#CPChatNow Recap- Reflecting Back and Looking Forward Focus Chat

This past week in #CPChatNow was especially lively as we celebrated #CPChatNow’s 4th birthday!  We decided to do a focus chat with various questions focusing on changes in member’s lives, questions about #CPChatNow, and a discussion about #CPChatNow’s future.  This is #CPChatNow Co-Host, Devin Axtman, taking you along on this special recap.

The first question focused on what has changed in members’ lives in the last four years.  Members shared many things, but it was interesting that many members had common changes:

Zach asking what has changed over the past 4 years. I answered with some changes including a master's degree, girlfriend

Blemi discussing a new job and boyfriend when talking about changes. Seth discussing cruises and burying his grandpa

The next question was about how members had heard about #CPChatNow.  Members shared various things such as discovering it on their timeline to seeing CP celebrities like John Quinn tweet about it:

Hannah tweeting that #CPChatNow showed up on her timeline

Me stating that I stumbled on #CPChatNow in a search, but I saw John Quinn tweet it

Zach also shared the story of the creation of #CPChatNow.  A collaboration between John Quinn and @HandicapThis.

Zach sharing story of #CPChatNow's creation

The next question related to specific questions or conversations that have stuck out to members.  Hannah shared the long running #CPChatNow joke of the story when someone asked if her CP was caused by getting ran over by a train:

Hannah tweeting the train conversation is her favorite #CPChatNow conversation

Jen tweeted about the focus chat with @The_CP_Swagger and Hunter Gandee who has made national news by carrying his brother with CP on his back to raise awareness:

Jen tweeting her favorite chat was with CP Swagger

Zach chimed in with the exercise chat led by Erin while I said the dating or accessible gaming ones:

Zach and Devin discussing their favorite conversations

Members also mentioned liking that the conversations in #CPChatNow tend to happen organically and do not feel forced:

Members discussing the joy that CPChatNow conversations tend to happen organically

Finally, the last question in the Focus Chat was regarding who members would like to see be a guest on a future focus chat.  Members were consistent in requesting Micah Fowler of Speechless fame.

Jen tweeting that she would like to see Micah Fowler on a future chat

Now this brings us to our next Extend-The-Conversation question and I will use #CPChatNow’s fourth birthday as inspiration.  What has changed for you in the past four years and what would you like to see in the next four?

This week's extend-the-conversation questions asks "What has changed for you in the past four years and what would you like to see in the next four?"

Answer in the “Comments” section.

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#CPChatNow Recap- 05-03-2017

Various topics emerged Wednesday, May 3rd, 2017 amidst the two-hour live cerebral palsy Twitter chat we call #CPChatNow. I am co-host Zachary Fenell and I am here to do but what else?! Recap the previous week’s chat. So get ready to chug along.

For another week ABC’s sitcom Speechless proved a hot topic! That included discussion about the previous week’s episode, “R-U– RUNAWAY.”

#CPChatNow participants discuss Speechless episode 20 (season 1) "R-U-- RUNAWAY."Like I mentioned, the episode inspired my at the time in-progress blog post. Anyone interested can read, “Needing Role Models with Cerebral Palsy.” Warning to anyone yet to watch the episode “R-U– RUNAWAY,” my post contains minimal spoilers.

Regarding spoilers, we at #CPChatNow possess an informal anti-spoiling policy. We welcome participants to multi-task, watch Speechless and live tweet us. However we insist on leaving any detailed Speechless conversation outside the chat.

Zachary puts on his co-host hat and reminds participants to not discuss Speechless in detail.Like I explained on May 3rd, this policy intends to protect participants who live in areas where the show still hasn’t aired. After all, people in different time zones and different countries make up our community! Avoiding spoilers demonstrates thoughtfulness. I personally like to think about #CPChatNow as a thoughtful community.

Regular Rachel Folly showed mindfulness, bringing up an annoyance she recently came across.

Rachel raises a complaint about a video title.Admittedly Rachel’s tweet confused me. Something you can tell by my replies in the above screen shot. Turns out Rachel and I watched different adaptions to the same video. Versions uploaded by separate users. Youtube user bagar5 uploaded the version Rachel linked to.

Meanwhile I previously viewed the video uploaded by the official Underarmour channel.

Confusion aside, Rachel raised a valuable point with the version she linked to. The term “boy” appears questionable given Johnny Agar’s age. What do you think? Answer for the week’s extend-the-conversation question, “Does the ‘Boy’ reference in the user uploaded Underarmour commercial video bother you? Why or why not?” Respond in the “Comments” section.

While questions surfaced about the video’s title, reaction to the actual content seemed overwhelmingly positive.

