#CPChatNow Recap- 07-06-2022

Accessibility emerged as a dominant theme during the weekly cerebral palsy (CP) Twitter chat #CPChatNow Wednesday, July 6th, 2022. Let me, chat co-host Zachary Fenell, tell you more. Consider this your boarding call to hop aboard the recap train. Choo, choo!

On second thought, I should probably refrain from using a train reference here. I say that since I am a week late posting this recap. Enough dwelling over metaphorical details, though. We do not want our focus to derail.

Long-time chat regular Blemi put us on the accessibility track when she mentioned spending the weekend at her mother’s place, also known as Blemi’s childhood home. Blemi even filmed a tour for her YouTube channel. Seeing how the video initiated a lot of the conversation for the July 6th, 2022 chat, I will go ahead and embed the video below.

After watching Blemi’s video, I posed a question to the group.

Participants in #CPChatNow discuss steps taken to make their homes more disability friendly.

I asked participants what steps (no pun intended) were taken to make their homes, either childhood or current, more disability friendly. Both Grace and my co-host Devin Axtman mentioned grab bars and railings in their answers. Additionally, Devin said a detachable shower head.

Meanwhile Grace had an adapted walk-in shower replace an old shower/tub combo. What about you? Keep the conversation going and answer for the extend-the-conversation question, “What steps were taken to make your home, either childhood or current, more disability friendly?” Leave your answer in the “Comments” section.

As the discussion continued, participants made an interesting observation about making homes more accessible.

Devin discusses how over the years his grandparents' house has become more disability friendly.

Devin recalled going to his grandparents’ house and observing how much more accessible the house is now compared to the last time he visited. The cause for the change came from Devin’s grandma needing stuff for her cancer battle.

Between Devin’s comments and insights Blemi shared in her video, I drew a conclusion about accessibility. That conclusion, “Accessibility is evergreen. Even if you don’t have any issues today, life can change just like that.”

Do you agree? Speak up in the “Comments” while answering the extend-the-conversation question. Again, the question asks “What steps were taken to make your home, either childhood or current, more disability friendly?”

This week's extend-the-conversation questions asks, "What steps were taken to make your home, either childhood or current, more disability friendly?"

Once you answer, mark your calendar to join #CPChatNow every Wednesday on Twitter. The fun begins at 8pm ET.

Until then, remember. Don’t blend in. Blend out!



#CPChatNow Recap- 12/23/2020

This past week in #CPChatNow occurred on Festivus, also known as Christmas Eve Eve. Members discussed their grievances about disability, a recent blog post from Tonia, their dream robotic health companion, and more. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, I would like to take a moment to recognize #CPChatNow’s 7th anniversary! Thank you to everyone who has participated with us!

zach tweets he realized it is the chat's seventh anniversary earlier this month. there is an image of two clinking champagne glasses with happy anniversary written above the glasses

To mark Festivus, the annual airing of grievances, members shared their grievances about disability:

zach and i discussed our grievances about disability. i tweeted my primary grievance is the amount of time it takes up with longer commutes, more appointments. zach tweeted his grievance of winter making cerebral palsy more challenging

Next, a great blog post Tonia wrote about the frustration of when accessing basic needs is not basic sparked great conversation. I tweeted about my amazement that Pee Math has an actual name. Pee Math is a concept that disabled people in particular calculate how long they can be out before going to the restroom due to access needs and not always accessible bathrooms.

tonia tweets about her latest blog post, i tweeted about pee math and stated i didn't know it was a thing, but i do it when going out in large places, tonia tweeted she didn't know the name for it, but she does it as well

Zach shared his further thoughts on Tonia’s blog and praised her for being vulnerable.

zach tweets the post is emotional and praised tonia's courage, he agreed there is a difference between being there physically and emotionally, zach stated he grew frustrated nobody asked her how to make the kitchen more accessible and that she was blamed for not doing pt, zach asked if she had time limits for using the restroom, tonia tweeted there were not time limits, but they went between classes or risked missing material

Finally, Zach was inspired by the movie Big Hero 6 to ask what members would prefer in a personal robotic healthcare companion.

