#CPChatNow Recap

We’re going to switch things up a bit this week by recapping the last two chats in #CPChatNow. Members discussed dancing, advocating, pain, and doing a 5k. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, we would like to congratulate Zach for recently completing a 5k!

a picture of zach at a 5k in a Robin costume

Also, Zach asked members if they are self-conscious about dancing,

zach asks if there are songs that make people dance, i tweet it is come on elieen for my wife and i, zach tweets he used t be conscious about dancing, i tweet i don't dance alone, but i don't care what other people think

Finally, Zach, Casey, and Veronica talked about feeling more pain and spasticity in the cold weather.

zach, casey, and veronica discussing spasticity in cool weather and changes

Now this comes to our Extend-The-Conversation Question: What is your favorite way to exercise?

Thanks for reading and join us at 8 Eastern at #CPChatNow on X!

-Devin

#CPChatNow Recap- 6/12/24

This past week in #CPChatNow was a happening as always. Members talked about their children’s graduation, their feelings on roller coasters, movies they were hoping to see this summer, and the Juneteenth holiday. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

Veronica tweeted about her child’s graduation from veterinarian school. Congratulations Veronica and family!

veronica tweets she made it to the hotel in oregon and the graduation is on sunday. zach asked if they had any plans before the graduation. veronica tweeted the college has activities planned and sightseeing.
zach asks veronica if she has any places she wants to sightsee. veronica tweets they may see silver falls state park and the carousel museum, zach tweets the carousel museum sounds fun

Next, Hannah popped in the chat and the conversation turned to roller coasters and whether members liked them.

zach asks how members feel about roller coasters, hannah tweets she loves them, but she's not a fan of going upside down, i tweeted that i agree about going upside down, but i'll still ride it.

Next, members talked about movies they wanted to see this summer.

zach asked if anyone is planning to see any movies this summer. hannah tweeted she wanted to see inside out 2, i tweeted i loved the first movie, and zach tweeted he is going to see deadpool/wolverine this summer

Finally, I wanted to commemorate Juneteenth, a day that celebrates the ending of slavery in the United States.

zach asks what members are looking forward to in the next 7 days. i tweeted we get juneteenth off and i didn't know what it was until i got to texas, zach tweets they get a floating holiday and he knows it gained more visibility two years ago when it became a national holiday

This brings us to our Extend-The-Conversation Question: What is your favorite movie of all time? My favorite movie is Parasite. Please share your answers in the comments!

-Devin

#CPChatNow Recap- 04-24-2024

Every Wednesday folks gather on X (formerly Twitter) for the live cerebral palsy (CP) chat, #CPChatNow. Here to provide highlights from the April 24th, 2024 chat, I am #CPChatNow co-host Zachary Fenell. Get ready for your weekly recap!

The power community offers remained on display early in the evening.

Stephen explains how #CPChatNow has empowered him.

Chat regular Stephen shared, “Thanks to #cpchatnow I can say what I want to say.” When I expressed an interest in learning more about his comment, Stephen explained, “It was I can say whatever I want and I know yall will understand.”

Elsewhere in the night’s discussion, understanding showed with participants chatting about how cerebral palsy can impact going to a concert. The dialogue eventually led to a concert-related question.

#CPChatNow participants discuss their favorite venues for seeing concerts.

I asked participants what their favorite venues for seeing concerts are. My co-host Devin Axtman and I both named outdoor venues in our respective areas. Regarding outside concerts, I commented, “Part of a outside concert’s charm is weather. Weather influences the atmosphere of a show. I’ve been to concerts where it down poured for a portion of the show and it only made the concert that much more memorable.”

While rain can help make an outside concert more memorable, I occasionally feel I need something to make all tasks on my to-do list memorable. Therefore, I asked a question.

#CPChatNow participants share their tactics for staying organized.

Seeking ideas, I asked, “How do you stay organized and keep track of everything you have to do?” Stephen said, “My memory.” Quite impressive, at least in my opinion.

Meanwhile Devin answered, “notes app on my phone. Memory a bit too but that’s not working as well.” What about you though? Answer for the week’s extend-the-conversation question, “How do you stay organized and keep track of everything you have to do?” Reply in the comments.

