#CPChatNow Recap- 8-14-2019

This past week in #CPChatNow was buzzing as always! Members talked about various things such as therapy they enjoyed over the years, learning to fall, and disaster preparedness with a disability. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, we start with a dreaded subject when you have CP, falls. This was sparked by a post in The Mighty about falling. Members discussed things such as learning to fall and their fear of falling. Hannah learned to fall so well she taught others!

Zach asks if members have been afraid to fall. Hannah tweeted she never feared it and she taught a teacher's daughter how to fall

Zach shared his fears about falling were largely about messing up large events. I shared I had to wear wrist guards due to fear of hurting myself. Heather did not have to worry about this since her mom is a nurse:

Devin tweets he's not afraid, but mindful, zach tweets his fears are screwing up big events, I tweet that I wore wrist guards on the playground. Heather tweeted she did not, but her mom is a nurse.

Zach had a security meeting at work with problematic representation about those with disabilities in an active shooter situation. Chris tweets about experiencing similar things and disaster planning for earthquakes:

Zach had a security meeting at work with problematic representation about those with disabilities in an active shooter situation.  Chris tweets about experiencing similar things and disaster planning for earthquakes

Zach and Shira tweet about the active shooter preparation video with Zach expressing dismay about the portrayal of wheelchair users. Zach and Shira tweeted about how you might experience issues with speed if you are trying to escape an active shooter situation in a wheelchair:

Zach and Shira tweet about the active shooter preparation video with Zach expressing dismay about the portrayal of wheelchair users.  Zach and Shira tweeted about how you might experience issues with speed if you are trying to escape an active shooter situation in a wheelchair
Zach tweets about getting nervous under pressure and then states he might surprise himself, but both agree they hope they never have to find out

We have talked about some heavy things in this recap, so I would like to end by focusing on a lighter topic. Therapy is a constant in many people’s lives with CP. Zach focused on therapy that was effective for us. Grace and I discussed horse therapy:

Zach tweets and asks about a therapy that helped you. I tweeted I loved horse therapy and Grace tweeted she had it from 6-18. Zach tweets he had PT on a weekly basis from 3 until starting college.

This brings us to our Extend-The-Conversation Question: What was your favorite moment in therapy? Please share your answer in the comments and join us each Wednesday at 8 Eastern at #CPChatNow on Twitter.

A picture of a woman jumping and smiling before a purple sky. What was your favorite moment in therapy? is above her head in white and Extend-The-Conversation-Question is below her in white with a white #CPChatNow in the lower left hand corner.
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#CPChatNow Recap- 08-07-2019

Every Wednesday participants in the live cerebral palsy Twitter chat #CPChatNow enjoy camaraderie. They celebrate each other’s successes and offer empathy during challenging times. Wednesday, August 7th, 2019 proved no different. To tell you more, I am co-host Zachary Fenell.

Shortly after 8pm ET members began joining the conversation.

#CPChatNow participants discuss the Canadian holiday Heritage Days.

A holiday weekend caused long-time chat regular Blemi to almost miss the chat. Thankfully her mind reminded her that yes indeed, the day is Wednesday. I inquired about the reason for her long weekend and she explained the Canadian holiday Heritage Days. The holiday celebrates the different cultures and customs that make up Canada.

Meanwhile a fellow long-time chat regular Hannah looked ahead to another celebration.

Hannah receives early "Happy Birthday" wishes from #CPChatNow.

Although she felt rough, Hannah stopped by to say hi. With her birthday days away Hannah hoped to feel better next week. My co-host Devin Axtman wished Hannah an early happy birthday.

To keep the celebratory birthday theme going, answer for the week’s extend-the-conversation question, “What is the most memorable birthday gift you have ever received?” Leave your answer in the “Comments” section.

Continuing on, the reasons to celebrate kept piling up.

The co-host formerly known as Blake finds himself on Blake Street.

Co-host Jorge Oteiza, also known as Blake Henry, apparently came across a street named after him. Ha, ha!

Resuming seriousness though, passionate chat regular Chris possessed a great reason to celebrate.

Chris shares an exciting life update.

In some exciting news Chris shared she will start grad school October 1st. She plans to study instructional design. Fantastic!

I bet “Fantastic!” additionally works to describe your answer to the extend-the-conversation question. Again, this week’s question asks, “What is the most memorable birthday gift you have ever received?”

Share below in the “Comments” section. Then mark your calendar to join #CPChatNow each and every Wednesday. The fun begins at 8pm ET!

Until then, remember. Don’t blend in. Blend out!

-Zachary

This week's extend-the-conversation question asks "What is the most memorable birthday gift you have ever received?"
Respond by commenting below.

