#CPChatNow Recap- 03-30-2022

Participants in the weekly cerebral palsy Twitter chat #CPChatNow discussed various topics Wednesday, March 30th, 2022. To tell you more, I am chat co-host Zachary Fenell. Welcome to your weekly recap.

An enthusiastic member of our community, Stephen, helped to get the conversation started.

Stephen asks #CPChatNow participants about their thoughts on the phrase "differently abled."
Chris gives her opinion on the "differently abled" phrase.

Stephen asked how people feel about the phrase “differently able.” I replied, saying I find attitudes more important than any one phrase. In particular noting, “You can use the ‘right’ words but have a patronizing attitude.” Personally, I do not have time for people who want to patronize me.

Meanwhile my co-host, Devin Axtman, called language “a personal thing.” A fact Chris also demonstrated in her answer to Stephen’s question. Chris explained she used differently able a long time ago, but now she prefers disabled. A preference she gained through experience over the years.

Though, along with age, comes other impact. A topic which arose as the chat continued March 30th.

Participants in #CPChatNow discuss cerebral palsy and premature aging.

This subject came to the surface after Stephen asked participants if they found CP harder to cope with when you were younger or older. Both Chris and Veronica mentioned cerebral palsy becoming more difficult to cope with as they grew older. Veronica specifically saying, “No one informed me all CP levels can affect aging though and I’d have to deal with premature aging.”

As the evening progressed, discussion drifted to other subjects. For example, challenging surfaces to walk on.

Devin asks participants what they think the hardest surface to walk on is.

Devin sparked the hardest surface to walk on subject by asking everyone what they think the hardest surface to walk on is. He himself said the ocean floor. Blemi answered saying cobblestone sidewalks. I replied saying sand. What do you think? Keep the conversation going and answer for the week’s extend-the-conversation question, “What do you think is the hardest surface to walk on?”

Answer below in the “Comments.” Then mark your calendar to join us each and every Wednesday on Twitter. The fun begins at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

Answer for the week's extend-the-conversation question, "What do you think is the hardest surface to walk on?"
Answer below!

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#CPChatNow Recap- 3/23

This past week in #CPChatNow was rolling as always. Members discussed happenings from their lives such as cooking classes, updates on their book, and walking on pavement versus grass. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, Veronica shared a cooking experience she won with Chef Michelle Bernstein.

veronica tweets she won an online cooking experience with chef michelle bernstein and she was glad it's on saturday so she has assistants chris tweets she enjoys cooking shows and knows she's. veronica tweeted it looks like a fun experience and then she say they want 4 courses and all the prep work done before teh instruction

Also, Zach shared the latest update on his book about becoming a marathoner, Slow and Cerebral.

zach shared a book update about his book, slow and cerebral. he is still going through the final edits and it will be released in april

Finally, Zach asked members what surface is easiest for them to walk on, pavement or grass.

zach asks members if walking on pavement is easier than walking on grass. i tweeted i agree pavement is easier because it is more predictable, chris tweeted pavement due to the yard at her house having all kinds of dips and that she has tripped

This brings us to our Extend-The-Conversation Question: What do you feel is the hardest surface to walk on? Please share your answers in the comments and join us at 8 Eastern each Wednesday on Twitter at #CPChatNow!

extend the conversation graphic. #cpchatnow logo with What do you feel is the hardest surface to walk on?   above a picture of two people walking on uneven cobblestone

-Devin

#CPChatNow Recap- 3/16/2022

This past week in #CPChatNow was exciting as always. Members discussed routines they need to get back to, interests CP has contributed to, and what they would do if they did not have CP for a week. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, I would like to share an update about Zach’s upcoming book, Slow and Cerebral.

zack tweeted he is working on edits for his book, slow and cerebral. he hopes to be done by sunday night.

Members also talked about routines they need to get back into.

zach asked about routines members need to get back into. chris tweeted she needs to start physical therapy and being more active. stephen  tweeted he needs to start walking

Members also discussed interests they feel CP has contributed to.

zach asks how cp has influenced people's interests. blemi tweeted she feels she wouldn't be much of a reader. zach tweeted he feels cp led to him being a writer and to grow as a writer. he tweeted this goes back to his interest in cleveland baseball once he realized he wouldn't play baseball. he felt writing would be the next best thing.

Finally, members discussed what they would do if they didn’t have CP for a week.

stephen asked what members would do if they did not have cp for a week

This brings us to our Extend-The-Conversation Question: What would you do if you didn’t have CP?

extend-the-question graphic: what would you do if you didn't have cp for  a week? An image of the days of the week written on sticky notes in front of a gray background

#CPChatNow Recap- 03-02-2022

On Wednesday, March 2nd, 2022 participants in the cerebral palsy Twitter chat #CPChatNow enjoyed an important conversation. Join me, chat co-host Zachary Fenell, as I do my best to recap the discussion. Shall we get started?

