#CPChatNow Recap- 8/17

This past week in #CPChatNow was hopping as always. Members discussed adaptive waterskiing, exciting research opportunities for CP, and seeing their doctor for medical issues. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, I want to share a really cool picture from Blemi recently doing some adaptive waterskiing.

blemi shares a picture of her doing adaptive waterskiing. there is a boat with two people behind the boat.

Next, Chris shared information about the Cerebral Palsy Research Network and research they are doing about falls and other topics common to CP.

chris tweets about a research study the cp research network is doing about falls and other things related to adults and recommends people check it out
zach tweets that the research might not benefit us, but it will create greater understanding of cp and adulthood making aging easier for the next generation

Chris also talks about some medical issues she has been having with her esophagus and discusses the importance of getting things checked out as soon as possible.

chris tweets about tests she has done to find issues with her swallowing. zach tweets that is good information to have and chris tweets as soon as anything feels weird it should be checked out.
zach tweets that cp has kept him having a relationship with his doctor since he is on baclofen and needs regular blood tests

This brings us to our Extend-The-Conversation Question: What adaptive activities have you tried?

extend the conversation question graphic. what adaptive activities have you tried? there is a picture of a blue bowling ball on a ramp in front of a bowling lane

Thanks for reading and join us tomorrow at 8 Eastern on Twitter at #CPChatNow.



#CPChatNow Recap- 06-22-2022

Wednesday after Wednesday participants in the weekly cerebral palsy (CP) Twitter chat #CPChatNow enjoy a caring and understanding environment. Such traits remained on display Wednesday, June 22nd, 2022. To tell you more, I am chat co-host Zachary Fenell. Welcome to your weekly recap!

First though, allow me to apologize for the tardy recap. Rather than wasting more time explaining the recap’s lateness, perhaps I should just get into the highlights from the June 22nd, 2022 chat. Shall we?

Participants in #CPChatNow offer each other a supportive environment.

Seeking to start the night off on a positive note, I asked participants to share a highlight from the previous week. Blemi unfortunately reported, “No highlights this week.” She would go on to explain, “It’s been a tough few ones.”

Hannah ended up expressing similar sentiments, indicating Hannah also had no highlights for the week. However, the two did provide each other support. Blemi in-particular reminded everyone, “It’s okay to not be okay too.”

As the dialogue continued, participants discovered a momentary escape from their woes through discussing other subjects.

Participants in #CPChatNow discuss crocs and other footwear.

Daring to delve into a “controversial topic,” Hannah shared her new rainbow Mickey crocs. The footwear reminds her of her late father. Plus, Hannah noted the green Mickey, “made me think of y’all.”

Others responded, sharing their own love for crocs. Blemi detailing she has, “pink sparkly crocs.” Meanwhile Chris said her crocs are green. More importantly, Chris added, “If I’m having a bad spasticity day they’re all I can wear.” Further reason to heed Blemi’s call to, “rock the crocs!”

Keeping the conversation rocking ahead, focus turned to important cerebral palsy research.

#CPChatNow participants discuss work being done by Cerebral Palsy Research Network.

I retweeted a link to a webinar Veronica originally posted with our hashtag. You could watch the webinar, “Grip Strength and Body Composition in Cerebral Palsy Webinar with Ed Hurvitz MD,” below.

In addition to webinars like the above one, Cerebral Palsy Research Network (CPRN) has a program called MyCP. Chris shared a link with more information. Take a look for yourself and decide if the MyCP program might interest you.

Also, keep the discussion going by watching the webinar and answering for the extend-the-conversation question, “What was your main takeaway from the ‘Grip Strength and Body Composition in Cerebral Palsy Webinar’?” Answer below!

Afterwards mark your calendars to join us each and every Wednesday on Twitter. The fun begins at 8pm ET.

Until then, remember. Don’t blend in. Blend out!


Watch the webinar linked to above and then answer for the week's extend-the-conversation question, "What was your main takeaway from the webinar?"
Answer below!