#CPChatNow Recap- 7/15/20

This past week in #CPChatNow was cracking as always. Members discussed various topics like their brags for the day, creating their own podcast, life hacks, and what part of the day they feel at their best.

Zach opened the conversation by asking members what their brag for the day was. He shared that his book is now offered at the library he works at:

zach tweets he spotted his book while working at the library. an image of zach's book on a book shelf between two books.

My brag was advocating to my apartment to finally finish a wheelchair ramp on a sidewalk:

i tweet my brag is advocating to my apartment to finally finish a wheelchair ramp. an image of a wheelchair ramp by a pickup

Travis tweeted about starting his podcast, Off The Crutch.

travis tweeted about starting his podcast, off the crutch. he came up with the name because he uses forearm crutches.

Amanda tweeted a Buzzfeed article with tips for people with limited mobility. This might be helpful for some people with CP.

amanda shared a video from buzzfeed about 35 tips from people with limited mobility

Finally, members discussed what part of the day they felt the best at:

zach asked what part of the day people feel their best at. zach tweets he would've said 7-10 pm in college, but now he said in the morning. i tweeted right after i take a shower, veronica tweeted in the early afternoon.
karen tweeted she feels better at night because she is still sleepy in the morning so she has less balance.

This brings us to our Extend-The-Conversation: What is your favorite part of the day?

the extend the conversation question graphic. a picture of a sunset with a person standing in front of the ocean. extend-the-conversation question in white with what is your favorite part of the day? and the white #cpchatnow logo in the bottom right hand corner

Thank you for reading and join us each Wednesday at 8 Eastern on Twitter at #CPChatNow

-Devin

#CPChatNow Recap- 8-14-2019

This past week in #CPChatNow was buzzing as always! Members talked about various things such as therapy they enjoyed over the years, learning to fall, and disaster preparedness with a disability. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, we start with a dreaded subject when you have CP, falls. This was sparked by a post in The Mighty about falling. Members discussed things such as learning to fall and their fear of falling. Hannah learned to fall so well she taught others!

Zach asks if members have been afraid to fall. Hannah tweeted she never feared it and she taught a teacher's daughter how to fall

Zach shared his fears about falling were largely about messing up large events. I shared I had to wear wrist guards due to fear of hurting myself. Heather did not have to worry about this since her mom is a nurse:

Devin tweets he's not afraid, but mindful, zach tweets his fears are screwing up big events, I tweet that I wore wrist guards on the playground. Heather tweeted she did not, but her mom is a nurse.

Zach had a security meeting at work with problematic representation about those with disabilities in an active shooter situation. Chris tweets about experiencing similar things and disaster planning for earthquakes:

Zach had a security meeting at work with problematic representation about those with disabilities in an active shooter situation.  Chris tweets about experiencing similar things and disaster planning for earthquakes

Zach and Shira tweet about the active shooter preparation video with Zach expressing dismay about the portrayal of wheelchair users. Zach and Shira tweeted about how you might experience issues with speed if you are trying to escape an active shooter situation in a wheelchair:

Zach and Shira tweet about the active shooter preparation video with Zach expressing dismay about the portrayal of wheelchair users.  Zach and Shira tweeted about how you might experience issues with speed if you are trying to escape an active shooter situation in a wheelchair
Zach tweets about getting nervous under pressure and then states he might surprise himself, but both agree they hope they never have to find out

We have talked about some heavy things in this recap, so I would like to end by focusing on a lighter topic. Therapy is a constant in many people’s lives with CP. Zach focused on therapy that was effective for us. Grace and I discussed horse therapy:

Zach tweets and asks about a therapy that helped you. I tweeted I loved horse therapy and Grace tweeted she had it from 6-18. Zach tweets he had PT on a weekly basis from 3 until starting college.

This brings us to our Extend-The-Conversation Question: What was your favorite moment in therapy? Please share your answer in the comments and join us each Wednesday at 8 Eastern at #CPChatNow on Twitter.

A picture of a woman jumping and smiling before a purple sky. What was your favorite moment in therapy? is above her head in white and Extend-The-Conversation-Question is below her in white with a white #CPChatNow in the lower left hand corner.

#CPChatNow Recap- 10-03-2018

With another Wednesday flying by, so too came a new #CPChatNow, your live weekly cerebral palsy Twitter chat. Flying actually proved a main discussion point Wednesday, October 3rd, 2018. I am co-host Zachary Fenell here to tell you more via your weekly recap. Prepare for take off!

Long-time regular Hannah Pike locked coordinates onto the flying topic by asking a question.

Long-time #CPChatNow regular Hannah Pike prepares for an upcoming flight by asking the community for flying advice.Hannah asked the community to share any flying advice. I suggested giving yourself plenty of time to get to your gate. Then I followed up, interested in knowing what mobility devices Hannah plans to bring along. When she mentioned bringing her manual wheelchair, I suggested she listened to Handicap This’ podcast episode discussing traveling in a wheelchair.

Additionally my co-host Devin Axtman offered his firsthand airport experiences.

Devin offers Hannah advice for traveling by plane.

Like me, Devin recommended giving yourself more time than you think you need. He also advised checking your wheelchair at the gate, labeling your chair, taking the seat cushion with you, and avoiding revolving doors. A fellow long-time regular Blemi added her own suggestion.

Blemi recommends Hannah takes the opportunity to board early.

Blemi encouraged Hannah to pre-board when they call anyone who requires more time or extra assistance. Hannah noted she usually struggles to accept such help, but plans to this time around. Blemi empathized, saying she use to resist as well. Devin meanwhile said he uses all the perks, including one nobody else seemed to know existed!

#CPChatNow participants discuss getting their luggage off the luggage carousel.Devin noted you can get assistance getting your luggage off the carousel by saying at the gate you will need help. Welcoming information to Blemi, who previously asked random people to assist her! A move in hindsight she deemed “not the smartest move on my part.” Hannah admitted she probably would’ve done the same without Devin’s insights. Devin credited his wisdom to learning the hard way.

The discussion about flying triggers memories of past chats and makes participants realize how long #CPChatNow has been going.Memories resurfaced while Devin detailed how he learned the hard way. The story sounded familiar to both Hannah and me. Remembering Devin’s bad airport experience triggered a realization. Our community will turn FIVE YEARS OLD come December! Looking to reminisce, I posed a question.

Zachary asks participants to share fond memories of #CPChatNow.I asked participants to recall any specific fond #CPChatNow memories. Rather than naming specifics, Shira recalled how #CPChatNow lessened her feeling alone. Personally, my mind went to a particular train of thought.

#CPChatNow has a special inside joke about trains.This week's extend-the-conversation question asks, "Do you have specific fond memories of #CPChatNow?" Reply in the comments.Over the years the train joke, based off a story Hannah told, continues chugging along. Do not derail the conversation. Keep the dialogue going by answering for the week’s extend-the-conversation question, “Do you have specific fond memories of #CPChatNow?” 

Comment below to reply. Afterwards come create new memories by joining #CPChatNow every Wednesday on Twitter. The fun starts boarding at 8pm ET!

Until next time, remember. Don’t blend in. Blend out!

-Zachary