#CPChatNow Recap- 11/11/2020

This past week in #CPChatNow was lively as always. Members discussed what they are doing to cope with the continued rise of COVID, their favorite holiday traditions, and more! This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, members discussed what they have been doing to handle the continued march of COVID. Zach and Tonia discussed their recent effort towards writing their novels.

zach asks if everyone is staying safe and healthy, tonia tweets she is quarantining like a boss, zach asks if #NaNoWriMo is helping by keeping her focused, tonia tweeted that it is and it is summer in her story.

Members next discussed the new normal that has become our reality with COVID. Talk turned to how masks are now seen as an expected thing that people wear. Dave also tweeted that masks have been an accepted part of everyday life in other countries for a long time.

zach tweeted he is doubtful we will ever return to a covid normal, dave tweeted it will be a different normal, zach tweeted he expects face masks to be just another article of clothing and they will be required like pants, blemi tweets this is how it should be, zach tweets indecent exposure will now include nostrils and mouths

Next, Zach asked if members felt they could have multiple best friends. Jen tweeted she felt people could and Zach tweeted he has best friends from different aspects of his life:

zach asks if members feel they can have multiple best friends, jen tweets she feels that you can, zach tweets he has best friends from different aspects of his life like high school and college

Finally, we discussed our favorite holiday traditions.

i asked what members favorite holiday traditions are. i joked mine is asking blemi why canada doesn't have thanksgiving on thursday so they can get a 4 day weekend. blemi tweeted she loves christmas, being with family, and christmas lights. she tweeted it is also her birthday and that should be a holiday. chris tweeted she gets starbucks holiday drinks and cooks something nice for dinner.

Zach shared a tradition that definitely makes me jealous (and hungry!).

zach tweets his favorite tradition is an italian fish dinner on christmas eve, zach tweeted they have a variety of fish dishes: shrimps, smelts, cod balls, spaghetti and clams, and lobster

This brings us to our Extend-The-Conversation Question: What is your favorite holiday tradition? Please share your answers in the comments!

extend the conversation question graphic. #CPChatNow logo in the upper right hand corner, extend-the-conversation question in green. what is your favorite holiday tradition? below is an image of a calendar with holiday written in red marker and circled on the 25th.

Please make sure to join us each Wednesday at 8 Eastern on Twitter at #CPChatNow!

-Devin

#CPChatNow Recap- 12/4/2019

This past week in #CPChatNow was busy as always as members got ready for the holidays, discussed unique friendships, cool parts about #CPChatNow, and their doubts about CP.

The upcoming holidays were of course a topic of conversation. Zach asked whether people took disability into account when giving gifts:

Zach asks whether disability was taking into account when giving gifts. Hannah tweeted her grandma bought her shoes that often wouldn't fit and she had to tell her to stop because they wouldn't fit
Blemi tweeted disability had no impact on her gift giving. Zach said he got a baseball glove, but never did play baseball. I tweeted I was there was paralympics for baseball.

#CPChatNow recently turned 6 years old. Members talked about the coolest part of being a member:

I tweeted that the coolest part of #CPChatNow has been watching people grow up and lives change. Zach tweeted about people graduating high school, Blake and myself graduating college, and Blemi entering a long term relationship
Zach tweeted about the genuine bonds that have formed from #CPChatNow and the support system that has formed

Next, talk turned to the unique relationships that can come from online interactions and Yasmin shared that she has formed relationships from online Paramore clubs:

Yasmin tweets about making friendships through Paramore clubs that have stayed even though the forms have shut down. Zach shares that CP brought #CPChatNow together, but we have other common interests

Finally, I asked members what doubts they had as a result of their CP. It sparked some good conversation:

I ask about people's doubts about their CP. My doubt was about getting married. blemi tweeted she was unsure about holding down a full time job. zach worried about pinning his bib number for his 5k races

This leads us to our Extend-The-Conversation question: What is your biggest doubt about CP and what have you done to overcome it?

Please share your answers in the comments and join us each Wednesday at 8 Eastern on Twitter on #CPChatNow

-Devin

#CPChatNow Recap- 12-12-2018

Participants in the live cerebral palsy Twitter chat #CPChatNow discussed various topics Wednesday, December 12th, 2018. As co-host I am tasked to neatly summarize all the different discussion into your weekly recap. Wish me luck!

