#CPChatNow- 6-10-2020

This past week in #CPChatNow was busy as always, but this week brought new members. Members discussed the Moro Reflex and media representation of CP. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap!

First, members discussed a dreaded part of CP for some people, an exaggerated startle reflex.

amelia asks if a startle reflex is a thing with cp and a german sheppard startled her. i tweeted about dogs and seth tweeted about storms.

Karen tweeted about the name for the reflex, the Moro reflex.

karen tweets some links explaining the moro reflex. amelia tweeted she did not know it had a name. tonia tweeted lots of aspects of cp are rarely discussed

Next, talk turned to different representations of CP in the media. Members discussed the Netflix documentary Crip Camp and various issues of representation in the documentary.

karen asks what people thought of the depiction of cp in crip camp. heather tweets about surpirse of cp being at the low end of hierachy. i tweet about how much of that is how visible cp is
amelia tweeted she was happy to be represented in crip camp, but she didn't feel she could relate. karen tweeted cp comes in so many forms.

Talk also turned to the sadly canceled ABC show, Speechless, and issues related to representation. Members had varying opinions on whether they could relate to JJ.

zach tweets about how some felt they could not relate to JJ"s character. karen tweeted about how CP is so different from each person that many don't use a chair or are nonverbal. karen's main problem was too many subplots. I tweeted my agreement

Karen connected the lack of a ramp in the season 2 finale of Speechless with the abelism highlighted in Crip Camp.

zach tweets about a favorite scene from the season 2 finale when an award show director discovered there was not a ramp. i tweeted about accepting an award in the same situation. karen tweets she won an award in college and was told a ramp would be a fire hazard.

This brings us to our Extend-The-Conversation Question: Have you ever been denied recognition due to physical inaccessibility?

Thanks for reading this week’s recap and join us at 8 Eastern each Wednesday on Twitter at #CPChatNow!

-Devin

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#CPChatNow- 7/31/2019

This past week in #CPChatNow was buzzing as always. Members talked about a recent Micah Fowler interview, a computer mouse versus a track pad, coffee mugs, and also a peanut butter debate. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, Speechless continues to be a popular topic during the chats. Forbes had a recent interview with Micah Fowler that is definitely worth checking out. The interview sparked discussion during the chat about how Speechless handled family and disability.

zach tweeted his enjoyment of the interview question about how speechless dealt with family. i tweeted about how my favorite episodes were how the show focused on how cp impacts other siblings. zach tweeted his appreciation of the show's honesty particularly the bonfire episode

Next, debate turned to whether members prefer a trackpad or a mouse with opinions mixed between a trackpad and a mouse.

zach asked if people like a trackpad or mouse. blemi said trackpad. i commented i like apple's trackpad because you can move the cursor and click all on the trackpad
jeni tweets she lost homework assignments because of trackpads due to her heel of her palm hitting the trackpad

Also, #CPChatNow weighed in on the age old debate, smooth or crunchy peanut butter.

Next, Zach asked members how they handle their coffee mug. Blemi and Shira responded they handle both the handle and the mug.

Zach asked if members held the coffee mug handle or cup.  Blemi and Shira responded they handle the both the handle and the mug. blemi said she doesn't take chances after spilling hot liquids

Zach shared he uses travel mugs because they do not get hot and they have lids to prevent spills.

Zach shared he uses travel mugs because they do not get hot and they have lids to prevent spills

This brings us to our Extend-The-Conversation Question: What common items not designed specifically for accessibility do you use to meet your access needs?

Thanks for reading this week’s recap! Join us each Wednesday at 8 Eastern at #CPChatNow on Twitter.

-Devin

#CPChatNow Recap- 05-15-2019

Participants in the live cerebral palsy Twitter chat #CPChatNow proved anything but speechless Wednesday, May 15th, 2019. I am #CPChatNow co-host Zachary Fenell here to recap our community’s response to Speechless‘ cancellation. The subject remained the conversation’s main concentration throughout the night.

Once the topic emerged, I forwarded the extend-the-conversation question my co-host Devin Axtman originally asked in his recap for the May 8th, 2019 chat.

#CPChatNow participants discuss their favorite Speechless memories.

Devin’s had asked, “What is your favorite memory of Speechless?” Seth recalled the moment JJ met Lee, the character played by guest star Zach Anner. I praised that episode “R-U-N– RUNAWAY,” saying “that episode did wonders to show the importance of role models.” Personally though, my favorite Speechless memory differed.

Zachary and Ajani share their favorite memories of Speechless.