zach asked members what they would want a personal healthcare companion to assist with after being inspired by the movie big hero 6. there is an image of baymax in a red and blue suit. i tweeted i want my own personal driver/transportation device, chris tweeted she wanted robotic lungs when first diagnosed with asthma, but she would now like a robotic immune system so she could program so she wouldn't be so sick

This brings us to our Extend-The-Conversation Question: What disability related task do you wish could be automatically performed for you?

the extend-the-conversation graphic: #CPChatNow logo in the upper right hand corner, extend-the-conversation question in green above What disability related task do you wish could be automatically performed for you? in black, a picture of a white hand writing a to do list on top of a calendar, #CPCHATNOW in white text against a green background

Thanks for reading and please join us each Wednesday at 8 Eastern on Twitter at #CPChatNow!


#CPChatNow Recap- 5-22-2019

This past week in #CPChatNow was busy as always. Members discussed their support system, issues with transportation companies and graduation, and more. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

It’s graduation season! Members shared their experiences and difficulties with graduation due to accessibility issues. Chris shared her graduation is at a baseball stadium and Blake shared he was able to successfully navigate his ceremony. I shared my difficulties at my ceremony, but also on a happy note some improvements that were made.

Zach and i discuss my graduation difficulties. zach shared he stayed off to the side in the procession as well because of stairs which caused a girl to knock off her graduation cap seeing him

Next, members talked about issues with transportation, Uber and Lyft and also paratransit. There have been continuing issues with accessing Uber and Lyft for disabled people. This conversation stemmed from an Uber driving refusing to pick up a wheelchair user and Lyft being in an ADA lawsuit and arguing they are not a transportation company.

zach shares an uber driver refused to pick a wheelchair user, i shared lyft said they are not a transportation company in an ADA lawsuit, chris confirmed they consider themselves a tax company

Chris shared she had a continuing wait for paratransit today per usual. Zach shared his hesitancy to sign up for paratransit because of the need to see a neurologist who he hasn’t seen in years.

zach shared he thought of applying for paratransit but he would need to see a neurologist. i tweeted that i felt a doctor could provide that info and zach agreed

Next, members talked about support systems. Chris shared her disability support system has helped her in numerous ways.

chris shared she gets support from her disability community and she is trying to pay it forward

This brings us to our Extend-The-Conversation Question. Let’s talk about support systems. Zach shared in the chat his support system helped him accomplish his goal of being a marathoner. What is the biggest thing your support system has helped you accomplish?

the extend-the-conversation question of what is the biggest thing your support system has helped you accomplish? extend-the-conversation is in green with #cpchatnow in white text on a green background on the bottom. multi-colored #CPChatNow logo on the upper right hand corner

#CPChatNow Recap- 01-11-2017

Meryl Streep’s Golden Globes speech and accessibility remained among popular topics discussed during #CPChatNow Wednesday, January 18th, 2017. I am co-host Zachary Fenell here with the highlights. Enjoy the following.

Shortly after our usual Wednesday evening greetings, community regular Hamda Jamal turned our attention to Meryl Streep’s Golden Globes speech. Specifically she retweeted a reaction to Streep’s speech.

#CPChatNow participants discuss Meryl Streep's Golden Globes speech.Like the above screenshot shows reactions addressed the stereotype which views a person with a disability as helpless. A topic we talked about in the past both via our weekly Twitter chats and monthly Google Hangouts. Regarding the latter, interim co-host Devin announced our January 2017 Google Hangout date.

Join #CPChatNow for a video chat via Google Hangouts Thursday, January 26th starting at 8pm ET.Meanwhile I sparked much dialogue by asking a question on accessibility.

Community members of #CPChatNow share what accessibility means to them.Blemi acknowledged many physical barriers to accessibility. Others who answered addressed accessibility more generally.

More #CPChatNow participants share their thoughts on what accessibility means/looks like.Personally, the different responses intrigued me. See, the topic lingered within my mind since I began participating in another disability related Twitter chat, #AXSChat.

