Tag Archives: weather

#CPChatNow Recap

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We’re going to switch things up a bit this week by recapping the last two chats in #CPChatNow. Members discussed dancing, advocating, pain, and doing a 5k. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.

First, we would like to congratulate Zach for recently completing a 5k!

a picture of zach at a 5k in a Robin costume

Also, Zach asked members if they are self-conscious about dancing,

zach asks if there are songs that make people dance, i tweet it is come on elieen for my wife and i, zach tweets he used t be conscious about dancing, i tweet i don't dance alone, but i don't care what other people think

Finally, Zach, Casey, and Veronica talked about feeling more pain and spasticity in the cold weather.

zach, casey, and veronica discussing spasticity in cool weather and changes

Now this comes to our Extend-The-Conversation Question: What is your favorite way to exercise?

Thanks for reading and join us at 8 Eastern at #CPChatNow on X!

-Devin

#CPChatNow Recap- 12/7/22

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This past week in #CPChatNow was hopping as always. Members talked about the cold, falling and the difficulty of getting up with age, and what they want for Christmas. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap. All aboard!

First, I would like to highlight a cool thing the library Zach works at did, showcase his book Slow and Cerebral!

an image of zach posting in front of copies of his book at his library

A common topic for people with CP dominated the chat, falling and getting up. Members discussed whether they feel falls more in cold or warmer temperatures. The consensus was cold weather is worse because members feel more stiff.

zach asks if members find there's a difference falling in cold or warm weather, i tweeted that my body tends to be more sore and stiff. zach tweeted he fell during a 5k and used his friend to get up because the cold had him feeling stiff. he finished 726th out of 743.
regina tweeted she feels more stiffness with cold weather. zach asks if she has found any ways to reduce the stiffness, stating he tries stretching and exercising. she tweeted she stretches and does light exercises which help easing leg cramps.

Talk about falls continued with members discussing the difficulty of getting up as they advanced in age.

zach asked what age people started having difficulty getting up after falling. i tweet i have noticed a huge difference in the last few years. zach said he became cautious after he sprained his groin, but he's fallen a few times without complication since then.
chris tweets she has had difficulty getting up after falling and they are working on it in PT. She tweets 911 has had to be called sometimes.

Finally, talk turned to what members wanted for Christmas.

stephen asked what everyone wants for christmas, zach wants a backrest for his computer chair that gives him more support than the pillow. stepehn is getting a retro mimi fridge.

This brings us to our Extend-The-Conversation-Question: What is on your holiday wish list?

extend-the-conversation question graphic: what is on your holiday wishlist with picture of christmas tree in woods

Please share your answers in the comments and join us tomorrow on Twitter at 8 Eastern on #CPChatNow!

-Devin

#CPChatNow Recap- 4/24/2019

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Hello Internet! #CPChatNow was buzzing last week. Members talked about walking in the rain, their favorite photo of themselves, and the need for rails while using stairs.

Zach and I lamented about recent experiences while walking and rolling in the rain.

i tweeted about needing a wheelchair umbrella and my poncho died on the way home, zach tweeted he needed a hat umbrella and that kind people recently gave him a ride home

Next, Zach shared one of his favorite photos of himself being near his goal of completing a marathon:

zach sharing his favorite photo of him passing mile marker 25 during his marathon

Zach asked about what side of the street members with Hemiplegic Cerebral Palsy prefer to face. This then morphed into a conversation about stairs and handrails:

zach asked about which side of the street members with hemiplegic cp prefer to face. jeni tweeted no preference, but she prefers to walk on the inside of the sidewalk if possible
ciaran tweeted he likes to have a railing on his unaffected side, zach tweeted he likes his good leg facing the street, zach goes without railings to build his balance, i tweeted lack of railings was an issue at wrigley field
zach tweeted he has been to wrigley and saw the cubs and brewers play in 2013 when he only went up one steps. zach also lamented the gap between gymnasium rails and the strategy he uses to move to the next rail

This brings us to our Extend-The-Conversation Questions (for the hemis): Are there particular things you like to do with you non-affected side?

Thanks for reading! Join us each Wednesday at 8pm Eastern on Twitter. Use the hashtag #CPChatNow!

#CPChatNow Recap- 10-17-2018

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This past week’s #CPChatNow Twitter chat was lively as always.  Members talked about their latest accomplishments, the newest season of Speechless, a runner with CP being signed to a pro contract by Nike, and changes in the weather.  This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.

Timmy shared his latest research that he presented at a conference.  Great work Timmy!

Timmy tweeted about presenting his latest research at a conference. There is an image of Timmy presenting at a conference.

Next, members talked about the ongoing third season of Speechless on ABC.

Zach tweeted about episode 3 of Speechless having nothing to do with disabilities. I tweeted about liking the 2nd episode. We had mixed feelings about "The wrong ones are non verbal joke"

Jen and Zach talked about the miserable weather in Texas and Cleveland:

Zach and Jen talking about cold, rain, and hail in Texas and Cleveland

Jen and Zach also tweeted about their hatred for severe weather and tornado sirens:

Jen tweeted about she gets nervous about tornadoes and tornado warnings

Finally, Zach tweeted about Justin Gallegos, the runner with CP who got a professional running contract with Nike.  Please check out the video in this tweet.  Please note that Justin has asked to have the phrase “suffers from CP” changed to “lives with CP.” We couldn’t agree more Justin.  Run on!

Zach tweets about Justin Gallegos' contract with Nike and that he loves that he is just an athlete to Nike

This brings us to our Extend-The-Conversation Question: What are other types of representation you feel Cerebral Palsy or disability needs?  Share your answer in the comments!

A green background with Extend-The-Conversation at the top and What are other types of representation you feel Cerebral Palsy or disability needs? at the bottom in yellow. The white #CPChatNow logo is at the bottom left

Tweet you later!

-Devin