Tag Archives: cerebral palsy

#CPChatNow Recap- 11/6/24

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#CPChatNow recaps are baaaaaaaccccckkk! This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. Members discussed funny disability costumes, holiday music, Halloween costumes, and more. All aboard!

First, Stephen checked in with us to let us know he was still having fun going to the Exceptional Foundation.

stephen tells zach he's going to the exceptional foundation tomorrow and that it's always a good time.

Next, I shared a funny comment someone made about my disability when they asked if I rolled 20 miles to and from work each day in my wheelchair.

i shared that a lady asked if i rolled 20 miles from home to work and back. zach asked if she knew how long my commute is. i tweeted she was intoxicated and it was on the shoulder of a highway. veronica shares the story of her daughter seeing someone roll their wheelchair backwards on a sidewalk

Next, Zach asked when members started listening to holiday music.

zach asked when people start listening to holiday music and says he does after Thanksgiving. I tweeted I do on christmas eve

Finally, Zach shared his Halloween costumes from this year, Macho Man Randy Savage and Luigi.

zach asks if anyone dressed up for halloween. i tweeted i wore my only in it for the parking shirt. zach shared pictures of himself dressed up as macho man randy savage and luigi

This brings up to our Extend-The-Conversation Question: What is your favorite Halloween costume you have ever worn? Please share your answers in the comments and join us at 8 Eastern on X each Wednesday.

-Devin

#CPChatNow Recap- 10/2/24

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This past week in #CPChatNow was bussin as the kids would say. Members discussed their favorite Starbursts, their Steptember progress, Halloween traditions, and more. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on last week’s recap. All aboard!

First, Zach talked about his progress for Steptember. He met both his step and fundraising goals!

zach provides an update on his final steptember numbers. he achieved both his step and fundraising goals. there is a graphic with his step and fundraising goals

Next, members discussed their favorite and least favorite flavors of Starbursts.

zach asks what members favorite and least favorite starburst flavors are. i tweeted pink and red are my favorite, but i don't love yellow. zach tweeted they are talking about it at work and the majority don't like yellow, but some like it
veronica tweets she doesn't eat them because they are too sticky and make her teeth feel icky. zach tweeted his braces had him avoiding caramels and sticky candies. veronica tweeted she spent 6 years in braces and had her wisdom teeth and permanent teeth out, but she's never had a cavity and the dentist said she will keep her teeth until she is 100 even though she doesn't want to live that long. zach tweeted quality of life is more important than how long you live

Finally, Zach asked what Halloween tradition members liked most.

zach asked what members favorite Halloween traditions are. veronica said she likes handing out candy and seeing trick or treaters rather than dressing up. zach tweeted he likes dressing up and people liked seeing costumes at work

This brings us to our Extend-The-Conversation-Question: What is your favorite candy?

Thanks for reading and join us each Wednesday at 8 Eastern at #CPChatNow on X.

-Devin

#CPChatNow Recap

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We’re going to switch things up a bit this week by recapping the last two chats in #CPChatNow. Members discussed dancing, advocating, pain, and doing a 5k. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, we would like to congratulate Zach for recently completing a 5k!

a picture of zach at a 5k in a Robin costume

Also, Zach asked members if they are self-conscious about dancing,

zach asks if there are songs that make people dance, i tweet it is come on elieen for my wife and i, zach tweets he used t be conscious about dancing, i tweet i don't dance alone, but i don't care what other people think

Finally, Zach, Casey, and Veronica talked about feeling more pain and spasticity in the cold weather.

zach, casey, and veronica discussing spasticity in cool weather and changes

Now this comes to our Extend-The-Conversation Question: What is your favorite way to exercise?

Thanks for reading and join us at 8 Eastern at #CPChatNow on X!

