#CPChatNow Recap- 07-21-2021

Communal vibes strongly emanated from the weekly cerebral palsy Twitter chat #CPChatNow Wednesday, July 21st, 2021. To tell you more, I am chat co-host Zachary Fenell. Welcome to your weekly recap.

Yearning for the community our Twitter chat provides remained present prior to Wednesday.

Long-time #CPChatNow regular Blemi tweets her eagerness for Wednesday to arrive.

On Tuesday, July 20th long-time chat regular Blemi took to Twitter, wishing the day was Wednesday. All so she could work through the lots of stuff on her mind. After a 24-hour wait, Blemi had her chance to seek support from fellow chat participants.

In accordance with our recap rules to not highlight tweets featuring sensitive life events, I will avoid delving further into that conversation. Although, I can say more then Blemi received support from our community July 21st.

Members in the #CPChatNow community congratulate Alessandro on getting a new job.

Alessandro possessed some exciting news. He officially got a new job! Others in the chat offered congratulatory messages to celebrate.

Elsewhere in the night’s dialogue, talk turned to the spasticity involved in spastic cerebral palsy.

Various participants answer how they would describe their spasticity to others.

In-particular I asked participants how they would describe their spasticity to others. The responses varied. Veronica noted not really getting asked about her spasticity. Meanwhile Blemi replied “I tell them my neurons are always firing making me stiff.” She admitted not knowing whether that stands 100% accurate, but she finds the answer easy to explain.

Additionally, Stacey supplied an easy to understand reply saying if you put anything in the crook of her arm, you will need the jaws of life to get it out. Opposingly, Lorna stated she does not explain it. It’s just that if she thinks too much about moving she can’t move. Lorna also commented she does tell people not to use the word “spaz.”

Regarding managing spasticity, Blemi mentioned a difference maker she recently began using.

Blemi talks about using a magnesium supplement to help with muscle stiffness.

By using a magnesium supplement, Blemi has felt a difference in her stiffness. What about you, though? Answer for the week’s extend-the-conversation question, “How do you manage your spasticity?” Respond in the “Comments” section.

Answer for the week's extend-the-conversation question, "How do you manage your spasticity?"

Please note, what works for one person might not work for another. So if somebody’s answer intrigues you, discuss as needed with the appropriate medical professionals. Let them know you found the suggestion thanks to us at #CPChatNow. We meet each and every Wednesday on Twitter, starting at 8pm ET. Make sure to mark your calendars.

Until then, remember. Don’t blend in. Blend out!


#CPChatNow Recap- 03-04-2020

On Wednesday, March 4th, 2020 the cerebral palsy Twitter chat #CPChatNow enjoyed an energized night. Participants shared exciting news, discussed cerebral palsy awareness, and more! Here to fill you in with the details, I am chat co-host Zachary Fenell. Prepare for your weekly recap!

Zachary shares some cool personal news.

As previously mentioned, participants shared exciting news. Including me! Recently Wiki Ezvid created a video highlighting five inspiring writers advocating for those with disabilities. The list featured me. What an honor!

Additionally, our beloved “Positivity Princess” Linds revealed her own exciting news.

Linds shares exciting news with #CPChatNow.

A glee sparkled from Linds’ tweets as she shared she received a transfer at work and will soon return to her home in Ames. Join me in congratulating Linds. Respond to this post and leave her a congratulatory comment.

Elsewhere in the chat participants found inspiration for conversation in Cerebral Palsy Awareness Month.

#CPChatNow participants discuss what they wish more people knew about cerebral palsy.

I asked #CPChatNow what they wish people were more aware of regarding CP. Long-time regular Blemi said she wished more people realized the condition results from brain damage and is not as simple as fixing a limb. My co-host Devin Axtman offered two answers. He wants people to know cerebral palsy does not make you unattractive.

Furthermore Devin noted the condition does not go away at 18 years old. Chat newcomer Tonia also expressed similar sentiments, saying “in spite of it (cerebral palsy) being a ‘childhood disability’ we do grow up.” Tonia added many invisible aspects connected to CP go ignored. Aspects she thoroughly covers in a blog post “Parenting Kids with Disabilities: What You Can’t See (Invisible Aspects of CP).”

