#CPChatNow Recap- 05-29-2019

Every Wednesday you can count on the live cerebral palsy Twitter chat #CPChatNow for quality conversation. Or, at least I believe so. Seeing I am #CPChatNow co-host Zachary Fenell, I obviously possess a bias. Allow me to persuade you by providing you your weekly chat recap.

Quality conversation begins with thoughtful people. Those individuals comprise our community’s core. Therefore even during quieter nights #CPChatNow remains enjoyable. Wednesday, May 29th, 2019 proved one such occasion.

Exactly how enjoyable? My co-host Devin Axtman made efforts to multi-task despite his own exciting plans that night.

Devin joined #CPChatNow from Minute Maid Park, where he watched the Cubs and Astros play ball!

Devin joined #CPChatNow from Minute Maid Park, where he watched his Chicago Cubs play the Houston Astros. To use a baseball metaphor, Devin stepped up to the plate during the chat and hit a home run. The homer symbolizes the dialogue Devin sparked.

#CPChatNow participants discuss a recent news story involving insurance and medical supplies.

A feel good news story to many received a contentious outlook within our community. Devin retweeted Fox 5 DC’s post reporting about a local Home Depot building a young boy a walker. In Devin’s opinion the media missed the true story. How can the U.S. healthcare system not provide such basic equipment?

Long-time #CPChatNow regular Blemi added her input, pointing out by paying now you can save later. After all through providing treatments and devices you increase the likelihood individuals with disabilities become contributing society members. Meanwhile I highlighted a line found in the Fox 5 DC piece which struck me as odd.

Zachary points out the article never flat out said the insurance company would not pay for the walker.

I noted the story Devin shared never flat out said the insurance company would not pay for the walker. Instead the parents remained unsure whether the insurance company would cover the cost. This left me wondering, “Couldn’t you call and ask?”

My question left us contemplating the possibilities. Devin suggested perhaps the family was in the middle of the process. Further thought left me contemplating additional prospects. Maybe the parents tried calling, but kept getting put on hold. Or, they wound up talking to unhelpful representatives. Who knows?!

Rather than continuing to speculate, let us talk what we do know. Our personal experiences! Answer for the week’s extend-the-conversation question, “What have your experiences with insurance companies been?”

Comment below to answer. Then remember to join #CPChatNow each and every Wednesday, starting at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

This week's extend-the-conversation question asks, "What have been your experiences with insurance companies?"
Answer by commenting below!
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#CPChatNow Recap- 5-9-2018

This past week in #CPChatNow was jumping as always.  Members talked about being ambidextrous, learning to fall, and rebelling against CP.  This is #CPChatNow Co-Host, Devin Axtman, taking you along on this week’s recap.

Zach and Grace talked about being ambidextrous and whether that translated to falling to one side or the other:

Zach and Grace talking about whether being ambidextrous translated to falling more on one side. Grace tweeted she is, but tends to fall on her right side

Members then talked about learning to fall.  Stacey expressed surprise that was a thing, but many members such as Zach and Hannah tweeted about learning to fall:

Zach and Stacey tweeted about learning to fall. Stacey said she had never learned to fall, but she falls on her stronger side.

Zach and Hannah tweeted about different techniques regarding learning to fall in PT:

Zach tweets about learning to fall on his dominant side. Hannah tweets she learned ways to catch herself. Zach tweeted he went to private PT

Zach, Hannah, and I tweeted about having private PT and our parents sweating over payment details:

Zach, Hannah, and I tweet about having private PT when younger and not thinking about the payment details

Next, talk turned to an interesting question Zach had.  He asked members about the first time they could remember rebelling against their CP.

Zach asked about the first time members rebelled against their CP. Zach tweets about not leaving classes. Jen tweeted about grabbing things with her claw rather than asking for help

Hannah tweeted about moving to Nashville and Zach tweeted about his parents being unsure about him competing in his first marathon:

Hannah tweets about rebelling by moving to Nashville. Zach tweets about doing the marathon and reassuring his parents

This brings us to our Extend-The-Conversation question.  Zach had all of the good questions this week, so I will ask his question again for those who couldn’t participate on Twitter: “What was the first decision you made to rebel against people’s concerns over your CP?”  Share you answers and the results in the comments

Extend-The-Conversation-Question in black text at top. A grey person standing with hand up to his chin as if thinking with 3 red arrows going right, straight, and left. What was the first decision you made to rebel against people's concerns over your CP?What was the first decision you made to rebel against people's concerns over your CP? What was the first decision you made to rebel against people's concerns over your CP? is below in black text. Multicolor #CPChatNow logo in left hand corner

 

 

#CPChatNow Recap- 11-22-2017

The chat before Thanksgiving was very eventful as members talked about moving their impacted side(s), difficulty with insurance companies, inaccessible houses during the holidays, and more.  This is #CPChatNow Co-Host, Devin Axtman, and I will be taking you along for this week’s recap.

We begin this week’s recap with Rachel and I discussing having to purposely focus more on moving our impacted side(s):

Rachel and I discussion about movement on our impacted side

Next, Chris and Zach discussed the difficulties of dealing with insurance companies and the added frustration that comes with knowing the proposed treatment would save money in the long run:

Chris discussing frustration with getting her asthma treatments covered

Finally, much of the talk in the chat was surrounding member’s holiday plans.  Talk soon turned to accessibility issues members had while visiting family and strategies they had to deal with them:

Paul and Zach also discussed family member’s houses with stairs and sliding on their butts to go down them:

Paul and Zach discussing sliding down the stairs on their butts

This brings to our Extend-The-Conversation Question: What are some out of the box solutions you have used in inaccessible situations?  Please share your answers in the comments and join us every Wednesday at 8 Eastern at #CPChatNow on Twitter.

The extend-the-conversation question with a picture of a box with a green arrow in the center

-Tweet you later

Devin