My favorite Speechless memory goes back to season one and the show calling out the “inspirational porn” perspective. I remembered thinking “They are going for it. Awesome!”

Meanwhile Ajani, a past guest star on the show, said his favorite memory dealt around the episode Ray tried playing basketball to win a girl. Ajani found the pain Ray went through to impress the girl believable. The more everyone talked favorite memories, the more additional memories surfaced.

Zachary and AJ continue discussing their favorite Speechless memories.

Seeing Ajani’s name made me think back to the episode he guest starred in, the season two finale “N-O– NOMINEE.” Specifically I loved the sequence involving getting JJ onstage to accept his award. Ajani commented he found that whole scene “like a page out of my life!” He proceeded to share details.

Ajani talks about how the Speechless season two finale was like "a page out of my life!"

Over the years Ajani found himself attending events at inaccessible venues. To get in Ajani relied on different people to lift him up steps. His story gave me flashbacks to a tale I heard my fellow #CPChatNow co-founders Handicap This! share before. Mike and Tim’s story entailed a multi-floor movie theater and perhaps the quickest elevator ever repaired!

Based off the abovementioned dialogue one can positively say Speechless created empathetic television. This fact raises the week’s extend-the-conversation question. “Share a Speechless scene you related to.” Do so via a comment in the “Comments” section.

Given Speechless‘ empathetic nature, there stands no surprise fans continue to actively try and save Speechless.

#CPChatNow participants discuss efforts to try and save Speechless.

One effort to save Speechless involves a change.org petition. If interested, you can sign here. Although ABC already passed on renewing Speechless, Ajani hopes the network will at least continue the series at their sister station, Freeform. Seth liked the idea, saying he wants to see a series about JJ in college on Freeform.

Regardless whether the attempts to resurrect Speechless works, a question sticks out to me.

#CPChatNow participants agree Speechless has been a success.

Curious I asked #CPChatNow if the efforts to revive Speechless go for not, would they consider the show’s run successful? Mainly I am thinking television’s future. Will Speechless influence other networks to feature shows with a prominent character who has a disability or will networks use Speechless‘ ratings as an excuse to dismiss similar shows? Nobody possessed a crystal ball to know for certain. However, participants did claim Speechless as a success.

#CPChatNow participants claim Speechless as a success for multiple reasons.

Ajani deemed the show successful, citing how Speechless wound up garnering a global reach. Paul absolutely considered the show a success, noting how “it was the first of it’s kind.” You might say Speechless holds status in television as a true pioneer! At the least, I said that!

Let us keep the Speechless conversation going at minimum one more week. Remember to answer the extend-the-conversation question, “Share a Speechless scene you related to.” Leave your answers in the comments below!

Then come by Twitter every Wednesday starting at 8pm ET to enjoy the live chat. Follow along with the hashtag “#CPChatNow.” Until then, remember. Do not blend in. Blend out!

– Zachary

This week's extend-the-conversation question asks "Share a Speecless scene you related to."
Answer below in the “Comments” section!

#CPChatNow Recap 5-8-2019

This past week in #CPChatNow was stimulating as always as members discussed Speechless, kind deeds by friends, and the continued passage of time. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

First, I would like to highlight Co-Host, Zachary Fenell’s participation in the Cleveland UCP’s Race to Empower. In a cool note, he completed it with his childhood Physical Therapist.

zach with his race to empower team
zach with his childhood pt

Next, Zach asked members about a time a friend did something nice. Raisa chimed in about a friend helping her at a pub:

Next, we talked about the passage of time and how long people have spent at jobs:

i tweeted about spending 8 years at my job, zach tweeted it is his two year anniversary at the library, heather recently quit her job of 11 years to start school

Finally, members talked about the season finale of Speechless:

zach and hannah tweet about the season finale of speechless, zach said he enjoyed season 3 over 2, hannah tweeted she enjoyed the character development, but zach tweeted the development may have outgrown the show's concept
seth tweeted he got why jj lied about getting into NYU, zach said he understood the character's motives and that it inspired his graduation speech, seth tweeted he felt it is wrong

Unfortunately, Friday brought news Speechless was canceled, but I did get a like on my tweet from Minnie Driver:

minnie driver's tweet announced speechless had been canceled, i tweeted i watched the last two episodes and loved them both

This brings us to our Extend-The-Conversation Question: What is your favorite memory of Speechless?

Thanks for reading! Please join us each Wednesday at 8 Eastern at #CPChatNow on Twitter.