Co-host Zachary Fenell explains why he asked about accessibility.Since I am still curious and I am the one writing today’s recap, I am making an executive decision. I declare¬†“What does accessibility mean/look like to you?” the week’s extend-the-conversation question.

Leave your reply in the “Comments” section. Please too share across the disability population. Let us compile responses from a diverse group! The value in reaching across different disability communities emerged while I told others more about #AXSChat.

Co-host Zachary Fenell tells #CPChatNow about #AXSChat.Like Shira, I also agreed with Devin‘s comments “the disability community too often goes into our own corners.” I encourage anyone from #CPChatNow to join #AXSChat (if your schedule allows). #AXSChat takes place Tuesdays at 3pm ET. For more information visit their website, axschat.com.

In the meantime make sure you join #CPChatNow tonight at 8pm ET. We will confirm details for our January focus chat. Additionally double check you marked your calendar for #CPChatNow’s January 2017 Google Hangout Thursday, January 26th. Contact Devin or I to inquire about receiving the invite. Finally, remember to answer the week’s extend-the-conversation question.

This week's extend-the-conversation question asks "What does accessibility mean/look like to you?"“What does accessibility mean/look like to you?”

Comment below to answer. Thank you for reading the weekly recap.




#CPChatNow Recap- Concert Going with Cerebral Palsy

Wednesday, July 13th, 2016 #CPChatNow’s own Jocelyn led July’s focus chat on concert going with cerebral palsy. I am co-host Zachary Fenell ready to rock the recap. No cover charge needed! Just sit back and enjoy.

As the discussion started flowing, Jocelyn’s credentials became quite evident.

Jocelyn posseses the credentials to lead a focus chat on concert going with cerebral palsy.While fun, concert going with cerebral palsy can prove physically challenging. Such challenges multiple people addressed.

Jocelyn asks about the most physically challenging concerts community members attended.Yasmin discusses her most physically challenging concerts.Co-host Zachary Fenell's answer leads Jocelyn to suggest contacting concert venues about accessibility.If you do not hear back from the venue or musician, Jocelyn named a last resort option.

Jocelyn offers a last resort tip for inquiring about venue accessibility.Before proceeding with the recap, how about you chime in? Answer the following for the week’s extend-the-conversation question. “What’s the most physically challenging show you attended?” Reply in the “Comments” section.

Moving on, my co-host Blake Henry sparked dialogue by asking Jocelyn a question.

Co-host Blake Henry asks Jocelyn about the best part of going to concerts.Throughout the night Jocelyn emphasized reaching out to inquire about accessibility options. A point she echoed again in her final comments.

Jocelyn gives her final comments to wrap up #CPChatNow's concert going with cerebral palsy focus chat.Answer "What's the most physically challenging show you attended?"Hopefully you found the insights recapped here helpful. Remember you can still add to the discussion. Take a moment to answer the extend-the-conversation question.

“What’s the most physically challenging show you attended?”

Like always, leave your response in the “Comments” section below!

Talk with you later.


#CPChatNow Recap- 01-13-2016

Welcome to #CPChatNow’s very own website!

Zachary here to bring you the recap for the January 13th, 2016 #CPChatNow chat. There remains a reason Wednesday after Wednesday our community takes to Twitter and participates in the live chat #CPChatNow. There just exists a comfort in relating to others.Take cold weather for example.

Cold weather can be extra challenging for someone with cerebral palsy.Battling the winter cold stands a challenge for many with cerebral palsy. So let us use this week’s extend-the-conversation question to share strategies. Answer “How do you fight the cold?” Respond in the “Comments” section.

Moving on another comfort our community provides involves bonding over accessibility frustrations.

#CPChatNow participants discuss frustrations dealing with accessibility.The aforementioned comforting and bonding proves very valuable. Said sentiments establish a community where one feels safe to open up. Thus the reason I could without hesitation ask about embarrassing falls.

#CPChatNow share stories about embarrassing falls.Anyone interested in learning more about the fall I mention should checkout my CP memoir¬†Off Balanced. Before you go though, remember to answer the extend-the-conversation question. “How do you fight the cold?”

Leave your answer in the “Comments” section below!

Thanks for reading,