#CPChatNow Recap- 3/23

This past week in #CPChatNow was rolling as always. Members discussed happenings from their lives such as cooking classes, updates on their book, and walking on pavement versus grass. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, Veronica shared a cooking experience she won with Chef Michelle Bernstein.

veronica tweets she won an online cooking experience with chef michelle bernstein and she was glad it's on saturday so she has assistants chris tweets she enjoys cooking shows and knows she's. veronica tweeted it looks like a fun experience and then she say they want 4 courses and all the prep work done before teh instruction

Also, Zach shared the latest update on his book about becoming a marathoner, Slow and Cerebral.

zach shared a book update about his book, slow and cerebral. he is still going through the final edits and it will be released in april

Finally, Zach asked members what surface is easiest for them to walk on, pavement or grass.

zach asks members if walking on pavement is easier than walking on grass. i tweeted i agree pavement is easier because it is more predictable, chris tweeted pavement due to the yard at her house having all kinds of dips and that she has tripped

This brings us to our Extend-The-Conversation Question: What do you feel is the hardest surface to walk on? Please share your answers in the comments and join us at 8 Eastern each Wednesday on Twitter at #CPChatNow!

extend the conversation graphic. #cpchatnow logo with What do you feel is the hardest surface to walk on?   above a picture of two people walking on uneven cobblestone



#CPChatNow Recap- 7/14/2021

This past week in #CPChatNow was hopping as always. Members discussed seeing themselves walking, worries about falling, and what Disability Pride Month means to them. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, my wedding and me walking up the aisle sparked conversation about walking. I was surprised when I saw myself walking on my wedding highlight video. Members seemed to share the same sentiments.

i ask if anyone else gets surprised with how they walk. zach tweets its a jarring experience. jen tweets she rarely sees herself walking, but yes and she has cringed when she sees herself on video.
zach tweets seeing himself walking is less jarring due to seeing himself in drive thru window, alessandro compared himself to a newborn giraffe, zach compared himself to a drunken stumble. chris tweets the worst thing is hearing herself speak and she knows why she is asked if she is australian, blemi tweets it shocks and horrifies her.
i tweeted it was momentary revulsion and then a thought that i put a lot of work for that walk

Next, members discussed worries about falling. Members specifically discussed concerns of falling at weddings and big events.

zach asked if members got nervous about falling at weddings and similar events. i tweeted i got nervous walking down the aisle and my gait gets worse. blemi tweeted she is skipping the aisle and she gets slower and more self conscious when she is nervous

Finally, members marked July being Disability Pride Month, by explaining what disability pride means to them.

i ask what disability pride means to members to celebrate disability pride month. i tweeted disability pride means identifying as disabled and furthering the notion disability is a beautiful part of diversity.
chris tweeted disability pride means not being ashamed of who she is. being around people who recognize the challenges of her disabilities, but also see the good in them. being comfortable in her disabled skin. blemi tweeted she loves chris' definition

This brings us to our Extend-The-Conversation Question: What is something that routinely surprises you about your disability? Please share your answers in the comments and join us each Wednesday on Twitter at #CPChatNow!


#CPChatNow Recap- 02-24-2021

Conversation during the cerebral palsy Twitter chat #CPChatNow Wednesday, February 24th, 2021 covered many different subjects. To tell you more, I am chat co-host Zachary Fenell. Welcome to your weekly recap.

A familiar face dropped in the chat and prompted dialogue.

Jorge asks #CPChatNow participants about any exciting or surprising happenings which occurred over the past week.

Jorge Oteiza asked about exciting or surprising developments in participants’ life over the past week. Blemi responded saying she had thundersnow Tuesday night. A weather condition she had never heard about before. Honestly, neither had I. Fitting, given according to Treehugger.com the occurrence where thunder booms during a snowstorm, remains quite rare. Hence thundersnow certainly qualifies as a surprising development.

Meanwhile my answer to Jorge belonged under the excitement category.

Zachary shares an exciting accomplishment from his past week.

As you may or may not know, I am working on another book. In an exciting development, I completed my manuscript. Admittedly, I still possess much editing to do. Nevertheless, completing a draft remains an accomplishment. One which deserves recognition.

Recognizing accomplishment emerged as a topic we discussed further.

#CPChatNow participants discuss recognizing achievements.

The achievement dialogue stemmed from me reminiscing back to my childhood when my physical therapist presented me trophies for PT. An idea which came to her after she heard me express envy for my brothers’ Little League trophies. While cool, Veronica reminded us achievements come in forms beyond physical feats. She did this by sharing that her child recently earned a varsity letter for academic achievement. Pretty cool!

Let us continue spotlighting different achievements via the extend-the-conversation question. Keep the conversation going and answer “What is an accomplishment of yours that you are proud of?” Leave your response in the “Comments.”

Moving on with recapping the February 24th chat, we literally discussed moving. As in maneuvering and walking.

Blemi sparks conversation about walking by mentioning how she hates seeing herself walk on camera.
Devin adds to the conversation about seeing yourself walk.

In-particular we commiserated over how we feel when we see ourselves walk, either on camera or through catching our reflection in a window. I described the sensation as jarring, explaining “In my head I move just like everyone else. Although, I know that’s not the truth.” A sentiment Blemi enthusiastically concurred with, replying “YES! SO MUCH THIS.”