-Devin

#CPChatNow Recap- 3/27/2019

*SPORTS ANCHOR VOICE* “IT’S TIME FOR YOUR WEEKLY HIGHLIGHTS OF THE PAST WEEK IN #CPCHATNOW! I’M DEVIN AXTMAN, the #CPChatNow Co-Host, taking you along for the ride on this week’s recap. PLAY BALL!

First, our other #CPChatNow Co-Host, Zachary Fenell offered a preview of his next video, If Bob Ross had Cerebral Palsy:

Zach teasing his next video, If Bob Ross had Cerebral Palsy

Next, Zach and I discussed the opening day for baseball season and whether our disability impacts our plans at the ballpark:

Zach asked how people's disabilities impact their experience at the ballpark when Devin tweeted he is going to opening day
zach said once he is seated he does not get up and relies on friends to get food. I tweeted this was my same plan.

Continuing down the lineup of chat highlights, talk turned to the sitcom Speechless and member’s thoughts on season 3. Zach and Seth offered their thoughts on a recent episode while I shared one of my recent favorites.

Zach and seth tweeted about their enjoyment of the most recent episode of speechless. i shared I liked when Maya made the board game. zach tweeted he likes when everyone is involved

Zach and I then shared our thoughts on recent direction of the show and what characters we enjoyed watching:

i shared i thought this season was the weakest, but still worth watching. i shared i tune out kenneth and jimmy but enjoy ray and dillon. zach shared jimmy and ray are his favorite characters and he enjoys this season more than the last.

Next, Paul and Zach brought up the fact that JJ is unable to speak on the show while the actor, Micah Fowler, can speak fine.

paul asks why JJ is non-verbal while the actor is verbal. zach said no idea with a chris farley gif

This brings us to our Extend-The-Conversation question: What improvements would you like in a Speechless season 4?

the extend-the-conversation graphic. a green highway sign with the word improvement in front of a blue sky. there is a black text saying 'what improvements would you like to see in a speechless season 4?' the white #CPChatNow logo is in the left hand corner

*SPORTS ANCHOR VOICE* “THANKS FOR WATCHING! PLEASE JOIN US EACH WEDNESDAY AT 8 EASTERN AT #CPChatNow on Twitter! THIS IS DEVIN AXTMAN SIGNING OFF!

#CPChatNow Recap- 10-24-2018

Your weekly cerebral palsy Twitter chat #CPChatNow started out on a despondent note Wednesday, October 24th, 2018. I am co-host Zachary Fenell here to tell you more, the best way I know how. Recap time!

#CPChatNow participants discuss bad news recently revealed by celebrity and WWE superstar Roman Reigns.Long-time regular Jen noticed I seemed a bit down at the chat’s beginning. I admitted to enduring a long day, although not necessarily a bad one. However, my spirits remained dampened by news WWE superstar Roman Reigns announced two days earlier. He revealed his ongoing battle against leukemia. I lost an aunt to leukemia and thus I am familiar with the difficult challenges the cancer presents.

Launching off the discussion between Jen and myself, I asked a question.

#CPChatNow participants reflect upon celebrity deaths/health scares that hit them rather hard.I asked participants if a certain celebrity death or health scare had a deep impact on them. Seth mentioned Robin Williams. Meanwhile my co-host Devin said Prince’s death hit him hard because Devin grew up listening to Prince.

To keep the conversation going while also transitioning to a more upbeat mood, allow me to ask as the week’s extend-the-conversation question, “How do you turn bad news into a positive?” Leave your reply in the “Comments” section.

Spirits uplifted during the Twitter chat October 24th when members began discussing the most recentĀ Speechless episode “I-N– INTO THE W-O– WOODS.”

Speechless episode "INTO THE WOODS" receives rave reviews from the #CPChatNow community.Devin loved the episode so much, he called “I-N– INTO THE W-O– WOODS” “my favorite episode in a long time. Maybe ever.” Seth liked JJ possessing a confidante beyond Kenneth. Additionally Seth expressed interest seeing JJ on the computer being independent.

This week's #CPChatNow extend-the-conversation question asks, "How do you turn bad news into a positive?"Personally I am interested in viewing your answer to the week’s extend-the-conversation question. Again, the question asks “How do you turn bad news into a positive?” Comment below to respond. Next plan to join us on Twitter every Wednesday, starting at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

#CPChatNow Recap- 10-17-2018

This past week’s #CPChatNow Twitter chat was lively as always.Ā  Members talked about their latest accomplishments, the newest season of Speechless, a runner with CP being signed to a pro contract by Nike, and changes in the weather.Ā  This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

Timmy shared his latest research that he presented at a conference.Ā  Great work Timmy!

