This past week in #CPChatNow was buzzing as always. Members discussed what they did for CP Awareness Day, the lack of research for adult treatments for CP, and what they are looking forward to this Spring. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.
March 25th was World Cerebral Palsy Awareness Day. Veronica Hosking wrote a haiku talking about the lack of research into adult treatments for CP:
Veronica’s haiku sparked further conversation about the lack of research into adult treatments for CP.
Also, Zach shared photos of himself in a Riddler costume and said he was going to do a video of if the Riddler had CP. Check it out!
Finally, Zach asked what members are looking forward to this spring.
This brings us to the Extend-The-Conversation Question: What do you wish medical professionals knew about Cerebral Palsy?
Thanks for reading and please be sure to join us each Wednesday on X at 8 Eastern!
Last week in #CPChatNow was hopping as always. Member discussed nostalgia, video games, and what they love about themselves. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!
First, members discussed things that bring them nostalgia.
Next, Stephen tweeted about how he was looking forward to the summer and the upcoming college football game.
Finally, members expanded on the Valentine’s Day spirit and tweeted what they liked about themselves.
This brings us to our Extend-The-Conversation Question. I would like to go back to our nostalgia conversation. What is your favorite childhood memory? Mine is going to a Green Bay Packers game. Please share your memories in the comments.
This past week in #CPChatNow was a happening as always! Members discussed their accomplishments for the month, grad school, and building self-confidence. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.
First, members discussed things they had been doing this month.
Veronica expanded more on the CluedUpp game she played. It sounds fun!
Next, Chris talked about how she had started grad school and it was an adjustment from undergrad.
Finally, Zach asked how members built their self-confidence.
This brings us to our Extend-The-Conversation Question: What adventures would you like to go on?
Thanks for reading and join us each Wednesday at 8 eastern on X at #CPChatNow.
This past week in #CPChatNow was a lively chat as always. Members discussed disability on job applications, Youtube rabbit holes, and songs for a musical about Cerebral Palsy. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride of this week’s recap. All aboard!!
First, Heather talked about a new job she got that had been proactive about accommodations. This led to a discussion about questions about disability on job applications.
This led Zach to ask about disability law in Canada where Heather hails from:
Next, talk turned to members falling down Youtube rabbit holes.
Finally, talk turned to what songs and musicians would appropriate for a musical about Cerebral Palsy.
Thanks for reading and join us tonight at 8 Eastern on Twitter at #CPChatNow!
This past week in #CPChatNow was positively jumping. Members discussed their appearance on a podcast and the intersection of disability and mental health. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!
First, Veronica tweeted about her haiku being featured on the podcast, Haiku Pea Podcast. Way to go, Veronica!
Next, October 10th being World Mental Health Day sparked conversation about the intersection of disability and mental health.
Zach did a great video on the impact of CP on his mental health. Members talked about the importance of talking about the positives of mental health.
This brings to our Extend-The-Conversation Question: What are your strategies to maintain positive mental health?
Thanks for reading! Please join us each Wednesday at 8 Eastern on Twitter at #CPChatNow!
This past week in #CPChatNow was popping as always. Members discussed their favorite sport, which body parts are most impacted by their spasticity, and Zach discussed his new book! I’m your co-host, Devin Axtman. Strap in for the #CPChatNow recap! All aboard!
First, I would like to recognize progress on Zach’s new book about his efforts towards becoming a marathoner. Zach announced that the proof copies of his book are almost ready:
Sports were a big topic with the Super Bowl coming up. Members discussed their favorite sports with Chris talking about racing and its commitment to accessibility:
Finally, members discussed the parts of their body that are most impacted by spasticity and what they do to cope.
This brings us to our Extend-The-Conversation Question: What is your favorite life hack to help cope with your CP? Please share your answers in the comments and join us each Wednesday at 8 Eastern at #CPChatNow on Twitter.
Every Wednesday participants in the live cerebral palsy Twitter chat #CPChatNow gather to enjoy comradery and conversation. Wednesday, September 1st, 2021 proved no different. To tell you more, I am chat co-host Zachary Fenell. Welcome to your weekly recap!
In addition to a night filled with engaging discussion, September 1st marked the start of an annual challenge.
That challenge, Steptember, arose in the discussion September 1st thanks to chat regular Veronica. Steptember challenges individuals to move 10,000 steps a day throughout September. All a way to help fundraise for life-changing scientific advances for the CP community. To learn more, visit steptember.us.