“Good luck Zachary!”

Thank you! The extend-the-conversation question from the previous week’s recap stimulated early dialogue December 12th.

Participants in the #CPChatNow community discuss what they would make the theme song for their life with cerebral palsy.My co-host Devin Axtman originally posed the question during the December 5th recap. “What is the theme song of your life with cerebral palsy?” Blemi answered “She Moves in Mysterious Ways” by U2 while Devin himself responded “Won’t Back Down” by Tom Petty. Seth’s response meanwhile left him and I bonding.

Seth says the theme for his life with cerebral palsy would be "Iris" by Goo Goo Dolls.Seth replied “Iris” by Goo Goo Dolls. Personally I love that song. As I explained in the chat the lyrics “I don’t want the world to see me because I don’t think they will understand” strongly resonated with how I felt back in my timid days. Seth noted feeling the same way.

Continuing to provide a spark kindling chatter Devin raised another question.

Devin asked participants to share CP related holiday traditions.Devin asked whether anyone has CP related holiday traditions. He then named his. Devin’s family hangs the cabbage patch outfit Devin wore his first Christmas on their tree. Jeni Briere sympathized, recalling her older sister getting upset when their parents “stole” the sister’s cabbage patch kids clothes for Jeni to wear.

Simultaneously in answering Devin’s question I explored a separate aspect to holiday traditions.

Zachary turns the holiday discussion to accessibility.Diverting a little from the original query, I named Christmas Eve dinners at Grandma’s house as my favorite holiday tradition. Although not directly CP related, I explained Grandma’s home remained largely accessible helping to create an enjoyable environment. Devin especially empathized alongside one factor I mentioned, needing a table to eat. A need not all participants shared though!

Hannah says she does not need a table to eat at.Hannah vocalized she prefers not eating at a table, a preference she reasons extends back to rarely doing so when growing up. No matter your dining setting preferences, everyone could probably agree the holidays can represent a stressful time. Stress eventually rose to the conversation’s forefront.Zachary asks #CPChatNow participants how they avoid over exerting themselves. I asked how individuals keep themselves from over exerting themselves. Grace admitted she does not. Rather she counts on someone else to help keep her in check. Otherwise she will work herself to death or at least fall and/or encounter pain flares. Experiences I resonate with, mentioning I know I need to take a step back and refocus when my movements get extra sloppy.

What about you? Answer for the week’s extend-the-conversation question, “What signs indicate you are over exerting yourself?” Leave your reply in the “Comments” section.

Recognizing these signs stand vital. They allow you to better understand your limits, a subject Hannah knows too well.

Zachary and Hannah discuss the importance of knowing your limits.

This week's extend-the-conversation question asks, "What signs indicate you are over exerting yourself?"

Leave your answer in the comments!

Similar to Grace, Hannah confessed to lacking balance within her life. Serious health complications the disruption in Hannah’s situation. Hannah named learning she can’t push past her body’s limits stood the hardest lesson. Familiarizing yourself with how your body tells you “Enough” stays vital to avoid over exertion. So again answer as the week’s extend-the-conversation question, “What signs indicate you are over exerting yourself?”

Reply below in the “Comments.” Then remember to join #CPChatNow every Wednesday, starting at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

 

#CPChatNow- 11-28-2018

This past week the #CPChatNow Cerebral Palsy Twitter chat was bumping as always.  Members talked about their holiday wish list, what they wanted to be when they grew up, and what they feel is the worst occupation for someone with CP.  This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

Not surprisingly, members’ holiday wish lists dominated the early conversation.  Members shared their gifts were becoming more practical as they aged.

Zach and Devin tweeted about holiday wish lists. Zach tweeted about a bright winter coat so people can see him and I shared I recently bought lights for my wheelchair

Next, members talked about what they wanted to be when they grew up as a kid.  There were definitely some amusing answers, but some also achieved their goal!

Zach tweets about wanting to be a Cleveland Indians player and then shifting his goal to becoming a writer. We talked about mourning not being able to play sports.