However, first mark your calendar to join us each and every Wednesday on X. The fun begins at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

Answer for the extend-the-conversation question, "How do you stay organized and keep track of everything you have to do?"

#CPChatNow Recap- 04-17-2024

Community, creativity, and more remained on display Wednesday, April 17th, 2024 during the live weekly cerebral palsy (CP) X chat #CPChatNow. To tell you more, I am chat co-host Zachary Fenell. Welcome to your weekly recap.

Our chat’s communal vibe emerged early in the evening.

#CPChatNow participants wish Casey a happy birthday.

Casey mentioned the day was her birthday. Both Veronica and I wished Casey a happy birthday. Keeping the conversation going, I then asked participants about highlights and learning experiences from the past week.

Answering my own question, I called working on my latest blog post my highlight. The post, “A Meaningful Birthday Celebration,” (my annual birthday reflection post), doubled as a learning experience. I explained, “I thought of a goal to publish one blog post and one YouTube video a month. First, I discouraged myself thinking those goals weren’t ambitious enough, but then I realized those numbers would still double the content I released each of the last two years.”

Encouraging words came from Veronica, who replied, “It’s good to start small and build off it.” Meanwhile for Veronica her learning experience for the week occurred elsewhere.

Veronica and Zachary discuss writing poetry.

With April being National Poetry Month in the United States, Veronica commented, “Being April I’m open to learning about poetry. I’ve written a couple forms I haven’t tinkered with in awhile.”

In response, I mentioned feeling creativity’s temptation. I detailed, “An idea for a poem came to me today. In college I performed a poem titled ‘Who am I?’ celebrating my contributions to the college. With the college closing after this semester, I plan to rewrite the poem to celebrate my contributions to the college’s legacy.”

If the poem sounds interesting to you, stay tuned! First though, let us stay focused on finishing this recap. I went on to ask a question which sparked thought-provoking dialogue.

Participants in #CPChatNow discuss the phrase, "The only disability in life is a bad attitude."

Curious, I asked the question, “What well-meaning phrase of positive advice irks you the most?” My co-host Devin Axtman responded, “The only disability in life is a bad attitude.” Devin explained his dislike for the phrase, saying “It’s not true and makes it seem like disability is a bad thing.”

Behind the bad stands well-meaning motives. As Veronica noted, “It’s common for teachers to see (say) thinking it helps students try new things.”

In response Devin admitted, “It’s not a terrible sentiment on its face.” However, he pointed out, “If you smile at a flight of stairs, they’re not gonna turn into a ramp.”

Adding to the discussion, I suggested, “the phrase would be better if it just focused on the power of attitude.” Offering the following as an alternative, “Conquering challenges starts with your attitude.” Your turn though to keep the conversation going. Answer for the week’s extend-the-conversation question, “What well-meaning phrase of positive advice irks you the most?”

This week's extend-the-conversation question asks, "What well-meaning phrase of positive advice irks you the most?"

Answer below in the “Comments.” Afterwards, mark your calendar and join us every Wednesday on X. The fun begins at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

#CPChatNow Recap- 01-11-2023

Various topics came and went during the weekly cerebral palsy Twitter chat #CPChatNow Wednesday, January 11th, 2023. To tell you more, I am chat co-host Zachary Fenell. Please join me for your weekly recap.

Early on in the evening, communal vibes strongly emanated.

Hannah stops by #CPChatNow to say hi.

Long-time participant Hannah stopped in to say she missed us all, but physically she did not feel up to participating. I know I am not alone in looking forward to the next time Hannah joins us.

In the meantime, the chat went on.

Zachary asks #CPChatNow how frequently they stretch and what muscles they stretch the most.

To prompt discussion, I asked our community, “How often do you stretch? What muscles do you have to stretch the most?” My co-host Devin Axtman responded, “Not enough that’s for sure!” Admitting, “When I’m feeling tight.” Regarding what muscles he has to stretch the most, Devin said “hamstrings and Achilles mostly.”

Personally, I resonated with Devin’s experiences. Also admitting, “I know I should stretch daily but I also end up stretching when I get tight.” In retrospect stretching daily sounds like a good goal to set. Appropriate, because January 11th, 2023, talk turned to goal setting.

#CPChatNow participants offer advice on setting goals.

