#CPChatNow Recap- 12/19/2018

This past week in #CPChatNow was busy as always.  With the holidays coming up members talked about the difficulty of gift wrapping and the greatest gift they have ever given.  This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

First, members talked about the difficulty of wrapping gifts with CP:

Jen tweets about never wrapping gifts herself. Zach tweets that gift bags are the perfect solution and the need for a wrap battle for CPChatNow

Next, members talked about the greatest gift they have ever given with a variety of cool answers:

Zach asks what the greatest gifts members have ever given. I reply a Traeger grill and talk with Jake about how much he likes it

Blemi tweets about the leather journals she gave to Rob

I tweet about TEKS shoes I got for my mom and Paul tweets about a grandfather clock he got from his mom

Don’t forget our Hangout Thursday, December 27th and answer our Extend-The-Conversation Question: What is the best gift you have ever given someone?

Please share your answer in the comments.

-Devin

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#CPChatNow Recap- 12-12-2018

Participants in the live cerebral palsy Twitter chat #CPChatNow discussed various topics Wednesday, December 12th, 2018. As co-host I am tasked to neatly summarize all the different discussion into your weekly recap. Wish me luck!

“Good luck Zachary!”

Thank you! The extend-the-conversation question from the previous week’s recap stimulated early dialogue December 12th.

Participants in the #CPChatNow community discuss what they would make the theme song for their life with cerebral palsy.My co-host Devin Axtman originally posed the question during the December 5th recap. “What is the theme song of your life with cerebral palsy?” Blemi answered “She Moves in Mysterious Ways” by U2 while Devin himself responded “Won’t Back Down” by Tom Petty. Seth’s response meanwhile left him and I bonding.

Seth says the theme for his life with cerebral palsy would be "Iris" by Goo Goo Dolls.Seth replied “Iris” by Goo Goo Dolls. Personally I love that song. As I explained in the chat the lyrics “I don’t want the world to see me because I don’t think they will understand” strongly resonated with how I felt back in my timid days. Seth noted feeling the same way.

Continuing to provide a spark kindling chatter Devin raised another question.

Devin asked participants to share CP related holiday traditions.Devin asked whether anyone has CP related holiday traditions. He then named his. Devin’s family hangs the cabbage patch outfit Devin wore his first Christmas on their tree. Jeni Briere sympathized, recalling her older sister getting upset when their parents “stole” the sister’s cabbage patch kids clothes for Jeni to wear.

Simultaneously in answering Devin’s question I explored a separate aspect to holiday traditions.

Zachary turns the holiday discussion to accessibility.Diverting a little from the original query, I named Christmas Eve dinners at Grandma’s house as my favorite holiday tradition. Although not directly CP related, I explained Grandma’s home remained largely accessible helping to create an enjoyable environment. Devin especially empathized alongside one factor I mentioned, needing a table to eat. A need not all participants shared though!

Hannah says she does not need a table to eat at.Hannah vocalized she prefers not eating at a table, a preference she reasons extends back to rarely doing so when growing up. No matter your dining setting preferences, everyone could probably agree the holidays can represent a stressful time. Stress eventually rose to the conversation’s forefront.Zachary asks #CPChatNow participants how they avoid over exerting themselves. I asked how individuals keep themselves from over exerting themselves. Grace admitted she does not. Rather she counts on someone else to help keep her in check. Otherwise she will work herself to death or at least fall and/or encounter pain flares. Experiences I resonate with, mentioning I know I need to take a step back and refocus when my movements get extra sloppy.

What about you? Answer for the week’s extend-the-conversation question, “What signs indicate you are over exerting yourself?” Leave your reply in the “Comments” section.

Recognizing these signs stand vital. They allow you to better understand your limits, a subject Hannah knows too well.

Zachary and Hannah discuss the importance of knowing your limits.

This week's extend-the-conversation question asks, "What signs indicate you are over exerting yourself?"

