#CPChatNow Recap- 04-01-2020

Throughout the night Wednesday, April 1st, 2020 participants in the live cerebral palsy Twitter chat #CPChatNow discussed various aspects related to the ongoing Coronavirus pandemic. Here with the details, I am chat co-host Zachary Fenell. Sit back and enjoy your weekly recap.

#CPChatNow participants discuss how they are holding up while practicing social distancing.

As I mentioned, this marked the third week practicing social distancing. I asked how everyone was coping. My co-host Devin Axtman noted his hamstrings getting tighter. Long-time regular Blemi replied she is getting weirder by the day.

Meanwhile Tonia described things for her as “pretty much business as usual.” She did express gratitude that her sister, who also has CP, received paid medical leave from her cashier job. Not everyone proves so fortunate.

Jorge checks in with #CPChatNow.

Essential member to our community and an essential employee to his community, Jorge Oteiza remains working. Although closed to the public, interaction with co-workers still leaves Jorge at higher risk to contract Coronavirus compared to those who can work from home.

Regarding staying home, the prior week’s extend-the-conversation question asking “How is CP impacting staying at home?” kept the dialogue moving.

#CPChatNow participants discuss how CP impacts them staying home.
Devin discusses how cerebral palsy helped to prepare him for staying home.

Props to Devin who first proposed the question in his March 25th, 2020 #CPChatNow recap. Tonia’s reply offered a great perspective. She stated staying home is good for her CP, noting the alternative would involve dealing with dangerous germs and/or exhausting herself.

Additionally, Devin provided new perspective. He mentioned staying home isn’t as big of a deal for him since he is used to staying home after surgeries. Essentially, you could say Devin’s cerebral palsy served as a positive in that way. To keep the positive vibes flowing, share some good news. Consider that this week’s extend-the-conversation question.

To answer this week's extend-the-conversation question, share some good news!

I think everyone could use the good news. So go ahead and share by leaving a comment below. Then remember to join us each and every Wednesday on Twitter, starting at 8pm ET.

Until then, remember. Don’t blend in. Blend out!



#CPChatNow Recap- 3-25-2020

This past week in #CPChatNow was interesting as always. Members discussed CP awareness, working from home, and famous people with CP. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

March 25th by coincidence happened to be Cerebral Palsy Awareness Day. Members discussed whether wishing people a happy CP Awareness Day was appropriate.

zach asked whether it's ok to wish someone a happy cp awareness day. heather asked why not. zach tweeted it feels weird and you don't wish someone happy breast cancer awareness. i asked why cp was bad. shira tweeted she did not feel it was good. zach tweeted it has positives and negatives.

Hannah also popped in to wish everyone a happy CP Awareness Day:

hannah said hi and wished everyone a happy cp awareness day.

Talked turned to the effectiveness of a common strategy for raising CP awareness, wearing green.

zach asked whether green is effective to raising awareness. i asked people know CP's color is green, heather tweeted she felt it was unknown by many, zach tweeted that people might notice something was happening if enough people were wearing green

Zach and I discussed positives and negatives of wearing green:

zach tweeted the positives for wearing green are seeing community and the negatives are what is actually learned. i asked about the negatives and he tweeted about the lack of substance in awareness.

Finally, talk turned to a common topic during the COVID outbreak, working from home.

i asked if people were working from home. zach asked if i liked it, linds tweeted that she was going to regardless of the pandemic, blemi tweeted she liked it and i tweeted there seemed to be less distractions.

However, Veronica tweeted about how the recent changes with the pandemic have impacted the availability of her work of scoring standardized tests:

This brings us to our Extend-The-Conversation question: How is CP impacting staying at home?

an orange, blue, and green #cpchatnow logo in the upper right hand corner, extend-the-conversation question in green with 'how is cp impacting staying at home?' below and a picture of a house with #CPCHATNOW in white with a green border behind

Please share your answers in the comments, join us at #CPChatNow at 8 Eastern each Wednesday on Twitter and most importantly, stay home and stay safe!


#CPChatNow Recap- 03-18-2020

While concern over the Coronavirus continues growing, the live cerebral palsy Twitter chat #CPChatNow offered participants familiarity and comfort Wednesday, March 18th, 2020. To tell you more, I am chat co-host Zachary Fenell. Get ready for your weekly recap.

In a time involving many changes to how we interact with each other, #CPChatNow required no such changes. You could say we help to make social distancing easier.

In his reminder to others about #CPChatNow Zachary notes the chat could help make social distancing easier.

Early conversation in the night revolved around how participants are holding up during these uncertain times. Something my co-host Devin Axtman asked directly.

Everyone appears impacted by the pandemic, although to different levels. Devin exhibited positive thinking, noting he has a job and hasn’t been affected as much as others so far. Both chat regular Chris and I demonstrated appreciation for any thread of normalcy.

Additionally, a blast from #CPChatNow past Jorge Oteiza popped in to share as essential personnel, he must continue working. Plus Jorge reminded us to thank mail carriers, doctors, nurses, and first responders next time we are safely six feet away.

Fittingly, Jorge called the six-feet distancing a “new reality.” Let us know how you are holding up in our new reality. Answer as the week’s extend-the-conversation question, “How are you holding up during the Coronavirus pandemic?” Leave your reply in the “Comments” section.

The Coronavirus pandemic influenced our dialogue a little longer as participant Tonia detailed a predicament Coronavirus has created for her.

Tonia and Zachary discuss Tonia's laundry predicament, a situation caused by the Coronavirus pandemic.

Between a shelter-in-place notice and no access to more quarters, Tonia only possesses the means to do laundry one more time. Higher ups at her building declined suspending the quarter requirement because a separate company owns the machines. I recommended Tonia and her neighbors contact the other company and voice their concerns.

After awhile the chat’s focus turned away from the Coronavirus pandemic. Much thanks to last week’s extend-the-conversation question!

#CPChatNow participants discuss what cerebral palsy related advice they wished their parents had.

Within the March 11th, 2020 recap, Devin posed the question “What piece of advice do you wish your parent would have known about CP or having a disability?” I answered “It is not about what you ‘can’ and ‘cannot’ do, but rather asking how could we do this?”

Devin on the other hand admitted not knowing how to best word his answer in a tweet. However, that his advice would entail the fact he felt his parents were a bit overprotective. This led to further discussion regarding parenting a child with cerebral palsy.

#CPChatNow participants discuss the different approaches of parenting a child with cerebral palsy.

As Devin and I discussed the parent’s perspective, Tonia reminded us not all parents overprotect. Some not knowing how else to interact, push their child to be non-disabled. An impossibility! Tonia noting both extremes cause harm.

Time to keep the dialogue chugging forward. Remember to answer the week’s extend-the-conversation question. “How are you holding up during the Coronavirus pandemic?” Let us know!

Let us know! How are you holding up during the Coronavirus pandemic?
Answer in the “Comments” section.

Until next time, remember. Don’t blend in. Blend out!