Devin and Rachel both say flattering things about the Underarmour ad.Interim co-host Devin Axtman displayed great enthusiasm for the ad. Rachel echoed the positivity, saying she found truth in the video’s message. Long-time regular Jen continued the topic merry-go-round, with some assistance from Guardians of the Galaxy‘s Rocket.

#CPChatNow participants bond over common interests, not just cerebral palsy!As you see from the preceding screenshot, the Guardians of the Galaxy talk soon led to Jen and relatively new regular Dave Smith to bond over collecting POPs. Common interests outside cerebral palsy albeit collecting POPs or baseball, hockey, wrestling, music, etcetera helps us form deeper relationships within our community.

Answer this week's extend-the-conversation question- Does the "Boy" reference in the title of the user uploaded Unerarmour commercial video bother you? Why or why not?Perhaps you will contemplate joining us! Our Twitter chat happens every Wednesday at 8pm ET. Perchance you do not use Twitter, you can always contribute by answering the recap’s extend-the-conversation question. Remember this week’s question asks the following.

“Does the ‘Boy’ reference in the user uploaded Underarmour commercial video bother you? Why or why not?”

Answer by commenting below! Until next time.

-Zachary

 

#CPChatNow Recap- 04-05-2017

Hit sitcom Speechless and aging with cerebral palsy proved popular topics during the April 5th, 2017 #CPChatNow. I am co-host Zachary Fenell here with the better late than never Twitter chat recap. Conversation turned to Speechless shortly after our usual Wednesday evening salutations.

Zachary asks about topics people want to see addressed on the show Speechless.Discussion initiated when I asked about subjects people want to see Speechless address in future episodes. Blemi spoke up, saying she wants to see an episode addressing fake friends. Another participant went further, expressing a desire to guest star on the sitcom. Not as farfetched a possibility as you might think!

Comedian and actress Maysoon Zayid wants to guest star on Speechless as Maya's disabled friend.Yes, actress and comedian Maysoon Zayid popped in to join our Wednesday evening chat. She wishes to guest star on Speechless, playing Maya’s disabled friend and hang/fight with the other moms. Does that sound intriguing to you? Tweet Speechless on Twitter and tell them you want to see Maysoon guest star!

Maysoon’s presence also brought a newcomer to #CPChatNow. He shared what he hopes to see in a future Speechless episode.

Newcomer to #CPChatNow Dave Smith wants to see a variety of CP cases on a Speechless episode.Personally, I like Dave’s idea to showcase the wide spectrum cerebral palsy offers. Your turn, though. Answer for the week’s extend-the-conversation question, “Is there a topic you would like to see Speechless address in its show that they have yet to address?” Respond in the “Comments” section.

Eventually the night’s dialogue moved beyond Speechless. Although the first new topic remained Speechless inspired. The night’s episode delved into the ways teachers interact with their disabled students. #CPChatNow regular Hannah reacted to this.

#CPChatNow participants discuss their teachers and the levels of expectation they possess for disabled students. While Hannah couldn’t relate directly to what happens in the episode, she shared a similar experience and the emotional impact said situation created. Emotions discussed soon transitioned from hurt to fear thanks to chat regular Jen.

Jen wants to discuss fears, a notion seconded by Blemi.Here the previously mentioned aging with cerebral palsy subject arose.

#CPChatNow participants discuss the possibility of losing mobility as they age. Amidst the sharing and peer learning Maysoon offered some well needed positivity.

Maysoon recommends yoga to help combat aging with cerebral palsy. Hamda seconds the suggestion sharing a list of yoga resources. Hamda supported Maysoon’s yoga suggestion, linking to a resource list for adaptive yoga. Checkout the list, courtesy American Academy for Cerebral Palsy and Developmental Medicine. Maybe you will discover something worthwhile to you.

Answer for this week's extend-the-conversation question "Is there a topic you would like to see Speechless address in the show that they have yet to address?"However before viewing the list, remember to answer the extend-the-conversation question. “Is there a topic you would like to see Speechless address in its show that they have yet to address?” Reply below in the “Comments” section.

Thank you for your interest in #CPChatNow. I look forward to tweeting you tonight.

Sincerely,

-Zachary

#CPChatNow Recap- 02-01-2017

Various topics arose Wednesday, February 1st, 2017 during our weekly cerebral palsy Twitter chat #CPChatNow. I am co-host Zachary Fenell, ready to summarize everything up into a neat, easy to read recap. Hopefully you enjoyed last week’s recap, compiled by interim co-host Devin Axtman.

Devin continues to fill in admirably for co-host Blake Henry while Blake studies abroad. Tweets from Blake with the hashtag CPChatNow indicates our community remains on his mind. Although due to the time difference, said tweets come outside chat hours. So I thought to begin our February 1st chat by retweeting Blake’s latest update.

