#CPChatNow Recap- 7/20/2022

This past week in #CPChatNow was buzzing as always. Members discussed having COVID, annoying comments they receive in public, and their goals for the rest of 2022. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, I would like to share a story that Spectrum 1 News in Cleveland did about #CPChatNow co-host, Zachary Fennell, that I was happy to participate in. The story was about his time as a marathoner and his book Slow and Cerebral.

zach shares the spectrum 1 news story about him walking and running and his new book slow and cerebral. there is an image of zach in green shirt and blue baseball cap with blue shorts walking

Next, various members have discussed issues they are having with COVID. I discussed the difficulties with my lingering cough and balance.

Next, Zach talked about member’s goals for the rest of the year:

zach asks about goals for 2022 and tweets he would like to do recaps in a more timely fashion, updating facebook/website cover photos, posting to facebook page more
i tweet my goals are to be more patient and to be a better husband, zach tweets patience is something everyone can be better with and asks whether i can spend more quality time or be a better listener.

Finally, Zach asked how often members experience annoying comments about their disability.

zach asks how often members experience annoying comments, blemi tweets every time she is out in public and zach expressed surprise, i tweeted i do not too much, but maybe because i'm used to it or a wheelchair is more accepted

This brings us to our Extend-The-Conversation-Question: What are your strategies for dealing with annoying comments? Please join us tonight on Twitter at #CPChatNow at 8 Eastern!

-Devin

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#CPChatNow Recap- 4/28/2021

This past week in #CPChatNow was cracking as always. Members discussed impacts from COVID vaccinations, strategies for trimming their toenails, and their latest book recommendations. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap!

Veronica and Zach both described the side effects they had experienced from their second COVID vaccination shots. If you’re interested, you can find more information about getting a vaccine appointment here.

zach asks veronica how her second vaccination shot went, veronica tweeted she was in bed for the entire day monday, but is getting better, zach tweeted the second dose gave him a fever and night sweats

People with CP and other disabilities often have to find creative ways to do everyday tasks. Zach asked members how they cut their toenails.

zach asks what position people use to cut their toenails. he tweets he sits on the floor with one leg at the side and the other one straight up and bent at the knee. i tweet i sit on the couch for back support and pull my legs up. blemi tweets she sits on the foilet and props her foot on the tub.

Finally, members talked about the books they were reading and other book recommendations.

i ask if anyone has any book recommendations. alessandro tweeted the ables, a story about superhero kids with different disabilities.
You can find The Ables here.
audacity magazine recommended the josie prescott series.

Finally, Zach tweeted that Amanda Leduc’s book, Disfigured: On Fairy Tales, Disability, and Making Space, is on his to read list.

Zach tweeted that Amanda Leduc's book, Disfigured: On Fairy Tales, Disability, and Making Space, is on his to read list

This brings us to our Extend-The-Conversation Question: What is your favorite book you have ever read? Please share your answers in the comments!

extend-the-conversation question graphic, orange, blue, and green #CPChatNow logo in upper right hand corner, what is your favorite book you have ever read? above a picture of vintage books stacked, #CPCHATNOW in white text with a green background on the border

Please share your answers in the comments and join us each Wednesday at 8 Eastern on Twitter at #CPChatNow!

-Devin

#CPChatNow Recap- 11/11/2020

This past week in #CPChatNow was lively as always. Members discussed what they are doing to cope with the continued rise of COVID, their favorite holiday traditions, and more! This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, members discussed what they have been doing to handle the continued march of COVID. Zach and Tonia discussed their recent effort towards writing their novels.

zach asks if everyone is staying safe and healthy, tonia tweets she is quarantining like a boss, zach asks if #NaNoWriMo is helping by keeping her focused, tonia tweeted that it is and it is summer in her story.

Members next discussed the new normal that has become our reality with COVID. Talk turned to how masks are now seen as an expected thing that people wear. Dave also tweeted that masks have been an accepted part of everyday life in other countries for a long time.

zach tweeted he is doubtful we will ever return to a covid normal, dave tweeted it will be a different normal, zach tweeted he expects face masks to be just another article of clothing and they will be required like pants, blemi tweets this is how it should be, zach tweets indecent exposure will now include nostrils and mouths

Next, Zach asked if members felt they could have multiple best friends. Jen tweeted she felt people could and Zach tweeted he has best friends from different aspects of his life:

zach asks if members feel they can have multiple best friends, jen tweets she feels that you can, zach tweets he has best friends from different aspects of his life like high school and college

Finally, we discussed our favorite holiday traditions.

i asked what members favorite holiday traditions are. i joked mine is asking blemi why canada doesn't have thanksgiving on thursday so they can get a 4 day weekend. blemi tweeted she loves christmas, being with family, and christmas lights. she tweeted it is also her birthday and that should be a holiday. chris tweeted she gets starbucks holiday drinks and cooks something nice for dinner.

