This past week in #CPChatNow was intriguing as always. Members discussed recent accomplishments and life events and their reason for joining Twitter. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.
I would like to first highlight some cool things going on in member’s lives. Chris has developed a survey attempting to measure what people think students should learn about disability. Please help her out by taking the survey!
Next, Zach shared his progress in the Race Across Ohio. He has walked 43 miles in 18 days towards his 60 mile goal.
Finally, Zach asked what prompted members to join Twitter. Members shared various reasons, but they all centered around community.
This brings us to our Extend-The-Conversation Question: What is the main reason you use social media? Please share your answers in the comments.
Thanks for reading! Please join us each Wednesday at 8 Eastern on Twitter at #CPChatNow.
With the holidays over, we in the #CPChatNow community resumed our regular Wednesday evening schedule January 8th, 2020. To tell you more about the January 8th Twitter chat, I am chat co-host Zachary Fenell. Regular readers will know exactly how I plan to do this. Your weekly recap!
Over the years we within #CPChatNow have enjoyed a few laughs together. A trend which continues chugging along!
My co-host, Devin Axtman, arrived to the chat late because his bus was late to his train. All because the bus ended up stuck behind another train!
Although, the humor does not lay in Devin’s predicament. Rather, the fact Devin’s story involves trains creates the humorous tone. Early in #CPChatNow’s existence Hannah shared a funny story which included a train reference. Ever since simply mentioning trains invokes chuckles from our community’s long-time regulars.
Such a re-occurring joke helped us build a communal feel. Another pillar which allowed us to build our community returns in 2020.
As I shared January 8th, this year will see focus chats return! I noted Devin and I should be ready to announce our first focus chat of the year next week (January 15th). Happily, I am able to confirm we will make this announcement during the January 15th chat. Make sure to join us then!
Also, to ensure we deliver focus chats which interest you, answer as the week’s extend-the-conversation question, “What topics would you like to see focus chats on?” Answer by leaving a reply in the “Comments” section. Your feedback proves vital towards maximizing focus chats’ value.
Perhaps a possible focus chat topic could entail the positives and negatives social media offers the cerebral palsy community. A topic briefly touched upon January 8th.
Curious, I asked participants if they ever regretted posting something to Twitter. Devin replied affirmatively, saying he regrets getting into certain political arguments. His regrets deal less with what he said and more just feeling like the discussions ended up pointless.
Meanwhile Hannah made the insightful point that everyone probably regrets posting something. She continued, noting there are in-person conversations she regrets having too. Quite the relatable sentiment, or so I think.
Anyways, enough about what I think. What do you think would make for a good focus chat in 2020? Remember to answer the week’s extend-the-conversation question. “What topics would you like to see focus chats on?”
Reply below to answer. Afterwards make your plans to join #CPChatNow each and every Wednesday, starting at 8pm ET.
This past week in #CPChatNow was jumping as always. Members discussed things like the perceptions of social media, the perceptions of parents with disabilities and CP, and what the news and society at large gets wrong about CP. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.
#CPChatNow co-host, Zachary Fenell, wrote a blog post, defending social media while talking about the positive impact of #CPChatNow.
Next, the topic of the chat largely turned to society’s perceptions of Cerebral Palsy and what the members wished was different. Zach asked about a common topic in the disability community, news coverage of disability and more specifically CP.
Next, Zach tweeted that he wished news stories focused on what the individual with CP thinks rather than bystanders. Zach feels more people blogging and sharing their experiences will be beneficial.
Zach and I talked about how more direct quotes from the person would be more authentic.
Finally, talk turned to an article Zach shared about an Irish mum with CP using a wheelchair:
I pointed out how it was interesting that the barriers she experienced were attitudinal barriers from the healthcare professionals:
This brings us to our Extend-The-Conversation Question: What are some attitudinal barriers you have experienced in your life?
Thanks for reading! Join us each Wednesday at 8 Eastern on Twitter at #CPChatNow.
Ladies and gentlemen, my name is Zachary Fenell and I am the co-host for the cerebral palsy Twitter chat #CPChatNow. Yet #CPChatNow remains much more than just a Twitter chat. Our participants make up a community. What exactly makes a community, a community though? That question I am able to answer by recapping the Wednesday, June 5th, 2019 chat.
A community disbands isolation, turning seemingly odd quirks into common bonds. Like sneezing and cerebral palsy!
To an able-bodied person, a forthcoming sneeze probably raises one major thought “Better get a Kleenex.” Living with cerebral palsy adds another level to consider. Long-time regular Blemi described sneezing as “a whole body event for me.” I related, sharing I need to brace my lower half before sneezing. Otherwise I might blow myself off balance!
A second aspect to community involves supporting each other, providing concern and encouragement when life’s balance falters. Upon my co-host Devin Axtman literally experiencing this, #CPChatNow proved ready to rise to the occasion.
Devin tweeted he just took a huge fall at a restaurant, but avoided harm. Community member Chris responded, sharing surprise she has not fallen at work yet. Continuing Chris said she began using a cane back in January. Based off her zero falls at work, the cane appears quite helpful.
Meanwhile I asked Devin about the after fall. In my experience people’s reactions can prove more flustering then the actual fall. Devin explained the floor’s weird texture caused his fall to sound extra loud. The loudness left others there to look prior to resuming their own dinners.