Participants in #CPChatNow discuss bone issues and cerebral palsy.

The important conversation I referred to above revolved around cerebral palsy and aging. A topic raised by chat regular Chris when she shared a Science Direct article “Incidence of osteoarthritis, osteoporosis and inflammatory musculoskeletal diseases in adults with cerebral palsy: A population-based cohort study.” Chris explained the article remains relevant to her right now and she wondered if others had any experiences or thoughts on the matter.

Veronica chimed in saying she gets the early aging part of the article. Adding humidity makes her arthritis act up. Although, Veronica expressed uncertainty about whether her CP has anything to do with her arthritis and osteoporosis seeing how those conditions run in her family.

Chris responded, saying arthritis and osteoporosis also run in her family. She went on, curious if any of us were told growing up about bone issues and CP. My co-host Devin Axtman weighed in with his experiences.

Devin recounts what doctors told him or didn't tell him about problems he would have as an adult with CP.

Devin summarized his experiences saying, “I feel like I was basically told of no problems I would have as an adult with CP.” Continuing he described the attitude from medical professionals as “Just like ‘WELP we did all the regular surgeries. Good luck!'”

A sentiment which resonated with Chris. She stated “This was a big reason why I brought this up.” Challenging everyone to “Be aware. Do your research, ask questions, take calcium!” Chris then offered a follow-up the next day.

Chris shares with #CPChatNow an article from cpresource.org about preventive care for adults with cerebral palsy.

In her follow-up tweet Chris shared an article from cpresource.org about “Preventive Care for Adults with Cerebral Palsy.” Let us keep the preventive care discussion going. Answer for the week’s extend-the-conversation question, “What is something you do for preventive care?” Answer below in the “Comments.”

Afterwards, mark your calendars for #CPChatNow each and every Wednesday. The fun begins at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

This week's extend-the-conversation question asks, "What is something you do for preventive care?"
Answer below!

#CPChatNow Recap-2/23/2022

This past week in #CPChatNow was buzzing as always. Members discussed their plans for Cerebral Palsy Awareness Month, frustrations with insurance, dealing with the cold, and Erin stopped by to share her paintings! This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

Longtime member Erin stopped by to share her new painting venture at E’s Messy Gallery .

erin announced a caption contest for her messy gallery facebook page, tweet has images of erin's paintings and her holding a painting
erin tweets she throws her pain brushes occasionally. her personal caregiver puts duck tape on the ends of her brushes and she had a studio built with a sink in the floor. an image of erin with a red shirt and paint splotches

Next, members discussed frustrations with insurance. Alessandro is thinking about a knee replacement and Erin is battling with insurance to get a talking device.

alessandro discusses the possibility of knee replacement, but says he can't afford it, zach tweets it sucks we make decisions about wellness based on what we can afford vs what is best for us, erin shares an example of getting a talking device funding by insurance and tweets about how they don't care if it enhances her career

Members also discussed how they deal with the cold. Zach tweeted he uses a heating pad and Erin shared she moved to Florida.

zach tweets his shoulder stiffened up while reading. he tweets he got his heating pad out to relieve the pain. he asked what people do to counter the cold, erin tweeted she moved to florida

Finally, Zach tweeted about his plans for CP Awareness Month, releasing his new book!

zach asked if members had plans for CP awareness month. stephen tweeted he did not and asked zach for his plans. zach tweeted the plan is to release Slow and Cerebral but that depends on the proofreader feedback.

This brings us to our Extend-The-Conversation Question: What are your tips for dealing with insurance? Please share your answers in the comments and join us each Wednesday at 8 Eastern on #CPChatNow.

-Devin

#CPChatNow Recap- 02-16-2022

Communal vibes emanated from the weekly cerebral palsy Twitter chat #CPChatNow Wednesday, February 16th, 2022. Here to tell you more, I am chat co-host Zachary Fenell. Let us get to recapping!

Admittedly, I am a bit hesitant in compiling this recap. My hesitancy rooted in concerns I will come across too self-promotional. As you might know, I had remained hard at work on a new book over the last two years. Well, on Wednesday, February 16th I revealed my upcoming book’s cover and title.

I first posted the reveal in #CPChatNow to show my gratitude for all the support the community has given me throughout the process. Count on me to continue to provide updates as Slow and Cerebral nears release (most likely late March).