Timmy tweeted about presenting his latest research at a conference. There is an image of Timmy presenting at a conference.

Next, members talked about the ongoing third season of Speechless on ABC.

Zach tweeted about episode 3 of Speechless having nothing to do with disabilities. I tweeted about liking the 2nd episode. We had mixed feelings about "The wrong ones are non verbal joke"

Jen and Zach talked about the miserable weather in Texas and Cleveland:

Zach and Jen talking about cold, rain, and hail in Texas and Cleveland

Jen and Zach also tweeted about their hatred for severe weather and tornado sirens:

Jen tweeted about she gets nervous about tornadoes and tornado warnings

Finally, Zach tweeted about Justin Gallegos, the runner with CP who got a professional running contract with Nike.Ā  Please check out the video in this tweet.Ā  Please note that Justin has asked to have the phrase “suffers from CP” changed to “lives with CP.” We couldn’t agree more Justin.Ā  Run on!

Zach tweets about Justin Gallegos' contract with Nike and that he loves that he is just an athlete to Nike

This brings us to our Extend-The-Conversation Question: What are other types of representation you feel Cerebral Palsy or disability needs?Ā  Share your answer in the comments!

A green background with Extend-The-Conversation at the top and What are other types of representation you feel Cerebral Palsy or disability needs?Ā at the bottom in yellow. The white #CPChatNow logo is at the bottom left

Tweet you later!

-Devin

#CPChatNow Recap- 9-12-2018

#CPChatNow was rocking as always last week.Ā  Members discussed the upcoming season of Speechless, the importance of senses, and what character they would be in a book.Ā  This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

First, members talked about the upcoming season of Speechless.

Zach and Blemi discussed the upcoming season of Speechless. Blemi states she stopped watching it in season 1. Zach said he can relate sometimes while not at others.

Next, Hannah shared her excitement about new glasses.Ā  She shared how much easier life has been since regaining her vision:

Hannah shares her excitement about new glasses and increased vision. Zach shared his reliance on vision for walking and Hannah concurred

Zach and Hannah discussed the loss of different senses and Hannah shared that she would likely deal OK with losing her hearing because of her knowledge of ASL:

Zach and Hannah discussed the loss of different senses and Hannah shared that she would likely deal with losing her hearing because of her knowledge of ASL

This brings us to our extend-the-conversation question, “Which of the five senses do you feel is the most important?” Leave your answer in the “Comments” section.

Continuing on, Zach asked what book people would add themselves to and how they would change the story.

Zach asks what book members would add themselves to. Ayden shares the Count of Monte Cristo to support Dantes

Zach tweeted about being a character in To Kill A Mockingbird and sticking up for Boo Radley:

Zach tweets about being in To KIll A Mockingbird and helping Boo Radley

Extend the Conversation Question in black. A graphic with the five senses in circles around a brain with a drawing of a nose, mouth, ear, hand, and eye. Which of the five senses do you feel is the most important? on the bottom with the multi-colored #CPChatNow logo on the leftMake sure to keep the conversation going by answering the week’s extend-the-conversation question. Again that question asks, “Which of the five senses do you feel is the most important?” Leave your answers below!

-Devin

 

#CPChatNow Recap- Reflecting Back and Looking Forward Focus Chat

This past week in #CPChatNow was especially lively as we celebrated #CPChatNow’s 4th birthday!Ā  We decided to do a focus chat with various questions focusing on changes in member’s lives, questions about #CPChatNow, and a discussion about #CPChatNow’s future.Ā  This is #CPChatNow Co-Host, Devin Axtman, taking you along on this special recap.

The first question focused on what has changed in members’ lives in the last four years.Ā  Members shared many things, but it was interesting that many members had common changes:

Zach asking what has changed over the past 4 years. I answered with some changes including a master's degree, girlfriend

Blemi discussing a new job and boyfriend when talking about changes. Seth discussing cruises and burying his grandpa

The next question was about how members had heard about #CPChatNow.Ā  Members shared various things such as discovering it on their timeline to seeing CP celebrities like John Quinn tweet about it:

Hannah tweeting that #CPChatNow showed up on her timeline

Me stating that I stumbled on #CPChatNow in a search, but I saw John Quinn tweet it

Zach also shared the story of the creation of #CPChatNow.Ā  A collaboration between John Quinn and @HandicapThis.

