shocking, at least in comparison to what another chat regular had to say.

Blemi shares a horrifying surgery experience she had.

Replying to Devin noting he had multiple heel cord lengthening operations, Blemi shared, “I’ve had it done twice. The second time I was awake and something happened…” Consequently, Blemi couldn’t walk for almost a year.

Interestingly enough, walking arose elsewhere in the chat too.

The #CPChatNow community discusses what things people, especially medical professionals, get wrong about cerebral palsy.

Remembering back to a tweet Blemi posted within the last week, Chris echoed how walking independently should not necessarily be the end goal. Like Chris would go on to say, “I think maybe something about mobility devices or other adaptive equipment. I kind of feel like it’s implied that you’re ‘giving up’ if you use them. When really they’re tools.”

Those comments came from Chris when answering her own question about what misconception or thing do people get wrong about CP, adding a focus on medical professionals since, “that’s where that often comes from.”

Meanwhile Devin answered, “That it (CP) has no impact on aging.” What about you? How would you answer the question? Let us make the week’s extend-the-conversation question, “What misconception or thing do people, specifically medical professionals, get wrong about CP?”

Respond in the “Comments” below. Afterwards, mark your calendars to join us each and every Wednesday on Twitter starting at 8pm ET. If you need directions on how to participate in a Twitter chat, checkout my tutorial video, “How to Participate in a Twitter Chat Using a Computer.”

Until next time, remember. Don’t blend in. Blend out!

-Zachary

Answer for the week's extend-the-conversation question, "What misconception or thing do people, specifically medical professionals, get wrong about CP?"
Answer below!

#CPChatNow Recap- 7/20/2022

This past week in #CPChatNow was buzzing as always. Members discussed having COVID, annoying comments they receive in public, and their goals for the rest of 2022. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, I would like to share a story that Spectrum 1 News in Cleveland did about #CPChatNow co-host, Zachary Fennell, that I was happy to participate in. The story was about his time as a marathoner and his book Slow and Cerebral.

zach shares the spectrum 1 news story about him walking and running and his new book slow and cerebral. there is an image of zach in green shirt and blue baseball cap with blue shorts walking

Next, various members have discussed issues they are having with COVID. I discussed the difficulties with my lingering cough and balance.

Next, Zach talked about member’s goals for the rest of the year:

zach asks about goals for 2022 and tweets he would like to do recaps in a more timely fashion, updating facebook/website cover photos, posting to facebook page more
i tweet my goals are to be more patient and to be a better husband, zach tweets patience is something everyone can be better with and asks whether i can spend more quality time or be a better listener.

Finally, Zach asked how often members experience annoying comments about their disability.

zach asks how often members experience annoying comments, blemi tweets every time she is out in public and zach expressed surprise, i tweeted i do not too much, but maybe because i'm used to it or a wheelchair is more accepted

This brings us to our Extend-The-Conversation-Question: What are your strategies for dealing with annoying comments? Please join us tonight on Twitter at #CPChatNow at 8 Eastern!

-Devin