-Devin

#CPChatNow Recap- 8/14/24

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This past week in #CPChatNow was bustling as always! Members discussed yummy birthday treats, what they had made progress on during the past week, and what they would do if they could go back to school. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

Hannah recently had a birthday and she talked about a peanut butter fudge cake that her grandma made for her birthday.

hannah tweets about her grandma making her cake and zach asked what kind it was. hannah tweets it is guten free chocolate with peanut butter icing

Next, Zach asked what members had made progress on during the last week.Zach talked about a recent video on goal setting and CP that he had recently completed.

zach asks what people made progress on the last seven days and tweets about a youtube video he had recently completed on goal setting and cp

Jen talked about plans for her upcoming birthday.

jen tweets she has made progress n birthday plans. zach tweets he is glad she is doing something for a big birthday

Finally, Zach asked members what they would do if they could redo school.

zach asks if members would do anything different if they could return to school, he tweets he wishes he was more outgoing, but that he is who he is because of the experiences he had and didn't have, I tweeted I would be bold and try more things

This brings us to our Extend-The-Conversation Question: What is your favorite kind of cake? Please share your answers in the comments and join us each Wednesday at 8 Eastern at #CPChatNow on X!

Thanks for reading!

~Devin

#CPChatNow Recap 7/31/24

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This past week in #CPChatNow was grooving as always. Members discussed their favorite Olympic and Paralympic sports and who helped them become an advocate. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, members discussed their favorite Olympic and Paralympic sports. Hannah rightly pointed out that the Paralympics are coming up. The Paralympics are the Olympics for disabled athletes.

i ask what member's favorite olympic sports are. hannah tweets gymnastics and swimming and points out the paralympic sports of swimming and wheelchair curling.

Next, members discussed who helped them become an advocate. Veronica talked about her husband helping her be herself.

veronica says her husband has helped her be an advocate by encouraging her to be herself

Many people talked about how actions their parents took sparked their advocacy skills. Zach also discussed how he became an advocate at college.

i tweeted that my parents helped me become an advocate because they knew i would have to later in life.

This brings us to our Extend-The-Conversation Question: What skills do you think are necessary to be a good advocate?

Thanks for reading and please join us each Wednesday at 8 Eastern on X!

-Devin

#CPChatNow Recap- 6/26/24

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Thanks for joining us for the #CPChatNow recap from June 26th, 2024. Members discussed going to pride parades, fall clinics, and what they think when they stumble.

First, Jen and I marked 626 Day, a day commemorating Stitch from Disney’s Lilo & Stitch.

jen tweets happy 626 day with a picture of her stitch plush.

Next, Seth checked in to say he had fun going to the Pride parade.

i explain to seth that stitch is also named project 626 and ask how he has been. he tweets ok just busy and the pride parade was fun

Chris also expressed excitement about going to a fall clinic that is going to evaluate her risks for falling and teach her some techniques.

chris tweeted she is excited to go to the fall clinic, zach tweeted it will be interested to see what input she will learn that she hasn't over the years, chris tweeted no one has taught her about falls or done anything supportive. zach tweeted he spent an entire summer of physical therapy focusing on falling after a fall that led to a concussion in first grade.

Finally, talk turned to what self talk members employ when they stumble.

zach asked what self-talk goes through member's minds when they trip, veronica tweeted she usually thinks pick up your feet dumbass but she learned about turf toe when watching football and she realized she's athletic and she didn't know it.

This brings us to our Extend-The-Conversation Question: What strategies do you use to not fall?

Thanks for reading and join us each Wednesday at 8 Eastern at #CPChatNow on X!

-Devin

#CPChatNow Recap- 6/12/24

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This past week in #CPChatNow was a happening as always. Members talked about their children’s graduation, their feelings on roller coasters, movies they were hoping to see this summer, and the Juneteenth holiday. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

Veronica tweeted about her child’s graduation from veterinarian school. Congratulations Veronica and family!

veronica tweets she made it to the hotel in oregon and the graduation is on sunday. zach asked if they had any plans before the graduation. veronica tweeted the college has activities planned and sightseeing.
zach asks veronica if she has any places she wants to sightsee. veronica tweets they may see silver falls state park and the carousel museum, zach tweets the carousel museum sounds fun

Next, Hannah popped in the chat and the conversation turned to roller coasters and whether members liked them.

zach asks how members feel about roller coasters, hannah tweets she loves them, but she's not a fan of going upside down, i tweeted that i agree about going upside down, but i'll still ride it.