Zach sharing story of #CPChatNow's creation

The next question related to specific questions or conversations that have stuck out to members.Ā  Hannah shared the long running #CPChatNow joke of the story when someone asked if her CP was caused by getting ran over by a train:

Hannah tweeting the train conversation is her favorite #CPChatNow conversation

Jen tweeted about the focus chat with @The_CP_Swagger and Hunter Gandee who has made national news by carrying his brother with CP on his back to raise awareness:

Jen tweeting her favorite chat was with CP Swagger

Zach chimed in with the exercise chat led by Erin while I said the dating or accessible gaming ones:

Zach and Devin discussing their favorite conversations

Members also mentioned liking that the conversations in #CPChatNow tend to happen organically and do not feel forced:

Members discussing the joy that CPChatNow conversations tend to happen organically

Finally, the last question in the Focus Chat was regarding who members would like to see be a guest on a future focus chat.Ā  Members were consistent in requesting Micah Fowler of Speechless fame.

Jen tweeting that she would like to see Micah Fowler on a future chat

Now this brings us to our next Extend-The-Conversation question and I will use #CPChatNow’s fourth birthday as inspiration.Ā  What has changed for you in the past four years and what would you like to see in the next four?

This week's extend-the-conversation questions asks "What has changed for you in the past four years and what would you like to see in the next four?"

Answer in the “Comments” section.

#CPChatNow Recap- 05-03-2017

Various topics emerged Wednesday, May 3rd, 2017 amidst the two-hour live cerebral palsy Twitter chat we call #CPChatNow. I am co-host Zachary Fenell and I am here to do but what else?! Recap the previous week’s chat. So get ready to chug along.

For another week ABC’s sitcom Speechless proved a hot topic! That included discussion about the previous week’s episode, “R-U– RUNAWAY.”

#CPChatNow participants discuss Speechless episode 20 (season 1) "R-U-- RUNAWAY."Like I mentioned, the episode inspired my at the time in-progress blog post. Anyone interested can read, “Needing Role Models with Cerebral Palsy.” Warning to anyone yet to watch the episode “R-U– RUNAWAY,” my post contains minimal spoilers.

Regarding spoilers, we at #CPChatNow possess an informal anti-spoiling policy. We welcome participants to multi-task, watch Speechless and live tweet us. However we insist on leaving any detailed Speechless conversation outside the chat.

Zachary puts on his co-host hat and reminds participants to not discuss Speechless in detail.Like I explained on May 3rd, this policy intends to protect participants who live in areas where the show still hasn’t aired. After all, people in different time zones and different countries make up our community! Avoiding spoilers demonstrates thoughtfulness. I personally like to think about #CPChatNow as a thoughtful community.

Regular Rachel Folly showed mindfulness, bringing up an annoyance she recently came across.

Rachel raises a complaint about a video title.Admittedly Rachel’s tweet confused me. Something you can tell by my replies in the above screen shot. Turns out Rachel and I watched different adaptions to the same video. Versions uploaded by separate users. Youtube user bagar5 uploaded the version Rachel linked to.

Meanwhile I previously viewed the video uploaded by the official Underarmour channel.

Confusion aside, Rachel raised a valuable point with the version she linked to. The term “boy” appears questionable given Johnny Agar’s age. What do you think? Answer for the week’s extend-the-conversation question, “Does the ‘Boy’ reference in the user uploaded Underarmour commercial video bother you? Why or why not?” Respond in the “Comments” section.

While questions surfaced about the video’s title, reaction to the actual content seemed overwhelmingly positive.

Devin and Rachel both say flattering things about the Underarmour ad.Interim co-host Devin Axtman displayed great enthusiasm for the ad. Rachel echoed the positivity, saying she found truth in the video’s message. Long-time regular Jen continued the topic merry-go-round, with some assistance from Guardians of the Galaxy‘s Rocket.

#CPChatNow participants bond over common interests, not just cerebral palsy!As you see from the preceding screenshot, the Guardians of the Galaxy talk soon led to Jen and relatively new regularĀ Dave Smith to bond over collecting POPs. Common interests outside cerebral palsy albeit collecting POPs or baseball, hockey, wrestling, music, etcetera helps us form deeper relationships within our community.

Answer this week's extend-the-conversation question- Does the "Boy" reference in the title of the user uploaded Unerarmour commercial video bother you? Why or why not?Perhaps you will contemplate joining us! Our Twitter chat happens every Wednesday at 8pm ET. Perchance you do not use Twitter, you can always contribute by answering the recap’s extend-the-conversation question. Remember this week’s question asks the following.

“Does the ‘Boy’ reference in the user uploaded Underarmour commercial video bother you? Why or why not?”

Answer by commenting below! Until next time.

-Zachary