Zachary retweets Blake's latest update from Spain.Early on in the chat I also announced the date for our February Google Hangout. This led to some jokes.

#CPChatNow's February 2017 Google Hangout will be Thursday, February 16th.To fully appreciate the echoing humor, you needed to attend our January Google Hangout. Make sure you find your place on the Hangout invite list. Send a DM to Devin and/or me to request receiving the Hangout link Thursday, February 16th.

Usually around 8:30pm ET participants multi-task, contributing to our conversation and watching Speechless. ABC airing a Speechless rerun caused disappointment.

Hannah is bummed to find Speechless a repeat.My interim co-host Devin questioned the broadcasting strategy where you air reruns in consecutive weeks.

Devin thinks airing reruns multiple weeks in a row could cause confusion to viewers.Community regular Hannah pointed out such a strategy seeks to garner a show new viewers. Still, she agreed with Devin.

Meanwhile participant Jen Coventry, after a long day, arrived late to the chat. A fall on ice landed her in the ER. The situation left me referencing a comment I made two weeks ago. I joked we should all move to Tucson, Arizona and establish a snow-free society.

Snow can be very dangerous to the CP community. Jen's fall offers one example.Injuries soon became the dialogue’s concentration.

#CPChatNow participants recall the worst injuries they have endured.Jen's worst injury was an infection.Time to keep the conversation going. Answer for the week’s extend-the-conversation question “What is the worst injury you’ve had to endure?” Respond in the “Comments” section.

Another noteworthy topic that emerged during the February 1st chat involved startle reflex.

Jen Coventry didn't always know startle reflex was connected to cerebral palsy.Both Jens’ comments illustrates how knowing others with cerebral palsy aids in better understanding your own cerebral palsy. Perhaps you will learn something regarding your cerebral palsy tonight. Join us on Twitter starting at 8pm ET. First though, remember to answer the extend-the-conversation question.

This week's extend-the-conversation question asks "What is the worst injury you've had to endure?" “What is the worst injury you’ve had to endure?”

Leave your reply in the “Comments” section below.

Tweet you later,

-Zachary

#CPChatNow Recap- 10-05-2016

Spirits remained high during #CPChatNow’s live Twitter chat Wednesday, October 5th, coincidentally also World Cerebral Palsy Day. I am co-host Zachary Fenell, prepared to compact all the enthusiasm down into the traditional weekly recap. #CPChatNow landing on World Cerebral Palsy Day set up a festive atmosphere.

Between #CPChatNow and Speechless October 5th proved a fitting day for World Cerebral Palsy Day.Some participants chose to use our chat to live tweet Speechless. Although, they stayed thoughtful. Considering the show airs at later times in other areas, their dialogue avoided spoilers.

CPChatNow participants discuss Speechless without spoiling the episode for others. Prior to Speechless starting, I sought to stretch the night’s excitement to cover the entire month. First, came our October focus chat announcement.

Announcement for #CPChatNow's October 2016 Focus ChatIf you possess questions about CPTV, please join us tonight. Anyone unfamiliar with CPTV should read our detailed announcement post. Repeating what I wrote in the announcement, personally I believe CPTV can become a central resource for the cerebral palsy community. While counting down the minutes to tonight, mark your calendars for the October 2016 Google Hangout.

The October 2016 CPChatNow Google Hangout will happen Thursday, October 20th.Google Hangouts allow for face-to-face interaction via video chat. Contact my co-host Blake Henry or I about receiving an invite to the October Hangout. These video chats work similarly to our Twitter chats. Topics arise naturally.

One topic brought up during the Twitter chat October 5th involved writing a memoir.

#CPChatNow participants discuss the memoir writing process.Visit Lindsay’s blog to see what she plans to title her memoir. Then engage in your own creativity and answer the following for the week’s extend-the-conversation question. “What would you title your cerebral palsy memoir?” Leave your response in the “Comments” section.

Finally, I wish to take a moment to thank everyone who contributes to our community. You enable #CPChatNow to thrive. As you can see our community makes a difference.

#CPChatNow makes a real difference in the cerebral palsy community.Answer for this week's extend-the-conversation question, "What would you title your cerebral palsy memoir?"Again, thank you. Keep contributing too! Answer the week’s extend-the-conversation question.

“What would you title your cerebral palsy memoir?”

Respond below!

Tweet you later,

-Zachary

#CPChatNow Recap- 09-28-2016

Wednesday, September 28th chat regulars looked to #CPChatNow for a needed escape. I, co-host Zachary Fenell, among them. Allow me to fill you in on the details via this week’s recap.

