#CPChatNow Recap- 1/18/23

This past week’s #CPChatNow had members bouncing all over the place with discussions of different topics such as hiking, podcasts, and how CP impacts their decision making. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, I would like to celebrate Zach progressing in his career at the library.

zach tweets he finished his branch service assistant training and he can now substitute at the reference desk

Next, talk turned to Timmy’s hobby of hiking and his essentials when he goes on a hike.

zach asks timmy what equipment he takes on his hikes. timmy says he has a 24 pound backpack with micro spikes, trekking poles, satellite personal locator device along with gummy bears

Next, Stephen asked what podcasts others listened to.

Stephen asks if people are fans of podcasts, i tweet i am fans of way too many with my favorite small town murder and wrestling and sports ones. Stephen tweets he likes on air with ryan seacrest and the ellen k morning show and zach tweets he listens to one or two, but he is a visual person so he mainly falls asleep to them.

Finally, Zach asks members how CP impacts their decision making.

zach asks how cp impacts members decision making. i tweeted about transportation or if i'm going somewhere and need to walk a lot. zach tweets about cp helping determine priorities with the first one being to take care of himself physically and prioritizing that guides decision making on what to do first.

This brings us to our Extend-The-Conversation Question: What are your favorite outdoor activities? Please share your answers in the comments and join us tomorrow at 8 Eastern on Twitter at #CPChatNow!

the extend-the-conversation question graphic with the question of what are your favorite outdoor activities with a a brown sign and an illustration of two figures hiking.


#CPChatNow Recap- 09-05-2018

Wednesday, September 5th, 2018 saw members in the #CPChatNow community celebrate achievements, exchange wisdom, and much more during the weekly cerebral palsy Twitter chat. I am co-host Zachary Fenell, here to recap the chatter from the night. Between the weekly chats Timmy Le used the hashtag to share an impressive accomplishment.

#CPChatNow members congratulate participant Timmy Le on his hiking accomplishment.

Timmy talked about summit hiking up the highest mountain in the Northeast. You can see his pride in the accomplishment looking at his summit photo.

Timmy Le looking proud at the Mt. Washington Summit.While Timmy touted his hiking victory, others discussed how their lives mirror a metaphorical hike. Our beloved “Resilient Wench” Rachel provided advice to help handle life’s difficult terrain.

Rachel gives a reminder to try to view difficulties as virtues.Needing prisms again left Rachel bummed for awhile, but a friend recommended she try to see her difficulties as virtues. Although a lot easier said than done, I found the advice sound. To show difficulties can indeed serve as virtues, answer for the week’s extend-the-conversation question “What is a difficulty you have come to see as a virtue?” Respond in the “Comments” section.

Keeping the recap moving forward, a little later in the evening I asked a question regarding spasticity.

#CPChatNow participants discuss when they experience the most spasticity within the day.Curious, I asked if people noticed an increase in spasticity at a certain time during the day. Longtime regular Hannah Pike initially said no, but noted feeling more spastic on rainy days. I seconded the rainy day sentiments and added I feel greater spasticity in the mornings. The increase I attribute to how I sleep at night. My comments caused Hannah to rethink and realize she notices her spasticity at night more due to less distractions occupying her mind. My co-host Devin Axtman also related to Hannah’s answer.

Additionally, Devin announced our September 2018 Google Hangout date.

Mark your calendars! The September 2018 #CPChatNow Google Hangout will be Thursday, September 20th.This week's extend-the-conversation question asks "What is a difficulty you have come to see as a virtue?"Google Hangouts allow us to enjoy face-to-face dialogue via Google’s video chat platform. For privacy reasons, we do not distribute the link to the Hangout publicly. Please contact us through the #CPChatNow Facebook fan page to inquire about getting added to the Hangout invite list. Plus remember to answer the week’s extend-the-conversation question, “What is a difficulty you have come to see as a virtue?”

Respond below! Until next time, remember. Don’t blend in. Blend out!


#CPChatNow Recap- 5-23-2018

This past week in #CPChatNow was bustling as always.  Members talked about recent hikes, riding bikes, and physical therapy being fun.  This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, I wanted to highlight a tweet from a member about something that occurred outside of the regular #CPChatNow window of 8-10pm eastern time each Wednesday.  Regular member, Timmy, shared a photo of a weekend hike:

A picture of Timmy standing by the Mount Everett summit sign

Timmy showed that #CPChatNow and people with CP are doing things all of the time!

Riding bikes was a common theme in this week’s chat after Zach shared a story about a man excelling at adaptive cycling.  Zach and Linds chatted about their history of riding bikes:

Zach and Linds talked about bike riding. Zach said he did not have the core strength to get beyond training wheels. Linds tweeted she used to ride and sometimes fell off, but has been unable to due to health reasons and no time to recover

The bike conversation went in another direction as Zach and I talked about how our physical therapists thought of fun ways to get us involved in physical therapy (PT):

Zach and I tweeted about sports being a part of physical therapy. I tweeted sports were a big part of therapy and zach expressed that he wished sports was a bigger part of his therapy

I tweeted a milestone in physical therapy was running around the bases. Zach recalled getting in catcher position to catch bean bags and the challenge of keeping his balance

This brings us to our extend-the-conversation question, “What did your therapists do to keep you interested in therapy?”

A picture of a baseball stadium in the background. Extend-The-Conversation Question in white with the extend-the-conversation question at the top of the picture. The white #CPChatNow logo at the bottom

Please share your answers in the comments and join us each Wednesday at 8pm Eastern on Twitter at #CPChatNow.