#CPChatNow Recap- 12/23/2020

This past week in #CPChatNow occurred on Festivus, also known as Christmas Eve Eve. Members discussed their grievances about disability, a recent blog post from Tonia, their dream robotic health companion, and more. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, I would like to take a moment to recognize #CPChatNow’s 7th anniversary! Thank you to everyone who has participated with us!

zach tweets he realized it is the chat's seventh anniversary earlier this month. there is an image of two clinking champagne glasses with happy anniversary written above the glasses

To mark Festivus, the annual airing of grievances, members shared their grievances about disability:

zach and i discussed our grievances about disability. i tweeted my primary grievance is the amount of time it takes up with longer commutes, more appointments. zach tweeted his grievance of winter making cerebral palsy more challenging

Next, a great blog post Tonia wrote about the frustration of when accessing basic needs is not basic sparked great conversation. I tweeted about my amazement that Pee Math has an actual name. Pee Math is a concept that disabled people in particular calculate how long they can be out before going to the restroom due to access needs and not always accessible bathrooms.

tonia tweets about her latest blog post, i tweeted about pee math and stated i didn't know it was a thing, but i do it when going out in large places, tonia tweeted she didn't know the name for it, but she does it as well

Zach shared his further thoughts on Tonia’s blog and praised her for being vulnerable.

zach tweets the post is emotional and praised tonia's courage, he agreed there is a difference between being there physically and emotionally, zach stated he grew frustrated nobody asked her how to make the kitchen more accessible and that she was blamed for not doing pt, zach asked if she had time limits for using the restroom, tonia tweeted there were not time limits, but they went between classes or risked missing material

Finally, Zach was inspired by the movie Big Hero 6 to ask what members would prefer in a personal robotic healthcare companion.

zach asked members what they would want a personal healthcare companion to assist with after being inspired by the movie big hero 6. there is an image of baymax in a red and blue suit. i tweeted i want my own personal driver/transportation device, chris tweeted she wanted robotic lungs when first diagnosed with asthma, but she would now like a robotic immune system so she could program so she wouldn't be so sick

This brings us to our Extend-The-Conversation Question: What disability related task do you wish could be automatically performed for you?

the extend-the-conversation graphic: #CPChatNow logo in the upper right hand corner, extend-the-conversation question in green above What disability related task do you wish could be automatically performed for you? in black, a picture of a white hand writing a to do list on top of a calendar, #CPCHATNOW in white text against a green background

Thanks for reading and please join us each Wednesday at 8 Eastern on Twitter at #CPChatNow!

-Devin

#CPChatNow Recap- 11-27-2019

Before gathering with loved ones to celebrate Thanksgiving, participants in the cerebral palsy Twitter chat #CPChatNow gathered on Twitter Wednesday, November 27th, 2019 for our weekly chat. To tell you more, I am chat co-host Zachary Fenell. Long-time readers could easily guess how I plan to tell you more. Yes, your weekly recap!

First though, I wish to recognize a recent community milestone.

Tuesday, December 3rd, 2019 marked #CPChatNow's six-year anniversary!
Participants wish each other a happy anniversary.

Tuesday, December 3rd, 2019 marked our community’s six-year anniversary. Six years! A feat only made possible thanks to all our participants over the years. Without you, #CPChatNow does not work. So thank you!

Fittingly on Wednesday, November 27th co-host Devin Axtman made a reference dating back to the chat’s early years.

References from #CPChatNow's early years continue to live on!

Devin mentioned the “CP Olympics.” In the community’s early years we designated ordinary tasks cerebral palsy makes difficult as events in the “CP Olympics.” In my response to Devin’s tweet, I alluded to another long-running #CPChatNow joke. Hannah‘s train story! That story continues to chug along. Choo-choo!

Anyways Wednesday, November 27th featured subject matters beyond community flashbacks. In-particular I asked a question.

Zachary asks #CPChatNow about their favorite CP or disability related quote.
Devin gives backstory to his favorite disability related quote.

I wanted to know what people’s favorite CP or disability related quotes are. Long-time regular Blemi shared her favorite quote “Never give up on your dreams.” The message carries personal meaning to Blemi because Rick Hansen wrote the quote down for her on a Post-it note.

Meanwhile Devin said his favorite disability related quote goes like this. “My other disability is a bad attitude.” He could not pinpoint the quote’s origin but explained the quote remains a play off the oversimplified statement “The only disability in life is a bad attitude.”

What about you? Answer as the week’s extend-the-conversation question, “What is your favorite CP/disability related quote?” Leave your response in the “Comments.”

This week's extend-the-conversation question asks, "What is your favorite CP/disability related quote?"

If you enjoy answering the extend-the-conversation question, come join the conversation live! #CPChatNow happens every Wednesday starting at 8pm ET. Come help us make new memories as we enter the chat’s seventh year.

Until next time, remember. Don’t blend in. Blend out!

-Zachary