Adding to the chatter, my co-host Devin Axtman said he feels this way too. However, he reminds himself “I put a lot of work into that walk.” You could consider the walk an accomplishment, which brings us back to the extend-the-conversation question for the week. “What is an accomplishment of yours that you are proud of?”

Remember to answer the week's extend-the-conversation question- "What is an accomplishment of yours that you are proud of?"

Tell us in the “Comments” below. Then set yourself a reminder to join us each and every Wednesday on Twitter, starting at 8pm ET. Tweet you soon.

Until then, remember. Don’t blend in. Blend out!


#CPChatNow Recap- 4/24/2019

Hello Internet! #CPChatNow was buzzing last week. Members talked about walking in the rain, their favorite photo of themselves, and the need for rails while using stairs.

Zach and I lamented about recent experiences while walking and rolling in the rain.

i tweeted about needing a wheelchair umbrella and my poncho died on the way home, zach tweeted he needed a hat umbrella and that kind people recently gave him a ride home

Next, Zach shared one of his favorite photos of himself being near his goal of completing a marathon:

zach sharing his favorite photo of him passing mile marker 25 during his marathon

Zach asked about what side of the street members with Hemiplegic Cerebral Palsy prefer to face. This then morphed into a conversation about stairs and handrails:

zach asked about which side of the street members with hemiplegic cp prefer to face. jeni tweeted no preference, but she prefers to walk on the inside of the sidewalk if possible
ciaran tweeted he likes to have a railing on his unaffected side, zach tweeted he likes his good leg facing the street, zach goes without railings to build his balance, i tweeted lack of railings was an issue at wrigley field
zach tweeted he has been to wrigley and saw the cubs and brewers play in 2013 when he only went up one steps. zach also lamented the gap between gymnasium rails and the strategy he uses to move to the next rail

This brings us to our Extend-The-Conversation Questions (for the hemis): Are there particular things you like to do with you non-affected side?

Thanks for reading! Join us each Wednesday at 8pm Eastern on Twitter. Use the hashtag #CPChatNow!

#CPChatNow Recap- 01-18-2017

Cerebral palsy’s presence during daily activities proved a common theme throughout our live Twitter chat Wednesday, January 18th, 2017. I am #CPChatNow co-host Zachary Fenell and you know why I am here. To recap our latest Twitter chat!

Every week #CPChatNow seems to gain new or renewed interest. Amanda, a familiar face to our long-term community members, returned and sparked much dialogue. First, she asked everyone to share a highlight and struggle from the past week.

Amanda suggests everyone shares one struggle and one triumph from the past week.Some people’s struggles demonstrated the previously mentioned theme, CP’s presence during daily activities. Blemi for example called attention to the difficulties winter brings.

Blemi accomplishment is overcoming the struggle of snow and ice, not falling!Meanwhile Sarah Waltz‘s struggle dealt with CP on an emotional level. Specifically, she sought empathy.

Sarah struggles to find empathy from her teachers.Other answers remained lighthearted and provided a laugh or two. My interim co-host Devin Axtman supplied such.

#CPChatNow met interim co-host Devin spilling water on himself at work with both humor and empathy.Certain answers transcended the cerebral palsy community. My own struggle I am sure many could relate. Time management stands an issue for able-bodied and disabled alike.

Co-host Zachary shares his challenge and triumph for the week.A couple individuals shared weight loss as their weekly triumphs. That led relative newcomer Jen Coventry to seek out exercise advice.

Jennifer wants to know what you do to exercise. If you want to read the article I recommended, awesome! Checkout “Exercises To Try At Home For People With Disabilities.” Hopefully you also find the post helpful.

As the chat continued physical activity stayed a hot topic. Amanda asked opinions on requests she received to film her walk. Said dialogue turned to seeing yourself walk.

Zachary says he used to find watching himself walk on video weird.Blemi compares how she feels walking to an episode of Friends.Like someone walking, let us keep this conversation moving forward. Answer for the week’s extend-the-conversation question “Do you feel self-conscious about your walk?” Leave your response in the “Comments” section.

Overall our January 18th Twitter chat featured riveting dialogue. Looking ahead to tonight’s chat, riveting dialogue promises to become a trend. Last week I confirmed tonight our own Yasmin will lead us in a focus chat.

This month our own Yasmin will lead a focus chat on "Having a Disability and Dating/Being a Part of the LGBTQ+ Community"Personally I am eager to learn tonight. You too?! Allow me to make suggestions to help you pass the time until 8pm ET. The #CPChatNow t-shirt and winter apparel sale ends in five days.

Zachary gives a FYI about the current #CPChatNow t-shirt and winter apparel sale.Explore the sale and order your #CPChatNow gear. Proceeds go to the nonprofit Keep On Keeping On Foundation. Prior to shopping though, remember to answer the extend-the-conversation question.

"Do you feel self-conscious about your walk?" Answer to keep the conversation going!

Keep the conversation going!

“Do you feel self-conscious about your walk?”

Respond with a comment below. Finally, I wish to remind you tomorrow Thursday, January 26th we will hold our monthly Google Hangouts video chat. To inquire about receiving an invitation to the event please contact Devin Axtman or myself on Twitter by DM. Tweet you later!