#CPChatNow Recap 6-6-2018

#CPChatNow was chipper this past week as members talked about things such as teaching their friends, what they would like their legacy to be, and whether they prefer moving or sitting activities.  This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

First, #CPChatNow would like to note the passing of someone who meant a lot to many in the cerebral palsy community, Dr. Karen Pape.  Dr. Pape was a clinical neuroscientist and author. You can find her TED Talk here. She also did a focus chat for #CPChatNow.  You can find the recap for the focus chat here.

Zach tweeting about Dr Pape's death on June 2nd

Next, Amanda shared a story of a friend helping a man using a walker leave a restaurant.  This is a great example of knowledge of disability expanding knowledge and empathy.

Amanda shared a story of a friend helping a man using a walker leave a restaurant.  She shared a story of the friend saying knowing Amanda has helped expand his knowledge.

Legacy soon became an emerging topic, sparked by Dr. Pape’s death mentioned earlier. Community members discussed the legacies they want to leave:

Members discussed the legacy they hoped to leave. Zach and I shared our thoughts. Rachel cautioned about doing too much for others

Continuing the widespread dialogue, members talked about whether they prefer activities that involve movement or activities that involve sitting.  The consensus was movement, but that a balance was necessary to prevent overwhelming fatigue.  Hot showers were a favorite as well.

Rachel prefer movement oriented activities where her muscles are engaged in active and passive stretch like yoga or taking a hot shower. Zach agreed on liking hot showers

Chris agreed with Zach and Rachel on need for moving activities, but talked about the need for a balance.

This brings us to our extend-the-conversation question: What are your go to activities to get moving?  Please share your answers in the comments!

Extend-The-Conversation Question in white at the top. What are your go to activities to get moving? in the middle with the #CPChatNow white logo. A person is standing in the middle of trees with their arm up

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#CPChatNow Recap- 11-22-2017

The chat before Thanksgiving was very eventful as members talked about moving their impacted side(s), difficulty with insurance companies, inaccessible houses during the holidays, and more.  This is #CPChatNow Co-Host, Devin Axtman, and I will be taking you along for this week’s recap.

We begin this week’s recap with Rachel and I discussing having to purposely focus more on moving our impacted side(s):

Rachel and I discussion about movement on our impacted side

Next, Chris and Zach discussed the difficulties of dealing with insurance companies and the added frustration that comes with knowing the proposed treatment would save money in the long run:

Chris discussing frustration with getting her asthma treatments covered

Finally, much of the talk in the chat was surrounding member’s holiday plans.  Talk soon turned to accessibility issues members had while visiting family and strategies they had to deal with them:

Paul and Zach also discussed family member’s houses with stairs and sliding on their butts to go down them:

Paul and Zach discussing sliding down the stairs on their butts

This brings to our Extend-The-Conversation Question: What are some out of the box solutions you have used in inaccessible situations?  Please share your answers in the comments and join us every Wednesday at 8 Eastern at #CPChatNow on Twitter.

The extend-the-conversation question with a picture of a box with a green arrow in the center

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