#CPChatNow Recap- 5/4/22

The first week of May in #CPChatNow was hopping as always. Members discussed about honoring their family, Zach’s new book, shoes and CP, and exercises and CP. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. Hop on the recap train, all aboard!

First, I want to recognize and honor Hannah’s dad’s memory. Hannah is a valued member of #CPChatNow and one of the toughest people I know. We love you Hannah!

hannah tweeted she is sad because it is 2 years since her dad died, the tweet includes pictures of her dad, her dog, and a picture of hannah

zach tweets that 2 years is hard to believe and it seems like it's just months ago since he was enjoying cone in bill's car and it took awhile to realize both their dads were named bill. he also tweeted he loves the photos of his dad and the smile captures his personality beautifully

Next, I would love to promote Zach’s book on his journey to becoming a marathoner with CP, Slow and Cerebral. You can find it here.

i tweet my excitement about getting zach's book, there is an image of his book slow and cerebral

Next, Stephen asked about a common annoyance for people with CP, shoes. Stephen asked people how many shoes they go through in a given year. Alessandro also shared his Air Jordan collection.

stephen asked how many pairs of shoes people get in a year, veronica said one every 3 or 4 years because she hates shopping, i tweet that i have one pair of old man velcro shoes that lasts 2-3 years, zach tweets he has one pair per season, alessandro says he has too many because he collects Jordan's

Finally, members discussed another common topic with CP, CP friendly exercises. Veronica also shared a tremendous link with some resources.

i ask how people learn cp friendly exercises, zach tweets he learned them in PT, but he has learned some online, veronica also tweets pt and thomas tweeted about swimming and pt

This brings us to the week’s Extend-The-Conversation Question: What is your favorite exercise to help your CP?

extend-the-conversation question graphic "What is your favorite exercise to help with you CP? Multicolored #CPChatNow logo in upper right hand corner with image of a man doing stretches

Thanks for joining us on this week’s recap and join us tomorrow and every Wednesday at 8 Eastern on Twitter at #CPChatNow.



#CPChatNow Recap- 10-09-2019

Curiosity roared throughout the live cerebral palsy Twitter chat #CPChatNow Wednesday, October 9th, 2019. Here to tell you more, I am co-host Zachary Fenell. Let the recapping begin!

Early in the evening I posed a question. Originally I saw the question asked in a cerebral palsy related Facebook group I belong to.

Zachary shares a question he first saw a mother ask in a cerebral palsy Facebook group.

Within said Facebook group, a mother wanted input on what others consider the best ramp material. Both chat regular Seth and my co-host Devin Axtman deemed metal the best material for a personal ramp. Information I relayed back to that Facebook group.

Elsewhere in our chat Devin raised a thought provoking question.

#CPChatNow participants discuss whether they find World CP Day helpful.

Saturday, October 5th, 2019 marked World CP Day 2019. The recently passed date left Devin asking if we find such days helpful or if all the awareness (World CP Day, CP Awareness Month, National CP Awareness Day) blends in together. Long-time chat regular Blemi said she thinks the occasion is just another way to spread “inspirational porn.” Devin agreed, saying a lot of World CP Day comes across as cliché or just checking a box. I added my thoughts too.

Zachary gives his input on cerebral palsy awareness.

Personally, I believe there remains no such thing as too much awareness. However, I indicated awareness should possess tangible substance. Otherwise you simply end up with awareness as a buzzword. Devin agreed, hitting what I consider an essential point. “Make it (awareness) something people can do something about.”

What do you think? Answer as the week’s extend-the-conversation question, “Do you find things like World CP Day helpful?” Reply in the “Comments” section.

Another intriguing topic arose October 9th when I asked participants about their exercise habits.

Jeni and Zachary discuss their exercise habits.

Specifically I wondered how often people exercised. Jeni showed impressive frequency, explaining she exercises five or six days a week, about 90 minutes at a time. Her exercise regimen has led her to experience less spasms. Others merely find living life with cerebral palsy enough of a workout.

Blemi explains why she doesn't exercise.

Blemi explained she never exercises because she lacks the energy. Daily life and working full-time proves her workout.

Besides a physical workout, exercise that mind by remembering to answer the week’s extend-the-conversation question. “Do you find things like World CP Day helpful?”

Respond below! Then double check your calendar. Make sure you write in #CPChatNow, every Wednesday on Twitter starting at 8pm ET. Until then, remember. Don’t blend in. Blend out!


This week's extend-the-conversation question asks "Do you find things like World CP Day helpful?"
Comment below and answer!