Leave your answer in the comments!

Similar to Grace, Hannah confessed to lacking balance within her life. Serious health complications the disruption in Hannah’s situation. Hannah named learning she can’t push past her body’s limits stood the hardest lesson. Familiarizing yourself with how your body tells you “Enough” stays vital to avoid over exertion. So again answer as the week’s extend-the-conversation question, “What signs indicate you are over exerting yourself?”

Reply below in the “Comments.” Then remember to join #CPChatNow every Wednesday, starting at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

 

#CPChatNow Recap- 12-5-2018

This past week #CPChatNow was lit as always.  Members talked about claiming handicapped parking spots and what makes someone strong.  This week’s chat was also a unique chat as it was #CPChatNow’s 5th anniversary.  Members talked about positive effects from #CPChatNow and what they would make the official theme song of #CPChatNow.  This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

First, Blemi sparked an intriguing discussion by asking if she should feel guilty for claiming the only handicapped parking spot:

A discussion about Blemi asking if it was bad she claimed the only handicapped parking spot. I tweeted that she should never feel sorry for claiming access

Next, there was an enlightening discussion sparked by Shira’s tweet asking what members thought made someone strong in a community that is often seen as strong by default:

Shira tweeted asking about what makes someone strong. Zach tweeted about perseverance. Shira tweeted about people seeing the disabled community persisting through challenges. Zach tweeted that others probably do not agree on what is difficult

I added in the importance of attitude towards others:

Zach and I tweeted about the importance of attitude towards others in making someone strong

Zach asked about how #CPChatNow had been a positive and many members talked about a positive of finding community.  Cirán discussed the positive of his distrust of escalators being validated from a previous discussion about the dangers of using escalators with CP:

Ciran tweets about a positive of his childhood distrust of the escalator validated

Zach then asked members what they would make the official theme song of #CPChatNow:

Shira tweets Fight Song by Rachel Platten being the official theme song of #CPChatNow. Karre Sloan tweets I get knocked down by Chumbawamba

This brings to our Extend-The-Conversation Question: What is the theme song of your life with CP?  Please share your answers in the comments and join us each Wednesday at 8 Eastern on #CPChatNow on Twitter

Extend-the-conversation question in red with What is the theme song of your life with CP? in red as well. There is a black and white picture of a microphone with some knobs.

-Devin

#CPChatNow- 11-28-2018

This past week the #CPChatNow Cerebral Palsy Twitter chat was bumping as always.  Members talked about their holiday wish list, what they wanted to be when they grew up, and what they feel is the worst occupation for someone with CP.  This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

Not surprisingly, members’ holiday wish lists dominated the early conversation.  Members shared their gifts were becoming more practical as they aged.

Zach and Devin tweeted about holiday wish lists. Zach tweeted about a bright winter coat so people can see him and I shared I recently bought lights for my wheelchair

Next, members talked about what they wanted to be when they grew up as a kid.  There were definitely some amusing answers, but some also achieved their goal!

Zach tweets about wanting to be a Cleveland Indians player and then shifting his goal to becoming a writer. We talked about mourning not being able to play sports.

Zach and I had a common goal, playing baseball.  I had a little bit more lofty ambitions however, and Ayden would like to be the Leader of the Free World!

Ayden tweeted about wanting to become President

Zach asked about the occupations that members felt were the worst for people with CP. Dave shared some difficult positions he has had, a stagehand and line cook.

Zach and Dave tweet about bad occupations for people with CP. Dave tweets about stagehand and line cook being difficult on the knees

Heather won the unofficial title of Tweet of the Night with a tightrope walker being the worst occupation for someone with CP

Heather tweets that a tightrope walker would be the worst occupation

This brings us to our Extend-The-Conversation question: What was your dream job when you were growing up and did CP require you to change it?  Please share your answer in the comments and join us at #CPChatNow on Twitter at 8 Eastern each Wednesday.