Next, members talked about movies they wanted to see this summer.

zach asked if anyone is planning to see any movies this summer. hannah tweeted she wanted to see inside out 2, i tweeted i loved the first movie, and zach tweeted he is going to see deadpool/wolverine this summer

Finally, I wanted to commemorate Juneteenth, a day that celebrates the ending of slavery in the United States.

zach asks what members are looking forward to in the next 7 days. i tweeted we get juneteenth off and i didn't know what it was until i got to texas, zach tweets they get a floating holiday and he knows it gained more visibility two years ago when it became a national holiday

This brings us to our Extend-The-Conversation Question: What is your favorite movie of all time? My favorite movie is Parasite. Please share your answers in the comments!

-Devin

#CPChatNow Recap- 5/29/24

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Last week in #CPChatNow members discussed their church communities, colleges closing down, wearing glasses, and getting through hard days. This is co-host, Devin Axtman, taking you along for the ride for this week’s recap. All aboard!

Casey stopped by the chat and shared the importance of their church. This illustrates the importance of virtual options for many disabled people.

casey tweeted about their online church family and how important it is

Zach shared his sadness at his alma mater, Notre Dame College, shutting down. He shared he was going to a farewell mass on Saturday.

zach asked what members were looking forward to that weekend. i tweeted about watching playoff hockey, zach tweeted about his alma mater's closing mass on saturday

Next, discussion turned to whether members wore glasses.

zach asked if members wore glasses. i tweeted i don't wear contacts because of cp dexterity

Finally, Hannah graced the chat with her presence and Zach and her discussed how to get through hard days sharing a Steve Harvey quote.

hannah tweeted she is hanging in there. zach shared a steve harvey quote of 'Your track record for those tough days is 100%. zach tweeted that sometimes you need to get through one day or one minute.

This brings us to our Extend-The-Conversation-Question: How do you get through those hard days? Please share your answers in the comments and join us each Wednesday at 8 Eastern on X!

-Devin

#CPChatNow Recap- 5/15/24

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This past week in #CPChatNow was grooving as always. Members discussed handling conflict and what they would change in their life. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, Zach and I discussed how to handle conflict. We discussed the importance of active listening and conflicts bringing opportunities.

zach talked about attending a conflict management program at work and discussed how to handle conflict. i tweeted it is best dealt with directly and with active listening. zach tweeted active listening is key and one of his coworkers said conflict is learning opportunity

Next, members discussed what they would change in their lives if anything.

zach asked what changes people would make in their life. I tweeted I would have more fun in college because nobody has asked about my gpa. Zach tweets he would've taken his freshman year in college more seriously. I tweeted I also would've bought a house 4 years ago
veronica tweeted her husband and her have talked about they couldn't afford to buy a house in today's market and they bought their house 24 hours ago.
chris tweeted she would've studied social work in 2012 after ending up in a lot of debt

This brings us to our Extend-The-Conversation Question: What do you do if you start experiencing regrets? Please share your answers in the comments and join us tomorrow night on X at 8 Eastern.

-Devin

#CPChatNow Recap-5/8/24

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This past week in #CPChatNow was bumping as always. Members discussed engagements, job searches, new sports, and how CP impacts their mental health. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, we would like to congratulate #CPChatNow co-host, Jorge Oteiza, on his recent engagement!

jorge oteiza announcing his engagement with a picture of him proposing to his fiance

Next, Gracielita discussed her search for jobs, specifically work from home jobs.

gracelita and zach discussed the job search process, specifically work from home jobs to maintain her health

Next, Stephen mentioned that he has been getting into tennis by watching it on TV and playing video games.

steven and zach tweeted about how stephen has gotten into tennis by watching and playing video games

Finally, Zach and I talked about the changing impact of CP on mental health as we age. I also want to recommend folks check the recent episode The Accessible Stall Podcast did on the subject of cures.

zach asks how CP impacts people's mental health. i shared this has changed as i have aged and experienced more pain. zach agreed aging creates new challenges

This brings us to our Extend-The-Conversation Question: What are your favorite things to do for mental health self-care?

-Devin