Greetings set the tone early.

Greetings set the tone for the September 28th #CPChatNow Twitter chat.As I noted in the recap’s introduction, I too sought an escape through #CPChatNow. Although rather than a bad day, I desired freedom from fatigue.

Zachary seeks escape from fatigue caused by his half marathon training.My co-host Blake Henry also sounded like he could use a break.

Always busy Blake stops in to say hello. Various topics emerged to distract from the tough days, tiredness, and never ending responsibilities. Naturally around 8:30pm ET conversation turned to the sitcom Speechless.

Jen counts down the minutes to the next episode of Speechless.Only two episodes into Speechless and #CPChatNow community members already connect with the characters! One character in-particular seems to resonate more than the others.

Multiple #CPChatNow community members relate to the mother in Speechless. Given news broke Thursday ABC picked up Speechless for a full season, obviously the love affair with the show transcends #CPChatNow. Make arrangements to watch both the show and participate in our chat. Determine the best plan for you, whether that means multi-tasking or recording Speechless to watch later.

Anyone who relates to the sitcom should enjoy the real life connections #CPChatNow offers. We discuss important issues. For instance, September 28th discussion eventually transitioned to pharmacy errors.

Mistakes can happen. Make sure you double check your medications for pharmacy errors.Read the article which led to the subject, “Boy given ten times as much medicine prescribed in pharmacy error.” During the dialogue chat regular Hannah Pike pinpointed another pharmacy error to double check against.

#CPChatNow regular Hannah Pike warns about a second pharmacy error to watch out for.Thanks to a fun hypothetical, the chat ended on a creative note.

Creativity flows from #CPChatNow community members thanks to the question "If you wrote a song about life with cerebral palsy, what would the name of the song be?"#CPChatNow community members come up with creative titles for a song about life with cerebral palsy.“These Spastic Chains,” “An Ordinary Fighter,” and “Invested in Love” only begins to showcase the creativity possessed by our #CPChatNow community. Show off your originality by answering the week’s extend-the-conversation question.

“If you wrote a song about life with cerebral palsy, what would the name of the song be?”

Reply by commenting in the “Comments” section below. I am sure your answer will rock!

Tweet you soon,

-Zachary

#CPChatNow Recap- 09-21-2016

Anticipation remained high Wednesday, September 21st. Hi! I am Zachary Fenell back behind the keyboard. As #CPChatNow co-host I wish I could credit all the bursting excitement to our Twitter chat. However, the premiering Speechless deserves some dues.

Speechless stars Micah Fowler, a young actor with cerebral palsy. The show follows his character JJ and his family the Dimeos as they live life and deal with JJ’s CP. This includes JJ’s siblings Ray Dimeo (Mason Cook) and Dylan Dimeo (Kyla Kenedy). Each family member receives fitting screen time, at least in the pilot episode.

Anyways, I am not here to critique Speechless. Rather I am tasked to recap our latest Twitter chat. I mention the show because early on conversation centered on the subject.

Jen reminds people Speechless airs at 8:30pm ET.

The #CPChatNow community anticipates the Speechless premiere. While anticipation for Speechless remained high, we managed to discuss other topics. Community regular Hannah Pike shared a photo which escalated the dialogue.Majority of #CPChatNow participants seem to fear escalators.

Community members reveal their first reaction after spotting an escalator.Fear of escalators seems a common fear within the cerebral palsy community.Half an hour into the chat the conversation returned to Speechless.

Without posting spoilers #CPChatNow community members analyze the show.The Speechless analysis purposefully stayed general in an effort to prevent spoiling for regions with later air times. For those who watched the pilot, answer the following for the week’s extend-the-conversation question. “Do you plan to watch Speechless weekly?”  

Leave your reply via a comment in the “Comments” section. First though, continue reading the recap. In our second hour I posed a question which triggered chatter.

Zachary triggers conversation by asking "What is one subject you wish you could find more information on when it comes to life with cerebral palsy?" Aging with cerebral palsy proved one topic people want more information on.Most people displayed a curiosity in how cerebral palsy impacts the aging process. One certainty with aging involves seeking advice and emotional support. Items #CPChatNow can provide.

Shira seeks advice about jealousy and frustration.If need advice on life with cerebral palsy, join our Twitter chat Wednesdays, 8pm ET. Or, checkout the #CPChatNow Facebook fan page. Message us so we can discuss posting your question to the Facebook page.

Leave a comment answering "Do you plan to watch Speechless weekly?"Now before you go remember to answer the extend-the-conversation question. “Do you plan to watch Speechless weekly?”

Respond by commenting below. Talk with you later.

-Zachary