#CPChatNow Recap- 6-20-2018

#CPChatNow was brisk this past week. Members discussed competing as a Paralympic athlete, baby announcements, stubbornness, and the difficulty of trying to convince others to use mobility devices. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

First, we’re starting the recap with some happy news! The creator of #CPChatNow, Tim Wambach, from Handicap This just welcomed a baby girl. Congrats Tim!

Zach announcing Tim welcoming a baby

Picture of Tim with his baby girl

Also, #CPChatNow welcomed a new member in Ayden Jent. Ayden is a Paralympian, two-time World Championship US team member, and Para Pan-Am silver medalist.

Ayden Jent says hi to CPChatNow. He is a 2015 Para Pan Am silver medalist and runs the 100 and 200 meters

Zach and Ayden talk about halfmarathons. Ayden tells Wum he prefers longer distances and has mild CP

Next, talk turned to whether members had talked loved ones into using a mobility device. Zach and Hannah talked about coming to terms with using their respective mobility devices:

Hannah and Zach talking being hesitant to use crutches and walkers. Zach said he was hesitant to use his cane for his marathon

Discussion then turned to mobility aids being tools for independence:

Devin discussed his wheelchair being a tool for independence, but that mindset being a transition. Zach tweeted he wished this thought process could be embedded into stubborn individuals

Hannah and I then talked about how the experiences of CP make adjusting to a mobility device easier:

Devin tweets about how adjusting to a mobility device is different due to having to deal with physical issues that others may not have

This brings us to our extend-the-conversation question: What has been your toughest form of disability related adjustment?  Please share your answer in the comments! A sky blue background with a person rolling a boulder up a hill outlined in black. Extend-The-Conversation Question centered in white text at the top. What has been your toughest form of disability related adjustment? in the middle and #CPChatNow logo in bottom left hand corner

 

Advertisements

#CPChatNow Recap- 3/7/2018

This week in #CPChatNow was a rambling week as always.  This is #CPChatNow co-host, Devin Axtman, taking you along on this week’s recap.

Rachel started us on a great note by continuing her tradition of greeting #CPChatNow participants with a greeting containing a characteristic of CP:

Rachel greeting her Hypertonic boos. I expressed appreciation for her greetings

I also want to encourage folks to check out the Paralympic coverage.  The Paralympics are the Olympics for athletes with disabilities and there is some awesome action going on:

Devin passed along the Paralympic schedule

Talk then turned to dreams.  Shira and Zach discussed the appearance, or lack thereof, of CP in their dreams.Zach and Shira talked about dreams. Zach said he has CP in his dreams while Shira does not.

Then, talk turned to pain and CP.  We talked about the difference between CP related pain and normal, everyday pain.

I talked about asking my doctor if pain was CP or normal pain. Zach and I agreed normal pain is pain unrelated to CP like pain after a workout versus CP pain like pain from weather impacts surrounding CP

Finally, talk turned to the all-too-familiar 1-10 pain scale and how CP can cause confusion of how to rate someone’s pain.

Zach and Shira talks about how CP changes our perception of pain.

Everyone agreed that CP causes us to live in the 1-3 pain range

Rachel and Zach agree they live in the 1-3 range of pain

Shira then asked whether someone is in pain if they really don’t notice it:

Shira and Zach continued talking about pain. Shira asked if someone is in pain if they don't notice it

ETC- How Does CP Impact Your Perception of PainThis brings us to our extend-the-conversation question: How does CP impact your perception of pain?

Please share your answers in the comments and join us every Wednesday at 8 PM ET on Twitter at #CPChatNow.

-Devin

 

 

#CPChatNow Recap- 09-07-2016

Excitement stirred throughout the evening Wednesday, September 7th, 2016. I am #CPChatNow co-host Zachary Fenell, ready to compress all the excitement into a weekly recap. This week’s Twitter chat coincided with the 2016 Paralympics opening ceremonies. Naturally the conversation drifted to the games.

The #CPChatNow community discusses the 2016 Paralympics.Now while I directed my question to Devin, anyone could answer. So let us open up the floor. Answer for the week’s extend-the-conversation question “Are there any particular Paralympic events you are looking forward to?” Leave your response in the “Comments” section.

Discussion went beyond the Paralympics too. I sparked dialogue with my greeting by asking about lessons learned this week.

Hamda learned leaving your comfort zone leads to personal growth.Hamda’s reply led to detailed talk about leaving comfort zones.

#CPChatNow community members answer "When has leaving your comfort zone benefited you?"More discussion about leaving your comfort zone.Additionally I shared some community news, officially announcing our September 2016 Google Hangout date.

The September 2016 #CPChatNow Google Hangout takes place Thursday, September 15th at 8pm ET.Google Hangouts gives our community a chance to chat face-to-face using web cams. Please contact me via a Twitter DM with any questions on how to join.

Glancing ahead next week looks eventful for us at #CPChatNow. You may recall Wednesday we hold September’s focus chat. A chat our own Jen will lead!

#CPChatNow's own Jen will showcases her expertise in collectibles when she hosts our monthly focus chat Wednesday, September 14th.Zachary shares what you can expect from next week's focus chat on collectibles.Before starting a countdown to September 14th and September 15th though, allow me to finish recapping this week’s Twitter chat. Towards the chat’s end conversation returned to the Paralympics.

Paralympics emerge again as a discussion point.#CPChatNow discusses how the media covers the Paralympics and if ableism is involved.Honestly, like Blemi I did not always know the difference between the Paralympics and Special Olympics. However, I quickly learned in 2012 when writing the following blog post, “Debunking Misconceptions: Paralympics/Special Olympics Confusion.” Feel free to pass on the post to help educate others on the differences.

Meanwhile also remember to answer this week’s extend-the-conversation question. “Are there any particular Paralympic events you are looking forward to?”

Keep the conversation going! Answer "Are there any particular Paralympic events you are looking forward to?"Comment below to respond.

Talk with you later!

-Zachary