Zach and I had a common goal, playing baseball.  I had a little bit more lofty ambitions however, and Ayden would like to be the Leader of the Free World!

Ayden tweeted about wanting to become President

Zach asked about the occupations that members felt were the worst for people with CP. Dave shared some difficult positions he has had, a stagehand and line cook.

Zach and Dave tweet about bad occupations for people with CP. Dave tweets about stagehand and line cook being difficult on the knees

Heather won the unofficial title of Tweet of the Night with a tightrope walker being the worst occupation for someone with CP

Heather tweets that a tightrope walker would be the worst occupation

This brings us to our Extend-The-Conversation question: What was your dream job when you were growing up and did CP require you to change it?  Please share your answer in the comments and join us at #CPChatNow on Twitter at 8 Eastern each Wednesday.

The Extend-The-Conversation Question graphic. There is a tan background with a picture of a little girl daydreaming. What was your dream job when you were growing up and did CP require you to change it? is in red with the multicolored #CPChatNow logo

-Devin

#CPChatNow Recap- 11-07-2018

Names such as Ross, Monica, and Joey remained missing but nonetheless the live cerebral palsy Twitter chat #CPChatNow contained a Friends-like vibe Wednesday, November 7th, 2018. I am co-host Zachary Fenell, here to explain what that means. Do you want to guess the best way to achieve this objective? If you said a weekly recap, then give yourself a congratulatory pat on the back!

Friends offered a memorable opening with the cast dancing while The Rembrandts’ song “I’ll Be There For You” plays. Lyrics in-part include “It’s like you are always stuck in second gear when it hasn’t been your day, week, or even year. But, I’ll be there for you.” For multiple #CPChatNow community members, 2018 has been tough. The unfortunate trend continued into the November 7th, 2018 chat.

#CPChatNow participants join the chat after a long, tiring day.Early in the chat my co-host Devin Axtman admitted to feeling very tired. Long-time regular Hannah Pike seconded the exhaustion. Although not her day, month, or even year Hannah stood there alongside everyone, tweeting out a pick me up.

Hannah tweets everyone encouragement with the message "So far you've survived 100% of your worst days. You're doing great."The knowledge “So far you’ve survived 100% of your worst days. You’re doing great” helped Hannah get through the day. So she tweeted the quote to help lift spirits. Do you repeat a certain phrase or mantra to empower you past the tough days? Answer for the week’s extend-the-conversation question, “What phrase or mantra helps get you through your bad days?” 

Leave your phrase or mantra in the “Comments” section. Another way to get through challenging times involves laughter. During the chat November 7th we shared a few laughs together.

#CPChatNow participants joke about feeling old.The laughter arose when new lingo emerged as a topic. Long-time #CPChatNow participant Jen mentioned the new lingo, for example “woke” and “what’s the tea.” Responding I credited #CPChatNow for single-handedly keeping me in the know. Simultaneously I tweeted a GIF featuring an old man shaking his finger accompanied by the caption “When I was your age, television was called books.”

Replying Jen recalled the lingo from her days, technically our days since only a few years separate us. One in-particular caught youngling Shira’s attention. She said others still use “Talk to the hand” around her. I quipped talk to the hand is a classic because the face don’t want to listen!

Elsewhere in the chat the looming winter surfaced as a common subject.

#CPChatNow participants discuss the best and worst parts of winter.I posed the question, “What do you find the best and worst part of winter?” Devin called the cold the worst part and Christmas the best part. I agreed about the holidays, saying people slow down and spend time with loved ones. A bit pessimistic though, I wondered how long that would last commenting “Just look at what Thanksgiving has become!”

Offering some hope Shira shared an optimistic outlook. She believes the holidays will naturally cycle back around to a familial focus. Her optimism lessened my pessimism. Once again an instance where #CPChatNow participants remain there for each other!

This week's extend-the-conversation question asks, "What phrase or mantra helps you get through your bad days?"Keep the positivity going. Remember to answer the week’s extend-the-conversation question, “What phrase or mantra helps to get you through your bad days?” Reply below in the “Comments.”

Until next time, remember. Don’t blend in. Blend out!

-Zachary