#CPChatNow- 7/31/2019

This past week in #CPChatNow was buzzing as always. Members talked about a recent Micah Fowler interview, a computer mouse versus a track pad, coffee mugs, and also a peanut butter debate. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, Speechless continues to be a popular topic during the chats. Forbes had a recent interview with Micah Fowler that is definitely worth checking out. The interview sparked discussion during the chat about how Speechless handled family and disability.

zach tweeted his enjoyment of the interview question about how speechless dealt with family. i tweeted about how my favorite episodes were how the show focused on how cp impacts other siblings. zach tweeted his appreciation of the show's honesty particularly the bonfire episode

Next, debate turned to whether members prefer a trackpad or a mouse with opinions mixed between a trackpad and a mouse.

zach asked if people like a trackpad or mouse. blemi said trackpad. i commented i like apple's trackpad because you can move the cursor and click all on the trackpad
jeni tweets she lost homework assignments because of trackpads due to her heel of her palm hitting the trackpad

Also, #CPChatNow weighed in on the age old debate, smooth or crunchy peanut butter.

Next, Zach asked members how they handle their coffee mug. Blemi and Shira responded they handle both the handle and the mug.

Zach asked if members held the coffee mug handle or cup.  Blemi and Shira responded they handle the both the handle and the mug. blemi said she doesn't take chances after spilling hot liquids

Zach shared he uses travel mugs because they do not get hot and they have lids to prevent spills.

Zach shared he uses travel mugs because they do not get hot and they have lids to prevent spills

This brings us to our Extend-The-Conversation Question: What common items not designed specifically for accessibility do you use to meet your access needs?

Thanks for reading this week’s recap! Join us each Wednesday at 8 Eastern at #CPChatNow on Twitter.

-Devin

#CPChatNow Recap- 07-24-2019

Wednesday, July 24th, 2019 participants in the live cerebral palsy Twitter chat #CPChatNow displayed a problem solving attitude. Tasks CP can make difficult arose during the conversation. Others responded, suggesting potential solutions. I am co-host Zachary Fenell, here to tell you more the best way I know how. Through your weekly recap!

Long-time chat regular Blemi shared earlier in the day a spastic moment while using a knife almost sent her to the ER. This left me curious. So I asked participants to share their worst experience with a knife.

#CPChatNow participants discuss knife safety.

Veteran knife user Jake Jordan also showed curiosity. Though, his interest involved wondering what Blemi was cutting and with what type of knife. Those answers would help identify whether she could use a safer tool in the future.

Additionally Jake offered safety tips for using a knife. One such tip, cut away from yourself. A sentiment Blemi echoed, saying “Ya always cut away from yourself!”

Speaking up, I said I can find cutting away from myself challenging. To give an example, I mentioned cutting a roll. Jake countered, advising I hold the roll on its side and cut downwards. Plus he noted to use the proper knife, a serrated one. With a serrated knife, you should apply as little force as possible.

While Jake proved quite knowledgeable about knives, our community also received wisdom from another participant.

Veronica gives some advice about cutting food.

Veronica enjoyed a pleasant realization that although she cooks a lot, she has managed not to cut herself. She attributes the success to doubling or tripling prep time. An excellent idea!

As Veronica and I continued talking, she revealed another useful tidbit. At a restaurant they will cut your food in the kitchen if you ask! Good to know, right?

Beyond cutting food, a second CP challenge surfaced amidst the dialogue.

Participants in #CPChatNow discuss changing bedding.

I momentarily excused myself to finish up some laundry, which I warned included bed sheets. Or, as my co-host Devin Axtman referred to them “the bane of CP.”

After members bonded over the struggle bed sheets cause, Jake once again offered a possible solution.

Jake linked to the mattress lifter, The tool could assist anyone who needs help lifting the mattress when putting bed sheets on. Perhaps you utilize a particular tool to make an activity easier. Let us know! Answer for the week’s extend-the-conversation question, “What is a tool you use to help make an activity easier?” Answer below in the comments!

Until next time, remember. Don’t blend in. Blend out!

-Zachary

Answer for the week's extend-the-conversation question, "What is a tool you use to help make an activity easier?"
Comment below to answer!

#CPChatNow Recap- 7/17/2019

Last week in #CPChatNow was popping as always. Members talked about a ramp for their pool, going to graduate school, the Netflix show Special, and why they would not crowdsurf in their wheelchair at a concert. I am Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

We start this week’s recap with a cool picture of Hannah’s new pool ramp (and the world famous Levi!). This is an awesome example of people working to provide access.

Hannah announces her backyard now contains a ramp to her pool. there is a picture of the ramp along with her dog.

Next, another #CPChatNow Co-Host came to the party. Jorge, also known as Blake, checked in. He is preparing for the GMAT to start graduate school.

jorge tweets about preparing for the gmat to start graduate school for an M.S. in Commerce

Seth checked in with his thoughts about the Netflix show, Special.

seth tweets about watching special on netflix, a show about a gay man with CP. He says it is a funny, adult look at a dysfunctional mother/son relationship

Finally, Zach tweeted a video of a man in a wheelchair crowdsurfing at a concert. Hannah and I both agreed we would not do so due to fears of what would what happen. Hannah shared a story about a drunk person kicking her scooter.

zach tweets a video about a wheelchair user crowd surfing. hannah and i agree we would not due to fears about what would happen and she shared a story of her scooter being kicked by a drunk person.