Chat newcomer Tonia shares a blog post she wrote about the invisible aspects of CP.

Reading through Tonia’s post, I had a question come to mind. So, I asked #CPChatNow.

#CPChatNow participants discuss going barefoot.

In her post Tonia mentioned her spasticity being more intense when barefoot. Curious to see if others experienced the same, I asked if you feel your spasticity is more intense when barefoot. Devin said he has less support and balance when barefoot. Blemi agreed her feet are very sensitive and as such she does not like to go barefoot. What about you? Answer for the week’s extend-the-conversation question, “Do you feel your spasticity is more intense when you are barefoot?” Comment below to answer!

This week's extend-the-conversation question asks "Do you feel your spasticity is more intense when you are barefoot?"

After answering, make your plans to join #CPChatNow each and every Wednesday. The fun begins at 8pm ET.

Until then, remember. Don’t blend in. Blend out!


#CPChatNow Recap- 10-23-2019

Shared experiences captivated the discussion Wednesday, October 23rd, 2019 during the live cerebral palsy Twitter chat #CPChatNow. I am chat co-host Zachary Fenell here to tell you more. The best way I know how too. Your weekly recap!

Early in the night I mentioned feeling a bit under the weather due to a cold. This led long-time chat regular Blemi to ask a question.

#CPChatNow participants discuss whether cold medicine affects their spasticity.

Blemi wondered whether cold medicine affects my spasticity. I answered no, but noted I must take non-drowsy medications. Drowsy cold medicines do not mix well with my baclofen.

Meanwhile my co-host Devin Axtman provided Blemi reassurance, saying cold medicine impacts his spasticity. What about you? Answer for the week’s extend-the-conversation question “Do you find cold medicine really affects your spasticity?”

The usual routine applies. Leave your response in the “Comments” section. First though, let us continue recapping the October 23rd Twitter chat.

Devin asks #CPChatNow, "What situations have you avoided because of your CP that people without haven't?"

Devin fueled the conversation asking participants to share situations they avoid because of CP. Responses truly varied. Our own “Positivity Princess” Linds said riding a bike.

Heather likes to avoid standing and mingling and eating or drinking at the same time.
Blemi tries avoiding situations where she doesn't know if there will be parking off the street. Plus scenarios in people's homes where she doesn't know if they have railings.

Both Heather and Blemi offered different answers. Heather said she avoids situations involving standing and mingling and eating or drinking simultaneously. Surely a trying balancing act when factoring in CP!

Concurrently Blemi raised issues surrounding parking and handrails. Specifically she said she avoids situations where she doesn’t know if there will be parking off of the street. The same avoidance applies to entering homes where she doesn’t know if people have railings.

Avoiding all the above situations remains understandable. However, there stands no reason to avoid answering the week’s extend-the-conversation question. Again, this week’s question asks “Do you find cold medicine really affects your spasticity?”

This week's extend-the-conversation question asks "Do you find cold medicine really affects your spasticity?"

Reply below to answer. Then set a calendar reminder for 8pm ET every Wednesday. That way you may join the conversation LIVE. Share your own experiences. Enjoy the community. Simply click here at 8pm ET and include “#CPChatNow” in your tweets.

Until then remember. Don’t blend in. Blend out!


#CPChatNow Recap- 09-05-2018

Wednesday, September 5th, 2018 saw members in the #CPChatNow community celebrate achievements, exchange wisdom, and much more during the weekly cerebral palsy Twitter chat. I am co-host Zachary Fenell, here to recap the chatter from the night. Between the weekly chats Timmy Le used the hashtag to share an impressive accomplishment.

#CPChatNow members congratulate participant Timmy Le on his hiking accomplishment.

Timmy talked about summit hiking up the highest mountain in the Northeast. You can see his pride in the accomplishment looking at his summit photo.

Timmy Le looking proud at the Mt. Washington Summit.While Timmy touted his hiking victory, others discussed how their lives mirror a metaphorical hike. Our beloved “Resilient Wench” Rachel provided advice to help handle life’s difficult terrain.