Zach shared a tradition that definitely makes me jealous (and hungry!).

zach tweets his favorite tradition is an italian fish dinner on christmas eve, zach tweeted they have a variety of fish dishes: shrimps, smelts, cod balls, spaghetti and clams, and lobster

This brings us to our Extend-The-Conversation Question: What is your favorite holiday tradition? Please share your answers in the comments!

extend the conversation question graphic. #CPChatNow logo in the upper right hand corner, extend-the-conversation question in green. what is your favorite holiday tradition? below is an image of a calendar with holiday written in red marker and circled on the 25th.

Please make sure to join us each Wednesday at 8 Eastern on Twitter at #CPChatNow!

-Devin

#CPChatNow Recap- 09-16-2020

In 2020 a lot has changed, but for those in the #CPChatNow community one constant remains. Our weekly cerebral palsy Twitter chat, (Wednesdays, 8pm ET)! To tell you about what we discussed Wednesday, September 16th, 2020 I am chat co-host Zachary Fenell. Welcome to your weekly recap!

Fittingly, much discussion throughout the night revolved around the issue causing the previously mentioned changes.

AcquiDis tells the #CPChatNow community about Australia's COVID protocols.

Just in case I need to clarify, yes. I am referring to the global COVID pandemic. Relative newcomer to the chat, AcquiDis, helped us gain a global outlook on the pandemic by sharing how Australia continues to respond. Thanks to AcquiDis, we learned Australia and the United States maintain similar protocols. For example, dining venues reopening in a limited way and allowing small gatherings.

While countries continue restoring civil liberties, remember. The COVID threat still lingers. A reality evident during our discussion September 16th.

#CPChatNow participants discuss how having a disability has helped prepare them for the pandemic.

Chat OG Erin offered this stark reminder when sharing a CP sister tested positive for COVID. Furthermore, my co-host Devin Axtman recalled a recent close call.

Devin shares a close call his brother had with someone who tested positive for COVID.

Devin encouraged mask wearing, noting his brother tested negative for COVID after sitting for hours next to someone who tested positive. A result Devin attributed to his brother wearing a face mask. Unfortunately, not everyone seems so convinced to wear face coverings.

#CPChatNow participants discuss wearing face masks.

In-particular Devin noted seeing more and more people without masks. Personally, my employer requires mask wearing. A policy most customers understand.

Besides protecting your health, face masks additionally offer the chance to display your personality. Answer as the week’s extend-the-conversation question, “What does your favorite face mask look like?” Answer below in the “Comments” section.

Once you finish answering, mark your calendar as a reminder to join us each and every Wednesday on Twitter for #CPChatNow. The fun begins at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

This week's extend-the-conversation question asks "What does your favorite face mask look like?"
Answer below!

#CPChatNow Recap- 08-12-2020

This past week in #CPChatNow was bouncing as always. Members discussed adventurous things they had done in the last week, features of architecture, and aspects of their CP they have had to reconcile. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, Zach asked members what adventurous things they had done in the last week. Members tweeted various things that really are not that adventurous, but seem adventurous and risky in this COVID pandemic.

zach says his last few days have been adventurous with a fall at a new library branch and he signed up for the race across ohio. he tweeted that he was ultimately fine after the fall
chris tweeted she got her bacolfen pump refilled. heather tweeted she got an MRI that is rescheduled and she found what she needed at canadian tire

Next, my friend who is an architect happened upon #CPChatNow and we discussed my preference of ramps versus lifts.

i quote tweeted a thoughts of dog tweet proclaiming that stairs are ridiculous. my architect friend asked if i prefer a ramp or lift stating ramps take up space where lifts save space but are ugly and hard to use. i tweeted i prefer ramps because i can use them independently and not get stuck

Finally, Zach asked members what they had struggled to reconcile with their CP.

zach asked what parts of cp people had a hard time reconciling.

Members discussed various difficult parts of reconciling their CP such as other’s perception and physical difficulties:

zach shares he used to be embarrassed about people being different, but regrets from high school allowed him to be ok with being different, chris tweeted they don't tell you about the pain and tweeted she is thankful about her pump, I tweeted I felt like I needed to behave a certain way like walking instead of using my wheelchair

This brings us to our Extend-The-Conversation Question inspired by Chris. What would you tell your younger self about CP? Please share your answers in the comments and join us each Wednesday at 8 Eastern at #CPChatNow.

orange, blue, and green #cpchatnow logo in the upper right hand corner, extend-the-conversation question in green with What would you tell your younger self about CP? below in black, a picture of a white rock with wisdom in black text sitting on a brown ground, #cpchatnow in white text with a green background

-Devin