The Extend-The-Conversation Question graphic. There is a tan background with a picture of a little girl daydreaming. What was your dream job when you were growing up and did CP require you to change it? is in red with the multicolored #CPChatNow logo

-Devin

#CPChatNow Recap- 11-21-2018

Before participants in the CPChatNow community gathered with loved ones to celebrate Thanksgiving, they assembled for the live cerebral palsy Twitter chat #CPChatNow Wednesday, November 21st, 2018. I am co-host Zachary Fenell, here to reminisce about the November 21st, 2018 chat the best way I know how. Your weekly recap!

Thanksgiving emerged as an early discussion topic thanks to my co-host Devin Axtman.

#CPChatNow community members discuss their favorite Thanksgiving foods.Devin asked people to share their favorite Thanksgiving food, naming pumpkin pie as his. Both Timmy and I experienced difficulty picking just one! Hannah meanwhile said mashed potatoes are her favorite, although this year Hannah looked forward to a special gluten free peanut butter cake her grandma made.

Aware not everyone celebrates Thanksgiving in November, I asked a question.

How the Canadian calendar lists American Thanksgiving.

On American calendars Canada’s Thanksgiving gets marked as “Canadian Thanksgiving.” I wondered if on Canadian calendars if they listed our Thanksgiving as “American Thanksgiving.” Timmy seconded my curiosity saying “Please tell us!” Heather DeYoe dropped in later to inform us Canadian calendars lists the day as “American Thanksgiving.”

Keeping to a Thanksgiving theme, we also discussed Thanksgiving family traditions.

Devin's family watches Christmas Vacation as a Thanksgiving tradition.Timmy's family Thanksgiving traditions are to eat, sleep, and repeat.

Devin shared his family watches Christmas Vacation on Thanksgiving. Meanwhile Timmy’s Thanksgiving tradition sounded quite enjoyable. He eats, naps, and repeats. I however need to patiently wait until Black Friday to eat. Since my mother works in retail, eating Thanksgiving dinner on Black Friday has become the Fenell family tradition.

Still I find Thanksgiving Day a reminder to show gratitude, which led to the next question.

Hannah is thankful to have survived 2018, even if that sounds cliche. I asked participants to share a 2018 accomplishment that they are thankful for. Hannah simply said surviving, given the difficult year she faced. What about you? Answer for the week’s extend-the-conversation question, “What is one accomplishment from 2018 you are thankful for?”

This week's extend-the-conversation question asks, "What is one 2018 accomplishment you feel thankful for?"Leave your answers in the “Comments” section below. Then come join the conversation LIVE Wednesday nights on Twitter, starting at 8pm ET.

Until then, remember. Do not blend in. Blend out!

-Zachary

#CPChatNow Recap- 11-07-2018

Names such as Ross, Monica, and Joey remained missing but nonetheless the live cerebral palsy Twitter chat #CPChatNow contained a Friends-like vibe Wednesday, November 7th, 2018. I am co-host Zachary Fenell, here to explain what that means. Do you want to guess the best way to achieve this objective? If you said a weekly recap, then give yourself a congratulatory pat on the back!

Friends offered a memorable opening with the cast dancing while The Rembrandts’ song “I’ll Be There For You” plays. Lyrics in-part include “It’s like you are always stuck in second gear when it hasn’t been your day, week, or even year. But, I’ll be there for you.” For multiple #CPChatNow community members, 2018 has been tough. The unfortunate trend continued into the November 7th, 2018 chat.

#CPChatNow participants join the chat after a long, tiring day.Early in the chat my co-host Devin Axtman admitted to feeling very tired. Long-time regular Hannah Pike seconded the exhaustion. Although not her day, month, or even year Hannah stood there alongside everyone, tweeting out a pick me up.