The goal setting subject arose after I asked our community, “Has anyone set goals for 2023 to help you be healthier?” Devin replied, “I feel like I’m not good at this. Anyone have tips for setting goals you stick with?”

Timmy and I offered similar advice. I recommended setting measurable goals. For example, in 2023 I am striving to drink two bottles of water for every cup of coffee I consume. Additionally, I suggested making your goal into a habit, noting, “Say you want to read more. Even reading 10 pages of a book a day will eventually add up.”

Simultaneously, Timmy advised, “Make it a habit or use the SMART approach.” Besides making a goal measurable, the SMART approach involves setting goals that are specific, achievable, realistic, and timely.

Another helpful tidbit emerged as the goal setting discussion progressed.

Zachary and Devin discus another key component to goal setting.

Through the dialogue, Devin revealed, “I will slip for a day and feel guilty and then not get back to it.” A temptation I know all too well. However, over time I learned, “The key is not beating yourself up over yesterday’s failures but rather focusing on righting the track today.” Put that wisdom on display and answer for the week’s extend-the-conversation question, “What will you accomplish today?”

Share below! Then before going to work away on your goal, set a reminder to join us for #CPChatNow each and every Wednesday on Twitter. The fun begins at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

Answer for the extend-the-conversation question, "What will you accomplish today?"

Answer below!

#CPChatNow Recap- 12-14-2022

Wednesday after Wednesday people in the cerebral palsy (CP) community gather on Twitter for the live weekly chat #CPChatNow. To tell you all about the chat from Wednesday, December 14th, 2022, I am chat co-host Zachary Fenell. Let us get on with the recap!

An innate ability to understand each other remains one characteristic which has solidified our community. We showcased said understanding December 14th.

Timmy jokes about tripping on his way to the lab in the morning, but not spilling a drop of coffee.

Utilizing our hashtag, Timmy shared some humorous bad news and good news. The bad news, he tripped on his way to the lab in the morning. For the good news, Timmy revealed he did not spill a drop of his coffee! His comedic tweet received eight likes.

Transitioning to a more serious note, Stephen sparked dialogue with a question.

#CPChatNow participants answer Stephen's question, "What is the one thing that you (are) proud of this year?"

Stephen asked the chat, “What is the one thing you (are) proud of this year?” Veronica answered, “My youngest graduated from ASU.” Meanwhile, I stated, “The release of Slow and Cerebral, and the five five-star reviews Amazon readers have given the book.” Replying himself, Stephen shared his pride for, “going back to the exceptional foundation and my involvement in CPChatNow.”

As the night continued, discussion turned to seeing differences positively.

Participants in #CPChatNow discuss how being different has been a good thing for them.

Admittedly, I brought up the topic when sharing a cartoon my uncle sent my way. Within the cartoon a single lopsided Christmas tree stands in a field alongside many tree stumps. A thought bubble with the words, “Hey! Maybe being different is a good thing!” hangs above the lopsided tree. Inspired by the comic, I asked, “How has being different been a good thing for you?”

Answering myself, I explained, “My differences have taught me the importance of representation. Plus CP and my physical inabilities led me to writing and where I am now.” AcquiDis also answered, saying, “Difference causes the individual to reflect of their own norms whether they be in relation to disability, gender, race.”

How about you? Answer for the extend-the-conversation question, “How has being different been a good thing for you?”

Answer below in the comments. Afterwards, set a reminder to join us every Wednesday on Twitter. The fun begins at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

The extend-the-conversation question asks, "How has being different been a good thing for you?"

Celebrating Nine Years of Community!

Happy birthday to everyone in the #CPChatNow community! Saturday, December 3rd, 2022 marked nine years since our first ever Twitter chat. Hence my, #CPChatNow co-founder and co-host Zachary Fenell, reference to December 3rd as our chat’s, “birthday.” Somebody else might prefer the traditional term, “anniversary.” No matter the terminology used, you will probably agree nine years together remains an occasion to celebrate.

Such a celebration has occurred over the last month too. Despite my co-host Devin Axtman and I not getting out our weekly recaps, the chat continues to meet each Wednesday on Twitter, 8pm ET. On Wednesday, November 23rd I mentioned the upcoming nine-year milestone.

Zachary and Chris are wowed by the fact #CPChatNow has been around for nine years.

