#CPChatNow Recap- 10-23-2019

Shared experiences captivated the discussion Wednesday, October 23rd, 2019 during the live cerebral palsy Twitter chat #CPChatNow. I am chat co-host Zachary Fenell here to tell you more. The best way I know how too. Your weekly recap!

Early in the night I mentioned feeling a bit under the weather due to a cold. This led long-time chat regular Blemi to ask a question.

#CPChatNow participants discuss whether cold medicine affects their spasticity.

Blemi wondered whether cold medicine affects my spasticity. I answered no, but noted I must take non-drowsy medications. Drowsy cold medicines do not mix well with my baclofen.

Meanwhile my co-host Devin Axtman provided Blemi reassurance, saying cold medicine impacts his spasticity. What about you? Answer for the week’s extend-the-conversation question “Do you find cold medicine really affects your spasticity?”

The usual routine applies. Leave your response in the “Comments” section. First though, let us continue recapping the October 23rd Twitter chat.

Devin asks #CPChatNow, "What situations have you avoided because of your CP that people without haven't?"

Devin fueled the conversation asking participants to share situations they avoid because of CP. Responses truly varied. Our own “Positivity Princess” Linds said riding a bike.

Heather likes to avoid standing and mingling and eating or drinking at the same time.
Blemi tries avoiding situations where she doesn't know if there will be parking off the street. Plus scenarios in people's homes where she doesn't know if they have railings.

Both Heather and Blemi offered different answers. Heather said she avoids situations involving standing and mingling and eating or drinking simultaneously. Surely a trying balancing act when factoring in CP!

Concurrently Blemi raised issues surrounding parking and handrails. Specifically she said she avoids situations where she doesn’t know if there will be parking off of the street. The same avoidance applies to entering homes where she doesn’t know if people have railings.

Avoiding all the above situations remains understandable. However, there stands no reason to avoid answering the week’s extend-the-conversation question. Again, this week’s question asks “Do you find cold medicine really affects your spasticity?”

This week's extend-the-conversation question asks "Do you find cold medicine really affects your spasticity?"

Reply below to answer. Then set a calendar reminder for 8pm ET every Wednesday. That way you may join the conversation LIVE. Share your own experiences. Enjoy the community. Simply click here at 8pm ET and include “#CPChatNow” in your tweets.

Until then remember. Don’t blend in. Blend out!

-Zachary

#CPChatNow Recap- 09-05-2018

Wednesday, September 5th, 2018 saw members in the #CPChatNow community celebrate achievements, exchange wisdom, and much more during the weekly cerebral palsy Twitter chat. I am co-host Zachary Fenell, here to recap the chatter from the night. Between the weekly chats Timmy Le used the hashtag to share an impressive accomplishment.

#CPChatNow members congratulate participant Timmy Le on his hiking accomplishment.

Timmy talked about summit hiking up the highest mountain in the Northeast. You can see his pride in the accomplishment looking at his summit photo.

Timmy Le looking proud at the Mt. Washington Summit.While Timmy touted his hiking victory, others discussed how their lives mirror a metaphorical hike. Our beloved “Resilient Wench” Rachel provided advice to help handle life’s difficult terrain.

Rachel gives a reminder to try to view difficulties as virtues.Needing prisms again left Rachel bummed for awhile, but a friend recommended she try to see her difficulties as virtues. Although a lot easier said than done, I found the advice sound. To show difficulties can indeed serve as virtues, answer for the week’s extend-the-conversation question “What is a difficulty you have come to see as a virtue?” Respond in the “Comments” section.

Keeping the recap moving forward, a little later in the evening I asked a question regarding spasticity.

#CPChatNow participants discuss when they experience the most spasticity within the day.Curious, I asked if people noticed an increase in spasticity at a certain time during the day. Longtime regular Hannah Pike initially said no, but noted feeling more spastic on rainy days. I seconded the rainy day sentiments and added I feel greater spasticity in the mornings. The increase I attribute to how I sleep at night. My comments caused Hannah to rethink and realize she notices her spasticity at night more due to less distractions occupying her mind. My co-host Devin Axtman also related to Hannah’s answer.

Additionally, Devin announced our September 2018 Google Hangout date.

Mark your calendars! The September 2018 #CPChatNow Google Hangout will be Thursday, September 20th.This week's extend-the-conversation question asks "What is a difficulty you have come to see as a virtue?"Google Hangouts allow us to enjoy face-to-face dialogue via Google’s video chat platform. For privacy reasons, we do not distribute the link to the Hangout publicly. Please contact us through the #CPChatNow Facebook fan page to inquire about getting added to the Hangout invite list. Plus remember to answer the week’s extend-the-conversation question, “What is a difficulty you have come to see as a virtue?”

Respond below! Until next time, remember. Don’t blend in. Blend out!

-Zachary

#CPChatNow Recap- 07-18-2018

Spasticity held a tight grip on the conversation Wednesday, July 18th, 2018 during the live cerebral palsy Twitter chat #CPChatNow. I am co-host Zachary Fenell, filling in for my co-host Devin Axtman who missed the July 18th chat. Before delving into the night’s discussion, I made a couple housekeeping announcements.

Zachary gives #CPChatNow an update on the then not finished July 11th recap.Due to increased hours at work I proved unable to finish the previous week’s recap prior to the 18th. That recap now remains ready to read, “#CPChatNow Recap- 07-11-2018.” Our other announcement related to our monthly Google Hangouts.

Due to busy schedules there will be no #CPChatNow Google Hangout for July 2018.

Unfortunately due to my and Devin’s schedules this month, NO July 2018 Hangout will take place. You could say our schedules remain tight. Literal tightness surfaced as a subject a short while later.

#CPChatNow participants discuss how increased spasticity impacts them physically.Recently encountering increased tightness, I asked the group what changes to their bodies they notice when their spasticity increases. Hailey Hughes mentioned experiencing more trigger spots in her back and tighter hamstrings. Heather DeYoe added fatigue and tension headaches to the list. Wum said her arm starts to curl. Plus her facial muscles tighten, causing her to smirk. These physical reactions can cause additional challenges.

Hailey and Zachary discuss hamstring tightness causing trouble concentrating.Hailey and I both find tighter hamstrings leads to difficulty concentrating. Pain and discomfort distract our minds. Stretching helps to remedy the situation. However, another participant pointed out stretching does possess flaws.

#CPChatNow participants compare stretching and yoga.Chat regular, the self-proclaimed “Resilient Wench,” Rachel noted stretching may shock the body and leave movements feeling strange. She instead prefers yoga triangle poses. Hailey also vouched for yoga. I recalled hearing others with CP previously praising yoga too. I admitted though, I would not know where to begin. Thankfully Rachel offered her insights.

Rachel shares her yoga experiences.

Rachel shared her history with yoga, which dates back to her childhood. She explained due to her asymmetrical body and inability to form good muscle groups she will never surpass an amateur level. Therefore she does yoga on her own, guided by Adriene Mischler’s (Yoga with Adriene) Youtube videos.

This week's extend-the-conversation question asks, "How do you relieve hamstring tightness?"

Leave your response in the “Comments” section.

What about you? Answer for the week’s extend-the-conversation question, “How do you relieve hamstring tightness?” 

Yoga? Stretching? Something else? Leave your response by commenting below.

Until next time, remember. Don’t blend in. Blend out!

-Zachary