#CPChatNow Recap- 8-28-2019

This past week in #CPChatNow was jumping as always. Members talked about topics like submitting their first manuscript, snapping their fingers, and the bane of many people with CP’s existence, shoes. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

First, I would like to recognize #CPChatNow’s resident scientist, Timmy. Timmy is starting his PhD program and submitted his first 1st author manuscript. Good luck this year Timmy!

Zach and Timmy tweet about Timmy's first 1st author manuscript. A paper that condenses his master's thesis.

Next, Zach asked if members are able to snap their fingers, something that is difficult for many people with CP.

Blemi tweets she is able to snap her fingers

Talk then turned to whether members could do things like the Vulcan Salute, sing, and play an instrument.

I tweet I cannot snap or do the vulcan salute. Grace tweeted she cannot do the salute or whistle a melody while she can sing. Zach tweets he cannot sing, snap, or whistle. Grace tweets she has practice but can't play an instrument. Zach tweets practice is important to doing something well.

Next, talk turned to how long member’s shoes last them. Keens and Docs were popular durable shoes. Many members expressed that shoes did not last them long.

Zach asked how long it took member's shoes to wear down. Chris tweeted it depends on the construction, but she has luck with keens. Blemi mentions docs as well. Heather tweets her shoes wear down at different times.
Grace tweets her shoes can wear down in weeks or month, but it can be a year. She tweets her left shoe can wear out faster.

Finally, Zach mentioned a CP life hack he used at a recent wedding, wearing black tennis shoes rather than dress shoes.

zach tweets that he wears black tennis shoes instead of dress shoes as a CP life hack. Blemi tweets zach is lucky he is a guy. Zach tweets he would be a mess in heels

Zach’s tweet about tennis shoes inspires our Extend-The-Conversation Question: What are your CP life hacks? Share your answers in the comments!

Extend-the-conversation question graphic. An easy button with what are your CP life hacks? and the white #CPChatNow logo

Thanks for reading and join us each Wednesday at #CPChatNow at 8 Eastern on Twitter.



#CPChatNow Recap- 7/17/2019

Last week in #CPChatNow was popping as always. Members talked about a ramp for their pool, going to graduate school, the Netflix show Special, and why they would not crowdsurf in their wheelchair at a concert. I am Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

We start this week’s recap with a cool picture of Hannah’s new pool ramp (and the world famous Levi!). This is an awesome example of people working to provide access.

Hannah announces her backyard now contains a ramp to her pool. there is a picture of the ramp along with her dog.

Next, another #CPChatNow Co-Host came to the party. Jorge, also known as Blake, checked in. He is preparing for the GMAT to start graduate school.

jorge tweets about preparing for the gmat to start graduate school for an M.S. in Commerce

Seth checked in with his thoughts about the Netflix show, Special.

seth tweets about watching special on netflix, a show about a gay man with CP. He says it is a funny, adult look at a dysfunctional mother/son relationship

Finally, Zach tweeted a video of a man in a wheelchair crowdsurfing at a concert. Hannah and I both agreed we would not do so due to fears of what would what happen. Hannah shared a story about a drunk person kicking her scooter.

zach tweets a video about a wheelchair user crowd surfing. hannah and i agree we would not due to fears about what would happen and she shared a story of her scooter being kicked by a drunk person.

This brings us to our Extend-The-Conversation Question: What is the worst thing someone has done to your mobility equipment?

Thanks for reading and join us each Wednesday at 8 Eastern at #CPChatNow on Twitter!