#CPChatNow Recap- 01-31-2018

An abbreviated #CPChatNow Twitter chat happened Wednesday, January 31st, 2018. I am co-host Zachary Fenell here to provide you the details via your weekly recap. Around our usual start time 8pm ET, my co-host Devin announced he would miss the chat.

Devin checks in to tell the #CPChatNow community he cannot make the night's chat.Trouble since I found myself with Internet connection problems. Without seeing Devin’s tweet I reached out to longtime regular Hannah Pike to give participants an update.

Longtime #CPChatNow regular Hannah Pike gives a chat update for Zachary.Thankfully a change in status occurred a little before 9pm ET. Equipped with a re-established Internet connection, I entered the #CPChatNow thread. Soon the dialogue started flowing like any other Wednesday from the past four-plus years.

Issues recently experienced by longtime regular Blemi led to conversation about ableism.

#CPChatNow participants discuss ableism and discrimination.While Blemi gave an update on her parking situation, Hannah mentioned ableist tendencies. I replied, noting too many people do not realize their ableist behavior. As the chatter continued I theorized a big problem involves the tendency to grow defensive when discussing discrimination. People take words personally oppose to staying open-minded.

Later in the chat participants rallied together again to supply support to another. Regular Shira Sadiky looked to our community for advice on transitioning to college.

#CPChatNow participants discuss living on-campus and the difference between single, double, and medical single rooms.I asked Shira what her roommate situation will end up like. Personally I always paid the double rate for a room in college although I lived in a single. Devin supplied greater perspective, explaining the difference between doubles, singles, and medical singles.

Towards the chat’s end I raised a question asked to me the day prior.

Zachary asks #CPChatNow participants about their rock, what keeps them moving during tough times.The question “What’s your rock?” a middle school teacher asked me following my presentation at a school. Your rock meaning what keeps you moving forward during hard times. Devin, who ended up making the chat at the end after all, said friends and family. That answer proved common.

#CPChatNow participants name their "rocks."Blemi called her significant other her rock. Meanwhile Jen said her mother gives her strength during tough times. Your turn! Answer for the week’s extend-the-conversation question,

Answer for the week's extend-the-conversation question, "What is your rock? So what keeps you going during tough times?"“What is your rock? What keeps you going during tough times?”

Respond in the “Comments” section below. Then join us Wednesday evening at 8pm ET for our weekly Twitter chat!

Tweet you soon,



#CPChatNow Recap- 9-6-2017

This past week was an eventful week in #CPChatNow as always.  Members discussed hurricanes, new semesters and houses, and difficulties with transportation. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride.  All aboard!

First, we would like to share some good news.  Longtime #CPChatNow member, Erin, is OK following Hurricane Irma.  We discussed her hurricane plans last week:

Erin discussing her hurricane plans with caregivers, food, and water.

Perhaps not surprisingly with the time of year, much of #CPChatNow was focused around school.  Omens joined #CPChatNow to discuss fatigue and school accommodations.

Omens discussing her fatigue at school with accommodations such as an extra set of books, unlimited absences, and ability to leave class early

She also talked about her school providing students laptops to take notes.  This is a good example of Universal Design helping everyone:

Omens discuss that she has a laptop to take notes

Zach relived college by sharing his perceived benefits towards living on campus:

Zach and Jen discuss how Zach living on campus allowed him to learn how to avoid conflict

Next, Jen has discussed in previous weeks how she has been adjusting to her new house.  She shared that she has a device that helps turn on ceiling fans and lights, but wondered if there was a similar device for the bathroom:

A picture of a white remote with gray buttons for turning on fans and lights on a table along with a Jen tweet asking if similar devices exist for bathrooms

Finally, Hailey joined #CPChatNow to let us know that she started grad school. However, she shared her frustration with lack of reliable transportation:

Hailey reporting that she has returned to grad school, but shared her frustration with lack of reliable transportation

I will use Hailey’s frustration about transportation for this week’s Extend-The-Conversation Question: What is the worst societal obstacle when it comes to your CP?  Please share your answers in the comments!

Join us every Wednesday at 8 EST on Twitter at #CPChatNow.

Tweet you later-

DevinA black wheelchair in front of gray stairs with blue text on a gray background of the Extend-The-Conversation question. The Multicolor #CPChatNow logo is in the bottom right hand corner