The fact nine years has passed since our community’s first chat, wowed an enthusiastic fixture in our community, Chris. Reacting to the milestone, Chris tweeted, “9!?!?! Omg! I guess it has been, but wow!” Retweeting Chris’s response, I thanked everyone who has given our community staying power. Those individuals include both long-time community members and new faces. One new face in-particular shared his own #CPChatNow milestone.

#CPChatNow celebrates Stephen's one year anniversary as part of the community.

During the chat Wednesday, November 16th Stephen reminisced about being a part of #CPChatNow for one year. Belonging to our community can prove transformative. A notion supported by conversation held during our weekly chat Wednesday, November 30th.

Zachary asks #CPChatNow participants to fill in the blank and answer, "Thanks to #CPChatNow, I am more (blank)."
Zachary and Devin discuss further ways #CPChatNow has impacted their lives.

With December 3rd approaching, I asked the community to fill in the blank and answer, “Thanks to #CPChatNow, I am more _____.” Devin replied, saying our community has made him more, “confident in my disability identity.” Devin would go on to discuss how #CPChatNow has allowed us to meet, “super cool people that have done stuff with CP,” and “meet people (with CP) all over the country and even the world.”

What about you? Keep the conversation going, and fill in the blank. “Thanks to #CPChatNow, I am more ________.” Even if you do not participate in the actual Twitter chat, feel free to answer. If you read the recaps, you are part of our community. Let us know what about the recaps keeps bringing you back.

Beyond celebrating the past nine years, our community took time to contemplate our future.

Zachary asks participants if they have any concerns about Twitter's future.

Jen answers if she has any concerns about Twitter's new ownership.

Considering Twitter serves as our main platform and 2022 saw a big change in Twitter’s ownership, on Wednesday, November 9th I asked members if anyone had concerns about the platform’s future. Both Chris and Jen expressed concern Twitter will cost money to use. Chris added he, “joined Mastodon just in case Twitter stops being free to use.”

Though, as long as Twitter stays free, you can count on joining us each and every Wednesday on the platform. The fun starts at 8pm ET. Before then, remember to answer the extend-the-conversation question, “Thanks to #CPChatNow, I am more ______.” Fill in the blank below!

Until next time, don’t blend in. Blend out!

-Zachary

Fill in the blank to answer the extend-the-conversation question, "Thanks to #CPChatNow, I am more ______."

#CPChatNow Recap- 10-12-2022

Participants who joined the cerebral palsy (CP) Twitter chat #CPChatNow Wednesday, October 12th, 2022 enjoyed an engaging night of conversation. To tell you more, I am chat co-host Zachary Fenell. Welcome to your weekly recap!

Early in the evening our community bonded over different interests.

Participants in the #CPChatNow community bond over mascot Gritty appearing at WWE Extreme Rules.

My co-host Devin Axtman asked long-time regular and mascot enthusiast Jen, if she saw that Philadelphia Flyers mascot Gritty appeared at WWE Extreme Rules. Knowing Devin and I like wrestling Jen replied, “That’s what I was gonna show y’all.”

Such an ability to connect over interests outside CP helps reinforce our community’s roots. Although, the conversation did naturally transition to CP-related matters.

Those in the #CPChatNow community discuss a current events article about brothers Pierce and Leo Olsen.

Cerebral palsy centered dialogue sparked after I shared a recent story from patch.com, “NJ Teen Got His Little Brother, With Cerebral Palsy, On Football Team.” Devin related to the story, recalling, “That’s exactly what I did, help with film!”

Meanwhile, Chris approached the article skeptically. Her skepticism revolving around the headline’s “inspirational porn” feel. This concern left me posing a question.

Zachary asks #CPChatNow participants to come up with a better title for the article about the Olsen brothers.

In the spirit of fun I asked everyone, “What headline would you have given the story?” Devin suggested, “A Team Adds to a Brotherhood.” Then Devin put the pressure on me, pointing out, “You’re the writer Zach.”

Zachary shares his headline for the article about the Olsen brothers.

For a suggested headline, I recommended, “Teen Brothers Become Unlikely Teammates.” What about you though? Checkout the piece about Pierce and Leo Olsen and then answer for the week’s extend-the-conversation question, “What headline would you give the news story about the Olsen brothers?