Elsewhere in the chat, I also supplied an update on a long-time community member.

Zachary offers an update on long-time #CPChatNow participant Hannah.

Hannah asked me to share some bad news regarding her health. Those in our community rallied around Hannah and sent well wishes her way. Personally, I noticed a parallel between us rallying around Hannah and celebrating Slow and Cerebral‘s reveal.

Zachary compares the February 16th, 2022 #CPChatNow to a roller coaster.

Essentially, I compared the night’s chat to a roller coaster. Commenting that amidst the highs and lows, one constant remained. Community!

Throughout the ride, we enjoyed other lively discussion. Stephen, an enthusiastic chat participant, helped spark this dialogue.

Stephen asks #CPChatNow, "What is one thing you like about cerebral palsy?"

Stephen asked the group what is one thing they like about CP. I answered saying CP has acted as a filter, letting me know what friends I can count on. Overall though, responses varied.

Devin shares what he likes about cerebral palsy.
Jessica discusses what she likes about CP.

My co-host Devin Axtman credited CP for making him more adaptable and less upset by setbacks. Meanwhile Jessica replied, saying CP has helped her to show empathy and compassion to others. What about you? Keep the conversation going and answer as the extend-the-conversation question, “What do you like about cerebral palsy?”

Answer in the “Comments.” Afterwards, set a reminder to join us each and every Wednesday on Twitter. The fun begins at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

Answer  for the week's extend-the-conversation question, "What do you like about cerebral palsy?"
Respond below!

#CPChatNow Recap- 12/29/2021

The last #CPChatNow of 2021 had members looking back on their highs and lows of the year and what they had learned along with looking forward to 2022. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, members discussed their highs and lows from 2021:

zach asks about highs and lows, i tweet getting married and low of the cubs season, zach tweeted his high is progressing on his book and getting promoted at work, low is not getting video work done to work on book, blemi tweeted her high is getting engaged and her low is having to leave work

Next, members discussed what they had learned during the year.

zach asks about life lessons from 2021, chris tweets don't ignore what you think are little or insignificant health issues
zach tweets his life lesson is to focus on the present and that he injured his groin because he was not focused on the present. i tweeted that he stole mine and that sometimes things are worth waiting for.

Finally, members discussed their goals for 2022.

zach asks about goals for 2022, i tweeted to stretch more regularly, he tweeted simple goals can have great results and the cold weather has had him needing to stretch, blemi tweeted continuing to get her health back in order.
stephen tweeted to get a girlfriend, zach tweeted getting a signficant other is hard because things are out of your control and it's better to be single than in a bad relationship, chris tweeted to finish her master's degree.

This brings us to our Extend-The-Conversation Question: What are your goals for 2022? Please share your answers in the comments and join us each Wednesday at 8 Eastern on #CPChatNow!

-Devin

#CPChatNow Recap- 12/22/21

The #CPChatNow recap is back! This past week in #CPChatNow was bouncing as always. Members discussed holiday traditions, driving, eye surgeries, and more! This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, I would like to recognize Stephen Commander on his recent birthday! I hope you enjoyed your day!

I also want to recognize Zach’s cool “Don’t blend in, blend out!” holiday sweater.

zach tweeted a picture of him in blue mask and his green don't blend in, blend out green holiday sweater with white snowflakes, sleighs, and reindeer

Fittingly for a few days before Christmas, members discussed their favorite holiday traditions.

zach asks what members favorite holiday traditions are. stephen said eating homemade chex mix with corn and wheat chex, peanuts, and pretzels
blemi tweets she loves watching people open presents she gave them. zach tweets he loves giving gifts when he doesn't have to ask

Next, members discussed the challenges and opportunities that can come from not being able to drive.

stephen tweets he wishes he could drive and not have to rely on his parents. veronica tweeted she was chauffeured by her son this afternoon.
veronica tweeted it was a condition of him getting his license and second car. veronica tweeted her children learned it is different to have a parent with a disability, but they help pay for his car expenses wile he goes through veterinary school
zach responds to stephen by saying he understands, but he has found benefits to not driving by spending bonus time with people he cares about

Finally, Veronica tweeted about her recent laser eye surgery and members asked questions about it.

veronica tweets about a laser treatment she had her eye to help the lens with reading. i ask if the treatments are painful. veronica tweeted the treatment was not painful, she just heard some clicking sounds and built it up to be worse than it is
veronica asked if members have looked at lasik stating she got lasik done after her cataract surgery to fix her stigmatism, blemi tweeted she is always told she is not a candidate for lasik

This brings us to our Extend-The-Conversation Question: What is your most significant medical procedure you have undergone?

extend-the-conversation question graphic:#CPChatNow multicolored logo in upper right hand corner, what is the most significant medical procedure you have undergone? above a picture of 3 people in medical scrubs working on a patient in an operating room

Please share your answers in the comments and join us each Wednesday on Twitter at 8 Eastern on #CPChatNow!