Rachel gives a reminder to try to view difficulties as virtues.Needing prisms again left Rachel bummed for awhile, but a friend recommended she try to see her difficulties as virtues. Although a lot easier said than done, I found the advice sound. To show difficulties can indeed serve as virtues, answer for the week’s extend-the-conversation question “What is a difficulty you have come to see as a virtue?” Respond in the “Comments” section.

Keeping the recap moving forward, a little later in the evening I asked a question regarding spasticity.

#CPChatNow participants discuss when they experience the most spasticity within the day.Curious, I asked if people noticed an increase in spasticity at a certain time during the day. Longtime regular Hannah Pike initially said no, but noted feeling more spastic on rainy days. I seconded the rainy day sentiments and added I feel greater spasticity in the mornings. The increase I attribute to how I sleep at night. My comments caused Hannah to rethink and realize she notices her spasticity at night more due to less distractions occupying her mind. My co-host Devin Axtman also related to Hannah’s answer.

Additionally, Devin announced our September 2018 Google Hangout date.

Mark your calendars! The September 2018 #CPChatNow Google Hangout will be Thursday, September 20th.This week's extend-the-conversation question asks "What is a difficulty you have come to see as a virtue?"Google Hangouts allow us to enjoy face-to-face dialogue via Google’s video chat platform. For privacy reasons, we do not distribute the link to the Hangout publicly. Please contact us through the #CPChatNow Facebook fan page to inquire about getting added to the Hangout invite list. Plus remember to answer the week’s extend-the-conversation question, “What is a difficulty you have come to see as a virtue?”

Respond below! Until next time, remember. Don’t blend in. Blend out!


#CPChatNow Recap- 07-18-2018

Spasticity held a tight grip on the conversation Wednesday, July 18th, 2018 during the live cerebral palsy Twitter chat #CPChatNow. I am co-host Zachary Fenell, filling in for my co-host Devin Axtman who missed the July 18th chat. Before delving into the night’s discussion, I made a couple housekeeping announcements.

Zachary gives #CPChatNow an update on the then not finished July 11th recap.Due to increased hours at work I proved unable to finish the previous week’s recap prior to the 18th. That recap now remains ready to read, “#CPChatNow Recap- 07-11-2018.” Our other announcement related to our monthly Google Hangouts.

Due to busy schedules there will be no #CPChatNow Google Hangout for July 2018.

Unfortunately due to my and Devin’s schedules this month, NO July 2018 Hangout will take place. You could say our schedules remain tight. Literal tightness surfaced as a subject a short while later.

#CPChatNow participants discuss how increased spasticity impacts them physically.Recently encountering increased tightness, I asked the group what changes to their bodies they notice when their spasticity increases. Hailey Hughes mentioned experiencing more trigger spots in her back and tighter hamstrings. Heather DeYoe added fatigue and tension headaches to the list. Wum said her arm starts to curl. Plus her facial muscles tighten, causing her to smirk. These physical reactions can cause additional challenges.

Hailey and Zachary discuss hamstring tightness causing trouble concentrating.Hailey and I both find tighter hamstrings leads to difficulty concentrating. Pain and discomfort distract our minds. Stretching helps to remedy the situation. However, another participant pointed out stretching does possess flaws.

#CPChatNow participants compare stretching and yoga.Chat regular, the self-proclaimed “Resilient Wench,” Rachel noted stretching may shock the body and leave movements feeling strange. She instead prefers yoga triangle poses. Hailey also vouched for yoga. I recalled hearing others with CP previously praising yoga too. I admitted though, I would not know where to begin. Thankfully Rachel offered her insights.

Rachel shares her yoga experiences.

Rachel shared her history with yoga, which dates back to her childhood. She explained due to her asymmetrical body and inability to form good muscle groups she will never surpass an amateur level. Therefore she does yoga on her own, guided by Adriene Mischler’s (Yoga with Adriene) Youtube videos.

This week's extend-the-conversation question asks, "How do you relieve hamstring tightness?"

Leave your response in the “Comments” section.

What about you? Answer for the week’s extend-the-conversation question, “How do you relieve hamstring tightness?” 

Yoga? Stretching? Something else? Leave your response by commenting below.

Until next time, remember. Don’t blend in. Blend out!