Leave your answer in the “Comments.” Afterwards, make sure you set a reminder to join us each and every Wednesday on Twitter. The chat begins at 8pm ET.

Until next time, remember. Don’t blend in. Blend out!

-Zachary

For this week's extend-the-conversation question, let us know, "What headline would you give the news story about the Olsen brothers?"
Answer below!

#CPChatNow Recap- 06-22-2022

Wednesday after Wednesday participants in the weekly cerebral palsy (CP) Twitter chat #CPChatNow enjoy a caring and understanding environment. Such traits remained on display Wednesday, June 22nd, 2022. To tell you more, I am chat co-host Zachary Fenell. Welcome to your weekly recap!

First though, allow me to apologize for the tardy recap. Rather than wasting more time explaining the recap’s lateness, perhaps I should just get into the highlights from the June 22nd, 2022 chat. Shall we?

Participants in #CPChatNow offer each other a supportive environment.

Seeking to start the night off on a positive note, I asked participants to share a highlight from the previous week. Blemi unfortunately reported, “No highlights this week.” She would go on to explain, “It’s been a tough few ones.”

Hannah ended up expressing similar sentiments, indicating Hannah also had no highlights for the week. However, the two did provide each other support. Blemi in-particular reminded everyone, “It’s okay to not be okay too.”

As the dialogue continued, participants discovered a momentary escape from their woes through discussing other subjects.

Participants in #CPChatNow discuss crocs and other footwear.

Daring to delve into a “controversial topic,” Hannah shared her new rainbow Mickey crocs. The footwear reminds her of her late father. Plus, Hannah noted the green Mickey, “made me think of y’all.”

Others responded, sharing their own love for crocs. Blemi detailing she has, “pink sparkly crocs.” Meanwhile Chris said her crocs are green. More importantly, Chris added, “If I’m having a bad spasticity day they’re all I can wear.” Further reason to heed Blemi’s call to, “rock the crocs!”

Keeping the conversation rocking ahead, focus turned to important cerebral palsy research.

#CPChatNow participants discuss work being done by Cerebral Palsy Research Network.

I retweeted a link to a webinar Veronica originally posted with our hashtag. You could watch the webinar, “Grip Strength and Body Composition in Cerebral Palsy Webinar with Ed Hurvitz MD,” below.

In addition to webinars like the above one, Cerebral Palsy Research Network (CPRN) has a program called MyCP. Chris shared a link with more information. Take a look for yourself and decide if the MyCP program might interest you.

Also, keep the discussion going by watching the webinar and answering for the extend-the-conversation question, “What was your main takeaway from the ‘Grip Strength and Body Composition in Cerebral Palsy Webinar’?” Answer below!

Afterwards mark your calendars to join us each and every Wednesday on Twitter. The fun begins at 8pm ET.

Until then, remember. Don’t blend in. Blend out!

-Zachary

Watch the webinar linked to above and then answer for the week's extend-the-conversation question, "What was your main takeaway from the webinar?"
Answer below!

#CPChatNow Recap- 3/16/2022

This past week in #CPChatNow was exciting as always. Members discussed routines they need to get back to, interests CP has contributed to, and what they would do if they did not have CP for a week. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, I would like to share an update about Zach’s upcoming book, Slow and Cerebral.

zack tweeted he is working on edits for his book, slow and cerebral. he hopes to be done by sunday night.

Members also talked about routines they need to get back into.

zach asked about routines members need to get back into. chris tweeted she needs to start physical therapy and being more active. stephen  tweeted he needs to start walking

Members also discussed interests they feel CP has contributed to.

zach asks how cp has influenced people's interests. blemi tweeted she feels she wouldn't be much of a reader. zach tweeted he feels cp led to him being a writer and to grow as a writer. he tweeted this goes back to his interest in cleveland baseball once he realized he wouldn't play baseball. he felt writing would be the next best thing.

Finally, members discussed what they would do if they didn’t have CP for a week.

stephen asked what members would do if they did not have cp for a week

This brings us to our Extend-The-Conversation Question: What would you do if you didn’t have CP?

extend-the-question graphic: what would you do if you didn't have cp for  a week? An image of the days of the week written on sticky notes in front of a gray background