This brings us to our Extend-The-Conversation Question: What is the worst thing someone has done to your mobility equipment?

Thanks for reading and join us each Wednesday at 8 Eastern at #CPChatNow on Twitter!

-Devin

#CPChatNow Recap- 07-10-2019

To those who participate in the live cerebral palsy Twitter chat #CPChatNow, each week Wednesday provides a hub for community. A place to find emotional support, plus share similar interests, common experiences, and more! The July 10th, 2019 chat proved no different. Here with the details I am chat co-host Zachary Fenell. Enjoy your weekly recap.

Unfortunately for long-time chat regular Hannah, health woes prevented her from participating July 10th.

#CPChatNow community members provide emotional support to long-time chat regular Hannah.

Community members responded to Hannah’s news by sending her sympathy. Meanwhile a power outage caused another long-time chat regular Jen to join late. Ironically the power outage helped to power the night’s discussion.

Participants began chatting about what they like to do when without power. I mentioned reading, but you can only read if enough natural light remains available. On that note, chat regular Shira brought up lighting candles. Jen said she couldn’t light a candle to save her life, instead preferring flashlights. I seconded the notion, saying flames and CP equal a nerve-wrecking combination. My co-host Devin Axtman further supported Jen’s flashlight preference.

Devin also prefers flashlights over candles.

Whether reading by flashlight, natural light, or another source multiple members in our community expressed a liking towards If At Birth You Don’t Succeed by Zach Anner. Personally, Anner’s raw honesty within If At Birth You Don’t Succeed wowed me.

#CPChatNow participants discuss If At Birth You Don't Succeed by Zach Anner.

If At Birth You Don’t Succeed stayed on my mind’s forefront as earlier in the week I finished reviewing the book for my website. Getting back to the chat though, Heather additionally gave the book praise.

Heather shares why she likes If At Birth You Don't Succeed by Zach Anner.

Heather found Anner “quite relatable and funny!” Your turn now! Keep the conversation going. Answer for the week’s extend-the-conversation question, “What cerebral palsy related book do you recommend?”

Leave your recommendation in the comments below! Then join the fun LIVE! Mark your calendar for #CPChatNow, every Wednesday on Twitter starting at 8pm ET!

Until then, remember. Don’t blend in. Blend out!

-Zachary

This week's extend-the-conversation question asks, "What cerebral palsy related book do you recommend?"
Answer by commenting below!

#CPChatNow Recap- 7/3/2019

It was the day before the 4th of July and #CPChatNow brought the fireworks as usual. Members talked about fireworks, disability podcasts, wheelchair seats at sporting events, and just how far you mind can help overcome your disability. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride of this week’s recap.

First, members talked about fireworks themselves. Fireworks are also known as the bane of existence when you have the Cerebral Palsy startle reflex.

Zach asked if fireworks startled members. Jen stated they do and Daryl Perry agreed

Next, Zach brought up the cool story of Peter Kline. He has completed 45 marathons with disabled rider athletes. Well done Mr. Kline!

Zach posts about Peter Kline completing 45 marathons with different rider athletes
Paul Miller and Addiengeorge tweeted their appreciation towards Peter Kline

I would like to highlight one of my favorite podcasts (disability or otherwise), the Disability Visibility podcast. The podcast is hosted by Alice Wong and looks at different issues surrounding disability:

I recommend the Disability Visibility podcast. Zach recognized the host, Alice Wong, from the #CripTheVote chats.

Next, members talked about wheelchair seats at sporting events. Chris is going to an Indy Car race in Portland in September. She talked about an organization, @halfaccess, where people can post about the accessibility of a venue.

Zach tweeted about going to Bowling for Soup but being concerned about standing room only conditions. I reported it sucked when other people stood up when I had wheelchair seats and newer stadiums with elevated seats tended to be better. Chris tweeted about an organization called halfaccess that catalogue accessibility

Finally, #CPChatNow was tagged in an intriguing question by @cpandm. They asked if it was OK to be frustrated by others saying, “The body will do what you decide to make it do.” In other words, whether it is OK to be frustrated by your mind not being able to will your body to do things.

I responded to @cpandm's question. They felt frustrated since they can't will themselves to walk. I posted that the body doing what the mind wants it to do is unrealistic and that the will can't overcome things.
Zach's answer was that every case is different and the realm of possibility is different and that we need to listen to our bodies.

This brings us to our Extend-The-Conversation Question: How do you know when your body is telling you you’re at your limit? Share your answer in the comments and join us each Wednesday at 8 Eastern on #CPChatNow.

Thanks for reading!

-Devin