#CPChatNow Recap- 9/25/2019

This past week in #CPChatNow was jumping as always. Members discussed things like the perceptions of social media, the perceptions of parents with disabilities and CP, and what the news and society at large gets wrong about CP. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

#CPChatNow co-host, Zachary Fenell, wrote a blog post, defending social media while talking about the positive impact of #CPChatNow.

zach writes a blog defending social media and talks about what a positive impact #CPChatNow has had. I share that people like to focus on the negative

Next, the topic of the chat largely turned to society’s perceptions of Cerebral Palsy and what the members wished was different. Zach asked about a common topic in the disability community, news coverage of disability and more specifically CP.

zach asks what people would like to see change about news stories regarding cp. i shared treating us as normal with boring lives. zach shared he sees many stories where he asks why is this news? linds tweeted about focusing on the abilities they do have. zach expressed frustration that the focus is on the cannot

Next, Zach tweeted that he wished news stories focused on what the individual with CP thinks rather than bystanders. Zach feels more people blogging and sharing their experiences will be beneficial.

zach tweets he wishes news stories focus more on individuals with CP rather than bystanders

Zach and I talked about how more direct quotes from the person would be more authentic.

zach feels more direct quotes could diffuse stigmas and an authentic portrayal. i bemoaned that many stories have one perfunctory quote. zach tweets he wonders why even if people use a communication device.

Finally, talk turned to an article Zach shared about an Irish mum with CP using a wheelchair:

zach asked if parents could relate to the article. veronica said no because she was mild and she had no issues caring for her children. dave smith tweets stories like this allow people to escape, tweets about her support and fan base.

I pointed out how it was interesting that the barriers she experienced were attitudinal barriers from the healthcare professionals:

I tweeted about the attitudinal barriers from the healthcare professionals. Zach points out that barriers form attitudes are a lot more difficult to navigate than physical barriers

This brings us to our Extend-The-Conversation Question: What are some attitudinal barriers you have experienced in your life?

Thanks for reading! Join us each Wednesday at 8 Eastern on Twitter at #CPChatNow.

-Devin

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#CPChatNow Recap- 06-05-2019

Ladies and gentlemen, my name is Zachary Fenell and I am the co-host for the cerebral palsy Twitter chat #CPChatNow. Yet #CPChatNow remains much more than just a Twitter chat. Our participants make up a community. What exactly makes a community, a community though? That question I am able to answer by recapping the Wednesday, June 5th, 2019 chat.

A community disbands isolation, turning seemingly odd quirks into common bonds. Like sneezing and cerebral palsy!

#CPChatNow participants discuss the worst time to have to sneeze.

To an able-bodied person, a forthcoming sneeze probably raises one major thought “Better get a Kleenex.” Living with cerebral palsy adds another level to consider. Long-time regular Blemi described sneezing as “a whole body event for me.” I related, sharing I need to brace my lower half before sneezing. Otherwise I might blow myself off balance!

A second aspect to community involves supporting each other, providing concern and encouragement when life’s balance falters. Upon my co-host Devin Axtman literally experiencing this, #CPChatNow proved ready to rise to the occasion.

#CPChatNow participants give Devin emotional support after he fell.

Devin tweeted he just took a huge fall at a restaurant, but avoided harm. Community member Chris responded, sharing surprise she has not fallen at work yet. Continuing Chris said she began using a cane back in January. Based off her zero falls at work, the cane appears quite helpful.

Meanwhile I asked Devin about the after fall. In my experience people’s reactions can prove more flustering then the actual fall. Devin explained the floor’s weird texture caused his fall to sound extra loud. The loudness left others there to look prior to resuming their own dinners.

Beyond diffusing loneliness and supplying emotional support, community stands a place you may go to ask questions. I took full advantage June 5th, posing a question to our group.

Zachary seeks insights from others for a blog post, "Defending Social Media."

Currently I am working on a blog post, seeking to highlight social media’s positives. Wanting input from others, I asked “How has social media had a positive impact on your life?”

Chris in-part replied she learned a lot about different disabilities and made friends. Should we keep the conversation going?

I agree! Answer as the week’s extend-the-conversation question, “How has social media had a positive impact on your life?” Leave a comment to respond!

Then experience the #CPChatNow community firsthand, joining the chat every Wednesday. The fun begins at 8pm ET.

Until then remember. Don’t blend in. Blend out!

-Zachary

This week's extend-the-conversation question asks, "How has social media had a positive impact on your life?"
Reply below in the “Comments.”

#CPChatNow Recap 1-23-2019

This past week in #CPChatNow was bustling as always. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

First, we have to congratulate #CPChatNow member, Timmy Le, for getting accepted to a PhD program at the University of Massachusetts.

Timmy announces acceptance to a PhD program

Next, members talked about annoying aspects of having a disability like fixing your wheelchair or having to renew a permanent handicap parking placard

I talked about getting my chair fixed. Zach and Blemi talked about having to renew a prescription or pay for a placard

Various members talked about the positives and negative impacts of social media. Zach and I talked about negatives like getting addicted to “likes,” but also positives like having access to information you would not have like parents finding community.

Zach and I talked about getting addicted to "likes," but also having access to information you would not have like parents with a CP diagnosis.

Next, members talked about potential figures of speech that are offensive due to disability. Shira and Zach talked about the figure of speech “A leg to stand on”

Shira and Zach talked about the figure of speech "A leg to stand on" and wondered if it would be offensive

Finally, I shared my experience as a wheelchair user of people commonly worrying whether saying “Let’s walk over there” is offensive:

We tweeted about whether figures of speech were offensive. I shared many people worried whether the figure of speech "Let's walk over there" is offensive

This brings us to our Extend-The-Conversation Question: Do you feel social media is a net negative or positive in your life?

