#CPChatNow Recap- 1-15-2020

This past week in #CPChatNow was bouncing as always. Members talked about what they are reading and what gifts CP has given them. Also, we have a focus chat on 1/22! This is #CPChatNow co-host, Devin Axtman, taking you along for the recap.

First, we have an exciting announcement at #CPChatNow. We will be doing a focus chat with member and former Paralympian, Ayden “The Jet” Jent. You can read Ayden’s bio here.

Zach announces a focus chat on 1/22 with Ayden Jent about the Paralympics

Next, Zach asked members what they are currently reading. Members shared a variety of different books and Chris shared Haben Girma’s memoir, the story of a deafblind woman graduating from Harvard Law School and becoming a lawyer for disability rights.

zach asked what people are currently reading. blemi tweeted Nora & Kettle, chris tweeted she is meaning to read Haben Girma's memoir

I bring up reading because in more exciting news #CPChatNow co-host, Zachary Fenell, is going to release his book, Off Balanced, in paperback! You can buy it now in Kindle form here.

Zach announcing Off Balanced is soon to be available in paperback. There is a picture of him holding up the book

Finally, we move to a great question asked by Blemi. She asked what Cerebral Palsy had given people. Members shared a variety of different positives which illustrates the wide variety of experiences in disability.

blemi asked what cp has given people. zach credits his work ethic to cp and to listen to his body, along with a BS filter. i tweeted I do not get too high or too low.
Daryl Perry tweets CP has made him resilient, robyn tweeted resilience and ability to adapt along grip strength. jen tweeted empathy.

This brings us to our Extend-The-Conversation Question: What do you like about your CP?

an orange, blue, and green #CPChatNow logo in the upper right hand corner, extend-the-conversation question in green with what do you like about your CP? in black. The Facebook like button is in the lower left hand corner.

Please share your answers in the comments and join us for the focus chat on Wednesday, January 22nd at 8 Eastern.

-Devin

#CPChatNow Recap- 12/4/2019

This past week in #CPChatNow was busy as always as members got ready for the holidays, discussed unique friendships, cool parts about #CPChatNow, and their doubts about CP.

The upcoming holidays were of course a topic of conversation. Zach asked whether people took disability into account when giving gifts:

Zach asks whether disability was taking into account when giving gifts. Hannah tweeted her grandma bought her shoes that often wouldn't fit and she had to tell her to stop because they wouldn't fit
Blemi tweeted disability had no impact on her gift giving. Zach said he got a baseball glove, but never did play baseball. I tweeted I was there was paralympics for baseball.

#CPChatNow recently turned 6 years old. Members talked about the coolest part of being a member:

I tweeted that the coolest part of #CPChatNow has been watching people grow up and lives change. Zach tweeted about people graduating high school, Blake and myself graduating college, and Blemi entering a long term relationship
Zach tweeted about the genuine bonds that have formed from #CPChatNow and the support system that has formed

Next, talk turned to the unique relationships that can come from online interactions and Yasmin shared that she has formed relationships from online Paramore clubs:

Yasmin tweets about making friendships through Paramore clubs that have stayed even though the forms have shut down. Zach shares that CP brought #CPChatNow together, but we have other common interests

Finally, I asked members what doubts they had as a result of their CP. It sparked some good conversation:

I ask about people's doubts about their CP. My doubt was about getting married. blemi tweeted she was unsure about holding down a full time job. zach worried about pinning his bib number for his 5k races

This leads us to our Extend-The-Conversation question: What is your biggest doubt about CP and what have you done to overcome it?

Please share your answers in the comments and join us each Wednesday at 8 Eastern on Twitter on #CPChatNow

-Devin

#CPChatNow- 11-28-2018

This past week the #CPChatNow Cerebral Palsy Twitter chat was bumping as always.  Members talked about their holiday wish list, what they wanted to be when they grew up, and what they feel is the worst occupation for someone with CP.  This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

Not surprisingly, members’ holiday wish lists dominated the early conversation.  Members shared their gifts were becoming more practical as they aged.

Zach and Devin tweeted about holiday wish lists. Zach tweeted about a bright winter coat so people can see him and I shared I recently bought lights for my wheelchair

Next, members talked about what they wanted to be when they grew up as a kid.  There were definitely some amusing answers, but some also achieved their goal!

Zach tweets about wanting to be a Cleveland Indians player and then shifting his goal to becoming a writer. We talked about mourning not being able to play sports.

Zach and I had a common goal, playing baseball.  I had a little bit more lofty ambitions however, and Ayden would like to be the Leader of the Free World!

Ayden tweeted about wanting to become President

Zach asked about the occupations that members felt were the worst for people with CP. Dave shared some difficult positions he has had, a stagehand and line cook.

Zach and Dave tweet about bad occupations for people with CP. Dave tweets about stagehand and line cook being difficult on the knees

Heather won the unofficial title of Tweet of the Night with a tightrope walker being the worst occupation for someone with CP

Heather tweets that a tightrope walker would be the worst occupation

This brings us to our Extend-The-Conversation question: What was your dream job when you were growing up and did CP require you to change it?  Please share your answer in the comments and join us at #CPChatNow on Twitter at 8 Eastern each Wednesday.

The Extend-The-Conversation Question graphic. There is a tan background with a picture of a little girl daydreaming. What was your dream job when you were growing up and did CP require you to change it? is in red with the multicolored #CPChatNow logo

-Devin