#CPChatNow Recap- 1/18/23

This past week’s #CPChatNow had members bouncing all over the place with discussions of different topics such as hiking, podcasts, and how CP impacts their decision making. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, I would like to celebrate Zach progressing in his career at the library.

zach tweets he finished his branch service assistant training and he can now substitute at the reference desk

Next, talk turned to Timmy’s hobby of hiking and his essentials when he goes on a hike.

zach asks timmy what equipment he takes on his hikes. timmy says he has a 24 pound backpack with micro spikes, trekking poles, satellite personal locator device along with gummy bears

Next, Stephen asked what podcasts others listened to.

Stephen asks if people are fans of podcasts, i tweet i am fans of way too many with my favorite small town murder and wrestling and sports ones. Stephen tweets he likes on air with ryan seacrest and the ellen k morning show and zach tweets he listens to one or two, but he is a visual person so he mainly falls asleep to them.

Finally, Zach asks members how CP impacts their decision making.

zach asks how cp impacts members decision making. i tweeted about transportation or if i'm going somewhere and need to walk a lot. zach tweets about cp helping determine priorities with the first one being to take care of himself physically and prioritizing that guides decision making on what to do first.

This brings us to our Extend-The-Conversation Question: What are your favorite outdoor activities? Please share your answers in the comments and join us tomorrow at 8 Eastern on Twitter at #CPChatNow!

the extend-the-conversation question graphic with the question of what are your favorite outdoor activities with a a brown sign and an illustration of two figures hiking.


#CPChatNow Recap- 5/26/2021

This past week in #CPChatNow was fire as always. Members talked about their recent accomplishments, life insurance with CP, and their plans for the summer. It was evident that members are excited for COVID to be in the rearview mirror. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, I would like to recognize some members for their recent accomplishments. Timmy recently passed his qualifying exam to be a PhD candidate:

i ask timmy how he is doing. timmy tweets he passed his qualifying exam and is now a PhD candidate

Jorge also mentioned that he is about to graduate with his Master’s Degree from the University of Virginia:

jorge tweets t-2 weeks and then he wins the honors of honor which is graduating from the school founded by Thomas Jefferson
Jorge also tweeted about the unfortunate differences people with CP face when it comes to life insurance benefits:
jorge asked members if they knew due to cp that life insurance payouts would be reduced. zach asks what the reasoning is. jorge tweeted burden of care as not all cp cases remain stable. i tweeted that does make senes and guessed that is the case for a lot of stuff and wondered if i will get any money

Next, members talked about their varied plans for the summer.

i asked what everyone's plans are for the summer and that i'm getting married next week, veronica congratulated me and said she was stuck with the same date for way too many years, jen tweeted she doe not have much planned, zach tweeted he does not have much planned and that ohio is going back to normal june 2nd, he is planning to be cautious for about a month

Chris Johnson talked about the latest with his podcast, the Purple Knights Podcast, a podcast about Prince:

chris johnson tweeted he would like to keep up the momentum with his podcast and leave the single life behind, zach asked how he defined momentum, chris tweeted he wants to release episodes more often and continue to book well respected guests in the prince community and he has gotten some great ones lately. zach tweets he feels defined goals are easier to maintain

Finally, Chris tweeted about finishing her Master’s:

chris tweeted she is hoping to continue her masters and have it done by christmas

This brings us to our Extend-The-Conversation Question: What is your biggest goal for the summer?

Thanks for reading and join us each Wednesday at 8 Eastern time on Twitter at #CPChatNow


#CPChatNow Recap- 9-30-2020

The last #CPChatNow of September was busy as always! Members discussed things such as their art, podcasts, and keeping themselves on track with what they needed to do. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, #CPChatNow mama bear, Erin, talked about her art. Erin would like to use her art to inspire people.

erin tweets she is doing paintings to build an etsy store. erin tweets she is mainly doing landscapes and has backgrounds for be yourself; everyone else is taken and happy fall.
erin shares last week's painting, a painting with a sky at sunset. there is a brown path with dark green landscapes on both sides

Next, talk turned to Chris’s upcoming talk at a CP conference about his podcast, a podcast about his favorite musician, Prince.

chris tweets he is talking about how he is recording and editing his podcast while sharing stories of his favorite guests and episodes, zach asks who his audience is and states that can be helpful in deciding what to share. chris tweets his audience is people with cp, friends and families and healthcare professionals
chris explains his podcast is on his favorite musician, prince. he is going to explain how prince inspired him to put his voice out there and talk about what he loves. i shared i felt prince would love that and that's what he is all about.

Finally, talk turned to something that is a struggle for many, especially during quarantine, staying on track.

erin tweets staying on task is her biggest struggle, zach tweets he has a similar issue due to him jumping from task to task, he needs to remind himself to focus on one thing, erin tweets she makes daily goals and tries to remove distractions, zach tweets he is working at the library to remove distractions

This brings us to our Extend-The-Conversation Question inspired by Chris’s podcast: What is your favorite Prince song? Share your answers in the comments!

Thanks for reading! Join us each Wednesday at 8 Eastern on Twitter at #CPChatNow!


#CPChatNow Recap- 7/15/20

This past week in #CPChatNow was cracking as always. Members discussed various topics like their brags for the day, creating their own podcast, life hacks, and what part of the day they feel at their best.

Zach opened the conversation by asking members what their brag for the day was. He shared that his book is now offered at the library he works at:

zach tweets he spotted his book while working at the library. an image of zach's book on a book shelf between two books.

My brag was advocating to my apartment to finally finish a wheelchair ramp on a sidewalk:

i tweet my brag is advocating to my apartment to finally finish a wheelchair ramp. an image of a wheelchair ramp by a pickup

Travis tweeted about starting his podcast, Off The Crutch.

travis tweeted about starting his podcast, off the crutch. he came up with the name because he uses forearm crutches.

Amanda tweeted a Buzzfeed article with tips for people with limited mobility. This might be helpful for some people with CP.

amanda shared a video from buzzfeed about 35 tips from people with limited mobility

Finally, members discussed what part of the day they felt the best at:

zach asked what part of the day people feel their best at. zach tweets he would've said 7-10 pm in college, but now he said in the morning. i tweeted right after i take a shower, veronica tweeted in the early afternoon.
karen tweeted she feels better at night because she is still sleepy in the morning so she has less balance.

This brings us to our Extend-The-Conversation: What is your favorite part of the day?

the extend the conversation question graphic. a picture of a sunset with a person standing in front of the ocean. extend-the-conversation question in white with what is your favorite part of the day? and the white #cpchatnow logo in the bottom right hand corner

Thank you for reading and join us each Wednesday at 8 Eastern on Twitter at #CPChatNow