This week's extend-the-conversation question  asks "Do you feel social media is a net negative or positive in your life?"

Please share your answers in the comments and join us each Wednesday on #CPChatNow on Twitter at 8 Eastern.

-Devin

#CPChatNow Recap- 12-21-2016

Excitement resonated throughout #CPChatNow Wednesday, December 21st. I am co-host Zachary Fenell, tasked with compacting all that enthusiastic energy down into your weekly recap. Hype for a big announcement sparked the initial anticipation.

Zachary teases the announcement of a new interim co-host.Multiple community members expressed their excitement for my co-host Blake Henry as he prepares for his next adventure.

#CPChatNow community members express their excitement for co-host Blake Henry's upcoming adventure.Summarizing in my own words the details to Blake’s upcoming opportunity feels underwhelming. Rather I recommend you check out his post for yourself. Read “Blake Henry’s Next Adventure.”

While time ticked away until the interim co-host announcement, our dialogue transitioned to the previous week’s extend-the-conversation question. Special guest Heaven Ramsey asked the question during her “Strength Through Community” focus chat. “Did you feel alone before social media?”

Lindsay takes time to answer the extend-the-conversation question from the December 14th focus chat "Strength Through Community.".This triggered discussion on the differences various social media platforms provide.

#CPChatNow discusses how different social media platforms provide different support systems.In some ways my explanation echoed sentiments I shared at our “Strength Through Community” focus chat December 14th.

For me chatting with the #CPChatNow regulars week after week I almost feel I know them as persons and not online connections.

The individual Blake and I chose as interim co-host falls into said category. Blake revealed the interim co-host’s identity around 8:30pm ET.

Devin Axtman will take over as #CPChatNow interim co-host while Blake studies in Europe during the spring 2017 semester.Congratulations to Devin! He deserves the opportunity based off seniority in #CPChatNow, his passion for the community, and more. Certainly though, a community needs more than co-hosts to thrive. Your participation keeps us going strong. Decisions we make as co-hosts aim to best serve you. Therefore your feedback proves vital. You will possess the opportunity to share feedback tomorrow Thursday, December 29th at our year end Google Hangout.

December 2016 #CPChatNow Google Hangout AnnouncementWhether you can make the Hangout or not, please reach out and share your feedback about #CPChatNow. Contact Blake, Devin, or myself. Give your input on how #CPChatNow runs. Plus offer any new suggestions.

Beyond all our exciting community activities, regular Jen turned our attention to holiday festivities. She asked about what you hoped to find under the Christmas tree.

#CPChatNow share what they want for Christmas. Although Christmas passed, let us maintain the holiday theme with the week’s extend-the-conversation question. This time we concentrate on the giving aspect to the season. Answer “What is a gift you gave this holiday season?”

Answer for the extend-the-conversation question, "What is a gift you gave this holiday season?"Leave your response in the “Comments” section below.

Additionally note, #CPChatNow apparel still remains available. At your request we extended the #CPChatNow t-shirt and winter apparel sale to Monday, January 2nd, 2017. A #CPChatNow shirt could make a great belated holiday gift. Or, perhaps you feel like buying yourself a present. Proceeds from the sale go to the non-profit Keep On Keeping On Foundation. So, essentially you still end up giving to someone else!

Go ahead and order your #CPChatNow shirt. Too attend our Google Hangout Thursday, December 29th and share your feedback on our community. Finally, remember to answer the week’s extend-the-conversation question “What is a gift you gave this holiday season?”

Comment away!

-Zachary

 

#CPChatNow Recap- 06-08-2016

Excitement remains abuzz the #CPChatNow community. I am co-host Zachary Fenell, back again. Amidst all the exciting prospects I am tasked to focus and recap the June 8th Twitter chat.

In-part the aforementioned excitement extends to announcements made June 8th.

#CPChatNow co-host Zachary Fenell announces Zach Wood will lead a focus chat on breaking down stereotypes Wednesday, June 15th.Co-host Blake Henry announces the date for #CPChatNow's monthly Google Hangouts video chat.Now the focus chat news first broke June 3rd, right here on our website! To ensure you stay updated on everything, subscribe to the website. When using a laptop or desktop, you will find the option located on the left hand side bar. On mobile devices scroll down until you see the “Subscribe” forum.

Subscribers know another reason for the recent #CPChatNow enthusiasm. Yes! I am talking about the #CPChatNow t-shirts and tank tops sale. Long awaited news I first made public here. Learn more about the sale. Then purchase your own #CPChatNow gear to wear.

With that plug complete, let me resume recapping. Early conversation segued to chatter about physical therapy.

Early conversation segued to discussion on physical therapy.#CPChatNow community members share how physical therapists had them deal with pain in physical therapy.The ability to relate to physical therapy matters seems small. However, such ability can prove a difference maker. You can especially gain a greater appreciation when remembering a time before social media. A time frame our participants recalled.

Our community recalls the time before #CPChatNow and social media.More reflection on life before #CPChatNow and social media

Answer "Before #CPChatNow and social media, did you know anyone else with cerebral palsy? If yes, how did you meet?"

Leave your answer in the “Comments” section.

Time for you to share your voice. Regulars know the drill. Go ahead and answer the week’s extend-the-conversation question.

“Before #CPChatNow and social media, did you know anyone else with cerebral palsy? If yes, how did you meet?”

Respond by commenting below. Tweet you shortly during our focus chat on breaking down stereotypes.

-Zachary