-Devin

#CPChatNow Recap- 12-08-2021

On Wednesday, December 8th, 2021 the weekly cerebral palsy Twitter chat #CPChatNow enjoyed a lively conversation. To tell you more, I am chat co-host Zachary Fenell. Shall we get to recapping?

Several topics came and went throughout the evening Wednesday, December 8th. Thus why I described the night as “lively.” Early in the evening Alessandro brought life to the chat, asking a question.

Alessandro asks #CPChatNow if they have moments where they are so deep into whatever they're doing, that they forget they have CP.

Alessandro explained recently he has experienced moments where he has been so deep into whatever he was doing, that for a split second he forgets he has CP. Curious, he wanted to know if others encountered similar experiences. Both my co-host Devin Axtman and I said no, even noting dealing with cerebral palsy in our dreams. Meanwhile, Jen said sometimes. However, she could not pinpoint an exact moment. Jen and Alessandro were not alone either.

Blemi shares her experiences about forgetting she has cerebral palsy and what jolts her to remember.

Blemi stated she tends to forget she has CP until she trips over something. Or, until she leaves the house and people stare at her. Stares which sometimes lead to ridiculous comments. Another subject our community discussed December 8th. A discussion prompted by Blemi.

Blemi asks #CPChatNow "What is the most ridiculous question someone has ever asked you?"

In asking participants what the most ridiculous question they have ever been asked, Blemi triggered our participants to recall some truly dumbfounding inquiries. Devin remembered getting asked “How do you go to college?” His tale reminded Blemi of a similar situation. Blemi recounted for us people always asked if she had different admission requirements.

Nevertheless, the most ridiculous question received arguably goes to Hannah. She told us about being told she must have some other palsy because she has not “OUTGROWN IT YET?” Although, for argument sake, you could debate the question’s ridiculousness level.

Veronica offers an explanation for why some people think you outgrow cerebral palsy.

Like Veronica pointed out, many people don’t realize you don’t outgrow CP because CP gets advertised as the biggest birth defect in children. Veronica mentioning “using the word children makes it sound like it can be outgrown.”

A sentiment I agreed with 100%. To keep the conversation going, answer for the week’s extend-the-conversation question “What are other ways we can debunk the myth you ‘outgrow cerebral palsy’?” Leave your ideas in the “Comments” section.

Afterwards, mark your calendars to join us each and every Wednesday on Twitter for #CPChatNow. The fun begins at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

Answer the extend-the-conversation question, "What are other ways we can debunk the myth you 'outgrow cerebral palsy'?"
Answer below!

#CPChatNow Recap 12/1/2021

This past week in #CPChatNow was a banger as always. Members discussed the 8 year anniversary of #CPChatNow, stretching hip flexors, and their favorite part of the holiday season. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

We have a milestone to mark this week, the 8 year anniversary of #CPChatNow! Members discussed the passage of time and Zach shared some history of the chat.

zach tweets we have provided us answers for 8 years with our 8 year anniversary, i tweet that is 2 presidential terms and zach tweets it's time to write a book and jokes oh wait.
zach tweets about members who have been there since near the beginning, blemi, myself, jen, others.
zach tweets december 3rd, 2013 was the first #cpchatnow and shares a graphic with @handicapthis, John Quinn, and @zacharyfenell

Next, I asked if members could share ideas on stretching hip flexors independently. Blemi shared some tips.

i ask if anyone knew how to stretch hip flexors independently. zach tweeted no, but on googling it would be hard for him to do himself.
blemi tweeted to lay on your back with a towel under your knee while moving the towel in the opposite direction, i tweeted i have had hip pain lately, blemi tweeted she got the stretch from her pt and she wraps the towel like a sling to move her leg

Finally, Zach asked about member’s favorite part of the holiday season and #CPChatNow OG, Hannah Pike, chimed in.

zach asked what the favorite part of the holiday season is for members, hannah tweets surprising those that she can and she reminded zach he was on the end of a surprise her dad came up with

This brings us to our Extend-The-Conversation Question: What is your favorite holiday tradition?

extend-the-conversation question graphic, multicolored #cpchatnow logo, what is your favorite holiday tradition? above a picture that says holiday traditions with a variety of gift boxes surrounding it

Please share your answers in the comments and join us each Wednesday at 8 Eastern on Twitter at #CPChatNow.

-Devin