Beyond diffusing loneliness and supplying emotional support, community stands a place you may go to ask questions. I took full advantage June 5th, posing a question to our group.
Currently I am working on a blog post, seeking to highlight social media’s positives. Wanting input from others, I asked “How has social media had a positive impact on your life?”
Chris in-part replied she learned a lot about different disabilities and made friends. Should we keep the conversation going?
I agree! Answer as the week’s extend-the-conversation question, “How has social media had a positive impact on your life?” Leave a comment to respond!
Then experience the #CPChatNow community firsthand, joining the chat every Wednesday. The fun begins at 8pm ET.
This past week in #CPChatNow was bustling as always. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.
First, we have to congratulate #CPChatNow member, Timmy Le, for getting accepted to a PhD program at the University of Massachusetts.
Next, members talked about annoying aspects of having a disability like fixing your wheelchair or having to renew a permanent handicap parking placard
Various members talked about the positives and negative impacts of social media. Zach and I talked about negatives like getting addicted to “likes,” but also positives like having access to information you would not have like parents finding community.
Next, members talked about potential figures of speech that are offensive due to disability. Shira and Zach talked about the figure of speech “A leg to stand on”
Finally, I shared my experience as a wheelchair user of people commonly worrying whether saying “Let’s walk over there” is offensive:
This brings us to our Extend-The-Conversation Question: Do you feel social media is a net negative or positive in your life?
Please share your answers in the comments and join us each Wednesday on #CPChatNow on Twitter at 8 Eastern.
Excitement resonated throughout #CPChatNow Wednesday, December 21st. I am co-host Zachary Fenell, tasked with compacting all that enthusiastic energy down into your weekly recap. Hype for a big announcement sparked the initial anticipation.
Multiple community members expressed their excitement for my co-host Blake Henry as he prepares for his next adventure.
Summarizing in my own words the details to Blake’s upcoming opportunity feels underwhelming. Rather I recommend you check out his post for yourself. Read “Blake Henry’s Next Adventure.”
While time ticked away until the interim co-host announcement, our dialogue transitioned to the previous week’s extend-the-conversation question. Special guest Heaven Ramsey asked the question during her “Strength Through Community” focus chat. “Did you feel alone before social media?”
This triggered discussion on the differences various social media platforms provide.
In some ways my explanation echoed sentiments I shared at our “Strength Through Community” focus chat December 14th.
For me chatting with the #CPChatNow regulars week after week I almost feel I know them as persons and not online connections.
The individual Blake and I chose as interim co-host falls into said category. Blake revealed the interim co-host’s identity around 8:30pm ET.
Congratulations to Devin! He deserves the opportunity based off seniority in #CPChatNow, his passion for the community, and more. Certainly though, a community needs more than co-hosts to thrive. Your participation keeps us going strong. Decisions we make as co-hosts aim to best serve you. Therefore your feedback proves vital. You will possess the opportunity to share feedback tomorrow Thursday, December 29th at our year end Google Hangout.
Whether you can make the Hangout or not, please reach out and share your feedback about #CPChatNow. Contact Blake, Devin, or myself. Give your input on how #CPChatNow runs. Plus offer any new suggestions.
Beyond all our exciting community activities, regular Jen turned our attention to holiday festivities. She asked about what you hoped to find under the Christmas tree.
Although Christmas passed, let us maintain the holiday theme with the week’s extend-the-conversation question. This time we concentrate on the giving aspect to the season. Answer “What is a gift you gave this holiday season?”
Leave your response in the “Comments” section below.
Additionally note, #CPChatNow apparel still remains available. At your request we extended the #CPChatNow t-shirt and winter apparel sale to Monday, January 2nd, 2017. A #CPChatNow shirt could make a great belated holiday gift. Or, perhaps you feel like buying yourself a present. Proceeds from the sale go to the non-profit Keep On Keeping On Foundation. So, essentially you still end up giving to someone else!
Go ahead and order your #CPChatNow shirt. Too attend our Google Hangout Thursday, December 29th and share your feedback on our community. Finally, remember to answer the week’s extend-the-conversation question “What is a gift you gave this holiday season?”
Excitement remains abuzz the #CPChatNow community. I am co-host Zachary Fenell, back again. Amidst all the exciting prospects I am tasked to focus and recap the June 8th Twitter chat.
In-part the aforementioned excitement extends to announcements made June 8th.
Now the focus chat news first broke June 3rd, right here on our website! To ensure you stay updated on everything, subscribe to the website. When using a laptop or desktop, you will find the option located on the left hand side bar. On mobile devices scroll down until you see the “Subscribe” forum.
With that plug complete, let me resume recapping. Early conversation segued to chatter about physical therapy.
The ability to relate to physical therapy matters seems small. However, such ability can prove a difference maker. You can especially gain a greater appreciation when remembering a time before social media. A time frame our participants recalled.
Leave your answer in the “Comments” section.
Time for you to share your voice. Regulars know the drill. Go ahead and answer the week’s extend-the-conversation question.
“Before #CPChatNow and social media, did you know anyone else with cerebral palsy? If yes, how did you meet?”
Respond by commenting below. Tweet you shortly during our focus chat on breaking down stereotypes.