Veronica wondered if anyone planned to participate in Steptember 2021. I quote tweeted her and noted another participant Timmy approached me about starting a #CPChatNow Steptember team. I declined the idea this year because I am still healing from my groin strain. However, next year I say game on!
Needing to put off a #CPChatNow Steptember team until 2022 due to injury could cause “Life isn’t fair” thoughts to form. Another popular topic from our September 1st Twitter chat.
Inspired by long-time chat regular Blemi‘s Youtube video “Having Sad Days with Cerebral Palsy,” I asked participants “How often do you find yourself thinking ‘Life isn’t fair’ and how do you cope with the feeling?” Blemi and I discovered similarities in our answers. We both had the thought more when younger, but specific frustrations can still trigger sad days. Learning to come to terms with CP has helped a lot to cope with the down days.
What about you? Keep the conversation going and answer as the week’s extend-the-conversation question “How often do you find yourself thinking ‘Life isn’t fair’ and how do you cope with the feeling?” Leave your answer in the “Comments” section.
Afterwards, mark your calendars to join us at #CPChatNow each and every Wednesday on Twitter. The fun begins at 8pm ET.
Participants in the weekly cerebral palsy Twitter chat #CPChatNow gathered for a lively conversation Wednesday, July 7th, 2021. Here to tell you more, I am chat co-host Zachary Fenell. Welcome to your recap.
Various topics came and went throughout the evening July 7th. Early in the night dialogue revolved around the upcoming Paralympics.
Admittedly, I raised the Paralympic topic when tweeting a BBC News story, “Tokyo Paralympics: Most of Channel 4’s TV hosts will be disabled.” In my tweet, I asked what others thought about Channel 4’s pledge to have more than 70% of its Paralympic presenters be disabled. My co-host Devin Axtman responded, calling the move “much needed.” I agreed, saying involving disabled voices should help prevent an ablest narrative.
Your turn! What do you think? Answer for the week’s extend-the-conversation question, “What do you think of Channel 4’s pledge to have more than 70% of its Paralympic presenters be disabled?” Leave your answer in the “Comments” section.
Continuing on, chat regular Chris and I found ourselves discussing athletes who had to persevere through much adversity. A subject which led me to pose another question.
I asked participants “When facing tough times, what quote or advice do you tell yourself in order to keep persevering?” Long-time regular Blemi responded “Never give up on your dreams,” a quote from Rick Hansen Man in Motion. Meanwhile Alessandro replied “Do or do not. There is no try.”
Putting Alessandro’s chosen advice into action, do remember to answer the week’s extend-the-conversation question. Again, the question asks “What do you think of Channel 4’s pledge to have more than 70% of its Paralympic presenters be disabled?”
Reply in the “Comments.”
Afterwards, set yourself a reminder to join #CPChatNow each and every Wednesday, starting at 8pm ET. Or, tweet me and ask me to include you in my weekly #CPChatNow reminder tweet. Until our next correspondence, remember. Don’t blend in. Blend out!
This past week in #CPChatNow was popping as always. Members discussed their favorite Halloween candy, what they do to manage pain, and their favorite part of November. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.
First, members discussed their favorite Halloween candy. I also shared my negative thoughts about candy corn.
Next, Zach and Casey discussed how they managed pain:
Finally, Zach asked members what their favorite part of November is. Members discussed the election being over and writing their novel.
This brings us to our Extend-The-Conversation Question: What is your favorite part of Fall?
Thanks for reading and join us each Wednesday at 8 Eastern on Twitter at #CPChatNow.
This past week in #CPChatNow was bustling as always. Members discussed personal accomplishments, COVID restrictions in Australia, good deeds, and what social media platform they like. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.
First, we would love to congratulate #CPChatNow mama bear, Erin, on her acceptance to a Master’s program:
#CPChatNow has had a member joining us from Australia. AcquiDis detailed COVID restrictions in place in the land down under.
Next, talk turned to good deeds as I shared the story of my bus driver taking me to the train station at the end of her route. Members shared good deeds others had done for them or they had done:
Finally, Zach and Chris tweeted about what social media platform they were most active on:
This brings us to our Extend-The-Conversation Question: What is your favorite good deed you have ever done or someone else has done for you? Please share your answers in the comments!
Please join us each Wednesday at 8 Eastern on Twitter at #CPChatNow! Thanks for reading!
#CPChatNow 