#CPChatNow Recap- 7/1/2020

#CPChatNow opened up July discussing a wide range of topics. Members discussed Canada Day, critical topics such as their favorite type of M&M’s, and if it was difficult to obey their limits. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, I would like to highlight an important conversation The Accessible Stall podcast had about systemic racism and abelism. You can find the episode here.

i tweet about the accessible stall podcast episode on systemic racism

I also wanted to highlight a recent blog post by co-host, Zachary Fennell, about his experience during the Cleveland UCP Race to Empower.

zach tweets about a guest blog post about cleveland UCP"s race to empower

July 1st was Canada Day and Blemi tweeted that it was very different than the normal celebrations due to the COVID pandemic.

blemi tweeted everything is canceled so she was having a low key canada day at home, zach asks about usual activities, blemi tweeted her hometown usually had a parade and rodeo and there are always family get togethers. zach tweets that sounds like fun and a low key day is good sometimes

Next, talk turned to a very important question, what are member’s favorite M&M’s. This was inspired by some delicious Crispy M&M’s I was enjoying.

i ask what people's favorite m&m's were. chris tweeted peanut or nutella.

Finally, members discussed a common struggle for folks with CP, obeying their limits.

zach asks if it is difficult for people to obey their limits. zach tweets his question was inspired by passing on some sub opportunities at work. i tweet i sometimes have trouble with walking long distances.
chris tweets he does not push his physical limitations and it has been a struggle because he used to resent his cp. he also tweets his immune system has never been strong and all 4 sides are affected so he wishes he could be more physically active.

This brings us to our Extend-The-Conversation Question: What is your favorite candy?

the extend-the-conversation graphic. the orange, blue, and green #CPChatNow logo is in the right hand corner, extend-the-conversation question is above the question in green with the question of what is your favorite candy above a picture of M&M's on pretzel sticks. #cpchatnow is in white text behind a green background

Thanks for reading and be sure to join us each Wednesday at 8 Eastern on Twitter at #CPChatNow.



#CPChatNow Recap- 06-01-2016

Cerebral palsy or drunk, the too common mix up triggered much conversation Wednesday, June 1st. Hi! Co-host Zachary Fenell back as promised to recap our most recent Twitter chat. Due to my co-host Blake Henry dealing with other priorities, I remained without my metaphorical co-pilot.

Blake inform the community other priorities will keep him from the night's Twitter chat.After sending well wishes to Blake’s father, we proceeded with our traditional Wednesday evening ritual. I sparked dialogue, sharing an experience from earlier in the day.

#CPChatNow community members discuss how some people assume people with cerebral palsy are just drunk.Devin asks if I used the cerebral palsy or drunk confusion as a teachable moment.Honestly, I read about others encountering the cerebral palsy or drunk confusion before. Yet if I indeed heard correctly, the interaction marks my first personal experience with the issue. I wonder how many face the cerebral palsy or drunk mix up.

Wait! That gives me an idea. How about I ask for this week’s extend-the-conversation question “Has your cerebral palsy ever led someone to mistaken you for being drunk? How did you react?”

Leave your answer in the “Comments” section.

Another noteworthy aspect came when I teased the next focus chat announcement.

Zachary tells the community to visit the website Thursday for the June 2016 focus chat announcement.Those who missed Thursday’s post, click here. Personally I believe this upcoming focus chat will lead to some standout discussion! Make sure to mark the special time on your calendar, 5pm ET- 7pm ET (June 15th).

Speaking about focus chats, Devin mentioned a past focus chat leader.

Devin recommends Emily Ladau's new podcast The Accessible Stall.Last year Devin and Emily teamed up to lead an advocacy focus chat. While I still need to listen to The Accessible Stall myself, I hold no hesitation echoing Devin’s recommendation here. I am more than confident Emily delivers an awesome podcast.

Additionally I wish to echo a plug I made Wednesday evening.

I encourage others to sign a We the People petition, asking the White House for adult changing areas in restrooms.Everyone deserves the chance to go to the bathroom in a private, dignified setting. So again, I am encouraging everyone to sign. Use this active link to visit the petition and show your support on said important matter.

Answer, has your cerebral palsy ever led someone to mistaken you for being drunk? How did you react?Once you sign the petition, return here to the recap and answer the extend-the-conversation question.

“Has your cerebral palsy ever led someone to mistaken you for being drunk? How did you react?”

Simply leave a comment below to respond.

I hope to talk with you Wednesday.