Hannah tweets everyone encouragement with the message "So far you've survived 100% of your worst days. You're doing great."The knowledge “So far you’ve survived 100% of your worst days. You’re doing great” helped Hannah get through the day. So she tweeted the quote to help lift spirits. Do you repeat a certain phrase or mantra to empower you past the tough days? Answer for the week’s extend-the-conversation question, “What phrase or mantra helps get you through your bad days?” 

Leave your phrase or mantra in the “Comments” section. Another way to get through challenging times involves laughter. During the chat November 7th we shared a few laughs together.

#CPChatNow participants joke about feeling old.The laughter arose when new lingo emerged as a topic. Long-time #CPChatNow participant Jen mentioned the new lingo, for example “woke” and “what’s the tea.” Responding I credited #CPChatNow for single-handedly keeping me in the know. Simultaneously I tweeted a GIF featuring an old man shaking his finger accompanied by the caption “When I was your age, television was called books.”

Replying Jen recalled the lingo from her days, technically our days since only a few years separate us. One in-particular caught youngling Shira’s attention. She said others still use “Talk to the hand” around her. I quipped talk to the hand is a classic because the face don’t want to listen!

Elsewhere in the chat the looming winter surfaced as a common subject.

#CPChatNow participants discuss the best and worst parts of winter.I posed the question, “What do you find the best and worst part of winter?” Devin called the cold the worst part and Christmas the best part. I agreed about the holidays, saying people slow down and spend time with loved ones. A bit pessimistic though, I wondered how long that would last commenting “Just look at what Thanksgiving has become!”

Offering some hope Shira shared an optimistic outlook. She believes the holidays will naturally cycle back around to a familial focus. Her optimism lessened my pessimism. Once again an instance where #CPChatNow participants remain there for each other!

This week's extend-the-conversation question asks, "What phrase or mantra helps you get through your bad days?"Keep the positivity going. Remember to answer the week’s extend-the-conversation question, “What phrase or mantra helps to get you through your bad days?” Reply below in the “Comments.”

Until next time, remember. Don’t blend in. Blend out!

-Zachary

#CPChatNow Recap- 10-31-2018

This past week’s #CPChatNow occured on Halloween and as you might guess, there was a lot of talk about Halloween and how it related to CP.  Members talked about costumes, trudging through the snow, and going up stairs.  Also, I burned my finger.  This is #CPChatNow Co-Host, Devin Axtman, and I’m taking you along for the ride on this week’s recap.

First, co-host Zachary Fenell tweeted about a cool Beetlejuice costume that incorporated a wheelchair.  Well done!

 

Zach tweeted about a costume incorporating a mobility aid. The image is the image of a kid's wheelchair being pushed by a parents and wearing a Beetlejuice costume with 2 characters sitting beside him

I shared my story of a burned finger due to an oven mishap and Zach and Hannah talked about difficulties with pot holders:

I talked about burning my hand while cooking and Zach and Hannah tweeted about loathing pot holders

Next, talk turned to Halloween and Zach’s question of the most difficult part about Halloween with CP.

Jen answered Zach’s question by stating it was difficult to get to houses that had stairs.

Jen answered Zach's difficult question with getting to houses with stairs

I talked about the difficulty of putting a costume on and Zach mentioned the difficulty of putting on face paint:

Zach and I tweet about the difficulty of putting on costumes. Zach mentions the difficulty of face paint with fine motor skills

Blemi then talked about the difficulty of having to trudge up and down the stairs in the snow:

Blemi said going up and down stairs in snow was difficult and she relied on her brother to get candy

This brings us to our Extend-The-Conversation Question: Halloween is part of participating in your community.  What improvements do you wish for that would make it easier to participate in your community?

Extend-The-Conversation Graphic- What improvements do you wish for that would make it easier to participate in your community? on the bottom along with various people holding COMMUNITY in multi-colored letters with the multi-colored #CPChatNow logo in the upper left hand corner

Please share your answers in the comments and join us tomorrow night at 8 Eastern time on Twitter.