#CPChatNow Recap- 12-12-2018

Participants in the live cerebral palsy Twitter chat #CPChatNow discussed various topics Wednesday, December 12th, 2018. As co-host I am tasked to neatly summarize all the different discussion into your weekly recap. Wish me luck!

“Good luck Zachary!”

Thank you! The extend-the-conversation question from the previous week’s recap stimulated early dialogue December 12th.

Participants in the #CPChatNow community discuss what they would make the theme song for their life with cerebral palsy.My co-host Devin Axtman originally posed the question during the December 5th recap. “What is the theme song of your life with cerebral palsy?” Blemi answered “She Moves in Mysterious Ways” by U2 while Devin himself responded “Won’t Back Down” by Tom Petty. Seth’s response meanwhile left him and I bonding.

Seth says the theme for his life with cerebral palsy would be "Iris" by Goo Goo Dolls.Seth replied “Iris” by Goo Goo Dolls. Personally I love that song. As I explained in the chat the lyrics “I don’t want the world to see me because I don’t think they will understand” strongly resonated with how I felt back in my timid days. Seth noted feeling the same way.

Continuing to provide a spark kindling chatter Devin raised another question.

Devin asked participants to share CP related holiday traditions.Devin asked whether anyone has CP related holiday traditions. He then named his. Devin’s family hangs the cabbage patch outfit Devin wore his first Christmas on their tree. Jeni Briere sympathized, recalling her older sister getting upset when their parents “stole” the sister’s cabbage patch kids clothes for Jeni to wear.

Simultaneously in answering Devin’s question I explored a separate aspect to holiday traditions.

Zachary turns the holiday discussion to accessibility.Diverting a little from the original query, I named Christmas Eve dinners at Grandma’s house as my favorite holiday tradition. Although not directly CP related, I explained Grandma’s home remained largely accessible helping to create an enjoyable environment. Devin especially empathized alongside one factor I mentioned, needing a table to eat. A need not all participants shared though!

Hannah says she does not need a table to eat at.Hannah vocalized she prefers not eating at a table, a preference she reasons extends back to rarely doing so when growing up. No matter your dining setting preferences, everyone could probably agree the holidays can represent a stressful time. Stress eventually rose to the conversation’s forefront.Zachary asks #CPChatNow participants how they avoid over exerting themselves. I asked how individuals keep themselves from over exerting themselves. Grace admitted she does not. Rather she counts on someone else to help keep her in check. Otherwise she will work herself to death or at least fall and/or encounter pain flares. Experiences I resonate with, mentioning I know I need to take a step back and refocus when my movements get extra sloppy.

What about you? Answer for the week’s extend-the-conversation question, “What signs indicate you are over exerting yourself?” Leave your reply in the “Comments” section.

Recognizing these signs stand vital. They allow you to better understand your limits, a subject Hannah knows too well.

Zachary and Hannah discuss the importance of knowing your limits.

This week's extend-the-conversation question asks, "What signs indicate you are over exerting yourself?"

Leave your answer in the comments!

Similar to Grace, Hannah confessed to lacking balance within her life. Serious health complications the disruption in Hannah’s situation. Hannah named learning she can’t push past her body’s limits stood the hardest lesson. Familiarizing yourself with how your body tells you “Enough” stays vital to avoid over exertion. So again answer as the week’s extend-the-conversation question, “What signs indicate you are over exerting yourself?”

Reply below in the “Comments.” Then remember to join #CPChatNow every Wednesday, starting at 8pm ET.

Until then, remember. Don’t blend in. Blend out!




#CPChatNow Recap- 01-17-2018

Members in the #CPChatNow community turned to our Twitter chat Wednesday, January 17th, 2018 seemingly looking for an escape from their busy lives. I am co-host Zachary Fenell, here to tell you more. There seems no better way to do that than your weekly recap!

A theme involving busyness quickly emerged. Co-host Jorge Otezia dropped in, updating us on his semester ahead at University of Mary Washington.

Co-host Jorge Otezia updates #CPChatNow on the semester ahead of him at University of Mary Washington.Between working 30 hours a week and a full course load Jorge warns he will end up missing in action a lot. In a separate conversation my other co-host Devin also appeared occupied with a full schedule.

Co-hosts Devin and Zachary discuss mindset when dealing with busy schedules.Responding to Devin, I pointed out how busyness can tempt someone to feel overwhelmed. Personally I avoid this by remembering busyness proves a privilege. Changing your mindset to say “I get to” oppose to “I have to” makes a huge difference! Otherwise you risk becoming stressed. Fittingly stress surfaced as a topic thanks to #CPChatNow regular Rachel.

Rachel asks the #CPChatNow community about stress.Rachel asked if anybody feels like their CP makes dealing with stress harder compared to our able-bodied counterparts. Among the replies to Rachel, Devin offered an interesting theory. He theorized since we spend more energy moving around, we also exert more energy when stressed.

To prevent dwelling on the above problem, let us borrow the approach #CPChatNow co-founder John W. Quinn shared so many times. John always encouraged we focus on solutions. So answer as the week’s extend-the-conversation question, “What tricks do you use to help handle your stress?” Leave your stress relief tip via a comment in the “Comments” section.

Before commenting though, shall we continue with the recap? Conversation eventually transitioned to a couple recent news stories. The first caught my attention earlier in the week.

Zachary talks about a recent news story which made him curious about how our minds work.The story “Family of boy, 13, who cannot walk or talk because of cerebral palsy left in tears after laughing drunks call him a ‘cabbage.” noted how the mother felt humiliated by the experience. Reading her comments saddened me because in my opinion the offending adults should feel embarrassed. Not the family! Devin shared enduring a similar situation and initially feeling bad. I deducted feeling bad stands a human instinct, but we could benefit training ourselves to rethink our emotional response.

Beyond his own memories Devin tweeted about another news story featuring bullying behavior.

Devin shares a news story about a college professor who mocked a student with a disability.Devin’s share “Professor put on leave after allegedly mocking U of G student with ‘severe anxiety’” detailed a professor who allegedly acted unsavory towards a student with severe anxiety. Rachel found the article unsurprising. Meanwhile I contemplated contributing the bullying behavior to the professor possessing his own unresolved issues.

Anyways, enough negative talk! Time to find solutions in life. We cannot control other people, but we can control how we react in such stressful situations. Perhaps you enjoy a great stress relief tip. Share by answering the week’s extend-the-conversation question.

Answer for the week's extend-the-conversation question, "What tricks do you use to help handle your stress?"“What tricks do you use to help handle your stress?”

Respond below. Until next time remember, don’t blend in. Blend out!